AnnuAl RepoRt...in Parksville. Over $40,000 was raised last year. These funds are used for patient...

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2014 ANNUAL REPORT ALS Society of British Columbia

Transcript of AnnuAl RepoRt...in Parksville. Over $40,000 was raised last year. These funds are used for patient...

  • 2014 AnnuAl RepoRt AlS Society of British Columbia

  • ouR Mission

    The ALS Society of BC is dedicated to providing direct support to ALS patients, along with their families and caregivers, to ensure the best quality of life possible while living with ALS. Through assisting research, we are committed to find the cause of, and cure for

    Amyotrophic Lateral Sclerosis.

    ouR objectives

    Find the cause of, and cure for ALS. While research is ongoing, the Society provides:

    • directsupporttopatients,theirfamiliesandcaregivers,

    • raisefundsforpatientservicesandresearch,and

    • workstoincreasepublicawarenessandunderstanding of ALS.

  • Contents GeneRAl InfoRmAtIon 2 ALS Mission Statement & Objectives

    3 Board of Directors

    RepoRtS 4 President of the Board

    5 Executive Director

    6 Treasurer

    7 Victoria Chapter & North Central Island Chapter

    8 2014 ALS Canada-Brain Canada Discovery Grants

    10 Patient Services

    13 Endowment Funds

    14 Reserve Endowed Funds & Externally Managed Endowment Fund

    ACknowledGementS 16 Donors, Grants & Foundations

    23 Third Party Fundraising

    2013/2014 ALS BC Board of Directors

    Board of DirectorspReSIdent

    Travis Stevenson

    VICe pReSIdent

    Vandhana Misri

    tReASuReR

    Norm Louie

    SeCRetARy

    Paul LeBlanc

    exeCutIVe dIReCtoR

    Wendy Toyer

    VICtoRIA ChApteR pReSIdent

    Joyanne Plewes

    noRth CentRAl ISlAnd

    ChApteR pReSIdent

    Glenda Reynolds

    dIReCtoRS

    Erin BarrettDonna BartelNeil CashmanAnthony CheungPhil DuboisAndrew EisenDon McCuskerAnn McArthurRichard PoliquinAmy SchusterJim Williams

    honouRARy lIfe dIReCtoRS

    Dr. Andrew EisenDr. Charles Krieger

    3ALS Society of BC 2014 Annual Report

  • It has been both a privilege and honour to serve as President of the ALS Society of BC, and something I wish extended beyond a two-year tenure with this last year in particular being such an amazing time to be part of the ALS community in a leadership role.

    This past summer the ALS #IceBucketChallenge took the world by storm, and for many changed the reality of ALS – a disease that before the social media phenomenon was largely unknown except by those directly in its shadow. With the generosity of more than 260,000 Canadians, ALS Societies across Canada are now able to inject $26 million into the ALS community over the next three years, with $20 million directly dedicated to research.

    The unexpected awareness has fostered unprecedented provincial, national and global advocacy that gives us the opportunity engage our local community to further support necessary programs that deliver critical services to British Columbians living with ALS.

    Importantly, despite the amazing success resulting from the #IceBucketChallenge, ALS is not yet a treatable disease. We need to build from the recent awareness to ensure that we can continue to raise necessary funds to provide the much needed programs that are core to our Society. More patients

    are being diagnosed daily, and the cost of equipment and critical services increase every year. Until there is a cure, we cannot afford to let up.

    Our Society is able to provide meaningful service and sup-port to our community because of the amazing management team, staff and volunteers who make sacrifices every day for the greater good. I would like to thank everyone for their hard work in making “TEAM ALS BC & Yukon” the driving force behind the momentum we have built over the years, and encourage you to foster the awareness with others to focus on those who need it most.

    It has been an honour to serve as your President for the past two years, and I thank you for the opportunity to be part of such an amazing, passionate community. I look forward taking a new role with the Society, and working with the in-coming board to build from where we are today to make sure we can deliver our core services to the best of our abilities to improve the quality of life for those affected by ALS, and one day make this a treatable disease.

    travis Stevensonpresident of the Board, AlS Society of BC

    Message from the President of the Board

    4 ALS Society of BC 2013 Annual Report

  • 2014 was a very busy year for the ALS Society of BC and I am pleased to share some of the exciting developments that have taken place over the last 12 months.

    Prior to the ALS Ice Bucket Challenge event, we were chal-lenged to raise awareness about ALS, and funds to increase our support to ALS research. These challenges were literally ‘washed away’ in August 2014. A new era of hope has begun.

    In 2012 the ALS Society of BC established a 5 year goal to raise an additional $2 million for ALS research. A five year strategic plan was developed to achieve this goal with-out compromising our quality of life services provided to people affected by ALS in BC and the Yukon. We focused on maintaining and expanding revenues from existing fundraising events, especially the Walks for ALS campaign. Compared to 2012, walk revenues have increased by 19%. We put greater emphasis on developing our planned giving campaign and establishing new partnerships. Miraculously, the funds from the ALS Ice Bucket Challenge donated in BC & Yukon donors totalled over $2 million. Our board elected to designate this revenue to ALS research (see Ice Bucket Challenge report). Our goal set in 2012 has been achieved for now. New ways to provide support to people affected by ALS are being reviewed.

    Looking at past ALS patient priority surveys, the need to better support family caregivers has been consistent. With

    this in mind our new goal has been established; to provide greater support for family caregivers. A pilot program will be launched in 2015 to look at how we can accomplish and sustain this new service. With continued support from our volunteers, donors and partners I am confident this goal can be achieved.

    In British Columbia we are extremely fortunate to have what we believe to be the best ALS specialists in the world caring for our clients at the ALS Centre at GF Strong Rehab Hospital. Our partnership with the Centre is crucial to pro-viding the best quality of care service for people affected by ALS in BC.

    We are proud of the spirit that drives our efforts – TEAM ALS BC & Yukon. These amazing volunteers work with us to raise funds to provide the many support programs we offer keeping administration costs to less than 15%. There is a quote that reads, “the world is hugged by the faithful arms of volunteers.” It is an honour to work with our team everyday of the year.

    Thank you to everyone for your contributions to support people affected by ALS.

    wendy toyerexecutive director, AlS Society of BC

    Message from the Executive Director

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    norm louie treasurer, AlS Society of BC

    Message from the Treasurer

    Expense Breakdown including ALS Ice Bucket Challenge

    1 Contribution to AlS Research $2,142,682 = 58.87%

    Includes ice bucket challenge, 40% walks revenue and other donations designated to research.

    2 patient Services – Quality of life programs $850,819 = 23.37%

    3 teAm AlS BC & yukon Volunteer program $17,746 = 0.48%

    4 outreach & public Awareness $53,532 = 1.47%

    5 Administration $290,048 = 7.97%

    6 fundraising $253,190 = 6.95%

    7 travel throughout BC & yukon $31,108 = 0.85%

    8 Chapters Administration $10,200 = 0.28%

    Revenue Breakdown including ALS Ice Bucket Challenge

    1 AlS Ice Bucket Challenge $1,921,493 = 48.87%

    2 3rd party event fundraisers $484,960 =12.34%

    3 walks for AlS $672,039 = 17.1%

    4 AlS BC Sponsored events $156,149 = 3.97%

    5 foundation/Corporate Grants & donations $353,078 = 8.98%

    6 other donations $343,791 = 8.75%

    This report was generated using the unaudited yearend figures therefore the numbers may vary slightly from the audited statements.

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    6 ALS Society of BC 2013 Annual Report

  • Messages from the Chapters

    VICtoRIA ChApteR

    noRth CentRAl ISlAnd ChApteR

    Our Victoria Chapter Living with ALS Support Group monthly meet-ings from September to June keep our members connected and able to access our services.The support group program

    each month features either a guest speaker or a discussion topic to engage our members.

    The major fund raising efforts during the year included:• TheWalkforALSinSeptemberledbyRasoolRayaniand

    Adele Fraser which raised over $65,000;• The28thAnnualALSFlowerDayinJunecoordinatedby

    Diane Nadeau realized over $11,000 for ALS research;• The5thAnnualCarWashandBBQorganizedbyPeter

    Grant and his family honouring the late James Grant which raised $5,420;

    • TheThriftyFoodsSmileCardProgramcoordinatedbyJoanne McLeod raised $964; and

    • Thesaleof“potscrubbies”createdbySusanMonaghanraised $600.

    I would be remiss to omit mentioning the outstanding success of the Ice Bucket Challenge which has raised awareness world-wide and heartened those clients and families facing ALS.

    We currently have 31 patients in our area. In 2014, there were twelve new clients while nine clients passed. We are currently supporting four families in the region whose family member with ALS lives elsewhere. We also lost three outstanding volunteers who passed in 2014.

    The provincial office continues to be very supportive of our Chapter. The staff regularly attend our meetings and we enjoy welcoming them and strengthening the connection between the clients, families and the Richmond office.

    I am very appreciative of the “family” that I am proud to be a member of here in Victoria – a family of volunteers dedi-cated to supporting those impacted by ALS, to increasing awareness, and to raising funds to support client services and research.

    Joyanne plewes president, Victoria Chapter

    Support Group Meetings are a special time to gather. We try to meet every second month and either have a speaker of interest or a topic of interest that all can par-ticipate in. We provide

    information to people living with ALS including helpful hints and items that may make life easier.

    People living with ALS and their caregivers can speak on new ideas and things that have helped them personally in their journey that they can share with the group.

    Our Annual Walk is the second Sunday in June at City Hall

    in Parksville. Over $40,000 was raised last year. These funds are used for patient services and research.

    We work to increase ALS awareness and increase funding.

    We host and attend the ALS Mobile Clinic in Nanaimo each year with a team from the ALS Centre at GF Strong. The team meets with 5 or 6 families in our area when travel be-comes difficult.

    NCIC supports 30–35 people living with ALS at any given time.

    I feel fortunate to work with this Society. They are all won-derful people!

    Glenda Reynolds president, north Central Island Chapter

    7ALS Society of BC 2014 Annual Report

  • IceBucketChallenge

    Travis Stevenson

    ONALSRESEARCHINCANADA–In2014,18applica-tions for discovery grants were received, which was far more than ever received in a single competition. It was also the first time we have had our Discovery Grants reviewed by our International Peer Review Panel, a group of seven ALS experts from the United States and Europe.

    This also marks the first grants named in the partnership with Brain Canada as a result of the funds from the ALS Ice Bucket Challenge.

    The summer of 2014, with a bucket, ice and water ALS – a disease that before the ALS Ice Bucket Challenge was largely unknown. Funds received from the ALS Ice Bucket Challenge are enabling the ALS Societies across Canada to inject $26 mil-lion into the ALS community over the next three years. We are tremendously excited about the ability of this partnership to fund world class projects that will ultimately move the field of ALS research forward.

    2014 ALS Canada-Brain Canada Discovery Grants

    2014 AlS Canada Brain Canada discovery Grant Recipients

    dr. heather durham Montreal Neurological Institute Epigenetic mechanisms underlying dendritic atrophy in ALS

    dr. Charles krieger Simon Fraser University Use of bone marrow cells to deliver single chain antibodies in ALS

    dr. Alex parker Université de Montréal Investigation of the innate immune system and motor neuron degeneration in genetic models of ALS

    dr. Janice Robertson University of Toronto Characterizing the C9ORF72 protein intewractome for identifying novel pathogenic pathways in ALS

    dr. melanie woodin University of Toronto Synaptic inhibition in the motor cortex of and ALS mouse model

    8 ALS Society of BC 2013 Annual Report

  • Surrey Support Group

  • eQuIpment loAn pRoGRAm With2,800piecesofmedicalequipmentourEquipmentLoan Program is designed to help people cope with the daily challenges of decreasing mobility and independence, through obtaining basic and essential assistive equipment. This includes mobility equipment, lift equipment, beds & accessories, communication devices, and bathroom aids, if needed.

    • 1,853requestsforequipmentwerefilled+10%over2013

    • 2,201equipmentdeliveries/pickups+4%over2013

    • 1,359maintenancerecords(cleaning&repair)toensuresafeandviableequipmentisprovided+12%over2013

    tRAnSpoRtAtIon SuppoRt pRoGRAm The Transportation Support Program provides transportation for people living with ALS to attend Society events, appointments at the ALS Centre, other ALS related medical appointments such as Respirology, and support groups.

    •269tripswereprovided+9%over2013

    Camp Alohi Lani 2014

    pSyCholoGICAl tReAtment SeRVICeS Psychological support services are available free of charge at locations across BC. Registered Psychologists and Registered Clinical Counselors provide much needed therapy and counseling to ALS Patients, their families and caregivers at any stage of the illness.

    • 90peopleaccessedthisprogram+43%comparedto2013

    CAmp AlohI lAnI In July ALS BC hosts a camp for youth who have a Parent (or Grandparent in a significant role) Living with ALS. ALS BC is extremely pleased to be able to offer this weekend retreat at no cost to families. Camp Alohi Lani, which means ‘Bright Sky’ in Hawaiian, is a safe setting in which youthaged8–17yearscancometogetherandreceivesupport for their own journey. Most importantly Camp Alohi Lani offers campers an opportunity to meet other youth from across BC and make connections with peers.

    • 27campersin2014and1personattendedtheALSSaskatchewanYouthRetreat

    Patient Services

    10 ALS Society of BC 2013 Annual Report

  • CAReGIVeR’S dAy Sponsored by the George “Sonny” Williams endowment funds, caregiver days are hosted in communities around BC. Caregiver Day is a chance for the full-time primary caregivers of ALS patients to have a day of respite.

    • 4CaregiverDayswereheld

    SuppoRt GRoupSSupport groups provide an open, friendly and safe environment for ALS patients, family members, caregivers and friends to discuss issues related to living with ALS. Groups are facilitated by experienced, trained volunteers.

    • 44supportgroupmeetingswereheldinBCin2014

    AdVoCACy In May of 2014, the ALS BC Advocacy committee travelled to Victoria to meet with the Liberal and NDP Caucuses as well as the MLA from the Green Party and Independent MLA. June was proclaimed ALS Awareness Month in British Columbia. This will be an annual meeting – “Legislature Day” to ensure communication regarding ALS is kept up to date with our provincial elected officials.

    On the federal scene, ALS BC representatives are members of the ALS Canada Advocacy Committee. In 2014, work continued for reforms to the compassionate care act and securing improved funding for ALS research in Canada.

    CARe ConneCtIonS The primary purpose of forming a Care Connection is to reduce caregiver responsibilities and reduce the worry the person with ALS has for their caregiver. By caring for the caregiver, the person with ALS is helped as well. The ALS Society of BC’s Care Connection is a program to aid your own group of caring family and friends to help their loved ones with ALS and their caregivers.

    • 25familiesareusingthisprogram+36%over2013

    teAm AlS BC & yukon VolunteeR pRoGRAm Built on volunteerism, the ALS Society of British Columbia recognizes and affirms the involvement of volunteers at all levels of the organization as a vital component to achieving its mission: to help persons living with ALS and their families manage the effects of the disease and to raise funds for ALS research. The ALS Society of British Columbia encourages the participation of all people regardless of race, ancestry, place of origin, citizenship, creed, sex, sexual orientation, marital status, family status age, religious beliefs, location or health in contributing to and building their community and the ALS Society through the act of volunteering. The ALS Society is committed to supporting and nurturing volunteerism by providing guidance, resources and recognition to all volunteers in mutually beneficial relationship.

    • 493registeredvolunteers

    • 6,529volunteerhoursloggedin2014+28%over2013

    Rick Poliquin, Chair Advocacy Committee

    11ALS Society of BC 2014 Annual Report

  • Camp Alohi Lani 2014

  • Thank you letters from campers at Camp Alohi Lani

  • TeAm ALS BC Yukon volunteer conference with speakers Steve Darling Global TV News and Quinn Callandar

    “It really feels like we are all working together. I am so proud to belong.”

    teAM ALs bc & Yukon voLunteer

    Thank you for the opportunity. I leave today feeling charged, connected and ready to prepare for a GReAT Walk.”

    teAM ALs bc & Yukon voLunteer

  • GeoRGe “Sonny” wIllIAmS endowment fund

    This endowment fund was created in 2003 to support programs to benefit family caregivers of people living with ALS, such as the annual caregiver days held throughout the province.

    peARmAIn endowment fund The executive of the ALS Society of BC North Central Island Chapter established this endowment to honour the dedication of NCIC volunteers Gord and Jean Pearmain. Disbursements go to support the ALS BC equipment loan program.

    Financial details for all endowment (restricted) and endowed funds (unrestricted) are provided in the 2014 ALS Society of BC Audited Financial Statements.

    Jean and Gord Pearmain

    Jim, Verna, and Zach Williams

    Endowment Funds

    dR. AndRew & kAthleen eISen endowment fund

    Proceeds from this endowment are directed to support ALS patient services provided by the ALS Society of BC.

    dAVId pendRAy memoRIAl endowment fund

    The disbursements from this fund are directed to support patient services provided by the ALS Society of BC.

    Dr. Andrew and Kathleen eisen

    David Pendray

    15ALS Society of BC 2014 Annual Report

  • kARl StefAno wAtt endowed fund

    This fund is used to assist family caregivers caring for a loved one living with ALS. In 2014, the fund supported weekly care for a person living with ALS in a care facility who has no family to support her.Karl Stefano Watt

    AlS AdVentuRe ChAllenGe fund Revenue held in this fund support improved research technology and services for ALS patients that will improve their quality of life, and new initiatives proposed by the ALS Society of BC. In 2014, this funded professional development training for members of the ALS Centre team and the ALS BC director of patient services.

    These funds have been allocated for the purpose of supporting the Society’s activities in the event of a cash flow decline.

    VICtoRIA endowed fund The ALS Society of BC Victoria Chapter raises funds through many fund raising events, memorials, bequests, cash donations, and donations of medical equipment. The fund’s purpose is to assist people living with ALS, in particular the equipment loan program.

    Reserve Endowed Funds

    kAmloopS endowed fund This fund supports the development of communications technology used by people living with ALS to provide the best quality of life possible living with ALS. In 2014, the ALS Society of BC partnered with Communication Assistance for Young Adults (CAYA) when the age restriction was lifted. We believe this partnership will provide improved service to people living with ALS who have communication challenges.

    AlS SoCIety of BC endowment fund In 1992 the family of Jeanette Heinrich established an endowment in her memory, managed by the Vancouver Foundation. This permanent endowment is administered by the Vancouver Foundation. The capital remains intact and all interest income is paid to the ALS Society of BC to support ALS patients throughout the province. In 2014 the principle amount exceeded $1 million.

    Richardson Family

    Bob Heinrich

    Externally Managed Endowment Fund

    16 ALS Society of BC 2013 Annual Report

  • Peoples Drug mart Walk for ALS

  • I’m writing to show my support for the ALS Society of BC Transportation program. my dad was diagnosed with ALS two years ago and it’s been very tough for my family and I since. We are so thankful for the ALS Society of BC for all the support they have been able to provide us with, especially with transportation. my dad is in an electric wheelchair and we do not have a vehicle that is able to transport him in so we were so grateful when we heard that the ALS Society provides transportation that is able to accommodate my dad in his electric wheelchair. my dad lives in Surrey and my brother and I live in Vancouver, almost all my dad’s doctor’s appointments are in Vancouver so it’s helped us a lot that he is able to get transportation to Vancouver and its really helped with the relief of the financial burden that we are already facing with his disease. Again, we are so thankful that the ALS Society of BC is able provide the transportation program and we don’t know what we would do without it!

  • We would like to thank our donors and sponsors who have supported the programs and fundraising events of the Society in 2014. Below is the list of donors who gave $500 or more to ALS Society of BC (the list excludes anonymous donors).

    pRoVInCIAl SponSoRSPeoples Drug Mart (BC) Ltd. Province of British Columbia through BC Gaming Grant

    CoRpoRAtIonS & CluBS0860145BCLtd.

    ACT/UCT Kelowna West Council #1003

    AR Savage & Sons

    Abbotsford Slo-Pitch

    Ace Personnel Domestic Services

    ADP Canada

    AG Valley Foods

    Agropur

    Ainsworth-Jenkins Holdings Inc.

    Algra Bros Development Ltd.

    Allan McGavin Sports Physiotherapy Clinics

    Alliance Concrete Pumps

    Amacom Management Corp.

    Animal Care Hospital

    Annex Consulting Group Inc.

    Aplin & Martin Consultants Ltd.

    Applewood Motors Inc.

    Ardmore Golf Course Ltd.

    Argo Road Maintenance (South Okanagan) Inc.

    Aritzia

    Bark n’ Fly Dog Daycare & Boarding

    Bazinga Technologies Inc.

    BC Brick Supplies Ltd.

    BC Housing

    BC Life & Casualty Company

    BC Transportation & Warehousing Association

    BC Tree Fruits Cooperative

    Beddis Financial Services Corp.

    Bentall Kennedy (Canada) LP

    Best Buy Canada

    Big Picture Conferences Inc.

    Bionic Trousers Media Inc.

    Black Press Group, Ltd.

    Bron and Sons Nursery Co.

    Browns Socialhouse

    Buddha’s Light International Association

    Bulkley Valley Credit Union

    Burnaby Lougheed Lions Club

    Business in Vancouver

    Butcher Boys Enterprise Ltd.

    Buy Low Foods LP

    Bypass Equipment

    C PO’s Association

    Cambridge House International Inc.

    Canada Furnace

    Canadian Forces (Chiefs & PO’s)

    Canalta Real Estate Services Ltd.

    Capella Dance Academy

    Capital Motors Ltd.

    Capri Insurance Services

    Carter Auto Family

    Casa Mia Projects Ltd.

    Casino Nanaimo

    Cavalier Jewellers Ltd.

    CBRE Ltd.

    Central 1 Credit Union

    Central Interior Piping & Maintenance Ltd.

    CFJC-7 Kamloops

    Chemo RV Sales & Services Ltd.

    CIBC Commercial Bank

    City of Langley

    City of Parksville

    City of Richmond

    Clarke Family Real Estate Inc.

    Classic LifeCare

    Clayburn Dental

    CLE BC

    Clearbrook Iron Works

    Clearview Grinding Ltd.

    Clio

    CMW Insurance Service Ltd.

    Coast Hotels & Resorts

    Coastal.com

    ColasCanada Inc.

    Colin Scarlett Personal Real Estate Corp.

    College of New Caledonia

    Core Fitness

    Craftsman Collision

    Creation Technologies

    Crelogix Acceptance Corp.

    Curtis York Trucking

    DP Murphy Inc.

    Dell Transport Ltd.

    Dexter Associates Realty

    Dorcas Unit Osoyoos United Church

    Dr. JP Hawkeswood Inc.

    Dr. Crysta Serne Inc.

    Dr. Trevor Morhaliek Inc.

    Duradek Canada Ltd.

    eCHANG Net Inc.

    Ecoasis Developments

    Enderby & District Financial

    Envision Financial

    ESP Equipment

    Famoso Inc.

    Fashion Plus Merchandising Ltd.

    Fidelity Investment Canada

    FirstService Residential BC Ltd.

    Donors, Grants & Foundations

    19ALS Society of BC 2014 Annual Report

  • Four Foot Curling Camp Ltd.

    Franklin Realty Advisors Inc.

    Fraser River Chevrolet

    Fraser Valley Refrigeration

    Fraternal Order of Eagles – Ladies Auxiliary Parksville #3922

    Fraternal Order of Eagles – MapleRidge#2831

    Fraternal Order of Eagles – PrinceGeorge#3318

    Fraternal Order of Eagles – Chemainus-Crofton #4400

    Fraternal Order of Eagles – Ladies Auxiliary #2690

    Fraternal Order of Eagles – Victoria Aerie #12

    Fraternal Order of Eagles –Ladysmith Auxiliary #2101

    Fulton & Company LLP

    Fun Run for ALS

    Fusion Point Services Inc.

    Golden Life Management Corp.

    Golden Spike Can Can Dancers

    Golf Yacht Club

    Grand Forks International

    Great Canadian Casinos Inc.

    Great Little Box Co. Ltd.

    Green Planet Wholesale Ltd.

    Hall Enterprises Inc.

    Hamilton Fabbro Lawyers

    Harbour Air Seaplanes

    Haywood Securities Inc.

    Heartland Plumbing & Heating

    Hedley Touring Inc.

    Helping Hands of WorkSafeBC

    HME Mobility & Accessibility

    Holly’s Salon & Schools Inc.

    HomeLife Realty Service

    HUB International Barton

    HUB International TOS

    ICBC Head Office

    Image One MRI

    Imvescor Restaurant Group Inc.

    Industrial Equipment Manufacturing

    Inland Kenworth

    Interoute Construction Ltd.

    Investors Group

    IODE Konkanee Chapter

    IR Heating

    Iridia Medical Inc.

    Jacobson Ford Sales

    JD Farms Specialty Turkey

    Jersie and Rylie Craig

    Jim Pattison Hyundai North Surrey Auto Mall

    Jim Pattison Toyota

    JK Group/Teck Resources Ltd.

    Jones Marine Group Ltd.

    K-Line Trailers

    Kal Tire

    Kamloops Paddlewheelers Lions Club

    KGHM International – Ajax Project

    Kineshanko Logging Ltd.

    Kinette Club of Duncan

    Kiwanis Club of Oliver

    Kiwanis Club of Vancouver

    Kiwanis Club of West Vancouver

    Knights of Columbus Council #3478

    Knights of Columbus Father PandosyCouncil#2558

    KNV Chartered Accountant

    Ladysmith Health Care Auxiliary

    Lafarge Canada

    Lansdowne Centre

    Lewis Jewellers

    Lioness Club – Nanaimo Harbor Lites

    Lions Club – Comox Valley Monarch

    Lions Club – Nanaimo

    Lions Club – West Shore

    Lisa’s School of Dance

    Los Rios

    Lotic Environmental

    Lougheed Town Centre

    Lynn Valley Lions Club

    M&M Meat Shops – Willowbrook

    MBT Holdings Ltd.

    Maclab Enterprises

    Marsh Canada Ltd.

    Marv’s Excavating Ltd.

    Masonic Lodge – Nelson #23

    Matcon Civil Constructors Inc.

    Maximum Yield Publications Inc.

    McNally Excavating Inc.

    MDA Corp.

    Meridian Meats & Seafood

    Metro Toyota Duncan

    Mount Cheam Lions Club

    Mount Pleasant War Memorial Community Cooperative

    MR MIKES SteakhouseCasual

    Nanaimo Airport Commission

    Nanaimo Port Authority

    New Lines Hose & Fittings

    Norcan Fluid Power

    Normandie Poultry Farm Ltd.

    North & South Saanich Agricultural Society

    North Peace Savings & Credit Union

    Northwestern Region Shelby Club

    Nutrabolics Inc.

    Odenza Marketing Group Inc.

    On the Roxx Showlounge Vernon

    Otter Farm & Home Co-operative

    Pacific Centre Leaseholds Ltd.

    Patrick Investments

    PeoplesDrugMart#180

    Peoples Drug Mart #67

    Peoples Drug Mart (BC) Ltd.

    Petcurean Pet Nutrition

    Philly Holdings

    Pineview Management Ltd.

    Pitch Slappers

    Port Metro Vancouver and Robin Silvester

    Power Measurement Victoria

    Prism Tech Graphics Ltd.

    20 ALS Society of BC 2013 Annual Report

  • GoVeRnmentBC Government Gaming Policy & Enforcement Branch Government of Canada through the Canada Student

    Summer Jobs

    eStAteSEstate of Beatrice Lorraine Wilson

    Estate of Bernice Catherine Brand

    Estate of Craig Holte Davidson

    Estate of Evelyn M. Willis

    Estate of Jacques-Andre Larrivee

    Estate of Mary Rosina Schaufele

    Pritchard & Co. Law Firm LLP

    Professional Engineers and Geoscientists of BC

    Pro-Med Ambulance Ltd.

    Prospera Credit Union

    Provincial Employees Community Services Fund

    Pure Image Technology Solutions Ltd.

    QualityMoveManagementInc.

    QuappEquipmentLtd.

    RN Trucking

    Radius Logistics

    Rare Manufacturing Inc.

    RBC Royal Bank of Canada

    Re/Max Centre City Realty

    Read Jones Christoffersen

    Reformation PR Inc.

    Republic Nightclub

    Residence and Conference Centre Kamloops

    Revelstoke Hospital Auxiliary Society

    Richards Buell Sutton LLP

    Rokstad Power

    Roland’s Ventures Ltd.

    Rotary Club of Abbotsford-Suas

    Rotary Club of North Delta

    Roxy Cabaret Ltd.

    Royal Canadian Legion #6

    Royal Canadian Legion #7

    RoyalCanadianLegion#83

    RoyalCanadianLegion#88

    Royal Canadian Legion #114

    Royal Canadian Legion #119

    Royal Canadian Legion #167

    Royal Canadian Legion #173

    RoyalCanadianLegion#280

    Royal Canadian Legion #292

    Royal Canadian Legion #257 Ladies Auxiliary – Lantzville

    Sacre-Davey Engineering Inc.

    Shaughnessy Heights United Church

    SASCU Credit Union

    Scotiabank

    Selkirk Helicopters

    Sgaga Holdings Ltd.

    SilverBirch Hotels & Resorts

    SJS Entertainment

    Slack

    Slater Vecchio LLP

    SLS Group Industries Inc.

    Smithrite Disposal Ltd.

    SN Transport Ltd.

    Source Office Furniture

    Spartan Controls (Burnaby)

    Spirit Bear Consulting Ltd.

    Spring Honda

    St. Andrew’s United Church

    Stonewater Group of Franchisees – Kamloops

    Summer Sun Charters Ltd.

    Sunshine Coast Credit Union

    Surrey Honda

    Syncrety Technology Solutions Inc.

    Tail Blazers Kelowna

    TallGrass

    TD Canada Trust

    TDS Holdings

    Team 1040

    Team Two Guns

    TELUS Corp.

    Terry’s Automotive Service

    The Great Canadian Landscaping Company

    The Corp. of the Village of Pouce Coupe

    The Loden Hotel

    The Printing House

    The Spotted Spa

    Tinhorn Creek Vineyards Ltd.

    Tolko Heffley Creek

    Trans Western Electric Ltd.

    True Consulting Group

    Unifiller Systems

    Urban Barn

    Valu-Plus Foods Ltd.

    Vancouver Film Studios

    Vancouver Fire Fighters’ Union

    Vancouver International Airport Authority

    Vanguard Ventures Inc.

    Vector Engineering Services

    Venue Kings

    Vero Management Inc.

    Versacold Logistics Services

    Victoria Airport Authority

    VIP Mazda

    Vona G Priest MD Inc

    Voyager RV Centre Ltd.

    Watson Gloves

    WestJet

    Westminster Savings

    White Rock Elks #431

    Whitehorse Motors Ltd.

    Whitetail Oilfield Rentals Ltd.

    Williams Lake Fire Department

    Williams Moving & Storage (BC) Ltd.

    21ALS Society of BC 2014 Annual Report

  • IndIVIduAl donoRSBenjamin Ainsworth

    Bruce Aitken

    Kim Alfreds

    Mary-Louise Anderson

    Gordon Annand

    John Armitage

    Marney Armitage

    Maureen Armitage

    Peter Armstrong

    Richard Arnish

    Barbara Arsene

    Shaun Ashworth

    Mandeep Athwal

    Joan Axford

    Ron Baldassare

    Blaine Baldwin

    Paul Balfour

    Glen Barker

    Erin Barrett

    Dave Barrett

    William Baskett

    Bob Bayliss

    Richard Beer

    Bruno Benedet

    Carol Bentley

    John Berglund

    Ryan Biech

    Dave Bird

    David Bishop

    Dan Blue

    Helen Bochonko

    Gayle Bodie

    Michael Bogdanovich

    Philip Boorman

    Jas & Tara Boparai

    Margot Boxtart

    Mike Boylan

    Layne Boynton

    Heather Bradfield

    Ivory Bridal

    Janet Brine

    Michael Broderick

    Chris Brossard

    Michael Buble

    Viki Bullock

    Denise Bumby

    Wally Buono

    Dennis Burdett

    Randy Butchard

    Murray Bye

    Moya Byrne

    Ed Cadenhead

    Brandi Carr

    Paul Cass

    Fran Castagner

    Robin Chakrabarti

    Jeff Chalissery

    Lauro Chartrand

    Eric Christiansen

    Neil Chrystal

    Beck Chung

    Marc Cianci

    Fred Clark

    Stan Clark

    Mike Clay

    John Clemens

    Brian Cochrane

    Penny Code

    Peter Cohos

    Robert Conconi

    Robert Cooper

    Morris Cotiis

    Lindsay Cotter

    Stanley Cowdell

    Ken Cowie

    Donald Cox

    John Craig

    Charmaine Craig

    Maureen Crockett

    Chrystelle Crockford

    Lee Crowley

    Leanne Cullen

    Tamara Cunningham

    Steve Curtis

    Jan Dunnigan

    Benjamin Davies

    Ernest Daykin

    Josie de Baat

    Maurice Denis

    Rob Desbrisay

    Deidra Dewey

    Hardev Dhillon

    Paul DiPasquale

    Gavin Dirom

    Gavin E. Dirom

    Brent Disbrow

    Fei Disbrow

    Tisha Dobson

    Derek Doke

    Terry-Lynn Dryfhout

    Dorothy Dunbar

    Frank Dunbar

    Francis Dunbar

    Barbara Duncan

    Malcolm Dunnett

    Darla Duquette

    Erna Eagleston

    Andrew and Kathy Eisen

    Robert Elliott

    Craig Elzinga

    Lorne Embree

    Scott Evans

    Chris Evans

    Carmen Fadi

    Janice Fain

    Caferra Family

    Valachy Family

    Spearing Family

    Troy Fargey

    Ian Fatt

    Richard Fedrau

    Joan Fillion

    Philip Fillion

    Nila Fisher

    Braden Fletcher

    Rosa Flinton-Brown

    Orlee Forest

    Mike Fraser

    John Froese

    Carole Forster

    Jackie Gale

    Scott Gelbard

    David Genest

    Beverley Gibbons

    Ian Glasgow

    G.R. Goffin

    Jeanette Gordon

    Elaine Gordon

    Laurel Gordon

    Joan Grant

    22 ALS Society of BC 2013 Annual Report

  • Peter Grant

    Gary Green

    Brian Greene

    Sharon Griffith

    Lori Gritten

    Gregory Groff

    Dawna Guloien

    Steve Gupta

    Louie Hachey

    Doris Hager

    Bill Hansell

    John Hardy

    Tron Harper

    Janet Hassell

    Tom Hayes

    Servjit Hayre

    Jean Hegg

    Robert Heinrich

    Robert Helsley

    Wenche Hemphill

    Joseph Hicks

    Leonard Hiebert

    Richard Hildebrand

    Len Hintz

    Nawaz Hirji

    Wai Yee Ho

    Elaine Holgate

    Doug Howarth

    Kenneth Howarth

    Patricia Hoydal

    Bonnie Huber

    Gordon Ray Hudson

    David Hughes

    Kevin Hundal

    Gordon Hutcheson

    Gordon Huxley

    Peter Ingram

    Diane Janzen

    Alan Jebson

    Scott Jeffrey

    Tom Johner

    Wanda Jones

    David Jones

    Daryl Jones

    Aaron Junglas

    Karim Kassam

    Bill Kelly

    Francisca Kemper

    Glenda Kerr

    George Kerr

    Bill Kelley

    Brian Kerzner

    Brian Kingwell

    Thomas Klinko

    Ron Kumar

    George Lajeunesse

    Christine LaLiberte

    Kwai Lam

    Lisa Lamothe

    Jonathan Larter

    Lorenzo LeBlanc

    Tim Leclair

    Linda Lees

    Grant Legge

    Elizabeth Legge

    Betty Leggett

    Tracy LePage

    John Leung

    WahSum Lo

    Michael Love

    Debra Lykkemark

    Debbie Lyles

    Sandra Lynde

    Cleveland Maartman

    Linda Maartman

    James Mack

    Roland Maclean

    George MacLeod

    Joel Madden

    Lynne Maher

    Bruce Major

    Joseph Mak

    Cathy Malo

    Peter Manley

    Dominic Marini

    Rob Marinus

    Stewart Marshall

    Bhawnest Mathur

    Brent Martin

    Helen Mason

    Raymond Mason

    Stobbes Masonry

    Daniel Matthews

    Randy May

    Lois Mayor

    Gary Mayzes

    Patricia McCalib

    Richard McClure

    Rebecca McConathy

    Robert McCusker

    Taylor McCutcheon

    James McDermott

    Janet McKay

    Alec McKay

    Darcy McKinnon

    Haley McLeod

    Robin McLuskie

    Michael Mcmanus

    Jim McMullin

    Cameron McNeill

    George Melville

    Annie Mendoza

    Shawna Merkur

    Lane Merrifield

    Rob Metcalfe

    Fran Metge

    Patrick Metge

    Justin Miller

    Jeremy Miller

    Pat Minichiello

    Craig Mitchell

    Jason Mok

    Sue Monaghan

    Patricia Montgomery

    Betty Montpellier

    Ron Moody

    Ruth Moody

    Jefferson Mooney

    Cheryl Morhart

    Thomas Morin

    Janice Moss

    Ev Mountain

    Marianne Muir

    Mary Mullan

    Shelley Munro

    Frances Murphy

    Dave Murphy

    Mark Murr

    Ron Neal

    Meghan Neale

    Larry Needham

    Elaine Needham

    Robert Neilson

    Margaret Neilson

    23ALS Society of BC 2014 Annual Report

  • Lois Neu

    Judy Newberry

    Jennica Noot

    Derek Nordin

    Helga Norgaard

    Brenda Norwich

    Patrick Novak

    Marie Novakowski

    Dona Novecosky

    Lilian Olljum

    Rob O’Neill

    Dave Otto

    James Owen

    Jim Owen

    Crystal Pankratz

    Nick Papoutsis

    Michael Parker

    Vinod Patel

    Ed Paterson

    Philip Patton

    Eldon G. Paul

    Janna Payne

    Joshua Peer

    Carol Pendray

    John Pendray

    Travis Penno

    Tremayne Perry

    Nandor Pinter

    Barbara Piper

    Joanne Pollard

    Vona Priest

    James Pritchard

    WilliamQuirk

    Nazmudin Rayani

    Richard Reid

    John Reid

    Tracey Renyard

    Dan Richter

    Mark Riddell

    Joan Robertson

    Iris Robinson

    Ron Rodgers

    Karyn Ruddick

    Deepak Ruparell

    Stanley Rutledge

    Ken Sampert

    Tanya Sanders

    Tim & Sally Schilds

    Fran Schilds

    Bob Schmunk

    Tammy Schock

    Adam Schultz

    Dennis See

    David Senay

    Maureen Serink

    Sally Service

    Wayne Shalagan

    Maureen Shannon

    Dave Sharples

    Doreen Sharrett

    Gwynneth Shaw

    Carole Sinclair

    Laurids Skaarup

    John Skidmore

    Launi Skinner

    Janet Slade

    Joseph Sladen

    Dawn Smailes

    Shirley Smith

    Emily Smith

    Eileen Smith

    Lucy-Ann Smith

    Irene Snow

    Moira Solange

    Anne Solyom

    Curtis Soong

    Shawn Spelliscy

    Daniel Spelliscy

    Janice Spicer

    Glenna Stark

    Erik Stevenson

    Richard Stewart

    Ian Stone

    Jamie Storrow

    Marvin Storrow

    Karen Straker

    June Sutherland

    Audrey Swain

    Andy Szocs

    Peter Talbot

    Robert Tarzwell

    Jean Taylor

    Phil Thomas

    Claire Thompson

    Kevin Thompson

    Chris Tidd

    David Tims

    Linda Tod

    Wendy and Tony Toyer

    Robert Travers

    Linda Tremblay

    John Tsai

    Adam Turner

    Bill Turner

    Randy Turner

    Sheila Tynan

    Michael Unsworth

    Gina Valachy

    George Vallance

    Sybil Verch

    Amir Virani

    Darko Vranich

    Crista Walker

    Sarah Walker

    Richard Wallach

    Jeff Watson

    Rick Wautier

    David Webbe

    Karen Wiebe

    Duane Wiens

    Darryl Wilcox

    Scott Wilson

    Jim Williams

    Tom Williams

    Glenn Wilson

    Scott Wilson

    Haroldine Wingfield

    Kevin Winters

    Donald James Wright

    Mary Wright

    Adel Yacoub

    Talal Yassin

    Andy Yeung

    Linda Yorke

    Ryan Young

    Waldo Yule

    Marisa Zanichelli

    Lorena Zigarlick

    Leon Zupan

    24 ALS Society of BC 2013 Annual Report

  • not-foR-pRofIt oRGAnIzAtIonS & foundAtIonSALS Society of Canada

    Abbotsford Police Members Benevolent Association

    Al Roadburg Foundation

    Allen and Loreen Vandekerkhove Family Foundation

    Boston Pizza Foundation

    Cedar Springs Foundation

    Central Okanagan Foundation

    Chimp Foundation

    CKNW Orphan’s Fund

    Great Century Foundation

    Keith & Betty Beedie Foundation

    Kelowna Flightcraft Charitable Foundation

    KPMG Foundation

    Lagniappe Foundation

    London Drugs Foundation

    McAdams Foundation

    NWM Private Giving Foundation

    Nilsson Foundation

    Open Door Spiritual Church / InnerQuestFoundation

    Paul Lee Family Foundation

    Professional Golfers Association of BC

    RBC Foundation

    Robert C Coleman Charitable Foundation

    Sutherland Foundation Inc.

    The Klassen Foundation

    The Mclean Mcuaig Foundation

    The O’Keefe Foundation

    The Phyliss & Irving Snider Foundation

    The Vine & Branch Foundation

    The Winnipeg Foundation

    uniPHARM & Medicine Centre Pharmacies Charitable Foundation

    Variety – The Children’s Charity

    Victoria Foundation

    Gifts for Tomorrow, a Legacy Gift to the ALS Society of BC

    We would like to extend our appreciation to the following donors who have named the ALS Society of BC in their wills, life insurance policies, RRSP’s, RRIFs and other planned financial gifts.

    • HughColeman

    • Dr.Andrew&KathyEisen

    • RobertHowell

    • Andre(Barbara)Jackson

    • IreneKvaale

    • MarciaStromsmoe

    • AnonymousDonors

    “I became involved with the Society in 2013 when my uncle passed away after a difficult battle with ALS. I believe the Society does great work helping those impacted by ALS and gives hope to the future of ALS research.” –Jordan Thompson (donor)

    The ALS Society of BC is a partner of LEAVE A LEGACY, its’ goal is to raise awareness of the importance of thoughtful, well planned, tax-preferred gifts and their impact on the quality of life for everyone in our communities.

    For more information on leaving a bequest to the Society or a sample will please visit the ALS Society of BC website at www.alsbc.ca or e-mail Rena Mendoza at [email protected]

    25ALS Society of BC 2014 Annual Report

  • “The ALS Society of BC monthly donation programme is an efficient and effective way to support families struggling with ALS. Any volunteering or family assistance we can provide in addition to the monthly donation adds to our commitment; however, life does seem busy at times. This way, we are sure that our on-going support is consistent.” —Pat and Tracy einarson (monthly donor)

    Monthly GivingHave you thought about making a monthly gift to the Society?

    Through the monthly giving program you are able to budget and spread your donation throughout the year and support the programs of the Society.

    For inquiries or other donation options, please contact: RenaMendozaE: [email protected] P:1-800-708-3228ext.225

    Abbotsford Benovolent Police Association John Goyer Memorial Golf Tournament

    ALS Tea

    Arella + Evie Larsson’s Art Fundraiser at Abbotsford

    Art Show & Fundraiser for ALS

    Bake Sale for ALS

    BC Tree Fruits Golf Tournament

    Bike Across the USA

    Bob Heinrich Calendars

    Cavalier Jewellers Cup

    Chairman Tom’s Grouse Grind

    Charellis Cheese Shop & Deli

    Coin Drive

    Cormac’s Birthday Fundraising

    Cycle of Hope

    Dinner Party YVR

    Don & Jamie’s 40th Birthday Party

    Drive for ALS Charity Tournament – Ardmore Golf

    Eagle River Secondary School

    Emerson’s Lemonade Stand

    EquityDaysChickenBBQ

    Fundraising in Memory of Maria Wong

    Grand Forks International Softball Tournament

    Third Party Fundraising

    In Honour of Parsons – Dinner/Auction at Brentwood Bay

    Kusam Klimb – Team Blair

    Michael Wall Cards

    Marilyn Arthur Fundraising

    MeetYourNeighbourCharityBBQ–M&MMeatsDestinyHebert

    Megan’s Lemonade Stand at Abbotsford

    National Energy Equipment Inc.

    Ocean Floor

    Peoples Drug Mart Fundraising Series

    Peter Grant Fundraising – Lyle Street Service

    PGA of BC Golfathon for ALS

    Sheet Metal Association Golf Tournament

    Shoot for ALS – Vancouver Fire Fighters

    Sobey’s “Thrifty Foods”

    Spring Break Soiree

    Spring Honda Run

    Suki’s Richmond

    Take the Stage for ALS

    Taste of Fashion – Holly’s Salons & Schools Inc.

    Team Clarke – Clutter Clean Up and Pumpkin Patch

    Tom Johner Mooman Golf Tournament

    Tough Lover Fundraising – Fox Cabaret on Main Street

    26 ALS Society of BC 2013 Annual Report

  • Shoot for ALS with Vancouver Firefighters

  • AMYOTROPHIC LATERAL SCLEROSIS SOCIETY OF BRITISH COLUMBIA