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C o r p o r a t e a n n u a l r e p o r t

Alzheimer’s Community Care

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“We place a safety net around patients and caregivers every day.” ™

Alzheimer’s Community Care was founded in 1996, when a group of local donors, caregivers and community

leaders came together in response to the growing number of local residents diagnosed with Alzheimer’s

disease. Many of these individuals had family members who were being affected by Alzheimer’s. They

established a local dementia-specific service organization exclusively dedicated to the needs of patients

and caregivers living with the daily challenges of Alzheimer’s disease and related neurocognitive disorders.

The organization’s mission has always included a dual focus on helping both the patient and the caregiver.

All funds raised are committed to supporting its community-based programs and services.

Alzheimer’s Community Care’s first programs included two Family Nurse Consultants and three dementia-

specific Care Centers located in Boca Raton, Delray Beach and Pahokee. Through its 18 years of service the

organization has grown to include a comprehensive safety net of community-based services and resources

for Alzheimer’s patients, caregivers, and the Palm Beach, Martin and St. Lucie communities. Programs and

services now include nine (soon to be 11) Specialized Alzheimer’s Care and Service Centers, seven Family

Nurse Consultants, 24-hour Alzheimer’s Crisis Line, ten Caregiver Support Groups, Case Management,

Professional and Community Education and Specialized Disaster Preparedness.

48.5 %growth in formal training hours

379,472hours of compassionate care provided

1,532patients & caregivers served by our FNCs

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Alzheimer’s Community Care is recognized as a leader in providing dementia-specific,

community-based services. The organization is the only community-based organization in

the State of Florida addressing the needs of both Alzheimer’s patients and family caregivers.

As stated in our strategic vision, “We place a safety net around patients and caregivers

every day.” ™

ALZHEIMER’S COMMUNITY CARE IS A TAX-EXEMPT 501 (C) 3 NOT-FOR-PROFIT ORGANIZATION. REGISTRATION #CH7588. A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE (800) 435-7352 WITHIN THE STATE. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE.

© 2015, Alzheimer's Community Care, Inc.

The mission of Alzheimer’s Community Care is to promote and provide specialized, quality and compassionate

care within a community-based environment for patients and caregivers living with Alzheimer’s disease and

related disorders.

Quick Facts

90 Cents of Every Dollar goes to Services and Resources

Florida based 501(c)(3) non-profit organization founded in 1996 to provide specialized care to patients and

caregivers living with Alzheimer’s disease and related disorders.

Alzheimer’s Community Care’s team of professionals is educated, skilled and trained in dementia-specific care.

Services include Specialized Adult Day Service Centers, Family Nurse Consultants, 24-hour Alzheimer’s Crisis

Line, Support Groups, Case Management, Education, Training and Advocacy.

The organization ensures the well-being of patients and caregivers while preserving their dignity within a

community-based environment.

Alzheimer’s Community Care serves as an innovative model of care by providing services and resources that

are accessible, affordable, and individualized.

Proudly serving Palm Beach, Martin and St. Lucie Counties.

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To our Supporters and Friends, The 2013-14 Annual Report reflects our commitment to provide the highest quality of dementia-specific care within an efficient and cost effective model-of-care. We are so proud of our numerous accomplishments during this past fiscal year, as listed below:

The first achievement was opening the newly renovated Phyllis and Julius Siegel Alzheimer’s Care and Service Center in Boca Raton. For over 18 years, our Specialized Alzheimer Care and Service Center was housed within Advent Lutheran Church’s fellowship hall. Now, it is located in its own free-standing building thanks to the partnership with the church and the philanthropic generosity of Ron Siegel. We now operate nine community based centers and all are licensed Specialized Alzheimer’s Day Care and Service Centers.

The second achievement is becoming accredited by the Joint Commission under Behavioral Health. Being accredited is a major accomplishment, and one that was a complete organizational effort. Everyone at Alzheimer’s Community Care contributed to this process and we all deserve to take credit for this hallmark accomplishment.

The third accomplishment was the establishment of our Education and Quality Assurance Department, led by Vice President Karen Gilbert. Paula Menigoz, previously the Family Nurse Consultant for Palm Beach County’s southern area, has become the new project manager for the ID Locator Bracelet Program.

There are other achievements that are too numerous to mention. However, we are indeed proud of our ability to maximize our resources, as evidenced by the fact that 90 cents of each donated dollar is used for direct services and resources. We also encourage you to subscribe to our quarterly magazine and follow us on Facebook and Twitter so you can stay up-to-date with everything going on in the organization.

Further financial information is detailed in this report and can also be found at www.alzcare.org. We are proud of this report because it reflects our commitment to do more with less.

I would like to share with you some words of wisdom that we here at Alzheimer’s Community Care value:

“People will forget what you say, people will forget what you do, but people will never forget how you make them feel.”

I hope that when you think of the work we do, and the mission we execute that you feel good about what we do and you feel inspired to support Alzheimer’s Community Care, emotionally and financially for as long as we are relevant to our communities and families.

Warm regards,

Mary M. BarnesPresident and CEO

Judith B. Rappaport

Vice Chair, Since 2008

James F. Gregory

Treasurer/Founder, Since 1996

Randy K. Johnson, Sr.

Assistant Treasurer, Since 2000

Robert J. Gorman

Secretary, Since 2005

Thorton M. “Tim” Henry

Board Member, Since 2000

G. Mark Shalloway


Tenna Wiles


Kevin Wrenne


Bonney A. Johnson


Dr. Patrick Halperin


William Armstead


Mary M. Barnes

President & CEO, Since 1996


Clark D. Bennett

Chairman of the Board, Since 2006

Our Board


RevenueProgram Services $3,450,490 55%

United Way $161,600 3%

Government Grants $460,183 7%

Development $1,837,445 29%

Organizational Reserves $366,730 6%

Total: $6,276,448 100%

Statement of Activities

ExpendituresDaycare $4,100,624 65%

Case Management $289,358 4%

Other $34,202 2%

Family Nurse Consultants $916,001 14%

Education and Training $321,634 5%

Management and General $234,074 4%

Development $380,555 6%

Total: $6,276,448 100%


Program Services

55%

United Way3%

Government Grants

7%

Development29%

Organizational Reserves

6%

Revenue

Daycare65%Case

Management4%

Other2%

Family Nurse Consultants

14%

Education and Training

5%

Management and General

4% Development6%

Expenditures


Community Supporters

Addison Hines Charitable Trust

Allegany Franciscan Ministries

Always Best Care

Anna M. Moldrup Foundation

Arden Courts Memory Care

Barrington Terrace Assisted Living and Memory Care

BallenIsles Charities Foundation

The Batchelor Foundation

The Bay Branch Foundation

Bernard Egan Foundation

Ms. Beth Schatman

Brightstar Care

C. Kenneth & Laura Baxter Foundation

Chatsworth at PGA National

Christian Foundation

City of Boca Raton

ComForcare Home Care

Community Foundation for Palm Beach and Martin County-Kirkwood Fund

Cultural Council of Palm Beach County

E. Lafayette & Etienette A. Quirin Foundation

Ellen Williams & Associates

Family Caregiver Alliance

Feig Family Foundation

Fleming & Fleming

The Fortin Foundation of Florida

Frances Langford Foundation

Frenchman’s Creek Charities Foundation

George Wedgeworth

Gerald Berson

Google AdWords Grant

Gordana Uscumlic Foundation

Grand Villa Senior Living Community

Hobe Sound Community Chest

Hospice of Palm Beach County

Howard Hill Foundation

Hugh H. Branch, Inc.

International Society of Palm Beach

Jarden Consumer Solutions

JL Cares

J.M. Rubin Foundation

John & Nellie Bastien Memorial Foundation

Jr. League of Boca Raton

Kiwanis Club of Riviera Beach

Kroll Family Charitable Fund

Lawrence & Marjorie Stoll Foundation

Lee Millman Respite Fund

We would like to thank all of our Community Supporters whose generosity

allows Alzheimer’s Community Care to provide services and resources to

caregivers and patients who are suffering from Alzheimer’s disease and

related neurocognitive disorders. We are deeply grateful for your generosity.

Following are supporters with gifts of $500 or more


Leo & Anne Albert Charitable Trust

Loblolly Community Foundation

Lottie French Lewis Fund

Louis Cassett Foundation

Martin County BOCC

Martin Health System

Mary Alice Fortin Foundation

Memory Disorder Center at St. Mary’s

MFuge

MGN Family Foundation

Millman Foundation

Nordstrom

Ocie V. Miller Memorial Foundation

Pacifica Senior Living

Palm Beach Country Club Foundation

Palm Healthcare Foundation

Parrot Heads for the Palm Beaches

PBC Sheriff’s Office

Pilot Club of Fort Pierce

Phyllis & Milton Berg Family Respite Care

Publix Super Markets Charities

Quantum Foundation

Raymond George and Ruth Bitner Fisher Foundation

Rosalinde & Arthur Gilbert FoundationRehab Home Health

Rhoda & David Chase Family Foundation

Ronald M. Siegel—Julius Siegel Living Trust

The Royal Foundation

Royal Poinciana Chapel

Sandy Hill Foundation

Schwartz Law Group

Season to Share—Palm Beach Post

Shalloway and Shalloway

Town of Palm Beach United Way

Treasure Coast Hospice

TrustBridge Health

Trusted Homecare Services

United Way of Martin County

United Way of St. Lucie County

VITAS Community Connection

W. Bradford Ingalls Charitable Foundation

Walter & Adi Blum Foundation

Walter & Barbara Bauke Foundation

Weiler Foundation

William & Helen Thomas Charitable Trust

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Family Nurse ConsultantsThe Family Nurse Consultant (FNC) Program serves as a life line for families in Palm Beach,

Martin and St. Lucie Counties who are living with Alzheimer’s disease and related disorders.

The program’s goal is to provide caregivers with the support, tools and resources needed

to continue providing home-based care for their loved ones.

The Family Nurse Consultant program incorporates

best practices for home-based dementia-specific care

as demonstrated through research by the Fisher Center

for Alzheimer’s disease. The best practices include

educating caregivers about the disease, counseling

and supporting the caregiver, and strengthening

social supports and family relationships. As a result,

caregivers are well informed, less isolated and better

equipped to provide care at home.

The results equate to improved quality of life and safety

for both the patient and the caregiver. In 2014, 92%

of patients served by our FNCs were able to continue

living at home with family members rather than be

admitted to nursing homes.

Seven Registered Nurses serve as our FNCs. They are

specially trained in treating dementia and provide

support 24/7, 365 days a year. Our FNCs provide inter-

ventions, home visits, needs assessments and care

plans designed to meet the needs of the patient and

family caregiver throughout all stages of the disease.

These interventions have proven to reduce caregiver

stress, and delay or eliminate the need for nursing

home placement. The FNC program helps reduce

physician office and emergency room visits. FNC

services are provided without charge to Alzheimer’s

patients and caregivers and are entirely supported

by donations and grants.

• Number of Patients and Caregivers served in

the 2014 Fiscal Year, broken down by counties

(Palm Beach, Martin, St. Lucie counties).

1. Palm Beach - 1,007

2. Martin - 221

3. St. Lucie - 304

• Number of patients living alone - 66

• Home visits completed - 209

• Total calls answered - 1597

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Specialized Alzheimer’s Care and Service CentersSpecialized Alzheimer’s Care and Service Centers are essential in intervening and providing

respite care for caregivers while simultaneously providing dementia-specific, community-

based services for patients.

Specialized Alzheimer’s Care and Service Centers are

designed to provide the tools for Alzheimer’s patients

and family caregivers to maintain their quality of life. In

order to accomplish this, patients receive comprehen-

sive dementia-specific care, which lessens the impact

of behaviors associated with Alzheimer’s disease.

Caregivers benefit with essential daily intervention

that results in improved personal health, stress

reduction and respite from the 24/7 burden of caring

for their loved one at home. Each Care and Service

Center provides a safe, supportive and individualized

environment for Alzheimer’s patients.

Physical exercise, socialization, cognitive stimulation

and medical monitoring are some of the benefits

patients receive. Alzheimer’s Community Care admin-

isters nine dementia-specific centers, seven in Palm

Beach County, one in Martin County and one in St.

Lucie County.

Assurance of quality control is provided by the Vice

President of Community Care Services, a registered

nurse with extensive knowledge and experience in

dementia-specific care. The Care and Service Centers

maintain a 5:1 patient-to-staff ratio and are licensed by

the Agency for Health Care Administration in accord-

ance with Chapter 400, Part V, Florida Statutes, and

Chapter 58 A-6, Florida Administrative Code.

• Total Patients served in the 2014 fiscal year

in day care, broken down by counties (Palm

Beach, Martin, St. Lucie)

1. Palm Beach - 347

2. Martin - 67

3. St. Lucie - 61

• Hours of care provided – 379,472

• 24-hour Alzheimer’s Crisis Line

1. Total – 157

2. Caregivers – 95

3. Law enforcement – 8

4. Other - 54

• Number of information and referral calls per

month - 30

Education & Quality Assurance


Alzheimer’s Community Care’s Education and Quality Assurance Department provides dementia-

specific education and training, training in regulatory compliance, staff orientation and training,

policy and procedure development and maintenance, as well as oversight of special projects.

The Department monitors and maintains ongoing compliance with the organization’s quality,

performance, and state and regulatory standards, and performs evaluation and analysis of

planned objectives and outcomes.

In this past year, Education and Quality Assurance has

standardized the orientation of Alzheimer’s Community

Care’s clinical staff. These staff include: Family Nurse

Consultants, Program Managers, Program Nurses,

Program Assistants and Activity Coordinators. New staff

members are also required to demonstrate education

and competency in their first days of employment,

and in compliance with the latest, high standards of

our accrediting body, The Joint Commission.

Alzheimer’s Community Care also developed a plan for

enhancing the education of local Registered Nursing

students by establishing procedures for providing

clinical experiences for these future nurses.

This plan included structured orientation and formal-

ized agendas for active student participation in the

activities of our Specialized Alzheimer’s Care and

Service Centers, with the goal of orienting future

nurses to our community-based model of care and

demonstrating effective interventions for patients

with Alzheimer’s disease and related neurocognitive

disorders.

The initial plan provided for clinical rotations for

students of the Palm Beach Atlantic University Bachelor

of Science in Nursing Program. Future plans include

extending the program to additional area universities.

The Education and Quality Assurance Department

also expanded education in the community, providing

numerous disease-specific educational programs to

community groups, law enforcement, emergency first

responders, and related health care providers, such

as skilled nursing facilities, assisted living facilities

and adult day centers.

Toward the end of the fiscal year, the Department


began to frame goals and objectives for achieving

Disease-Specific Care Certification from The Joint

Commission, a level of recognition that goes beyond

our Accreditation in measurably demonstrating the

effectiveness of Alzheimer’s Community Care’s various

programs and services, and validating the outcomes

that we help our patients and caregivers achieve.

Education

• Total number of formal training hour, broken down as follows: ACC Staff, Family Caregivers,

Professional Caregivers, Government, First Responders, Other (Service Organizations, etc.):

ACC Staff - 98

Family Caregivers - 116

Professional Caregivers - 93

Law Enforcement/First Responders - 147

Adult Protective Services - 40

Professional Guardians - 41

Community Organizations - 57

Total - 592

Support Group Attendance

• Caregiver Support groups:

Eleven support groups – Palm Beach, Martin and St. Lucie Counties

Total attending support groups in 2013-14 Fiscal Year - 517


24-Hour Alzheimer’s Crisis LineThe 24-Hour Crisis Line provides the caregiver with a lifeline of understanding and

guidance that helps them survive the many stages of Alzheimer’s disease and other

related neurocognitive disorders.

The 24-hour Alzheimer’s Crisis Line serves Palm Beach, Martin and St. Lucie counties. Family Nurse Consultants

(FNC), on-call 24/7, answer calls that include crisis calls, responding to questions and relieving caregiver anxiety.

A nurse will arrange for emergency respite care when needed. Since 60% of Alzheimer’s patients are at risk for

wandering, the Crisis Line connects our on-duty nurse to law enforcement for assistance during search and

rescues. The Crisis Line is also an excellent crisis management resource for caregivers.

In 2013-2014, our FNCs received 4,441 calls for assitance and referrals from family caregivers. In all cases, the

on-call FNC responded to the inquiry, followed-up as appropriate, and linked the family to essential services

and resources.

• 24-hour Alzheimer’s Crisis Line, broken down

as follows: Number of caregivers who called,

number of law enforcement who called, and

other.

1. Caregivers - 95

2. Law Enforcement - 8

3. Other - 54

Total - 157


ID Locator Bracelet The Alzheimer’s Community Care ID Locator Bracelet program provides an additional safety net

tool for patients with dementia who may wander away from safe and supervised settings. This

program partners with SafetyNet by LoJack and local law enforcement to assist the wandering

patient and their family. Our pilot project is working with 75 patients. An additional 75 bracelets

will be added to this project in 2015 thanks to generous support from The Jim Moran Foundation.

This is a vital program, as 125,000 persons with Alzheimer’s disease or related neurocognitive disorders wander

away from safety each year. Prompt location of the patient is essential because 80 percent of those lost for more

than 72 hours will not survive the event.

• The following patient totals were served from 7/1/2013-6/30/14 by the ID Locator Service:

1. Palm Beach County - 79

2. Martin County - 16

3. St. Lucie County - 30

Total - 125


Volunteer ServicesOur volunteers are the organization’s community ambassadors; they work diligently to help

the organization make a difference.

• Current Volunteers - 207

• Hours Served - 6,517.89 volunteer hours

• Total Value Wage - $139,222.14

Digital FootprintThere are over 3 billion internet users in the world according to Statista. Approximately

40% of the world population has an internet connection. As caregivers become younger it

is vital to provide a credible and easily accessible resource. We pride ourselves on always

providing the most up-to-date information, and our registered nurses are always vetting

new techniques that may be of help to caregivers. Alzheimer’s Community Care has also

created a mobile-specific website that is tailored to your mobile phone. As the digital age

continues to evolve we are very proud of the following 2013 – 2014 accomplishments:

Website

• 74,650 unique page views. That’s over 6,220 page views per month!

• Average time spent on website: Three minutes and twenty seconds

• Average amount of pages visited per session: 2.71

Google AdWords

Google Ad Grants is the nonprofit edition of AdWords, Google’s online advertising tool. Google

Ad Grants empowers nonprofit organizations, through $10,000 per month in in-kind AdWords™

advertising, to promote their missions and initiatives on Google search result pages. This equals

$120,000 over a calendar year. Google AdWords allows us to create ads for Google’s search engine

and increase the visitors coming to our website.

• Alzheimer’s Community Care had 1,300 visits to our website via Google AdWords during

the 2014 Fiscal Year.

alzheimerscommunitycare @alzcareorg AlzCare

Social Media

Follow us on Facebook, Twitter and Pinterest to stay up-to-date with the organization.

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Center Locations1 8 | CO R P O R AT E A N N UA L R E P O R T

Boca Raton

Phyllis & Julius Siegel Alzheimer’s Care & Service Center

Location: Advent Lutheran Church

4680 North Dixie Highway

Boca Raton, FL 33431

License #: 9252

Monday - Friday, 7:30am - 5:30pm

Phone: (561) 391-6955

Fax: (561) 392-7967

Delray Beach

Betty Kroll Specialized Alzheimer’s Care & Service Center

Location: Seacrest Presbyterian Church

2703 N. Seacrest Blvd.

Delray Beach, FL 33444

License #: 9128


Phone: (561) 330-3541

Fax: (561) 330-3621

Lake Worth

Location: Our Savior Lutheran Church

1615 Lake Avenue

Lake Worth, FL 33460

License #: 8852


Phone: (561) 585-7781

Fax: (561) 585-7317

West Lake Worth

Se Habla Español

Location: 3680 Lake Worth Road

Lake Worth, FL 33461

License #: 8998


Phone: (561) 432-0668

Fax: (561) 432-9640

West Palm Beach

Location: Baxter Complex

800 Northpoint Pkwy, Suite 101-A

West Palm Beach, FL 33407

License #: 8837


Phone: (561) 683-2700

Fax: (561) 683-7600

Palm Beach Gardens

Location: Nativity Lutheran Church

4075 Holly Drive

Palm Beach Gardens, FL 33410

License #: 8940


Phone: (561) 630-4724

Fax: (561) 630-8959

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Pahokee

Leo and Anne Albert Alzheimer’s Care and Service Center

Location: 470 Barack Obama Boulevard (Formerly East

First Street)

Pahokee, FL 33476

License #: 9032


Phone: (561) 924-7283

Fax: (561) 924-6295

North Stuart

Location: Prince of Peace Lutheran Church

2200 N Federal Hwy.

Stuart, FL 34994

License #: 8928


Phone: (772) 692-6981

Fax: (772) 692-7023

Ft. Pierce

Location: St. Peter’s Lutheran Church

2900 South Jenkins Road

Fort Pierce, FL 34981

License #: 9046


Phone: (772) 466-3261

Fax: (772) 466-9266

Thank You for taking the time to read our

2014 Annual Report. For more information

on Alzheimer’s Community Care, including

how you can help support the organization,

please call (561) 683-2700, or visit us online

at www.alzcare.org.

“We place a safety net around patients and caregivers every day.” ™

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