Annual Review 2006-07

WaverleyAnnualReport:Layout 1 31/10/07 14:05

Contents

VISION / MISSION / ABOUT WAVERLEY CARE . . . . . . . . . . . . . . . . . . . 2

INTRODUCTION . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 3

2006/07 HIGHLIGHTS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 4

AFRICAN HEALTH PROJECT . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5

ARTS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5

BUDDYING & VOLUNTEERING . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6

CHAPLAINCY . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6

DAYCARE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7

MILESTONE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7

SOLAS INFORMATION AND SUPPORT . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 8

CAFÉ . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 8

CHILDCARE . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 8

FUTURE PLUS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 9

COUNSELLING . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 9

ISIS & GROUP WORK . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10

COMMUNITY SUPPORT AND INFORMATION . . . . . . . . . . . . . . . . . . . . 10

PARTNERSHIPS AND RAISING AWARENESS . . . . . . . . . . . . . . . . . . . . . . . 11

FUNDRAISING . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 12

FINANCIAL STATEMENT . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 13

THANKS TO . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 14

DIRECTORS, PATRONS & CONTACT DETAILS . . . . . . . . . . . . . . . . . . . . . 15

Our VisionWaverley Care’s vision is that everyone affected by

HIV, AIDS & Hepatitis C in Scotland should receive the

highest standards of care and support to lead

independent and fulfilling lives.

Our MissionOur mission is to make a significant and meaningful

difference to the lives of people affected by HIV,

AIDS and Hepatitis C. We do this through the

provision of high quality supportive services, and by

campaigning for excellence in blood borne virus

treatment and care, and for an end to stigma and

discrimination surrounding these conditions.

About Waverley Care Waverley Care is Scotland's leading charity providing

care and support to people living with HIV, AIDS and

Hepatitis C and to their families, carers and children.

Established in 1989 the support offered by the charity

has helped thousands of people cope with the

practical and emotional challenges that an HIV

diagnosis brings with it.

Over the years our services have expanded to help

people affected by Hepatitis C and have most

recently focused on providing specialist support to

groups already discriminated against by society such

as Africans, gay men and drug users; individuals who,

once diagnosed with HIV, face double discrimination.

making a positive difference

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Introduction

When HIV testing became widely available in 1985 a positive diagnosis was seen as a death sentence.There were no drugs available to halt or slow the disease’s progress and most of the care and supportavailable centred around loss and bereavement. Reflecting the spirit of the times Waverley Care wasfounded to specifically build and run the UK’s first purpose built hospice for people with HIV/AIDS whichopened in February 1991 as Milestone House.

After more than 15 years of providing care and support we have come a long way in regard totreatment but still face many challenges around HIV prevention. Whilst anti-retroviral treatments meanthat most people living with HIV are able to maintain reasonably good physical health, we havewitnessed record numbers of new diagnoses in three out of the last four years. Waverley Care hasadapted existing services and developed new ones in response to these changes.

During 2006/07 we expanded our work to incorporate the area covered by Greater Glasgow and ClydeNHS where we are helping to deliver support services to members of the African community. Within ourexisting services, our family and children’s worker supported more than 40 children affected by HIV. Wetrained social work and nursing students in our respite and day care units based at Milestone andprovided training to 41 external agencies.

Waverley Care is proud of these and the other achievements reported in this review but there are majorchallenges ahead. Too many people are still becoming infected with HIV. Too many people living withHIV experience discrimination and rejection. Too many of our service users face hostility simply becauseof their skin colour or their sexuality. These are some of the challenges facing Waverley Care in thecoming year and for which we ask for your continued support. Together we can make a difference forpeople living with HIV.

Gill Stewart David JohnsonConvenor Director

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www.waverleycare.orgmaking a positive difference


2006/07 Highlights

•Establishing a base in Glasgow for ourAfrican Health Project.

•Celebrating the fifteenth birthdays of bothMilestone and Solas with a parliamentaryreception hosted by Sarah Boyack MSP.

•Being internationally recognised when theshort film made by our ISIS Women’s Groupwas selected and shown on the openingnight of the HIV/AIDS Film Festival held inToronto in August as part of the 2006 WorldAIDS Conference.

•Hosting a successful national conferenceaimed at African faith leaders in partnershipwith the Church of Scotland HIV Project andHIV Scotland.

•Engaging with the Reverend Patricia Sawo,an African pastor from Kenya, to help uscelebrate World AIDS Day.

•Taking on the administration of the CrusaidHardship Fund for Scotland. The fundadministers grants to those in financial needbecause of their HIV diagnosis and canmake an immediate and real difference tothe quality of people’s everyday lives.

•Fundraising over £250,000 to continueoffering our services.

•Ensuring that service users, staff, volunteers,funders and our partner agencies continueto experience Waverley Care as anorganisation that delivers high qualityservices.

•Working closely with Edinburgh basedHepatitis C agency, C plus, to develop jointservices for people with Hepatitis C.

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African Health Project

The Waverley Care African Health Projectwas set up in 2003 to respond to theneeds of African people in the Lothianregion. This year has seen the excitingstep of the service launching in Glasgowin association with NHS Greater Glasgowand Clyde.

Africans affected by HIV and AIDSfrequently have a range of needs, as wellas cultural differences, which make theirsituation unique within Scotland. Manyface difficulties regarding immigrationstatus, employment and housing andmost will have experienced racism todiffering degrees. All of these factors canmake it harder to access services.

Training healthcare providers to be awareof the different needs of Africans andsupporting African individuals andcommunities is the core of WaverleyCare’s work in this area. This is one of thecharity’s fastest growing services and hasproved invaluable to many people a longway from their traditional home.

Arts

A diagnosis of HIV always brings with it amixture of emotions - feelings of anger,frustration, grief, anxiety and loneliness.Coming to terms with these is a majorchallenge. For many it can be beneficial toexpress feelings about living with HIV throughart therapy where individuals can expressthemselves through physical means within asafe space.

The work of the Arts Projectis wide-ranging and variedfrom sculpture andpainting through totheatrical and musicalworkshops and multimediawork. A choice ofindividual or group work isimportant to allow bothindividual therapy andpeer support. The Artsbring enjoyment to thelives of people facing upto a life-changingcondition.

“ I am so far away frommy own family, butSolas has been myfamily and has givenme the support tocope with my HIVdiagnosis. Without thisI do not think I wouldhave survived”

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Buddying & Volunteering

To provide the wide-ranging support andinformation services offered by Waverley Carethe charity relies on the generosity of manypeople who give up their spare time tovolunteer. In return volunteers meet new people,learn new skills and help make a real differencein stopping the stigma and discrimination facedby people living with HIV.

Originally established to provide one-to-onesupport to individuals who had been cut off bytheir friends and family following their HIVdiagnosis, the Buddy Service continues to offersupport by volunteers joining service users insocial activities or accompanying them onhospital or GP visits.

Other support provided by volunteers includesreceptionist and café support, gardening,fundraising and specialist experience such ashairdressing, cookery, massage and reflexology.In the last year the charity has recruited 23 newvolunteers to join our substantial existing supportbase and we are always on the look out formore.

Chaplaincy

The Waverley Care chaplain offers spiritualand pastoral care. She is available tosupport those with HIV and Hepatitis C andtheir loved ones and to support the staff andvolunteers who work within the organisation.Her work is with people of all faiths and noneand her primary task is to ensure that care isholistic and that individuals’ spiritual needsare clearly met.

A large part of the chaplain’s work is toensure that, through her links with local faithcommunities, the wider community is betterinformed on the issues facing our serviceusers. One of the highlights of this year’schaplaincy work was co-hosting anacclaimed national HIV conference aimedat African faith leaders in partnership withthe Church of Scotland HIV Project and HIVScotland.

“ The chaplain offers somethingunique – and it’s needed”

“ Volunteering withWaverley Caremarked a real turningpoint in my life”

“ Some days ourconversations wereintrospective andsobering; other daysmy belly would hurtafterwards fromlaughing so much”

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Daycare

The Daycare Service aims to help peoplekeep their links in the community andminimise hospital or residential admissions.The service enables individuals to liveindependently in the community throughpersonally designed care packages.Support is provided in a variety of ways suchas accompanying service users on hospitalvisits or involving them in group activities.Often it involves gently re-engaging themwith their local community after a longperiod of illness through socially basedactivities such as cinema visits or bowling.

The Daycare team is a key link for those withHIV and other complex needs such as drugor alcohol abuse, family breakdown andmental health problems, to access the fullrange of support services offered byWaverley Care. The last year has seen somegreat work with Edinburgh based Hepatitis Cagency, C plus, to develop joint services forpeople with Hepatitis C.

Milestone

Milestone is Waverley Care’s short-termresidential respite unit for those who requiresupport in a structured setting. Opened in1991 as the UK’s first purpose built AIDShospice, Milestone celebrated its 15thbirthday this year. Developments inmedication and survival rates have meantthat Waverley Care has evolved the unit’suse from helping individuals cope with theend of life, to helping them get the most outof life with a long term chronic condition -HIV or Hepatitis C.

The unit offers a supportive atmosphere withpractical help and advice from a team ofspecialist nurses and social care workers. It isa great place for service users to rechargetheir batteries and gain individual, group andpeer support. Some also use the centre asan alternative to hospital or other hospices.

This year has seen Milestone work closely withMarie Curie Cancer Care in a newpartnership to provide services to those whohave progressed to terminal illness. Theservice allows people approaching the endof their life to have their wishes met and stayat Milestone whenever possible.

“ Coming to theDaycare group hashelped me thinkabout things - I’vebeen drink free allyear and that’s thelongest time I canremember”

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Solas Information andSupport Centre

Solas is a Gaelic word meaning light andcomfort and was chosen to reflect theintention that Waverley Care’s informationand support centre should be a safe, warmand welcoming place. It opened its doorson World AIDS Day 1991 and, alongsideMilestone, celebrated its 15th birthday thisyear and reflected on how the services haveadapted to meet the changing needs ofthose affected by HIV.

The support and information providedthrough Solas may be on an individual,group or peer basis and, as a result, anumber of services operate out of Solas.

Café

Core to Solas is the café. A central area forservice users, friends and the general public tomeet and chat over a drink, tasty snack or fullmeal.

The informal support provided by café staff andvolunteers is key to making people feel welcomeand comfortable in accessing other services.

Childcare

The stigma and prejudice which still surroundsHIV means that children and young peoplewhose lives are affected by the virus feelparticularly isolated and unable to confide inand seek help from friends. The ChildcareService offers after school activities and holidayplay-schemes to provide an opportunity forchildren and young people to meet and seeksupport from others in a similar situation.

Alongside group work, the children and familiesworker offers one-to-one and family support.This can either be in the safe environment ofSolas or with families in their homes.

“ Solas for me is acomfy place whereI can take off theface I wear for theoutside world andbe myself”

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Future Plus

The Future Plus Service provides two services.The first is around skills building and acquisition.It provides information and advice toindividuals to allow them to work towards theirown personal development in relation toeducation and employment. Help is providedwith interview techniques, CV writing skills andjob search information.

The second service is a health promotionservice designed to support people to makeinformed choices about their well-being andlive as healthy a life as possible. Informationand support is provided around various healthissues including healthy eating, physicalactivity, stress and anxiety and sexual health. Awalking group continues to thrive and the pastyear has seen the project set up a weekly foodco-op to improve service users’ access to freshseasonal and affordable fruit and vegetables.

Services are also provided to employers toenable people living with HIV and/or Hepititis Cto access the labour market. Free trainingworkshops for employers and employees onlegal issues and creating an HIV workplacepolicy are available.

Counselling

The counselling service is a completelyconfidential service. It aims to offer supportin a safe, secure and supportive environmentand counselling can be undertaken on ashort or long-term basis depending on theindividual’s needs.

As with the evolution of other Waverley Careservices, the focus of discussions has movedaway from issues around death and dying tothose around living with HIV and Hepatitis C.People often bring multiple and complexissues which may include dealing withdiagnosis, coping with stigma, relationship issues, loss of self-confidence andconcerns around future prospects,hopes and dreams.

Waverley Care also offerscounselling to partners andcarers who may bring issuesaround caring for a loved onewhilst struggling with their ownconcerns and problems.

“ Being a member ofthe walking groupgave me the abilityto achieve what Idid not think Icould”

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ISIS

The ISIS group is named after the Egyptiangoddess and is Waverley Care’s group forwomen directly affected by HIV. Groupmembers come from differentbackgrounds and experiences but sharemany similarities that enable them tosupport each other. As well as informaldiscussion, workshops are arranged toexplore issues that arise from living withHIV. Often this is done through themedium of the arts - making videos,creative writing and sculpture etc.

Social outings and residential courses alsotake place to further the support that thewomen gain from each other in anenvironment where they can relax and betotally open about their HIV status. ISIS’swork was recognised internationally thisyear when a short film the group createdwas shown on the opening night of theHIV/AIDS Film Festival in Toronto.

Group Work

Group work is key to Waverley Care’ssupport services. The African group work iswell underway and this year has also seenthe start of the renewal of dedicated gaymen’s support work. The ISIS Women’s Groupwas established in 1994 and has achievedgreat success. It is the role model for themore recently established groups.

Community Supportand Information

Working closely with other HIV organisations inScotland, Waverley Care’s Community Supportand Information Service provides individualswith information about HIV that is specificallyappropriate to their individual needs.

An initial assessment is carried out to determinethe best means of support and to refer individualson, as appropriate, either to other services withinWaverley Care or to external agencies. Theservice is designed to support people at times ofcrisis and is often focused on relationships, treat-ment information, housing and financial issues.

“I joined ISIS nearlyfive years ago andenjoy gathering withother positivewomen andexchangingexperiences. It’sbeen a big part ofmy life”

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Partnerships and Raising Awareness

As well as providing services to people living with HIV andHepatitis C, Waverley Care has spent the last year workingfor excellence in treatment and care, and campaigningagainst stigma and discrimination.

The charity has provided training to 41 organisationsincluding schools, universities, and workplaces and hasbeen represented at conferences and on a number ofcommittees and boards.

Conferences attended include those of the British HIVAssociation (BHIVA) in Brighton and Edinburgh, and the16th World AIDS Conference in Toronto. Toronto wasespecially important for Waverley Care. Representativesfrom the organisation presented material whilst they alsolearnt about the latest developments in treatment andcare. This information helps influence the shape andnature of future services and ensures that the charity’sinformation officer is equipped with up to date knowledge.

Representation on committees included the UKCommunity Advisory Board, the BHIVA standards andguidelines committees and the Scottish Parliament’s crossparty group on sexual health.

Waverley Care offers its services in partnership with TheCity of Edinburgh Council, The Councils of Mid, East andWest Lothian, Crusaid, The European Social Fund, NHSGreater Glasgow and Clyde, NHS Lanarkshire, NHSLothian and The Scottish Government.

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Fundraising

Waverley Care relies on the goodwill andgenerosity of many organisations andindividuals to enable us to offer the servicesfeatured in this Annual Review. We havealways enjoyed good relationships withmany charitable trusts and are grateful fortheir vision in supporting our work withpeople living with HIV and Hepatitis C.

The Fundraising and Development teamemploys a wide range of methods to ensurethat we meet our income targets and raiseour profile in the broader community.

In addition to an annual Prize Draw, a WorldAIDS Day appeal to supporters and the saleof Christmas merchandise, our broaderfundraising strategy revolves around thedelivery of events tailored to appeal toexisting supporters and engage new ones.These events vary from ‘come and sing’ daysthrough sponsored sports events to film nights.

The musical community continues to lend itswelcome support to our fundraising efforts.One of the highlights of the year was asinging workshop with the UK’s leadingcomposer, John Rutter. Held in October, this

was our first fundraising venture in Glasgow,and proved tremendously popular with oursupporters.

The Edinburgh Festival Fringe remains a mainfocus for our community fundraising with twenty-one consecutive nights’ bucket shaking at ThePleasance where our unique tartan ribbons areoffered to fringe goers in return for theirdonations. We are indebted to the volunteerswho give their time to make this possible.

Furthermore, Waverley Care was pleased towelcome Anthony Alderson as a new Patronin early 2007 in recognition of support wehave received from The Pleasance TheatreFestival. In 2006 this included the annualTartan Ribbon Comedy Benefit and a benefitperformance by Perrier Award winningcomedienne, Laura Solon.

Local churches, colleges, universities,secondary schools and bars once againrenewed their support for Waverley Carearound World AIDS Day, 1st December, witha concerted commitment from theEdinburgh Students’ Charities Appeal and EUFresh Air radio network.

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Financial Summary

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Waverley Care

(a company limited by guarantee)

Summarised Consolidated

Financial Statements

For the year ended 31 March 2007

Full financial details are

available from

[email protected]

Income and Expenditure Account2007 2006

£ £INCOME 1,549,839 1,486,563

EXPENDITURE (1,541,520) (1,478,693)──────── ────────

SURPLUS ON ACTIVITIES FOR THE YEAR 8,319 7,870════════ ════════

Balance Sheet

FIXED ASSETS 695,828 755,880NET CURRENT ASSETS 541,078 565,750PENSION LIABILITY (26,000) (200,000)

──────── ────────TOTAL ASSETS LESS LIABILITIES 1,210,906 1,121,630

════════ ════════

Financed By:

UNRESTRICTED FUNDS- General 80,423 104,225- Pension reserve (26,000) (200,000)- Designated 456,617 442,407RESTRICTED FUNDS 93,747 100,375CAPITAL RESERVE 606,119 674,623

──────── ────────1,210,906 1,121,630════════ ════════



• Abbott Laboratories

• B&Q

• Beeslack CommunityHigh School

• Bell Baxter High School

• Berwickshire HighSchool

• Boehringer Ingleheim

• ‘The Bohemians’ LyricOpera Co.

• CC Bloom’s

• Café Habana

• Caledonian HiltonHotel

• Calistoga Restaurant

• Cameo Cinema

• Charlie Miller

• Chiene & Tait

• Church of ScotlandHIV/AIDS Project

• City of EdinburghSwimming Club

• Courant Fund

• Craigmount HighSchool

• CraigroystonCommunity HighSchool

• CWAC

• Daniel’s Bistro

• Deans Community HighSchool

• Deloitte

• Doodles CeramicWorkshop

• Dominion Cinemas

• Dr Guthrie’s Association

• Edinburgh Playhouse

• Edinburgh Flotarium

• Edinburgh Presbytery ofthe Church of Scotland

• Fabhatrix

• Festival City Theatres

• Firrhill High School

• Echo Trust

• Edinburgh Children’sHoliday Fund

• Elton John AIDSFoundation

• ESCA

• EU Wind Band

• Filmhouse

• Fresh Air

• Gilead

• GlaxoSmithKline

• Gordon FraserCharitable Trust

• The Grove Hotel

• Habana

• Halifax Bank ofScotland

• Heart of MidlothianSwimming Club

• Henderson’s ofEdinburgh

• The Henry Smith Charity

• Hilton in theCommunity Foundation

• The Hope Trust

• The Hospital SaturdayFund Charitable Trust

• Howies Restaurants

• The InchcapeFoundation

• Jedburgh GrammarSchool

• John Watson’s Trust

• Joseph H BonnarAntique Jewellery

• JTH Charitable Trust

• Kelso High School

• The LankellyChaseFoundation

• Leith Academy

• Linlithgow Academy

• Lloyds TSB CapacityBuilding Project

• Lloyds TSB Foundationfor Scotland

• Lornshill Academy

• Mamma’s PizzaRestaurant

• The Margaret MurdochCharitable Trust

• The MainhouseCharitable Trust

• The Martin ConnellCharitable Trust

• Miss Agnes H Hunter’sCharitable Trust

• The Monument Trust

• Mrs J B S Murray’sCharitable Trust

• The Netherdale Trust

• No. 18 Sauna

• The Noel Buxton Trust

• North British Hotel Trust

• Off the KerbProductions

• Peter MooresFoundation

• Plaisir du Chocolat

• Pleasance TheatreFestival Trust

• The Regent Bar

• The Robertson Trust

• Roche

• Royal CollectionEnterprises

• The Royal LyceumTheatre Co

• The Russell Trust

• The ScotbelgeCharitable Trust

• Scottish BusinessAchievement AwardTrust

• Scottish EpiscopalChurch

• Scottish Parliament

• St Andrew’s & StGeorge’s Church

• St Augustine’s HighSchool

• St Margaret’s School

• St Peter’s EpiscopalChurch

• The Stand ComedyClub

• Standard Life plc

• Student Stop AIDSSociety

• Tapas Olé

• Valente McCombieHunter (VMH LLP)

• West Calder HighSchool

• West Lothian YouthTheatre

• William Grant & SonsLimited

• Zen Lifestyle

And a big thank you to ourmany individual donors

Our thanks go toeveryone who has helped usduring thepast year.

Thank you all...

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DirectorsMs Shulah Allan

Dr Karin Froebel

Mr Andrew Marshall-Roberts

Ms Hosanna Msengezi

Ms Hilary Patrick (resigned 26th October 2006)

Ms Pauline Scott

The Right Reverend Brian Smith

Ms Gillian Stewart CB (convenor)

Mr David Taylor MBE

Mr Brian West

Dr Helen Zealley OBE

PatronsAnthony AldersonChristopher BellKate CopstickSir Tom Farmer CBE KCSGAlexander McCall SmithSheena McDonaldShirley MansonChristopher Richardson

Contact DetailsWaverley CareOld Coates House32 Manor PlaceEdinburgh EH3 7EBTel: 0131 226 2206 [email protected]@waverleycare.org

Waverley Care MilestoneHIV Respite and Community Services113 Oxgangs Road NorthEdinburgh EH14 1EBTel: 0131 441 [email protected]

Waverley Care SolasHIV Support Centre, 2/4 AbbeymountEdinburgh EH8 8EJTel: 0131 661 [email protected]

Waverley Care African Health ProjectFlat 7, 34 Shelley CourtBrownlee Centre1053 Great Western RoadGlasgow G12 0YNTel: 0141 211 [email protected]

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Waverley Care, Old Coates House,

32 Manor Place, Edinburgh EH3 7EB

Tel: 0131 226 2206 Fax: 0131 226 2209

Registered Charity No. SC036500

Company Limited by Guarantee No. 253043

Designed and produced by Montgomery Litho Group

Selected photography by Jarlath Flynn www.jarlathflynn.com

Musical event photos courtesy of Gary Doak


Annual Review 2006-07

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