“Let’s Talk about Dementia” Connecting People, Connecting ... - Lets Talk About...“Let’s...

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Top areas of interest were Actualising work potential Delirium An enabling home environment Art therapy Falls prevention Communication tips views in over 82 countries 27,965 following the blog receiving notifications of new posts every Thursday morning 391 309 conversations from people living with dementia, carers and professionals Network of over 59 ranging from to contributors practicing Allied Health Professionals (AHPs) staff from 3rd sector and AHP students “Let’s Talk about Dementia” Connecting People, Connecting Support “Never in the history of mankind did not talking about something scary make it disappear” Elaine Hunter, National Allied Health Professional Consultant, Alzheimer Scotland @elaineahpmh Introduction Dementia is being described as one of the foremost public health challenges worldwide (Scotlands Dementia Strategy 2015) however there is clear evidence that high quality post diagnostic support, provided over an extended period is essential to equip people living with dementia and their families with the tools, connections, resources and plans they need to live as well as possible with dementia and prepare for the future. Alzheimer Scotlands 5 pillar model of post-diagnostic support describes five key pillars which are recognised as essential to supporting people after their diagnosis incorporating the requirement to support people with dementia and their families “to learn to self-manage their condition”. The author’s ambition was to find a way to share allied health professional’s self-management approaches to people living with dementia and their families that was low cost, accessible, evidence based and co-produced . What did we do? In June 2014 we launched a weekly blog called “Let’s Talk about Dementia”. (www.alzscot.org/talking_dementia) hosted and supported by Alzheimer Scotland and led by the author with two colleagues in Alzheimer Scotland. Blog: “A blog is a dynamic website consisting of discrete entries – known as “posts” – which are organised with the newest item at the top. They can be written by more than one author, often featuring content from guest authors on a regular or semi-regular basis” Scottish Health Council 2014 Why social media? • Globally social media is impacting on the way healthcare is planned, delivered and discussed with 43% of adults using the internet for health information (NHS Employer 2014:161) • It is free, simple, easy to use and is growing in influence (Holdsworth et al 2013) • It is a great place to find new resources, share practice ideas, connect with colleagues around the world • It is a “valuable tool for leaders as it flattens hierarchies and increases transparency”. (Hunter 2013:351) • It is the right time. Scotland is transforming how it delivers post diagnostic support and self-management for people living with dementia, offering allied health professionals an opportunity to look beyond traditional approaches of care. • People living with dementia and their carers are users of social media through twitter and blogs. Comments from contributors “Let’s Talk About Dementia has helped me raise awareness about falls & fall prevention for people with dementia #empowering” @lynnflannigan1 “Let’s Talk about Dementia has helped me raise awareness of practical #AHPDementia tips and advice #enablingenvironments #nutrition“ @JennyAHPDem “Let’s Talk About Dementia has been a great way to get instant feedback on an idea, you get readers comments the day you publish #passion #creative” @RuthOTDem Comments from readers “It’s great your sharing your news about dementia here as it easily accessible for me living on the Shetland Islands” “Have shared (the blog) on twitter and facebook so that hopefully my friends will be better able to understand what is happening to me – and of course to other people in the same boat” “Thank you for such an inspirational video. It is great to see how occupational therapy and meaningful activity can contribute to someone’s life” Impact and outcomes In our first 12 months we had: Conclusion The blog offers AHPs a new way to connect to people living with dementia and their families, providing a platform for individuals to voice their views and share ideas in a branded environment whilst challenging the stigma often associated with the diagnosis of dementia. Through the blog the expertise of the AHPs is accessible and the reach of the information is international. AHPs have much to offer people to live well with dementia and this blog is one way to support this. Why not join us on social media, email us your comments on this poster at [email protected] or follow the blog at www.alzscot.org/talking_dementia. References Alzheimer Scotland http://www.alzscot.org/campaigning/five_pillars accessed 10 June 2015 Holdsworth LK Douglas L Hunter E McDonald C 2013 Social Media: raising the profile of AHP’s British Journal of Healthcare Management 19(2) 85-92 Hunter EP 2013 The Elizabeth Casson Memorial Lecture 2013 : Transformational leadership in occupational therapy – delivering change through conversations British Journal of Occupational Therapy 76(8) 346-354 NHS Employer 2014 New to the NHS? Your guide to using social media in the NHS quick guide for new starters Scottish Government Scotlands National Dementia Strategy 2013-2016 Scottish Health Council 2014 The Participation Toolkit Supporting Patient Focus and Public Involvement in NHS Scotland. Making sure nobody faces dementia alone. Acknowledgments Thank you for taking the time to stop and read this poster. Thanks also to all our blog contributors and readers, we couldn’t do it without you . Finally, a huge thanks to Matthew and Wendy, Alzheimer Scotland, who support this blog along with me.

Transcript of “Let’s Talk about Dementia” Connecting People, Connecting ... - Lets Talk About...“Let’s...

Page 1: “Let’s Talk about Dementia” Connecting People, Connecting ... - Lets Talk About...“Let’s Talk about Dementia has helped me raise awareness of practical #AHPDementia tips

Top areas of interest were

Actualising work potentialDeliriumAn enabling home environmentArt therapyFalls preventionCommunication tips

views in over 82 countries

27,965 following the blog receiving notifications of new posts every Thursday morning

391

309 conversations from people living with dementia, carers and professionals

Network of over

59ranging from to

contributors

practicing Allied Health Professionals

(AHPs)

sta� from 3rd sector

and AHP students

“Let’s Talk about Dementia”Connecting People, Connecting Support“Never in the history of mankind did not talking about something scary make it disappear”

Elaine Hunter, National Allied Health Professional Consultant, Alzheimer Scotland@elaineahpmh

Introduction Dementia is being described as one of the foremost public health challenges worldwide (Scotlands Dementia Strategy 2015) however there is clear evidence that high quality post diagnostic support, provided over an extended period is essential to equip people living with dementia and their families with the tools, connections, resources and plans they need to live as well as possible with dementia and prepare for the future.Alzheimer Scotlands 5 pillar model of post-diagnostic support describes five key pillars which are recognised as essential to supporting people after their diagnosis incorporating the requirement to support people with dementia and their families “to learn to self-manage their condition”. The author’s ambition was to find a way to share allied health professional’s self-management approaches to people living with dementia and their families that was low cost, accessible, evidence based and co-produced .

What did we do?In June 2014 we launched a weekly blog called “Let’s Talk about Dementia”. (www.alzscot.org/talking_dementia) hosted and supported by Alzheimer Scotland and led by the author with two colleagues in Alzheimer Scotland. Blog: “A blog is a dynamic website consisting of discrete entries – known as “posts” – which are organised with the newest item at the top. They can be written by more than one author, often featuring content from guest authors on a regular or semi-regular basis” Scottish Health Council 2014

Why social media?• Globally social media is impacting on the way healthcare is planned, delivered and discussed with 43% of adults

using the internet for health information (NHS Employer 2014:161) • It is free, simple, easy to use and is growing in influence (Holdsworth et al 2013)• It is a great place to find new resources, share practice ideas, connect with colleagues around the world • It is a “valuable tool for leaders as it flattens hierarchies and increases transparency”. (Hunter 2013:351)• It is the right time. Scotland is transforming how it delivers post diagnostic support and self-management for

people living with dementia, offering allied health professionals an opportunity to look beyond traditional approaches of care.

• People living with dementia and their carers are users of social media through twitter and blogs.

Comments from contributors“Let’s Talk About Dementia has helped me raise awareness about falls & fall prevention for people with dementia #empowering” @lynnflannigan1“Let’s Talk about Dementia has helped me raise awareness of practical #AHPDementia tips and advice #enablingenvironments #nutrition“@JennyAHPDem “Let’s Talk About Dementia has been a great way to get instant feedback on an idea, you get readers comments the day you publish #passion #creative” @RuthOTDemComments from readers“It’s great your sharing your news about dementia here as it easily accessible for me living on the Shetland Islands”“Have shared (the blog) on twitter and facebook so that hopefully my friends will be better able to understand what is happening to me – and of course to other people in the same boat”“Thank you for such an inspirational video. It is great to see how occupational therapy and meaningful activity can contribute to someone’s life”

Impact and outcomesIn our first 12 months we had:

ConclusionThe blog offers AHPs a new way to connect to people living with dementia and their families, providing a platform for individuals to voice their views and share ideas in a branded environment whilst challenging the stigma often associated with the diagnosis of dementia.

Through the blog the expertise of the AHPs is accessible and the reach of the information is international. AHPs have much to offer people to live well with dementia and this blog is one way to support this.Why not join us on social media, email us your comments on this poster at [email protected] or follow the blog at www.alzscot.org/talking_dementia.

ReferencesAlzheimer Scotland http://www.alzscot.org/campaigning/five_pillars accessed 10 June 2015Holdsworth LK Douglas L Hunter E McDonald C 2013 Social Media: raising the profile of AHP’s British Journal of Healthcare Management 19(2) 85-92 Hunter EP 2013 The Elizabeth Casson Memorial Lecture 2013 : Transformational leadership in occupational therapy – delivering change through conversations British Journal of Occupational Therapy 76(8) 346-354NHS Employer 2014 New to the NHS? Your guide to using social media in the NHS quick guide for new starters Scottish Government Scotlands National Dementia Strategy 2013-2016 Scottish Health Council 2014 The Participation Toolkit Supporting Patient Focus and Public Involvement in NHS Scotland.

Making sure nobody faces dementia alone.Acknowledgments Thank you for taking the time to stop and read this poster. Thanks also to all our blog contributors and readers, we couldn’t do it without you . Finally, a huge thanks to Matthew and Wendy, Alzheimer Scotland, who support this blog along with me.

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