Bermuda Triangle Magic Triangles………. Rules of procedures European Congress ECE Regional...
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Transcript of Bermuda Triangle Magic Triangles………. Rules of procedures European Congress ECE Regional...
Rules of procedures
European Congress ECE
Regional Organisation
Education
Quality - Availability of Care / AEDs
Scientific cooperation / Research
Communication
Finances
Commission on European AffairsReport on Activities (July 2006)
European Congresses on Epileptology ECE
• Oporto 1994• Den Hague 1996• Warsaw 1998• Florence 2000• Madrid 2002• Vienna 2004
• Helsinki 2006
• Berlin 2008
• ?? 2010• ?????? 2012
Post Congress Satellite in St Petersburg
Co-organisation Germany / Israel in Berlin 2008
0 5 10 15 20
AustriaBelarusBelgium
Czech RepublicEstoniaFinlandFrance
GeorgiaGermanyHungary
IsraelItaly
LithuaniaMacedonia
MoldovaNetherlands
PolandPortugal Romania
RussiaSerbia & Montenegro
SpainSwedenTurkey
UKUkraine
Yugoslavia
Travel Bursaries for ECE: 2002-2004-2006
# 50 Travel bursaries per ECECriteria: • Working in a European Institution• Under 40 years • First author of an accepted abstractIncludes:
-Complimentary Registration-3 Nights Accommodation-€250 towards travel
CEA
Residential CoursesTeaching Courses
Education: CEA Action Plan
Distant EducationTrainer’s coursesLusophone eduFrancophone eduEdu for PAMsEtc…..
Year 2006 2007 2008 2009 2010 ?
Residential Course
Eilat
Migrating
CourseSerbia Lithuania
San Servolo
International ILAE
CEA Co-financing
CEA Co-financing
CEA Co-financing
CEA Co-financing
?
CEA
Residential CoursesTeaching Courses
Education: CEA Action Plan
• Discussion group with the European Medecine Agency
• Status Epilepticus: – Workshop on European Guidelines for the treatment of SE
(London, April 2007 )– EFNS Main Session in Brussels (August 2007)
• Rare Diseases Task Force in liaison
with the EU Commission / Orphan Drug Programmes
In Liaison with the ILAE Commission on Therapeutic Strategies
Quality / Availability of Care / AEDs
• Collaboration with the Rare Diseases Task Force in liaison with the EU Commission– Identifying the epileptic disorders that fulfill the definition of
rare diseases• Ex: epileptic encephalopathies, PME, Rasmussen, etc
– Developing the concept of Centres of Reference – Communication actions (website, database ORPHANET,
Journal or Rare diseases)– Optimizing the continuity of care between paediatrics and
adult neurology units– Promoting innovative therapies / Orphan drugs
Tuesday July 4th 07.30-09.00 Orphan Drug Symposium
• The concept of rare or orphan diseases in epilepsy Baulac, M (France)
• Review of the EU orphan drug program - applicability to epileptic diseasesS. del Signore (EMEA Representative)
• Overview of brivaracetam for progressive myoclonus epilepsies (UCB)von Rosenstiel, P (Belgium)
• Overview of stiripentol for SMEI (Biocodex)Chiron, C (France)
+ Kyrg• Stimulate Integration
• Support collaborative projects, regional or sub-regional initiatives
• Taking into account the local economical realities and the needs of the countries with limited resources
Regional Organisation
• Supportive role in large scale collaborative studies– EURAP (pregnancy registry)– EU calls for Research (FP 6th, FP 7th)
• Participation to the FONDE study (EUCARE)• AEDs Trials?• Genetics, Epidemiology, Tissue banks
• Fellowships?
Scientific Cooperation / Research
• ILAE website
• EUCARE (Action at the EU Parliament)
• Global Campaign
• Societies (EFNS, EPNS)
• IBE
Communication
Communication with the Chapters
Reinforce the role of: the European Advisory Concil (EAC)the Chapter Convention
CEA Bursaries for Chapter Conventions
• Initiated in Vienna in 2004 to ensure participation of Chapter Delegates in the European Chapter Convention
• 16 people from Kazakhstan, Croatia, Turkey, Ukraine, Macedonia, Hungary, Yugoslavia, Russia, Azerbaijan, Armenia, Georgia, Bulgaria, Moldova, Slovenia, Latvia, Lithuania, Estonia assisted
• Programme expanded to assist Chapters on 2 levels for the 7th ECE in Helsinki:
• Special bursary offered to one representative of 22 Central & Eastern European Chapters (based on GNP figures of the World Bank) – comprising registration, accommodation & travel support
• One other registered delegate was offered accommodation support for 1 night in order to facilitate attendance at the Chapter Convention
• Milda Endziniene (Lithuania)• Alla Guekht, EAC Chair,(Russia)• Cigdem Ozkara, CEA Secretary, (Turkey)• Bettina Schmitz (Germany)• Michel Baulac, CEA Chair, (France)• Meir Bialer, CEA Treasurer, (Israel)• Peter Halasz (Hungary)• Svein Johannessen, EAC secretary, (Norway)• Frederico Vigevano (Italy)
Working Groups• Education: M Endziniene, M Bialer, B Schmitz, A Guekht, P Halasz, P Wolf
• Rules: F Vigevano, M Bialer, S Johannessen
• Relationships with European Organisations, EMEA,..: M Baulac, M Bialer, A Guekht
• Cooperation / Regional initiatives: A Guekht, S Johannessen, M Endziniene, M Bialer
• Scientific collaboration / Research: P Halasz, C Ozkara, F Vigevano
• Communication, Global Campaign: C Ozkara, S Johannessen
Peter Wolf
EC Members
Commission on European Affairs
Chapters
Sub regional organisation ?
EAC ProposalsEvaluations of needsMotivation of Chapters
CEABUDGET
Education Quality care
Regional
Inter reg.
initiatives
Congress Scientific
cooperation
Research Communication
Liaison
Written rules, statutesEvaluation (Bursaries, fellowships) CentralizedScientific cooperationEducation (liaison ILAE commission) Edu coursesEMEA / CEA
Regional Inter reg.initiatives……..
ConventionsSurveysOthers…
Newsletter
BUDGET
IOC / SAC