Autism Society of Minnesota Autism Spectrum Disorder Emergency Planning and Preparedness Strategies...
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Transcript of Autism Society of Minnesota Autism Spectrum Disorder Emergency Planning and Preparedness Strategies...
Autism Society of Minnesota
Autism Spectrum Disorder
Emergency Planning and Preparedness StrategiesTechnology is a Valuable Tool
Panel – Tuesday, June 21, 2011
Sherrie Kenny
Autism Society of Minnesota
We are very grateful to the Minnesota Department of Human Services, Disability Services Division, for
funding this Emergency Planning and Preparedness Project; and their commitment to assist individuals with Autism Spectrum Disorder (ASD) so they can
live in their own homes; and address the concerns of families and first responders in emergency situations
through these partnership efforts.
Autism Society of Minnesota
1 in 110
less then 2 years ago it was 1 in 150
12,000 Minnesota families
13,000 children
age 8 is the largest bubble of children diagnosed
largest adult population of people with ASD in history
Living with Autism…
Puzzling neurological disorder…
Autism Society of Minnesota
Persons with ASD are 7 times more likely than their peers without disabilities to have an emergency encounter—wandering, accidents, behavior escalation, communication issues, victims, perpetrators.
Professional responders (police, fire, EMS, ECC, emergency management and others) generally unprepared to address specific needs and challenges that individuals with ASD may present
Under The Americans with Disabilities Act (ADA) people with disabilities must be provided with an equally effective opportunity to participate in, or benefit from, a public entity’s aids, benefits, and services
Emergency Planning and Preparedness – Critical to Living Independently and Effective Public Safety!
Autism Society of Minnesota
ASD Emergency Planning and Preparedness Grant Objective
“Assess and develop emergency preparedness and response strategies to better enable persons with ASD to stay in their own homes by providing
low cost materials/resources/tools
and better informed individual, family and community support
systems”.
Autism Society of Minnesota
Strategies for Better Planning and PreparednessWhat strategies can we bring to bear to ensure safety and
lower the risk for persons with ASD (children and adults) in emergency situations?
For persons with ASD and their familiesFor Public Safety Officials and Professionals
Grant Outcomes: Greater awareness about the issueWide range of solutions from no tech-know how,
to low tech, to high techTraining for individuals with ASD/families,
professional respondersAccess to information and resourcesRoadmap to navigate resources and prepare
emergency plans
Autism Society of Minnesota
Solutions for awareness and better preparedness
General Awareness PresentationResponder videos (for demonstration or loan)Discipline specific responder training modules and handouts
Police, Fire, EMSEmergency Planning (EP) Essentials Overview, Resource Lists
Phones, tablets, other devices/tools for ID, planning and practiceSelf identificationStoring and sharing In Case of Emergency InformationCommunication options5 point scale for behavior modeling and modificationVideo modeling -> emergency planning/practice for custom
preparationOff the shelf applications
Tracking and locator solutions (to address wandering concerns)
Autism Society of Minnesota
A tool for how we act, react, and interact in difficult situations depends on our ability to quickly and efficiently assess what is happening and take appropriate actions.
5pt scale:A simple scale to teach a person with
ASD “social concepts and social behaviors”
Used in schools by educators on how to help students rate their feelings and/or change their behaviors
Color and Number sequence are used to rate and break down the concrete parts in order to help a child understand what it is you are asking for or what actions to take or to communicate their feelings.
Autism Society of Minnesota
Phone App for the “5 point scale” to use in Emergency Planning and Preparedness
5 – emergency4 – something hurts3 – I am ok, but help2 – nervous1 – I am ok
Autism Society of Minnesota
Press the red color bar #5
Image displays: Fire-fighter, Police or EMT
Text on bottom of screen:Dial 911
Audio is mother’s voice: Go to your emergency safe place”
Autism Society of Minnesota
Video modeling is a great way to plan and practice safety issues
Runner
Autism Society of Minnesota
Video modeling is a great way to plan and practice safety issues
Injury
Autism Society of Minnesota
Video modeling is a great way to plan and practice safety issues
Fire and Safe Place
Autism Society of Minnesota
Video modeling is a great way to plan and practice safety issues
Lost Dog
Autism Society of Minnesota
Video modeling is a great way to plan and practice safety issues
Listen to Police
Autism Society of Minnesota
Video modeling is a great way to plan and practice safety issues
Testimony from Linda
Autism Society of Minnesota
Video modeling is a great way to plan and practice safety issues
Testimony from Deputy
Autism Society of Minnesota
AuSM has devices pre-loaded with EP resources and applications
iPodiPadAndroid TabletCamera for video modelingEP Resource List with sample applications
Autism Society of Minnesota
More “Build Your Own” Using Other Off the Shelf Applications
Stories2Learn App (iOS) – make your own social stories
iPrompts – for communication and behavior modification
iCommunicate – build your own communication toolsRemember the Milk – task manager and reminder you
can use on phone, tablet or computer
Autism Society of Minnesota
Technology Solutions that Address Wandering Examples:
Project Lifesaver (Telemetry)—in partnership with local law enforcement (where available)
Devices with Monitoring Services: EmFinders, CareTrak, Comfort Zone
Devices to track and monitor: TrackMe360 (satellite GPS available for purchase or rent on a temporary basis), SecuraTrac (GPS), Amber Alert GPS, GPS Locator, loc8torPlus, S911 Bracelet, Ionkids
Phone Apps (track, monitor and alert): Glympse, Safe Kid Zone, Kuroo
Autism Society of Minnesota
Where to Access Information and Resources
Minnesota Governor’s Council on Developmental Disabilities: www.mnddc.org/emergency-planning/asd-emergency-planning.html
AuSM: www.ausm.orgPathLore (for DHS and others with access)Contact AuSM for assistance, more information or
speakers bureau. [email protected] or 651-647-1083
Autism Society of Minnesota
A. Review, collect and evaluate literature on the topics of ASD/emergency response/emergency preparedness related to these audiences:
(1) Individuals with ASD and families
(2) DHS lead agencies (counties, MCOs, tribes)
(3) Professional responders
(4) Emergency preparedness officials
(5) Provide review and comment to MSCOD for their Emerg. Prep. Booklet
EMERGENCY RESPONSE/EMERGENCY PREPAREDNESS (a) PROJECT TO SUPPORT PEOPLE WITH ASD IN THEIR OWN
HOMES
GANTT CHARTDec 2010
I. Research Jan 2011
Feb 2011
April 2011
May 2011
June 2011
Mar 2011
22
Done
Done
Done
Done
Done
Done
Autism Society of Minnesota
B. Plan, arrange for and conduct focus groups to review what is known, what works and what has not worked about ASD/emergency response/emergency preparedness.
Done
(1) Establish criteria to assure “representativeness” of participants
Done a. individuals with ASD and families (9) Done b. Professional responders (12)
Done(2) Schedule meetings
Done(3) Prepare scenarios to be
discussed Done(4) Conduct focus groups 3/1/2011 3/3/2011
Done(5) Summarize results
Done
23
ASD EMERGENCY RESPONSE/EMERGENCY PREPAREDNESS PROJECT
GANTT CHARTDec 2010
I. Research Jan 2011
Feb 2011
April 2011
May 2011
June 2011
Mar 2011
Autism Society of Minnesota
C. Convert focus group results into input for decision making
Done(1) What existing
materials/technology/ training exist for emergency response emergency preparedness and ASD? FOOTNOTE 2
Done
a. Collect efficacy data Done(2) Is new material/
technology training needed for emergency response/emergency preparedness and ASD?
Done
a. Discuss options with app developer or other industrial engineer
Done
Dec 2010
I. Research Jan 2011
Feb 2011
April 2011
May 2011
June 2011
Mar 2011
24
ASD EMERGENCY RESPONSE/EMERGENCY PREPAREDNESS PROJECT
GANTT CHART
Autism Society of Minnesota
A. Based on literature review, focus group input, and efficacy data, begin collecting, purchasing and testing a wide range of materials, technology, and training for emergency response/emergency preparedness and ASD
B. Begin demonstrations and testing of materials, technology and training by:
(1) Individuals with ASD and families
(2) Professional responders
Dec 2010
II. Testing Jan 2011
Feb 2011
April 2011
May 2011
June 2011
Mar 2011
25
Done
ASD EMERGENCY RESPONSE/EMERGENCY PREPAREDNESS PROJECT
GANTT CHART
Autism Society of Minnesota
A. Prepare briefing materials about the project findings
B. Deliver presentations to a wide audience
C. Submit material for Pathlore online training courses
D. Produce a consumer instructional DVD to depict video modeling
E. Investigate feasibility of collaborating with media outlets for greater reach
Dec 2010
III. Training, Technical Assistance, Outreach to Expand Partnerships Jan
2011Feb 2011
April 2011
May 2011
June 2011
Mar 2011
26
ASD EMERGENCY RESPONSE/EMERGENCY PREPAREDNESS PROJECT
GANTT CHART
Autism Society of Minnesota
A. Council creates Emergency Planning website section posts and updates specific to this project
B. Provide consultation, evaluation and information for lead agencies through existing DSD channels
(see b)
C. Create a marketing plan and system
(1) Create agreements with lead agency staff on how to market availability of materials
D. Create emergency response/emergency preparedness package for 1st responders
Dec 2010
IV. Dissemination Jan 2011
Feb 2011
April 2011
May 2011
June 2011
Mar 2011
27
Done
ASD EMERGENCY RESPONSE/EMERGENCY PREPAREDNESS PROJECT
GANTT CHART
Autism Society of Minnesota
A. Submit quarterly reports, a final report, collect learnings, and suggest possible future activities.
Qtrly report
Qtrly report
B. Select third party evaluator (in consultation with DHS)
C. Assess through satisfaction surveys
(1) individuals with ASD and families
(2) lead agencies (3) Professional
respondersD. Modify the project
based on fact based management
Dec 2010
V. Reporting and Evaluation Jan
2011Feb 2011
April 2011
May 2011
June 2011
Mar 2011
28
DoneDone
Done
ASD EMERGENCY RESPONSE/EMERGENCY PREPAREDNESS PROJECT
GANTT CHART
Autism Society of Minnesota
THANK YOU