Patient-Centric Methodology:Tools and Techniques to Advocate for Patient Needs
Be Your Own Patient Advocate (Really!)
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Transcript of Be Your Own Patient Advocate (Really!)
Women + Healthcare
This presentation was built for
HCA Virginia's Spirit of WomenGirls' Day Out on Oct. 7, 2011
(the message works for ALL women!)
... 'cause you'll do the best job. Really.
Be Your Own Patient
Advocate
Patients
Patients
Customers
Without PatientsCustomers
A doctor's just another
dude (or dude-
ette) in a white
coat.
We are ALL patients customers
Who makes 80%+ of all household decisions?
I'll give youthree
guesses.1st two don't
count...
Health care = SHOPPING?
Act like a CUSTOMER,get treated like one.
Ask friends.Ask colleagues.
Use the web.
If you're not comfortable with the healthcare
shopping metaphor ...
Ever hire anyone?
HIRE your doctors!
No.
I'm NOTkidding.
Healthcare is ...
CollaborationTeamworkResearch
Project managementData management
A WORKINGRELATIONSHIP!
Data, data, who's got my data?
If doctors andpatients could
freely exchange information and
data,who knows what
might happen?
Doctors + Patients X Data Sharing = REAL Health Care
Reform
Alphabet soup is an issue
HIPAAHIEFHITSOPHITRUSTHITECHBHIECCHITE-I-E-I-O
So what's a grrl to do?
Know your historyKnow your risk factorsKeep your own records
Family History
DiabetesCancerStrokeHypertensionAsthmaCataractsHeart diseaseGlaucoma
Personal HistorySmokingWeightActivity levelStress levelGeographic location (this is MUCH bigger than you'd expect)Geographic history (where did you grow up? where have you lived?)
Record Keeping
Excel spreadsheets are AWESOME toolsRIP Google Health: build your own on Mozy.com or Box.netIf your provider has an online patient portal: USE IT
"Airplane Rules"
Take care of YOURSELF firstMonitor your habits: what can you change?You are what you eat
Become an e-Patient
EmpoweredEqual EngagedEnabledEquippedEmancipatedExpert
"My doctor won't play"
Two words:
YOU'RE FIRED.
Digital Patients Bill of Rights
Shared access to my dataAttitude of collaboration and mutual respectThe patient is the largest stakeholderTransparency and authenticity across all areasVoice of the patient is a legitimate (clinical) sourceThe right to efficient communication with providers who utilize the technology that we need
~Philadelphia PA, September 19, 2011(I was there!)
Let's review:
Ask questionsWork to understand the answersIf you don't understand, keep askingDon't be a diva, but do be fierce on your own behalfKeep your own recordsAsk for copies of everythingDon't be a meat-puppetStay INSIDE the car
YOU
healthcare system
Resources
e-Patients movement: e-patients.netWEGO Health: WEGOhealth.comHealth Central: HealthCentral.comDept. of Health + Human Services: Health.govCondition-related pages:Cancer.gov/.orgDiabetes.org[name-that-disease].org
Our Bodies, Ourselves?
YOUR body.YOUR self.
YOUR responsibility.