Com

mun

icatio

n Ch

allen

ges a

nd

Stra

tegi

es fo

r Help

ing

Peop

le W

ith

Dem

entia

Toda

y’s P

rese

nter

s:

Kar

la B

elze

rCh

else

y B

yers

kbel

zer@

illin

ois.

edu

clby

ers@

illin

ois.

edu

Toda

y we w

ill di

scus

s…

1.Th

e di

ffer

ence

bet

wee

n A

lzhe

imer

’s a

nd D

emen

tia2.

Beh

avio

rs th

at c

an c

ause

car

egiv

ers,

frie

nds a

nd v

isito

rs

stre

ss3.

Com

mon

com

mun

icat

ion

prob

lem

s ind

ivid

uals

with

de

men

tia h

ave

4.St

rate

gies

for b

ette

r int

erac

tions

and

vis

its

4

Dem

entia

vs.

Alzh

eimer

's?

56666666

Type

s of d

emen

tias

Alz

heim

er’s

Dis

ease

Chr

onic

Tra

umat

ic

Ence

phal

opat

hy (C

TE)

Cre

utzf

eldt

-Jak

obFr

onto

tem

pora

l (FT

D)

Hun

tingt

on’s

Dis

ease

Lew

y B

ody

Mix

ed D

emen

tias

Nor

mal

Pre

ssur

e H

ydro

ceph

alus

Park

inso

n’s r

elat

ed D

emen

tiaPo

ster

ior C

ortic

al A

troph

yV

ascu

lar D

emen

tiaW

erni

cke-

Kor

sako

ff S

yndr

ome

*Rev

ersi

ble

Dem

entia

s7

Bra

in A

trop

hy

Are

as m

ost a

ffec

ted

by A

lzhe

imer

's D

isea

se

Seve

n Do

main

s Affe

cted

by A

lzheim

er’s

1.M

emor

y2.

Orie

ntat

ion

3.Ju

dgm

ent/p

robl

em so

lvin

g4.

Lang

uage

5.M

otor

/phy

sica

l6.

Act

iviti

es o

f Dai

ly L

ivin

g (A

DLs

)7.

Moo

d

How

does

it fe

el….

12

Comm

on “B

ehav

iors”

Asso

ciated

with

Dem

entia

:

Ang

er/a

gita

tion

Agg

ress

ion

Slee

p pr

oble

ms

Para

noia

/del

usio

ns/

hallu

cina

tions

Prob

lem

s/re

sist

ance

with

A

DLs

(bat

hing

, dre

ssin

g)In

appr

opria

te so

cial

and

/or

sexu

al b

ehav

ior

Get

ting

lost

/wan

derin

g,

wan

ting

to g

o ho

me

Sund

owni

ngC

atas

troph

ic re

actio

nsR

umm

agin

gR

epet

itive

act

ions

Cry

ing

out/l

oud

verb

aliz

atio

ns

that

are

inco

here

ntLo

okin

g fo

r peo

ple

13

Beha

viors

are a

pro

blem

whe

n…

Safe

ty o

r wel

l bei

ng o

f the

indi

vidu

al o

r ano

ther

per

son

is c

ompr

omis

edA

trig

ger o

r cau

se c

anno

t be

iden

tifie

d

Mos

t beh

avio

rs a

re a

nui

sanc

e -

NO

T a

pro

blem

.

Wha

t sho

uld yo

u do w

hen y

ou se

e a

perso

n with

deme

ntia e

xpre

ss a

beha

vior?

Poss

ible

Trig

gers

of B

ehav

iors

Dis

ease

Pro

cess

Unm

et N

eeds

Phys

ical

Psyc

hoso

cial

Envi

ronm

ent

Pain

Com

mun

icat

ion

Car

egiv

er A

ppro

ach

Dise

ase P

roce

ssSh

ort a

ttent

ion

span

Poor

judg

men

tM

emor

y lo

ssPo

or c

once

ntra

tion

Dis

orie

ntat

ion

Con

fusi

onC

omm

unic

atio

n pr

oble

ms

Hal

luci

natio

nsIn

abili

ty to

han

dle

stre

ss

Asse

ss P

hysic

al Ne

eds

Phys

ical

Nee

dsPh

ysic

al c

omfo

rtN

utrit

ion/

hydr

atio

nSl

eep/

rest

Elim

inat

ion

Exer

cise

Phys

ical

hyg

iene

Pain

Asse

ss E

mot

iona

l Nee

ds

Emot

iona

l Nee

ds1.

Love

2.C

omfo

rt 3.

Iden

tity

4.O

ccup

atio

n5.

Incl

usio

n6.

Atta

chm

ent

Asse

ss th

e Env

ironm

ent

All

peop

le re

quire

som

e co

ntro

l ove

r the

ir en

viro

nmen

tO

ver s

timul

ated

or u

nder

stim

ulat

ed?

Tem

pera

ture

Noi

seLi

ght

Smel

lsTh

ings

Act

iviti

esTi

me

of th

e da

y

Asse

ss th

e Pos

sibilit

y of P

ain?

“Beh

avio

rs” t

hat c

ould

be a

ssoc

iated

with

pain

Phys

ical

Agg

ress

ion

Res

ista

nce

to c

are

New

or i

ncre

ased

vo

caliz

atio

nsW

ande

ring

Cry

ing/

sadn

ess

Gra

bbin

g on

to st

aff

Cha

nge

in d

ispo

sitio

n

Grim

acin

gG

uard

ing

Rub

bing

/touc

hing

Fidg

etin

gFo

ot fi

dget

ing

Loss

of a

ppet

ite/w

eigh

tFa

llsC

hang

e in

slee

p pa

ttern

s

23

Wha

t mak

es u

p co

mm

unic

atio

n?

Com

mun

icatio

n

Wor

ds o

nly

acco

unt f

or _

____

% o

f co

mm

unic

atio

n.

Tone

of v

oice

acc

ount

s for

___

_%of

co

mm

unic

atio

n.

Bod

y la

ngua

ge a

ccou

nts f

or _

___%

of

com

mun

icat

ion.

24

25

Let’s

See

You

Can’

t Say

It A

ll With

Wor

ds

Wor

ds o

nly

acco

unt f

or

7%of

com

mun

icat

ion.

Tone

of v

oice

acc

ount

s fo

r 3

8%of

com

mun

icat

ion.

Bod

y la

ngua

ge a

ccou

nts

for

55%

of c

omm

unic

atio

n.

.

Wha

t is s

he co

nvey

ing?

27

Com

mun

icatio

nch

allen

ges o

ften

seen

in

indi

vidua

ls wi

th d

emen

tia

Wor

d-fin

ding

diff

icul

tyR

epet

ition

Una

ble

to re

ad/u

nder

stan

d w

ritte

n co

mm

unic

atio

nR

ever

t bac

k to

thei

r nat

ive

lang

uage

Loss

of a

bilit

y to

spea

k in

cle

ar se

nten

ces

Loss

of a

bilit

y to

und

erst

and

Una

ble

to u

se w

ords

atio

n

Com

mun

icatio

n Te

chni

ques

Use

pre

ferr

ed n

ame

Min

imiz

e di

stra

ctio

nsK

eep

it si

mpl

eU

se th

eir i

nter

ests

Use

a p

rop

Take

the

pres

sure

off

Res

pect

feel

ings

Com

mun

icatio

n Te

chni

ques

Be

atte

ntiv

e to

you

r:B

ody

lang

uage

Tone

of v

oice

Ges

ture

sFa

cial

ex

pres

sion

s

Avo

id: Ta

lkin

g lo

uder

Com

man

dsA

skin

g m

emor

y qu

estio

nsA

rgui

ngLo

ng e

xpla

natio

ns

Care

give

r App

roac

h

Slow

ly

From

the

fron

tG

et th

eir a

ttent

ion

Stan

d of

f to

the

side

Get

dow

n on

thei

r lev

elH

ave

a w

arm

dem

eano

rIn

trodu

ce y

ours

elf

Off

er a

han

d313

3232

Ever

yday

Sol

utio

nsSt

ep In

to th

eir W

orld

Val

idat

e fe

elin

gsof

the

pers

on

Val

idat

e th

e re

side

nts’

real

ity o

f wha

t is

happ

enin

g

Prev

entio

n is

Bes

t

Add

ress

unm

et n

eeds

Hon

or th

e pe

rson

’s ro

utin

e/kn

ow th

e pe

rson

Sim

plify

the

task

s A

dapt

the

envi

ronm

ent

Use

succ

essf

ul c

omm

unic

atio

n te

chni

ques

“Whe

re is

my m

om?”

363333363363636363363636363636636363636363363333636636633636363636633333633336336333666333336366666633366363333363333333

“I wa

nt to

go

hom

e”

37

Help

ing

in th

e day

to d

ay…

38

Dist

ract

ion

or re

dire

ctio

n

39

Seve

n Ti

ps fo

r Car

egivi

ng

1. P

reve

ntio

n is

bes

t 2.

Wat

ch y

our a

ppro

ach

and

alw

ays u

se

good

com

mun

icat

ion

skill

s3.

Use

val

idat

ion

tech

niqu

es4.

Re-

dire

ct a

nd d

istra

ct in

divi

dual

Seve

n Ti

ps fo

r Car

egivi

ng

5. S

impl

ify e

nviro

nmen

t6.

Hon

or ro

utin

es7.

Sim

plify

task

and

allo

w a

s muc

h in

depe

nden

ce a

s pos

sibl

e

I Will

–Mich

ele D

eSoc

ioW

hen

you

forg

et I

will

rem

embe

r for

us b

oth

Whe

n yo

u ge

t los

t I w

ill fi

nd y

ou

Whe

n yo

u ar

e sa

d I w

ill b

e sa

d w

ith y

ou

Whe

n th

e fe

ar c

omes

I w

ill c

omfo

rt yo

u

Whe

n yo

u cr

y I w

ill d

ry y

our t

ears

Whe

n yo

u la

sh o

ut a

t me

I will

not

be

angr

y

Whe

n yo

u re

peat

I w

ill h

ave

patie

nce

Whe

n yo

u fo

rget

my

nam

e I w

ill u

nder

stan

d

Whe

n yo

u ca

n no

long

er e

at I

will

feed

you

Whe

n yo

ur le

gs fa

il I w

ill c

arry

you

Whe

n yo

u lo

ng fo

r hom

e I w

ill b

e yo

ur sa

fe p

lace

Whe

n yo

ur jo

urne

y is

end

ing

I will

be

by y

our s

ide

I will

love

you

for e

tern

ity

I Will

...

-Mic

hele

DeS

ocio

Fam

ily L

ife B

log

Fam

ily F

iles:

Fa

cts

for A

ll Ag

esht

tp://

go.il

linoi

s.ed

u/fa

mily

files

Plac

e yo

ur sc

reen

shot

her

e

44

Stat

ewid

e Ex

tens

ion

Web

site

:ht

tp://

web

.ext

ensi

on.

illin

ois.e

du

45

THAN

K YO

U!CR

EDIT

S

Spec

ial t

hank

s to

all t

he p

eopl

e w

ho m

ade

and

rele

ased

thes

e aw

esom

e re

sour

ces f

or fr

ee:

Pres

enta

tion

tem

plat

e by

Slid

esC

arni

val

Phot

ogra

phs b

y U

nspl

ash

46

PRES

ENTA

TION

DES

IGN

This

pre

sent

atio

n us

es th

e fo

llow

ing

typo

grap

hies

and

col

ors:

Title

s: O

swal

dB

ody

copy

: Tin

os

You

can

dow

nloa

d th

e fo

nts o

n th

ese

page

s:

http

s://w

ww

.font

squi

rrel

.com

/font

s/os

wal

d· h

ttps:

//ww

w.fo

ntsq

uirr

el.c

om/fo

nts/

tinos

You

don’

t nee

d to

kee

p th

is sl

ide

in y

our p

rese

ntat

ion.

It’s

onl

y he

re to

serv

e yo

u as

a d

esig

n gu

ide

if yo

u ne

ed to

cre

ate

new

slid

es o

r dow

nloa

d th

e fo

nts t

o ed

it th

e pr

esen

tatio

n in

Pow

erPo

int®

47

Slid

esC

arni

val i

cons

are

edi

tabl

e sh

apes

.

This

mea

ns th

at y

ou c

an:

●R

esiz

e th

em w

ithou

t los

ing

qual

ity.

●C

hang

e fil

l col

or a

nd o

paci

ty.

Isn’

t tha

t nic

e? :)

Exam

ples

:

48

Now

you

can

use

any

em

oji a

s an

icon

!A

nd o

f cou

rse

it re

size

s w

ithou

t los

ing

qual

ity a

nd y

ou c

an c

hang

e th

e co

lor.

How

? Fo

llow

Goo

gle

inst

ruct

ions

ht

tps:

//tw

itter

.com

/goo

gled

ocs/

stat

us/7

3008

7240

1566

4332

8

and

man

y m

ore.

..49