Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic...

45
Applying the Applying the Public Health Conceptual Data Model Public Health Conceptual Data Model to the Implementation of the to the Implementation of the National Electronic Disease National Electronic Disease Surveillance System Surveillance System Abdul-Malik Shakir, Senior Advisor IDX eIntelligence Solutions Group August 30, 2000

Transcript of Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic...

Page 1: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

Applying the Applying the Public Health Conceptual Data Model Public Health Conceptual Data Model

to the Implementation of the to the Implementation of the National Electronic Disease Surveillance SystemNational Electronic Disease Surveillance System

Abdul-Malik Shakir, Senior AdvisorIDX eIntelligence Solutions Group

August 30, 2000

Page 2: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

2

Presentation OverviewPresentation Overview

• PHCDM Project Update

• NEDSS Cooperative Agreement Initiatives

• NEDSS Development Coordination Issues

• IDX eSG Participation in NEDSS

• Identification of next steps

Page 3: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

3

PHCDM Project UpdatePHCDM Project Update

Page 4: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

4

PHCDM Project PurposePHCDM Project Purpose

The purpose of the Public Health Conceptual Data Model (PHCDM) project is to document the information needs of public health so that Centers for Disease Control and Prevention (CDC) and its state and local partners in public health can:

• Establish data standards for public health, including data definitions, component structures, code values, and use;

• Collaborate with national health informatics standards setting bodies to define standards for the exchange of information among public health agencies, and healthcare providers;

• Construct computerized information systems that conform to established data and data interchange standards for use in the management of data relevant to public health.

Page 5: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

5

Overall Scope of WorkOverall Scope of Work

• Development and maintenance of the Public Health Conceptual Data

Model (PHCDM)

• Development and maintenance of the Public Health High-level

Process Model (PHHPM)

• Implementation of the PHCDM and PHHPM

• Coordination with national data-related standards

• Coordination with CDC Program, State, and Local public health data-

related initiatives

Page 6: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

6

PHCDM Project GoalsPHCDM Project Goals

• Provide a framework for organizing public health data standards and guidelines

• Reduce development effort for computerized information systems for public health surveillance

• Enhance data exchange capabilities among public health agencies and healthcare providers

• Represent public health data needs to national standards setting bodies

• Facilitate collaboration between CDC and their state and local partners in public health.

Page 7: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

7

PHCDM PHCDM Jun-Dec 1999 AccomplishmentsJun-Dec 1999 Accomplishments

• Created a data model for public health based upon analysis of the database structures of current CDC disease surveillance systems, CIPHER data standards, the HL7 RIM, and other health related information models, and defined a maintenance process for the model.

• Reviewed the PHCDM with epidemiologists from within certain program areas of CDC and from state and local public health agencies and updated the PHCDM based upon their critique.

• Selected a computerized information system development project to make use of the PHCDM and CIPHER data standards within CDC and developed a workplan for applying the standards to the development effort.

• Established Jan-Jun 2000 objectives for the PHCDM project.

Page 8: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

8

PHCDM PHCDM Jan-Jun 2000 AccomplishmentJan-Jun 2000 Accomplishment

• Published the premiere edition of the PHCDM

• Participated in the HL7 Reference Information Model (RIM) harmonization process to introduce public health related information needs.

• Began development of a public health high-level process model (PHHPM) to provide context for the PHCDM.

• Continued to coordinate with CDC programs and partners to endure that their information needs are represented in the PHCDM

• Established Jun-Dec 2000 objectives for the PHCDM project.

Page 9: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

9

Publication of the Premiere PHCDMPublication of the Premiere PHCDM

INDIVIDUALBirth Date : TSDeath Date : TSSex Code : CV

PERSONEthnicity Code : CVRace Code : SET<CV>Occupation Code : CVPerson Name : SET<PN>

NON PERSON LIVING ORGANISMSpecies Name : CVOrganism Name : ST

ORGANIZATIONOrganization Name : SET<ON>

INFORMAL ORGANIZATIONGroup Type Code : CV

FORMAL ORGANIZATIONIndustry Code : CV

POSTAL LOCATION

Street Address Text : ADAddress Directions Text : FTX

PHYSICAL LOCATION

Latitude Quantity : STLongitude Quantity : STLocation Name : STProperty Location Text : FTX

TELECOMMUNICATION LOCATION

Personal Identification Number : STTime Zone Text : STElectronic Address Text : TEL

SPECIMENSource Site Code : CV

OBSERVATION

Observation Value : ANYDerivation Expression Text : ST

CASE

Confirmation Method Code : CVDetection Method Code : CVTransmission Mode Code : CVDisease Imported Code : CVEtiologic Status Code : CVClassification Status Code : CV

OUTBREAK

Outbreak Extent Code : CVOutbreak Peak Date : TSOutbreak Time Range : IVL<TS>

INTERVENTION

Intervention Reason CodeIntervention Form Code : CVIntervention Route Code : CVIntervention Quantity : PQStrength Quantity : PQRate Quantity : PQ

REFERRAL

Referral Reason Text : FTXReferral Description : FTX

NOTIFICATION

Notification Reason Code : CV

PARTY RELATIONSHIP

Party Relationship Date Time Range : IVL<TS>Party Relationship Type Code : CV

MATERIAL RELATIONSHIP

Material Relationship Type Code : CVMaterial Relationship Date Time Range : IVL<TS>

MATERIAL RESPONSIBILITYResponsibility Type Code : CVResponsibility Date Time Range : IVL<TS>Material Identifier : II

ACTOR PARTICIPATION

Actor Type Code : CVActor Time Range : IVL<TS>

ACTIVITY RELATIONSHIP

Activity Relationship Type Code : CVActivity Relationship Date Time Range : IVL<TS>

LOCATION RELATIONSHIPLocation Relationship Type Code : CVLocation Relationship Date Time Range : IVL<TS>

PARTY LOCATION PARTICIPATIONParticipation Date Time Range : IVL<TS>Participation Type Code : CVCurrent Status Code : CVCurrent Status Effective Date : TS

MATERIAL LOCATION PARTICIPATION

Participation Date Time Range : IVL<TS>Participation Type Code : CV

PARTY

Party Identifier : SET<II>

10..*

10..*

10..* 10..*

1

0..*

1

0..*

1

0..*

1

0..*

0..*1

0..*1

MATERIALMaterial Identifier : SET<II>Material Type Code : CVMaterial Description : FTXMaterial Date Time Range : IVL<TS>Handling Code : CVDanger Code : CVMaterial Quantity : PQMaterial Name : ST

1

0..*

1

0..*

10..*

10..*

1

0..*

1

0..*

1

0..*

1

0..*

HEALTH-RELATED ACTIVITY

Activity Identifier : SET<II>Activity Mood Code : CVActivity Type Code : CVActivity Descriptive Text : FTXActivity Status Code : CVActivity Date Time : GTSActivity Critical Date Time : GTSActivity Method Code : CVSubject Site Code : CVInterpretation Code : CVConfidentiality Code : CVMaximum Repetition Number : INTPriority Code : CV

0..*

1

0..*

1

0..*1

0..*1

0..*

1

0..*

1

LOCATIONLocation Identifier : SET<II>Location Setting Code : CVLocation Type Code : CVLocation Status Code : CVCurrent Status Effective Date : TSLocation Narrative Text : FTX

0..*1

0..*1

0..*

1

0..*

1

0..*

1

0..*

1

1

0..*

1

0..*

TARGET PARTICIPATION

Target Type Code : CVTarget Time Range : IVL<TS>Target Awareness Code : CV

0..*0..1

0..*0..1

0..1

0..*

0..1

0..*

0..*

1

0..*

1

0..1

0..*

0..1

0..*

INDIVIDUALBirth Date : TSDeath Date : TSSex Code : CV

PERSONEthnicity Code : CVRace Code : SET<CV>Occupation Code : CVPerson Name : SET<PN>

NON PERSON LIVING ORGANISMSpecies Name : CVOrganism Name : ST

ORGANIZATIONOrganization Name : SET<ON>

INFORMAL ORGANIZATIONGroup Type Code : CV

FORMAL ORGANIZATIONIndustry Code : CV

POSTAL LOCATION

Street Address Text : ADAddress Directions Text : FTX

PHYSICAL LOCATION

Latitude Quantity : STLongitude Quantity : STLocation Name : STProperty Location Text : FTX

TELECOMMUNICATION LOCATION

Personal Identification Number : STTime Zone Text : STElectronic Address Text : TEL

SPECIMENSource Site Code : CV

OBSERVATION

Observation Value : ANYDerivation Expression Text : ST

CASE

Confirmation Method Code : CVDetection Method Code : CVTransmission Mode Code : CVDisease Imported Code : CVEtiologic Status Code : CVClassification Status Code : CV

OUTBREAK

Outbreak Extent Code : CVOutbreak Peak Date : TSOutbreak Time Range : IVL<TS>

INTERVENTION

Intervention Reason CodeIntervention Form Code : CVIntervention Route Code : CVIntervention Quantity : PQStrength Quantity : PQRate Quantity : PQ

REFERRAL

Referral Reason Text : FTXReferral Description : FTX

NOTIFICATION

Notification Reason Code : CV

PARTY RELATIONSHIP

Party Relationship Date Time Range : IVL<TS>Party Relationship Type Code : CV

MATERIAL RELATIONSHIP

Material Relationship Type Code : CVMaterial Relationship Date Time Range : IVL<TS>

MATERIAL RESPONSIBILITYResponsibility Type Code : CVResponsibility Date Time Range : IVL<TS>Material Identifier : II

ACTOR PARTICIPATION

Actor Type Code : CVActor Time Range : IVL<TS>

ACTIVITY RELATIONSHIP

Activity Relationship Type Code : CVActivity Relationship Date Time Range : IVL<TS>

LOCATION RELATIONSHIPLocation Relationship Type Code : CVLocation Relationship Date Time Range : IVL<TS>

PARTY LOCATION PARTICIPATIONParticipation Date Time Range : IVL<TS>Participation Type Code : CVCurrent Status Code : CVCurrent Status Effective Date : TS

MATERIAL LOCATION PARTICIPATION

Participation Date Time Range : IVL<TS>Participation Type Code : CV

PARTY

Party Identifier : SET<II>

10..*

10..*

10..* 10..*

1

0..*

1

0..*

1

0..*

1

0..*

0..*1

0..*1

MATERIALMaterial Identifier : SET<II>Material Type Code : CVMaterial Description : FTXMaterial Date Time Range : IVL<TS>Handling Code : CVDanger Code : CVMaterial Quantity : PQMaterial Name : ST

1

0..*

1

0..*

10..*

10..*

1

0..*

1

0..*

1

0..*

1

0..*

HEALTH-RELATED ACTIVITY

Activity Identifier : SET<II>Activity Mood Code : CVActivity Type Code : CVActivity Descriptive Text : FTXActivity Status Code : CVActivity Date Time : GTSActivity Critical Date Time : GTSActivity Method Code : CVSubject Site Code : CVInterpretation Code : CVConfidentiality Code : CVMaximum Repetition Number : INTPriority Code : CV

0..*

1

0..*

1

0..*1

0..*1

0..*

1

0..*

1

LOCATIONLocation Identifier : SET<II>Location Setting Code : CVLocation Type Code : CVLocation Status Code : CVCurrent Status Effective Date : TSLocation Narrative Text : FTX

0..*1

0..*1

0..*

1

0..*

1

0..*

1

0..*

1

1

0..*

1

0..*

TARGET PARTICIPATION

Target Type Code : CVTarget Time Range : IVL<TS>Target Awareness Code : CV

0..*0..1

0..*0..1

0..1

0..*

0..1

0..*

0..*

1

0..*

1

0..1

0..*

0..1

0..*

Public HealthConceptual Data Model

Premiere Edition

U.S. Department of Health and Human Services

Public Health ServiceCenters for Disease Control and Prevention (CDC)

Atlanta, Georgia 30333

July 2000

Public HealthConceptual Data Model

Premiere Edition

U.S. Department of Health and Human Services

Public Health ServiceCenters for Disease Control and Prevention (CDC)

Atlanta, Georgia 30333

July 2000

Page 10: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

10

INDIVIDUALBirth Date : TSDeath Date : TSSex Code : CV

PERSONEthnicity Code : CVRace Code : SET<CV>Occupation Code : CVPerson Name : SET<PN>

NON PERSON LIVING ORGANISMSpecies Name : CVOrganism Name : ST

ORGANIZATIONOrganization Name : SET<ON>

INFORMAL ORGANIZATIONGroup Type Code : CV

FORMAL ORGANIZATIONIndustry Code : CV

POSTAL LOCATIONStreet Address Text : ADAddress Directions Text : FTX

PHYSICAL LOCATIONLatitude Quantity : STLongitude Quantity : STLocation Name : STProperty Location Text : FTXTELECOMMUNICATION LOCATION

Personal Identification Number : STTime Zone Text : STElectronic Address Text : TEL

SPECIMENSource Site Code : CV

PARTY TO PARTY RELATIONSHIPRelationship Date Time Range : IVL<TS>Relationship Type Code : CV

MATERIAL RELATIONSHIPMaterial Relationship Type Code : CV

MATERIAL RESPONSIBILITYResponsibility Type Code : CVResponsibility Date Time Range : IVL<TS>Material Identifier : II

Activity Relationship Code : CV

LOCATION RELATIONSHIPRelationship Type Code : CVRelationship Date Time Range : IVL<TS>

PARTY LOCATION PARTICIPATIONParticipation Date Time Range : IVL<TS>Participation Type Code : CVCurrent Status Code : CVCurrent Status Effective Date : TS

MATERIAL LOCATION PARTICIPATIONParticipation Date Time Range : IVL<TS>

PARTYParty Identifier : SET<II>

10..*

10..*

10..*

10..*

1

0..*

1

0..*

1

0..*

1

0..*

0..*1

0..*1

MATERIALMaterial Identifier : SET<II>Material Type Code : CVMaterial Description : FTXMaterial Date Time Range : IVL<TS>Handling Code : CVDanger Code : CVMaterial Quantity : PQMaterial Name : ST

1

0..*

1

0..*

1

0..*

1

0..*

1

0..*

1

0..*

1

0..*

1

0..*

LOCATIONLocation Identifier : SET<II>Location Setting Code : CVLocation Type Code : CVLocation Status Code : CVCurrent Status Effective Date : TSLocation Narrative Text : FTX

0..*1

0..*1

0..*

1

0..*

1

0..*

1

0..*

1

1

0..*

1

0..*

0..*

0..1

0..*

0..1

0..10..1

0..10..1

PartiesMaterials

Locations

ACTOR PARTICIPATIONActor Type Code : CVActor Time Range : IVL<TS>

ACTIVITY RELATIONSHIP

HEALTH RELATED ACTIVITYActivity Identifier : SET<II>Activity Mood Code : CVActivity Type Code : CVActivity Descriptive Text : FTXActivity Status Code : CVActivity Date Time : GTSActivity Critical Date Time : GTSActivity Method Code : CVSubject Site Code : CVInterpretation Code : CVConfidentiality Code : CVMaximum Repetition Number : INTPriority Code : CV

0..*

1

0..*

1

0..*1

0..*1

0..*

1

0..*

1

TARGET PARTICIPATIONTarget Type Code : CVTarget Time Range : IVL<TS>Target Awareness Code : CV

0..*0..*

0..*

1

0..*

1

0..*0..*

OBSERVATIONObservation Value : ANYDerivation Expression Text : ST

CASEConfirmation Method Code : CVDetection Method Code : CVTransmission Mode Code : CVDisease Imported Code : CVEtiologic Status Code : CV

OUTBREAKOutbreak Extent Code : CVOutbreak Peak Date : TSOutbreak Time Range : IVL<TS>

INTERVENTIONIntervention Reason CodeIntervention Form Code : CVIntervention Route Code : CVIntervention Quantity : PQStrength Quantity : PQRate Quantity : PQ

REFERRALReferral Reason TextAuthorized Visit AmountReferral Description

NOTIFICATIONNotification Reason Code : CV

Health-RelatedActivities

Page 11: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

11

Mapping of the PHCDM to the HL7 RIMMapping of the PHCDM to the HL7 RIM

ORGANIZATION

INFORMAL ORGANIZATION

FORMAL ORGANIZATION<<Organization>>

INDIVIDUAL

NON PERSON LIVING ORGANISM<<Living_subject>>

ENTITY

PERSON<<Person>>

OUTBREAK

REFERRAL<<Referral>>

MEDICATION<<Medication>>

ELECTRONIC LOCATION TELEPHONE LOCATION

POSTAL LOCATION PHYSICAL LOCATION

OBSERVATION<<Observation>>

SPECIMEN<<Specimen>>

CASE

PUBLIC HEALTH NOTIFICATION

ACTIVITY RELATIONSHIP<<Service_relationship>>

LOCATION RELATIONSHIP

PARTY TO PARTY RELATIONSHIP<<Stakeholder_affiliation>>

ACTOR PARTICIPATION<<Active_participation>>

PARTY LOCATION PARTICIPATION

HEALTH RELATED ACTIVITY<<Service>>1

0..* +associates

1+associates_to

0..*1 0..*

+is_target_for

1 +relates 0..*

1

0..*+is_source_for

1

+relates0..*

PARTY<<Stakeholder>>

0..*

1

+is_target_for0..*

+relates to 1

0..*1

+is_source_for

0..*+relates to 1

1

0..*+associates

1 +associates_to

0..*

0..*

1

+associates_to

0..*

+associates

1

MATERIAL RELATIONSHIP<<Material_relationship>>

MATERIAL LOCATION PARTICIPATION

TARGET PARTICIPATION<<Target>>

1

0..*+associates

1 +associates_to

0..*

1

0..* +associates

1+associates_to

0..*

MATERIAL RESPONSIBILITY

0..*1 +associates_to 0..*

+associates

1

MATERIAL<<Material>>

0..* 1

+is_source_for

0..*+relates 1

0..*

1

+is_target_for0..*

+relates 1

0..*

1

+associates_to0..*

+associates1

0..*

0..1

+associates_to0..*

+associates0..1

0..*

1

+associates_to

0..* +associates

1

INTERVENTION

LOCATION INFORMATION

0..*

1+associates

0..*+associates_to

1

1

0..*+is_source_for

1 +relates

0..*

10..*

+is_target_for

1 +relates0..*

1

0..*

+associates1

+associates_to

0..*

0..*

0..1

+associates_to

0..*

+associates

0..1

Page 12: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

12

Revised

Party to PartyRelationship

<Stakeholder Affiliation>

Party to PartyRelationship

<Stakeholder Affiliation>

Party<Stakeholder>

Party<Stakeholder>

IndividualIndividual

Non-PersonLiving Organism

<Living Subject>

Non-PersonLiving Organism

<Living Subject>

Person<Person>Person<Person>

FormalOrganization

FormalOrganization

InformalOrganization

InformalOrganization

Organization<Organization>

Organization<Organization>

New!

PHCDM Parties Subject AreaPHCDM Parties Subject Area

Page 13: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

13

HL7 RIM Change ProposalsHL7 RIM Change Proposals

• Desired Changes to the RIM– Add Informal Organization as a specialization of Organization

– Add Formal Organization as a specialization of Organization

– Add Individual as a specialization of Stakeholder

– Make Person a specialization of Individual

– Make Living Subject a specialization of Individual

• Additional Changes to the RIM– Change the name of Stakeholder to Party

– Change the name of Stakeholder Affiliation to Party Affiliation

Page 14: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

14

Public Health Public Health High-Level Process ModelHigh-Level Process Model

• Surveillance Planning– Identify the health-related problem to be addressed– Understand the setting in which surveillance and response activities will take place– Define the scope of surveillance– Develop policies and procedures for conducting surveillance

• Case Monitoring– Identify parties meeting case definitions and record information about them– Report cases to responsible parties– Analyze data to identify problems and trends– Investigate and confirm suspected cases– Communicate results of analyses and investigations

• Disease Intervention– Take action to prevent or control disease

– Evaluate usefulness of surveillance and effectiveness of outbreak response activities

Page 15: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

15

PHCDMPHCDMJun-Dec 2000 Objectives Jun-Dec 2000 Objectives

• Develop and implement a PHCDM change management process

• Finalize the PHHPM process decomposition and its mapping to the PHCDM

• Develop a procedure for transforming the PHCDM into project specific database implementations

• Implement automation to support the mapping of project specific database implementations to the PHCDM

• Complete harmonization of the PHCDM with the HL7 RIM

• Adopt the HL7 vocabulary processes and begin to define PHCDM vocabularies

Page 16: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

16

NEDSS NEDSS Cooperative Agreement InitiativesCooperative Agreement Initiatives

Page 17: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

17

PHCDM and NEDSSPHCDM and NEDSS

• The PHCDM project is one of many interrelated activities supporting CDC’s National Electronic Disease Surveillance System (NEDSS) initiative.

• The long-term vision for NEDSS is a collection of complementary computerized information systems that automate the process of gathering health data, facilitate the monitoring of the health of communities, assist in the analysis of trends and detection of emerging public health problems, and provide information for setting public health policy.

• The focus of the NEDSS initiative is the development, testing, and implementation of information management technology standards that will support more complete and comprehensive integration of computerized health information systems for use in public health.

Page 18: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

18

NEDSS Systems ArchitectureNEDSS Systems Architecture

• Brings structure, standards and interoperability to the information systems elements of surveillance

• Allows the latitude for states and local health departments to do specific implementations and fulfill public health needs

• Is respectful of local / state / federal data flow issues

• Provides a structure around which CDC systems can be integrated

• Facilitates the ready exchange of comparable data and reports between public health organizations without reprogramming

Page 19: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

19

Implement an integrated data repository• able to be patient centered, non-categorical• support “thick” client and web applications • (ODBC, JDBC and ANSI SQL)

Integrated State / Local DataRepository

Page 20: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

20

Implement a security system and appropriate security policies (Internet-based, with a firewall and certificates or tokens)

SecurityIntegrated State / Local DataRepository

Page 21: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

21

Conduct and support web browser-based data entry and data management.

• Internet presentable, but not necessary• Multi-tiered including an application server to run web

“forms” from others

State HealthDepartment

Local HealthDepartment

OrClinical

Site

SecurityIntegrated State / Local DataRepository

Page 22: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

22

Accept, route and process electronic HL7 messages containing laboratory and clinical content (LOINC, SNOMED).

ClinicalDatabase

ElectronicLaboratoryMessages

HL7

SecurityIntegrated State / Local DataRepository

State HealthDepartment

Local HealthDepartment

OrClinical

Site

Page 23: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

23

Develop active data translation and exchange (integration broker) functionality (XML, DTD’s HTTPS).

ClinicalDatabase

CDC and OtherHealth Depts.

XMLData

Exchange

ElectronicLaboratoryMessages

HL7

SecurityIntegrated State / Local DataRepository

State HealthDepartment

Local HealthDepartment

OrClinical

Site

Page 24: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

24

Develop data reporting and visualization capability (messaging and import/export ODBC, JDBC, ANSI SQL).

ClinicalDatabase

CDC and OtherHealth Depts.

XMLData

Exchange

ElectronicLaboratoryMessages

HL7

Reporting, GIS and Analysis

SecurityIntegrated State / Local DataRepository

State HealthDepartment

Local HealthDepartment

OrClinical

Site

Page 25: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

25

Implement a shareable directory of public health personnel (LDAP).

ClinicalDatabase Shareable

Directory of PH Personnel

CDC and OtherHealth Depts.

XMLData

Exchange

ElectronicLaboratoryMessages

HL7

SecurityIntegrated State / Local DataRepository

State HealthDepartment

Local HealthDepartment

OrClinical

Site

Reporting, GIS and Analysis

Page 26: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

26

Develop transportable business logic capability (COM, CORBA, EJB).

ClinicalDatabase

CDC and OtherHealth Depts.

XMLData

Exchange

ElectronicLaboratoryMessages

HL7

SecurityIntegrated State / Local DataRepository

State HealthDepartment

Local HealthDepartment

OrClinical

Site

ShareableDirectory of

PH Personnel

Transportable“Business”

Logic

Reporting, GIS and Analysis

Page 27: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

27

NEDSS System Architecture ElementsNEDSS System Architecture Elements

• Conduct and support web browser-based data entry and data management.

• Accept, route and process electronic HL7 messages containing laboratory and clinical content.

• Implement an integrated data repository.

• Develop active data translation and exchange (integration broker) functionality.

• Develop transportable business logic capability.

• Develop data reporting and visualization capability.

• Implement a shareable directory of public health personnel.

• Implement a security system and appropriate security policies.

Page 28: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

28

NEDSS Cooperative Agreement InitiativesNEDSS Cooperative Agreement Initiatives

• Assessment and Planning – Assess current information systems personnel and technical infrastructure, evaluate that infrastructure against the NEDSS systems architecture and develop plans to migrate to the NEDSS architecture as needed.

• Element Development – Implement between one and four of the NEDSS system architecture elements and use in the setting of identified public health activities.

• Charter Sites - Conduct activities to implement and demonstrate the fully described systems architecture. Charter sites will receive funds for implementation of up to four system architecture elements and to ensure that new and existing elements work together as an integrated whole by prototyping the use of the full systems architecture to supply validated data for existing surveillance systems.

Page 29: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

29

Availability of FundsAvailability of Funds

• Approximately $9,300,000 is available in FY 2000 to fund

approximately 45 total awards

• 35 NEDSS Planning and Assessment awards, $65,000 - 95,000

• 07 NEDSS Element Development Awards, $200,000 - $730,000

• 03 NEDSS Charter Awards, $600,000 - $1,200,000

• Supplemental awards will begin on or about September 30, 2000

• Applicants may request time-limited specialized technical consultation,

software, and equipment as direct assistance, in lieu of a portion of

financial assistance.

Page 30: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

30

NEDSS Development CoordinationNEDSS Development Coordination

Page 31: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

31

Development CoordinationDevelopment Coordination

SDG

SME

SDG

SME

Shared Componentsand Standards

Shared Components and Standards

SDG

SME

SDG

SME

SDG

SME

SDG

SME

Shared Components and Standards

Shared Componentsand Standards

Site 1 Site 2 Site 3

ProjectSpecific

Intra-Enterprise

Inter-Enterprise

Page 32: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

32

Development Coordination ExampleDevelopment Coordination Example

Core DemographicDatabase

ElectronicLab-based Reporting

NETSS

Demographic DataSubject Matter Experts

LabSubject Matter Experts

Case ReportingSubject Matter Experts

Shared Components and Standards

Web based UI, HL7, IDR, XML, Business Logic, visualization, Directory, Security

Shared Components and Standards

PHCDM, CIPHER, Vocabulary, Architecture, PHHPM

ProjectSpecific

Intra-Enterprise

Inter-Enterprise

Page 33: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

33

People (Roles)People (Roles)

• Project Mangers

• Project Sponsors

• Project Liaisons

• Technical Experts

• Subject Matter Experts

• Component Sharing Facilitators

Page 34: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

34

ProcessProcess

• Project plans, phases, tasks, sub-tasks, and activities

• Policies and procedures for shared components and standards

• Project / program monitoring and status reporting

• Inter-project dependencies and coordination

• Shared components development and maintenance

• Shared component refinement and implementation

Page 35: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

35

TechnologyTechnology

• Analysis, design, and

construction tools

• Meta-data repositories

• Repository management

software

• Registries and directories

• Project management tools

• Desktop publishing tools

Page 36: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

36

Technology

Process People

Development Coordination PPTDevelopment Coordination PPT

Page 37: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

37

Transforming the PHCDM for the IDRTransforming the PHCDM for the IDR

• Define the implementation subset of the PHCDM

• Expand complex, interval, and repeating attributes

• Add / modify classes, attributes, and relationships

• Document data integrity constraints

• Identify class keys and inversion entries

• Normalize the implementation subset

• Define implementation tables and columns

• Denormalize the implementation subset

• Implement enforcement of data integrity constraints

• Document departures from the published PHCDM

DomainProjectTeams

IDRProjectTeam

Page 38: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

38

Allocating ResponsibilityAllocating Responsibility

•Define the implementation subset of the PHCDM

•Expand complex, interval, and repeating attributes

•Add / modify classes, attributes, and relationships

•Document data integrity constraints

•Define the implementation subset of the PHCDM

•Expand complex, interval, and repeating attributes

•Add / modify classes, attributes, and relationships

•Document data integrity constraints

•Identify class keys and inversion entries

•Normalize the implementation subset

•Define implementation tables and columns

•Denormalize the implementation subset

•Implement enforcement of data integrity constraints

•Document departures from the published PHCDM

Core Demographic

Database

ElectronicLab-based Reporting

IntegratedData

Repository

Page 39: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

39

Page 40: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

40

eSG Participation in NEDSSeSG Participation in NEDSS

• Ongoing PHCDM development and implementation

• Application of PHCDM to NEDSS initiatives:

– Accept, route and process electronic HL7 messages containing laboratory and clinical content

– Implement an integrated data repository

• Assistance with NEDSS development coordination:

– Shared component/standard use facilitation

– Program/project monitoring and status reporting

– Inter-project dependencies and coordination

Page 41: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

41

Ongoing PHCDM Ongoing PHCDM Development and Implementation Development and Implementation

• Develop and implement a PHCDM change management process

• Finalize the PHHPM process decomposition and its mapping to the PHCDM

• Develop a procedure for transforming the PHCDM into project specific database implementations

• Implement automation to support the mapping of project specific database implementations to the PHCDM

• Complete harmonization of the PHCDM with the HL7 RIM

• Adopt the HL7 vocabulary processes and begin to define PHCDM vocabularies

Page 42: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

42

Application of Application of PHCDM to NEDSS InitiativesPHCDM to NEDSS Initiatives

• Core Demographic Database Projects and Electronic Laboratory-based Reporting– Develop of a project-specific logical data models based upon the

PHCDM

– Coordination of vocabulary development

– Development of HL7 XML message specifications

• Implementation of integrated data repositories– Development of a physical data model based upon project specific

logical data models

Page 43: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

43

Assistance with Assistance with NEDSS Development CoordinationNEDSS Development Coordination

• Shared component/standard use facilitation

– PHCDM, PHHPM, HL7 Vocabularies

– Education and mentoring

• Program/project monitoring and status reporting

– Project planning assistance for data related initiatives

– Program level monitoring for data related initiatives

• Inter-project dependencies and coordination

– Assistance in identification of inter-project dependencies

– Assistance in coordination of inter-project dependencies

Page 44: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

44

Identification of Next StepsIdentification of Next Steps

Page 45: Applying the Public Health Conceptual Data Model to the Implementation of the National Electronic Disease Surveillance System Abdul-Malik Shakir, Senior.

January 27, 2000 PHCDM Governments Project Special Interest Group Presentation

45

QuestionsQuestions