An Unexpected Journey
description
Transcript of An Unexpected Journey
A research program using SketchUp to facilitate social, creative, and job skills in children on the autism spectrum
An Unexpected JourneyOverview of the Journey
PAR (Participatory Action Research)◦Family members as advisors and co-
researchers
Future SupportsA Vision for the Future
◦ “watching them do a good job puts us at ease for the future..what is coming up in their lives”
◦Skills for jobs “Okay, so you’re not going to fling
hamburgers for the rest of your life”
◦Sense of accomplishmentSerendipitous Outcome
◦Friendships
Family SupportRelief
◦Not another failure◦ “We come to this
[program]. . . know[ing] it is a safe place. . . . We’re going to be happy, and he’s going to be happy. We walk away and take this feeling home with us.”
Less Tension◦At home, siblings
Parental SupportsSharing with Other
Parents “We’re kind of a group of
parents who’ve been thrust to figure out a problem nobody else has had before.”
Success◦ Children relating to
others as “people” not characters in a movie or a story.
◦ AcceptanceSustaining iSTAR
Program◦ Lifeline for them and
their children
Benefits to Youth
True Success “Everyone’s smart enough to understand when you’re getting a real compliment…. He wants someone to recognize the things he’s really good at.”
Observational Data from Workshops
Peer Mentors◦ Boys provide input◦ Peers model new
techniques◦ Competition and
conflictAdult Mentors
◦ Provide humor◦ Scaffold peers helping◦ Model fixing mistakes◦ Show new tools◦ Provide specific praise
ConferencesNational Conferences
◦National Association for the Education of Young People
◦National Council on Family Relations◦Research Conference of the Society for
the Study of Occupation
International◦International Association for the Scientific
Study of Intellectual Disability (submitted)
Grants Funded
◦University of Utah Interdisciplinary Research Grant ($12,000)
◦University of Utah Undergraduate Student Award (UROP) ($1800)
Submitted/Pending◦Autism Speaks (Submitted)◦Google Research Grant (Submitted)◦MacArthur Foundation (to be submitted Nov.
2011)◦NIH Psychosocial/Behavioral Interventions
and Services Research in Autism Spectrum Disorders (R34) (to be submitted Feb. 2012)
Manuscripts Family and Consumer Sciences Research Journal
◦ Special Issue: Influence of technology on individuals and families (in press Dec. 2011)
Autism Journal◦ Process Participatory Action Research paper (in preparation)
Journal of Mental Health Research in Intellectual Disabilities or an Autism Journal◦ Special Issue: Empirically supported psychosocial
interventions (in preparation) International Journal of Human Development and
Aging ◦ Grandparents and their Grandchildren with Autism Spectrum
Disorder (ASD): Strengthening Relationships through Technology Activities (in preparation)
Autism journal◦ Lessons Learned (in preparation)