1 Citizens Advisory Panel - annual report 2018/19

Annual report 2018/19

Citizens advisory panel

2 Citizens Advisory Panel - annual report 2018/19

Our membersLay members

Sally Turner, lay member and elected chair• • Vice chair of Perranporth Surgery Patient Participation Group• • Elected chair of Carrick PPG Representatives Group (10 practices)• • Carrick GP Locality Group member as chair of Carrick PPG

Representatives Group, along with vice chair on rota basis.• • CAP representative on NHS Kernow’s Governing Body – non-

voting attendee• • CAP representative on integrated community services design

group• • Member of Keep Our NHS Public Cornwall• • Member, organiser and second conductor of Perraners local choir• • Volunteer at Perranzabuloe Museum in Perranporth• • Member of Bolingey Browsers Book Club

Nigel May, lay member and elected vice chair• • Member of Quay Lane Surgery Patient Participation Group• • Member of east Cornwall umbrella Patient Participation Group -

representatives from across the east locality.• • Patients’ Council – University Hospitals Plymouth NHS Trust -

member of discharge planning group• • Lay member of Course Committee for University of Plymouth BSc

nursing and midwifery• • CAP representative on NHS Kernow’s primary care development

group

Steve Bird - east Cornwall representative • • Chair of Old Bridge Surgery Patient Participation Group• • Member of the NHS Kernow’s spread team• • Working with Looe Allotment Association to deliver social

prescribing• • Member of Disability Cornwall

2 Citizens Advisory Panel - annual report 2018/19 3 Citizens Advisory Panel - annual report 2018/19

Liz Davies, mid Cornwall representative• • Member of Lander Patient Participation Group• • Trustee of Hearing Loss Cornwall• • Patient of experience – joint replacement and deafness

Nigel Morson - mid Cornwall representative • • Member of Carnon Downs Patient Participation Group• • Vice chair of Carrick Patient Participation Representatives Group• • Carrick GP Locality Group member as Carrick PPG Representatives

Group vice chair• • CAP representative on NHS Kernow’s primary care commissioning

board• • Regularly attends, as an observer, Cornwall Council health and

social care scrutiny committee meetings• • Member of Keep Our NHS Public Cornwall

Paul Ford - north Cornwall representative • • Elected governor for the east with Cornwall Partnership NHS

Foundation Trust• • Member of Launceston Medical Centre Patient Participation Group• • Member of east Cornwall umbrella Patient Participation Group• • CAP representative on NHS Kernow’s primary care commissioning

board• • Volunteer for Cornwall Air Ambulance

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Jeremy Preedy, west Cornwall representative• • Secretary of Huntington’s Disease Association, Cornwall branch• • Host of St Ives and Carbis Bay carers group• • Member of Penwith carers forum (formerly chair)• • Healthwatch Cornwall volunteer• • Age UK volunteer• • Chair of Stennack Surgery Patient Participation Group• • Lay member of Penwith integrated care forum• • Elected lay member of Penwith locality commissioning group• • Lay member of west integration group • • Lay member of west integration board• • Service user representative of care homes and care at home

partnership

Jim Harris, west Cornwall representative• • Patient Participation Group member of Penalverne Surgery• • Member of Friends of Penalverne Surgery• • Diabetes UK – National Institute of Research

Joan Heaton - north Cornwall representative • • Chair of Launceston Medical Centre Patient Participation Group• • Chair of St Stephen by Launceston Rural Parish Council• • Member of Youth Cornwall Patient Participation Group• • Independent custody visitor for Devon and Cornwall Police• • September 2019 - started a two year counselling diploma course

with the Devon and Cornwall counselling hub in Plymouth

Other members include the chief executive officers of NHS Kernow, Healthwatch Cornwall and Volunteer Cornwall (representative of Voluntary Sector Forum); Healthwatch Isles of Scilly member; PPG representative; NHS Kernow Governing Body lay member for patient and public involvement and a member of NHS Kernow’s communication team. Virtual members (receive all documentation) include NHS Kernow’s equality and diversity lead and Young People Cornwall.

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Monthly meetings

2018

May May 2018• • Andy Brelsford from Volunteer Cornwall provided information

about the Voluntary Community Social Enterprise (VCSE) sector and active work being done in Hillingdon.

• • Signposting in GP surgeries.• • Bid for social prescribing.• • Age UK Cornwall Link entries to be encouraged.

2018

JuneJune 2018• • Feedback from CAP members who had attended NHS Kernow

away days: members found the day interesting and valuable.• • Feedback from Leadership Live event: Member noted that he

was the only one there as a patient of experience, which was disappointing as patient experence was main item on agenda. Frances Tippett, Amanda Stratford and Nigel May to follow up patient experience input with patient experience leads, RCHT and University of Plymouth Nursing degree course.

2019

July July 2018• • Rachel Wigglesworth, prevention workstream, and Richard

Kimberly of University of West of England provided an update on social prescribing. They confirmed the bid was successful for eight community link workers and one coordinator to be employed for three years – links with Patient Participation Groups.

• • Sharon Davidson:, communication lead and Lou Farbus, communications lead, shared slides and discussed at length the communication and engagement strategy and information gained from the three co-production events (attended by some CAP members), which was being used for a range of test and learn projects within teams.

2018

AugustAugust 2018• • Helen Charlesworth-May, adult social care, had a very open and

useful discussion covering public engagement, extra care housing, Newton Europe’s brief, Green Paper from government and her visions and concerns - a major one being housing.

• • Tessa Goodchild, personalised care plans, shared two templates being tested and discussed language and format – ‘what matters to me’ is a key element of care plan information and the need for electronic patient discharge.

• • Website meeting: Feedback from CAP members was that meetings were very technical but they were able to provide advice.

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Input and discussions at the meetings in 2018/19:

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2018

September September 2018• • Vivienne Kell, Improving Access to General Practice, attended and

CAP members expressed concern re capacity for extended hours that was being imposed by NHS England. Viv confirmed it was what was required and a Healthwatch survey demonstrated that. No appetite in Cornwall for Sunday appointments. GP localities working on their own solutions. IT also a major concern as patient information not readily available to all doctors.

• • Janine Ogborne attended to talk about personalised records for patients with diabetes. 28 GP practices already signed up to identify high risk patients, others waiting to participate and seen as a very welcome project and it was hoped all practices would engage in the project by the end of September 2019 – working closely with Diabetes UK Cornwall. CAP members enquired about suitable assistance being provided for people with learning disabilities and other physical or mental special needs.

• • Farewell and thanks to Jeff James, NHS Kernow Governing Body member for patient and public participation.

October 2018 - PPG conference• • Members involved in Volunteer Cornwall’s PPG Conference.

Andy Brelsford, Jackie Pendleton, Lou Farbus, Heather Eardley (Patients’ Association) and CAP chair, Sally Turner, all gave presentations. The event was well attended by PPG members from up and down the county. Workshops provided an insight into the fact that some PPGs are proactive, others not sure what they are really there for and, as we discovered from the survey carried out by CAP member Nigel May last year, not all practices in Cornwall have a PPG. Members felt it was a very worthwhile event.

• • Update: Volunteer Cornwall - planning for 2019 Conference.

2018

October

2018

November November 2018• • Nikki Thomas, NHS Kernow’s deputy director of quality came

to discuss patient experience. Remit includes patent safety and clinical effectiveness. Peninsular patient experience network meet to share information and good practice. Dignity of care assessors report on patient experience. Care opinion being used to report on good and unacceptable experiences. Healthwatch Cornwall and NHS Kernow representatives attend quality surveillance group meetings.

• • Feedback from members who attended south Kerrier and Liskeard health and wellbeing events was that they were well attended at Heartlands and enthusiastic response from both - networking opportunity was very much appreciated.

• • Feedback from members who attended the TEC event and met Pepper the Robot – quite incredible. NHS Kernow was there with information about the Digital Care Plan Project

• • Caroline Righton, interim communications lead introduced herself and took feedback on the new website and newsletters.

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6 Citizens Advisory Panel - annual report 2018/19 7 Citizens Advisory Panel - annual report 2018/19

December 2018 • • Welcomed Nikki Kelly, NHS Kernow’s newly appointed Governing

Body member for patient and public involvement.• • Ethna McCarthy and James Foss, vision and strategy for planned

care, prompted a very interesting and wide ranging discussion about the need for change in culture, needs of people being valued, giving people more choice, overview of the pathway, outpatient clinic locations across the county. The use of social prescribing and an emerging model of care - needless to say IT was considered to be a very important aspect.

• • A patient story presented at a NHS Kernow GB meeting raised questions about the inadequacies of support for people struggling with severe mental health issues. All agreed integration needed speeding up and a ‘go to’ person was essential for people in crisis, but work and help required long before a person and family reached that stage. A new mental health strategy is in the pipeline and that there is agreement, nationally, that physical and mental health must have parity.

• • The need for more communication and engagement with the public was discussed including the need for regular newspaper articles or slots on the radio to explain new model of care, vision and progress and a citizen panel option.

2018

December

2019

January January 2019• • Trudy Corsellis of NHS Kernow attended to provide advice on

GDPR rules around information governance and data security. All personal information was to be used only for the purposes for which it was obtained and not used for marketing purposes. All breaches should be reported immediately, so that appropriate action could be taken.

• • Caroline Righton, communications lead, attended and there was a lengthy discussion that highlighted CAP members frustration about communications across the system. A newspaper idea was discussed as well as ideas for the use of social media to target young people.

• • Website improved and ideas were needed for fresh content.• • Jackie Pendleton provided an integrated care system update and

confirmed the Long Term Plan had just launched. NHS Kernow to produce a one year and five year plan.

• • Planning for the three community hospital consultations is in progress - engagement plans would be finalised when there was a complete list of current and previous services provided at the sites and the populations served by them.

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2019

February February 2019• • Helen Wilding, deputy director of organisational development

provided a workforce update. There was a very wide ranging and useful discussion about the draft workforce plan.

• • Success of SPRINT workshops had been organised with group sessions facilitating networking and solving individual patient care concerns – reported to be extremely successful and rewarding for all concerned.

• • Challenges were reported around recruitment.• • IT interoperability a concern – patient notes, at least detail

summaries, need to be shared more widely for safer and more effective care.

• • Three integrated care areas to develop local needs plans. Each now has a Volunteer Cornwall community maker who can work alongside practice staff offering support suggestions for people within their communities.

• • CQC reporting - lack of knowledge about role/work of many health professionals e.g. advance GP nurse practitioner.

• • Caroline Righton, communications lead, confirmed that a newsletter would be produced for March 2019. Members provided feedback on how the newsletter could be more effective.

• • Facebook Live Q&A in the pipeline for early March or April.• • Draft communication and engagement strategy to be drafted.• • CAP member suggested sharing information via GP bulletins.• • Jackie Pendleton provided an update on the joint needs

assessment strategy which being refreshed for the health and wellbeing strategy, the beginning of five year plan.

• • New formula for funding could be beneficial but it had conditions such as money being linked to the GP contract and formation of Primary Care Networks (PCNs), the Better Care Fund and Improving Better Care Fund.

• • Integrated system independent chair job to be advertised locally but national team to make the appointment.

• • NHS Kernow awarded joint GP commissioning contract.

March 2019 • • No meeting took place but several members attended a

Healthwatch meeting and were able to say farewell to Lou Farbus, who had worked on engagement.

2019

March

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Events

• • Healthwatch Cornwall End of Life Conference

• • Volunteer Cornwall’s 40th Birthday

• • Radio Cornwall Phone in with Caroline Court & Amanda Stratford

• • One Vision Strategy presentation

• • Interview Panel for 2 Lay members of NHS Kernow Governing Body

• • Transformation Board presentation

• • Volunteer Cornwall Annual Awards Ceremony

• • MDT Integration workshop

• • TEC event County Hall

• • Cornwall PPG Conference

• • Epic Strategic Advisory Group

• • Better Together Nursing Conference

• • Developing Individuals & Communities Through Voluntary Action

• • Devon Patient Participation Conference

• • Embrace Care presentations

Events attended by some of CAP members during the year include:

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CAP NEXT STEPS

The group will continue to focus on public engagement and communication, responding to the changing needs of the system, expecting the leads from Cornwall and Isles of Scilly health and social care partners to work with CAP to ensure the most effective methods are devised and utilised. CAP members will continue to think and speak from a patient/public perspective at NHS and health and social care meetings and events, and to assist their community makers/community navigators/link workers in the formation of community citizen groups: local movers and shakers interested in increasing support for people in their communities, and having a constructive dialogue about health and social care.

Increase the lay membership and diversity of the CAP: two representatives from each of the six localities in Cornwall and the Isles of Scilly to ensure that the patient/public perspective is heard and considered, and locality/PCN public engagement methods are being developed.

Increase knowledge of the needs and experiences of marginalised people, groups and communities within Cornwall.

Get involved in Cornwall and the Isles of Scilly health and social care lessons learned/debriefings and business continuity planning following a major crisis/incident.

Focus on public engagement and communication

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Appendix - news features for 2019/20Written by Caroline Righton, communications lead

There are to be 12 weekly features in the Western Morning News and then syndicated to the county’s other weekly newspapers. We are going to collate the articles into a community newspaper and 30,000 copies are to be distributed throughout the county with the first article scheduled to appear on 8 July 2019.

Subjects and potential interviewees include:

Introduction to series Steve Brown, public health director, Cornwall Council. Ellen Wilkinson medical director at Cornwall Partnership NHS Foundation Trust. Dr Tamsyn Anderson, Newquay GP and NHS Kernow clinical lead. Helen Charlesworth-May, Strategic Director of Adult Social Care and Health.

Primary care - your GP Neil Walden, GP lead for Penwith GP locality. Carolyn Andrews, chief exec of Kernow Health CIC. Andrew Abbott, director of primary care, NHS Kernow. Tamsyn Anderson, Newquay GP, NHS Kernow clinical lead.

Urgent and emergency care Karen Kay, urgent and emergency care lead. Ethna McCarthy, director of planned care RCHT.

Children and young people Trevor Doughty, strategic director, Cornwall Council. Phil Confue, chief executive of Cornwall Partnership NHS Foundation Trust.

Integrated community health services Helen Childs, chief operating officer, NHS Kernow. Helen Charlesworth-May, strategic director adult social care and health. Phil Confue, chief executive of Cornwall Partnership NHS Foundation Trust.

Map of Cornwall Jackie Pendleton, chief officer NHS Kernow. Dr Iain Chorlton, GP/chair of NHS Kernow. Dr Beth McCarron GP/BMA GP committee. Neil Walden, Penwith locality GP lead. Amanda Stratford, Healthwatch.

Local heroes Check with comms leads from each organisation for good individual stories - such as the 85+ year-old woman in north Cornwall who sees people home from hospital.

Back to the future Steve Havers, Cornwall Council. Kate Kenally, chief exec Cornwall Council. Jackie Pendleton, chief officer NHS Kernow. Dr Iain Chorlton, GP and chair of NHS Kernow. Technology and its role Anna Mankee Williams, Falmouth Uni. Paul Lidder, RCHT. Matthew Colter, GP in Penzance. Kelvyn Hipperson, IT lead Cornwall Partnership NHS Foundation Trust. Ellen Wilkinson, medical director Cornwall Partnership NHS Foundation Trust. Isles of Scilly as a special case Aisling Khan, joint director of adult and children’s health and social care, Isles of Scilly The people behind the plan Kate Shields, RCHT. Kate Kennally, Cornwall Council. Helen Charlesworth-May. Helen Wilding, HR deputy director, CFT. Ian Jones, voluntary sector Community spirit Julie Green, ambulance services commissioner. St Austell GP - social prescribing. 85-year-old in north Cornwall.

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If you would like this information in another format or language please contact:

FREEPOST RTES-UZXK-SHBG Louise Moore, NHS Kernow, Sedgemoor Centre, Priory Road, St Austell, Cornwall PL25 5AS Telephone: 01726 627 897 Email: shapingourfuture.cios@nhs.net www.cioshealthandcare.nhs.uk