OregonUrologicalSociety,QuarterlyUpdateSummer2018

AnnualMeetingNotesfromSunriverJune1-3,2018-submittedbyOUSPresident,RobSkinner

Thank you all who attended the OUS Annual Meeting in Sunriver last month- We had an outstanding program thanks to hard work. Kudos to Debi Johnson and Dr. Brian Duty ( Program Director) for putting together great presentations. CME for the event was provided by St. Charles Medical Center. The weather was perfect, the receptions and dinner delightful. And a great time to meet and chat with other urologists (and their families) from around the state. Also a big thank you to the faculty presenters – Dr. Rob Reiter (UCLA), Dr. Knute Buehler, (Oregon Gubernatorial candidate), Dr. Chris Amling (OHSU), Dr. Jeff Frankel ( AACU), Dr. Kamran Sajadi ( OHSU), Dr. Dan Janoff ( NW Urology), Dr. Stan Myers, (NW Urology) and Dr. Brian Shaffer ( NW Urology). And a big Thank You to our loyal exhibitors that were able to attend the meeting. We cannot have these very worthwhile events without their support. Abbvie Allergan Amgen Avadel Bayer Boston Scientific Men’s Health Cogentix Medical Coloplast Cook Medical Dendreon Endo Pharmaceuticals ExosomeDx

Ferring Genomic Health HIFU Prostate Services Janssen BioTech Lloyd Center Compounding Pharmacy NxThera Pacific Edge Diagnostics Pfizer Photocure Retrophin Teleflex (NeoTract) Tolmar

Instead of an annual meeting in June for 2019, we will be planning at least 2-3 regional OUS dinner meetings throughout the state over the next year. Our current plans are to hold an annual membership/retreat on even numbered years and have regional dinner meetings on the odd numbered years. 3rdAnnualZEROProstateCancerRunaHugeSuccess More than 500 participants at this year’s run made for another outstanding event. We’ve raised $65,419 to date for prostate cancer research and awareness, and 40% of the net proceeds will stay in our state via. It’s not too late to donate to the OUS hosted ZERO event for 2018. The more donated, the more Oregonians will

be able to take advantage of the service available through ZERO and more money the OUS will have to assist communities around the state to raise awareness for prostate cancer. ZERO-The End of Prostate Cancer is the largest non-profit organization dedicated to prostate cancer education, testing, patient support, research and advocacy. The ZERO Run/Walk series has raised more than $2.5M to date toward their goal of $3.6M for the 2018 series. In August, they will have additional Run/Walks in Cleveland, Asheville and Lehigh Valley Run/Walks on August 25th. More than 19 Run/Walks will take place during Prostate Cancer Awareness month between September 9 and September 29th (including the Puget Sound event being held by our neighbors to the north in Washington State). ZERO’s impact over the past 12 months as stated in the their media kits:

- RESEARCH - $100M dedicated to uncover new treatments: a historic $10M increase

- LOCAL GRANTS - $3M in funding to local programs for early detection, patient support and research including

the Oregon Urological Society’s efforts (40% net proceeds) - EARLY DETECTION

- PSA test rating changed from “D” to “C” your doctor to discuss prostate cancer risk - PATIENT SUPPORT

- 600+ men across 46 states got free one-to-one help thru ZERO360 Program - Free program to genetically decode their prostate cancer

- DEBT RELIEF - $400,000+ in debt relief for patients in need

- AWARENESS RUN/WALKS - 40+ Run/Walks creating awareness in communities nationwide

Donations can be made either online at www.zeroprostatecancerrun.org/portland or with the mail-in donation form you can find on the home page of the race website under “resources”. There is a Grow and Give Fundraising event you can share with your patients that occurs in November. Find out more about the program at https://zerocancer.org/about-grow-give To make sure that the funds raised are credited to the OUS Portland Run/Walk contact beards@zerocancer.org or Vanessa Petersen vanessa@zerocancer.org Thank you to all the volunteers that made this possible. The top fundraiser’s for the Run/Walk were:

Center for Men’s and Women’s Urology Stream Team = $3273 Curdy’s Army = $2137 Criteria Properties = $1477

The largest teams for the Run/Walk were:

Center for Men’s and Women’s Urology Stream Team =89 The Oregon Clinic (and Advanced Urology) Urine Luck = 86 Northwest Urology Associates Urine Trouble = 67

Video links from the 2018 race:

1) Link to promotional commercial that ran Advertisement link 2018_RW_Portland_Ad_1080p.mp4

2) Vanessa: https://youtu.be/zskHOs2NkRQ 3) Survivor Ceremony: https://youtu.be/m4Z7ll7x1mY 4) Jacob Richard MD: https://youtu.be/xiampShSHQ8 5) Jasper Bash MD: https://youtu.be/xlmQGZ_QVT4 6) Kids Dash: https://youtu.be/nRMjsMYiGz8

Thank you also to our corporate sponsors and individuals who helped bring all of this together.

Local Sponsors

The Center for Men’s and Women’s Urology

The Oregon Clinic

Northwest Urology

Dendreon

Kaiser Permanente

OregonLive and The Oregonian

Boston Scientific

Amgen

Providence

Manheim

Entercom

Genomic Health – OncotypeDx

OHSU Urology

Criteria Properties

ExosomeDx

Ferring

Augmenix

HIFU Prostate Services

Premier Partner for ZERO’s 42-city race series including Portland

National Partners

PHOTOS from the race

Kids

enjoyedface

paintingand

makingtheir ownsuperheromasks.

Each kidproudlywore theirZERO

superherocapes

OUS Plays Important Role in Men’s HealthAwarenessMonth-June

On Thursday, May 31st, OUS President Robert Skinner MD joined Executive Director Debi Johnson, Captain American and a prostate cancer survivor for a live interview on “Portland Today”. The interview ran live on TV on May 31st and then was posted on the KGW Portland Today online news for nearly a week. The mini segment on prostate cancer and the ZERO Prostate Cancer Run/Walk was additionally posted on Portland Today’s Facebook and Instagram (highlighting the Captain America photo from outside the building as seen below. Thank you to Amy Ruddy of ARmomentum for arranging the opportunity to further our outreach to the local communities concerning prostate cancer awareness and the ZERO Run/Walk.

Several members of the OUS contributed informational health articles for Sunday, June 3rd Oregonian newspaper. A variety of mens’ health topics including BPH, testicular cancer, vasectomy, testosterone and HiFU were featured in the Men’s Health special section. Thank you to Dr. Shammai Rockove, Dr. Dan Janoff, Dr. Brian Shaffer, Dr. Rob Skinner, and Dr. Stan Myers for contributing to the effort. LINKTOENTIRENEWSPAPERINSERTfoundunderthe“more”

TABArticletopicsincluded:

• Portlandjoinsnationalmovementtoendprostatecancer• NewTreatmentsmaybemosteffectiveforsymptomsofenlargedprostate• Demystifyinganesthesiaformenundergoingsurgery• Whatyouneedtoknowabouttesticularcancer• NewwaytotreatprostatecancerhasarrivedintheNorthwest• Testosteroneandmen’shealth• Whenitcomestofamilyplanning,vasectomyisthepreferredtechnique• Hownutritionandhormonesaffectmen’shealth

OUS Gathers Data on Step Therapy/Fail FirstPracticesinPreparationfor2019LegislativeSessionAs most have found, the insurance industry’s step therapy, also known as fail first, requirements can be a major impediment in getting patients access t the treatment and medications that they need. This is a great concern among physicians in a variety of medical fields including ours. We’d appreciate you taking a few minutes to complete this important survey and share your experiences with step therapy. It is less than 10 quick questions.

LINK to SURVEY OUSRequestsGovernortoProclaimSeptemberasProstateCancerAwarenessMonthBelowisthedraftlanguagesubmittedtoGovernorBrownforherconsiderationProposed Oregon Prostate Cancer Proclamation WHEREAS: One in nine men will be diagnosed with prostate cancer during his lifetime;i and WHEREAS: Prostate cancer is the second leading cause of cancer death among American men

and the most commonly diagnosed;ii and

WHEREAS: In 2018 there are expected to be about 164,690 new cases of prostate cancer and about 29,430 deaths from prostate cancer.iii In in Oregon, it is estimated that 2,040iv men will be diagnosed with prostate cancer and that 450v will lose their battle to this disease in 2018; and

WHEREAS: Prostate cancer affects all races and socioeconomic classes. However, African American men are at an increased risk for developing prostate cancer compared to white men and other men of color. One in six African American men will develop prostate cancer in his lifetime;iv and

WHEREAS: Overall, African American men are 1.7 times more likely to be diagnosed with—and 2.3 times more likely to die from—prostate cancer than white men. African American men are also slightly more likely than white men to be diagnosed with advanced stages of the disease;v and

WHEREAS: Finding prostate cancer when it is still at an early stage offers the best hope for effective treatment and living cancer free;vi and

WHEREAS: If the disease progresses to metastatic castration-resistant prostate cancer (CRPC), the prognosis is poor with median survival of about 3 years’vii and

WHEREAS: The patient, family, health, and economic burdens of prostate cancer, particularly of advanced stage cancer are large; and

WHEREAS: Improved awareness of prostate cancer, understanding of increased risks for developing it, as well as access to recent medical advances that may extend the time a patient lives without their cancer spreading are important to improve patient outcomes; and

WHEREAS: Shared decision making between the patient, his family and other caregivers, and a physician is important to support the appropriate care for an individual’s clinical situation; and

WHERAS: Patients should consult their physicians regarding individual risk to developing prostate cancer as well as when screening and related tests for early detection of prostate cancer are indicated, and to understand the risks and possible benefits of screening; and

WHEREAS: Individuals diagnosed with prostate cancer can speak with their physician and other health care providers to learn more about the disease, and find support groups and services in their community or online; and

WHEREAS: Additional focus is needed on the personal and social burdens of prostate cancer, to anticipate the needs and provide support to the patient, his family and other caregivers; and

WHEREAS: There is still more research to be done for prostate cancer so that new and more effective treatments can be developed. Oregon will continue to push for critical research and advance treatments for prostate cancer; and

NOW, THEREFORE: I, Kate Brown, Governor of the State of Oregon, hereby proclaim September

2018 to be “Prostate Cancer Awareness Month.” I ask the citizens of Oregon to become informed and aware of prostate cancer so that they can have an informed conversation with their healthcare provider regarding possible screening and diagnostic methods and, if necessary, treatments to improve health outcomes and psychosocial support for people affected by prostate cancer.

Stakeholder Focus Group on the Challenges Facing Prostate Cancer The Oregon Urological Society is in preparation of facilitating a focus group to identify the challenges facing prostate cancer. Oregon is joining 3 other states in conducting a multi-stakeholder discussion to include at minimum, urologists, patients, family practice, oncologists, elected officials and others. Information discovered during the focused group will be shared in a future OUS Membership e-News and press release. It will also be incorporated into the strategic planning of the society for 2019. Membershipnotes:Thank you to all members who have paid dues this year! We cannot do this without your support. Reminder notices of outstanding dues are being sent out again this month via email. Please contact Debi Johnson (djmgmt@gmail.com) if you prefer a copy of your invoice snail mailed to you. We are looking for members statewide who would like to serve on our board or participate on one of our committees– please let Debi Johnson or Rob Skinner know if you can help out. It doesn’t matter where you practice in the state. You can participate in person at a meeting or virtually through videoconferencing and teleconferences. Your input is valued. We want to hear from you! We would be happy to come out to your practice, get you informational materials, and want to get to know you and your practice situation- Please let us know. Reminder of a few unique ways to get involved with important projects of the OUS:

1) Complete the step therapy/fail first practice survey. The couple of minutes you spend are invaluable to our efforts to prepare for the 2019 legislative session to fight this issue.

2) Email Debi Johnson (djmgmt@gmail.com) with questions and/or specific challenges concerning prostate cancer you would like to have addressed at the 1st annual Oregon Prostate Cancer Focus Group of Stakeholders.

Follow us on Twitter at @OreUroSociety.

i https://www.cancer.org/cancer/prostate-cancer/about/key-statistics.html ii https://www.cancer.org/cancer/prostate-cancer/about/key-statistics.html iii https://www.cancer.org/content/dam/cancer-org/research/cancer-facts-and-statistics/annual-cancer-facts-and-figures/2018/cancer-facts-and-figures-2018.pdf iv https://cancerstatisticscenter.cancer.org/?_ga=2.12878581.394954341.1533840041-1877383249.1532532209#!/data-analysis/module/BmVYeqHT?type=barGraph v https://cancerstatisticscenter.cancer.org/?_ga=2.12878581.394954341.1533840041-1877383249.1532532209#!/data-analysis/module/BmVYeqHT?type=barGraph iv https://zerocancer.org/learn/about-prostate-cancer/risks/african-americans-prostate-cancer/ v https://zerocancer.org/learn/about-prostate-cancer/risks/african-americans-prostate-cancer/ vi https://zerocancer.org/learn/about-prostate-cancer/facts-statistics/ vii http://www.cancernetwork.com/oncology-journal/treatment-nonmetastatic-castration-resistant-prostate-cancer