All About Anorexia

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 All About  Anorexia Nervosa A booklet for those wanting to know more about anorexia nervosa

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Transcript of All About Anorexia

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    All AboutAnorexia Nervosa

    A booklet for those wanting to

    know more about anorexia nervosa

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    This booklet w as w ritten by

    C harlotte S tark, Inform ation

    O fficer.

    Published by:

    The M ental H ealth Foundation

    U K O ffice

    83 Victoria S treet

    London SW 1H 0H W

    Tel: 020 7802 0300

    Fax: 020 7802 0301

    Scotland O ffice

    24 G eorge S quare

    G lasgow G 2 1EG

    Tel: 0141 572 0125

    Fax: 0141 572 0246

    E-m ail: m hf@ m hf.org.uk

    W eb: w w w .m entalhealth.org.uk

    R eg C harity N o: 801130

    C opyright 1997, 2000

    C artoons draw n by

    Sim on W hitem an

    The M ental H ealth Foundation

    ISBN : 090 1944 79 3

    Price 1.00

    The Mental Health Foundation has

    published two booklets on eating

    disorders. This one looks at anorexia

    nervosa and its companion booklet

    covers bulimia nervosa. We have

    produced two separate booklets

    because there are some very important

    differences between the two. There is

    however inevitably some overlap,particularly in the discussion about

    causes. There are also people who

    have experience of some or all of the

    symptoms of both conditions or who

    alternate between the two at different

    times.

    If you would also find it useful to have

    a copy of the bulimia nervosa booklet,

    please call us on 020 7802 0300.

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    What is anorexia nervosa?

    A norexia nervosa is a disorder w hich m akes eating very

    distressing. It m akes people obsessively anxious to m aintain

    or reduce their body w eight through rigid control of their calorie

    intake. People w ith anorexia nervosa often have a very

    distorted perception of how they look and continue to feel the

    need to lose w eight even w hen they are so thin that their

    health is very seriously at risk. They have an intense fear of

    gaining w eight and feel that their value as a person is directly

    affected by their body shape.

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    Who has anorexia nervosa?

    C urrent estim ates suggest that up to 1% of w om en in the U K

    betw een the ages of 15 and 30 suffer from anorexia nervosa.

    G irls under 15 can also be affected and it seem s that anorexia

    nervosa is becom ing an increasing problem in these younger

    children. Som e w om en over 30 also have anorexia nervosa,

    although the condition generally rst occurs earlier than this.

    90-95% of people w ith anorexia are w om en, but it is im portant

    to realise that it is a condition w hich can occur in young m en as

    w ell as w om en. There is also evidence to suggest that in the

    younger age group (7-14 yrs) up to 25% of cases are boys.

    It is difficult to judge exact num bers of people w ho have

    anorexia nervosa as m any cases are not reported or not

    diagnosed. Som e people experience m any of the sym ptom s

    of the condition but w ould not be form ally diagnosed. This

    m ay be because their w eight has not fallen below the level

    identi ed by eating disorder experts (usually 15% below

    norm albody w eight) or because they do not t the

    diagnostic m odels in som e other w ay.

    What causes anorexia nervosa?

    There is a lot of uncertainty about the causes of all form s of

    eating disorder. M any people still think of them as slim m ers

    diseases. W hile it is true that both anorexia and bulim ia

    nervosa can develop from a strict diet, the reasons for a diet

    turning into an eating disorder involve m ore than just the w ish

    to lose w eight. The nam e anorexiais confusing as literally it

    m eans loss of appetite. People w ith anorexia nervosa do not

    lose their appetite, they still feel hungry, but fear w eight gain

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    so m uch that they lose the ability to eat a norm al diet.

    Som e people attribute anorexia nervosa to m edia and fashion and

    it is clear that they both play their part. M any people w ho do not

    conform to the ideals presented by the fashion industry and the

    m edia feel that they need to diet. For som e people this presents

    no problem w hile for others it can turn into anorexia nervosa.

    The m edia can also perpetuate problem s for people w ho have an

    eating problem as it is very difficult to break aw ay from the dieting

    cycle if you are constantly being presented w ith im ages of

    desirable thin m odels.

    People w ith anorexia nervosa develop a fear of fatness w hich

    goes far beyond that w hich m ost dieters feel. For som eone w ith

    anorexia nervosa, the need to m ake them selves thinner

    dom inates all other em otions. Som e people w ith the condition

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    lose their ability to see them selves as they really are, and instead

    becom e terri ed that they are fat even w hen they have becom e

    seriously m alnourished and underw eight. O thers are able to see

    that they are thinner than m ost other people, but still strive to losew hatever body fat they feel rem ains. In m any cases, they feel

    driven to continue to lose w eight because they feel that their

    value as a person depends on their w eight and body shape and

    that they w ill only be liked and appreciated if they are able to

    m ake them selves increasingly thinner.

    People w ho develop anorexia nervosa often have em otional

    needs w hich are not being m et in their lives. They m ay not havea stable fam ily background, m ay have trouble m aking friends

    socially or at w ork or feel uncom fortable about sexual

    relationships. It is im portant to realise though that anorexia

    nervosa is not anyones fault. It cannot be seen to hinge entirely

    on relationships, this is sim ply one factor w hich m ay play a part.

    People can develop anorexia nervosa even if they have very

    supportive fam ilies and partners and a w ide circle of friends.

    Anorexia nervosa often starts in teenage years and can be a

    m echanism for dealing w ith all the com plicated em otions

    connected w ith becom ing an adult. Som e teenage girls are

    terri ed of becom ing w om en. This m ay be because they have

    been abused as children, because they have seen their m other

    or other fem ale relatives being unhappy, because they are

    concerned about their sexuality or sim ply because they are

    anxious about all the changes w hich they can feel taking place

    w ithin them . Anorexia nervosa can offer them a w ay of delaying

    som e of the physical signs that they are becom ing w om en.

    Teenage girls w ith anorexia nervosa do not have such developed

    breasts or hips as other girls their age because they have so little

    body fat. They m ay also delay the start of their periods. This can

    be very com forting for girls w ho do not feel ready for these

    physical developm ents.

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    People w ho have anorexia nervosa often feel that they are

    underachievers in academ ic or w ork life. This is usually not the

    case and evidence has show n that m any people w ith anorexia

    nervosa are in fact very high achievers. They are, how ever, oftenpeople w ho set them selves standards w hich are sim ply

    im possible to achieve and leave them w ith feelings of

    inadequacy.

    For a person w ith little con dence, their eating problem s m ay

    seem to be the only thing about them w hich is special or

    different. Their ability to feel hungry and yet refuse to eat can feel

    like a special talent that m ost people are unable to achieve andcan give a real sense of pride. It feels very disciplined to be able

    to count calories and to be able to im pose strict lim its on how

    m uch you consum e. For people w ho have low self-esteem and

    w ho can see virtually no other area in their lives in w hich they are

    successful, this can suddenly offer them a sense of purpose.

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    Anorexia nervosa can also be a w ay of coping w ith difficult

    em otions. The am ount of tim e and energy spent thinking about

    food and w eight loss can leave very little room to deal w ith any

    other em otions. A norexia nervosa can therefore act as a kind ofprotective barrier against the difficulties and em otional pressures

    of everyday life.

    It is im portant to understand that anorexia nervosa can ful l som e

    needs and not to expect som eone to give it up w ithout having

    their needs m et in som e other w ay.

    What are the effects of anorexianervosa on someones health?

    A signi cant num ber of people w ith anorexia nervosa die as a

    result of the condition, either as a direct physical consequence

    of the w eight loss or through suicide.

    People w ith anorexia nervosa have very low body w eight and

    this can cause serious m edical problem s. The m ost com m on of

    these are:

    Poor circulation

    Low blood pressure

    B rittle bones

    Increased facial hair

    Loss of periods/infertility

    Fainting and dizziness

    H air loss

    D ehydration

    Kidney dam age

    Low body tem perature

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    Som e of these problem s w ill get better w hen the person

    recovers from anorexia nervosa. O ther problem s, particularly

    dam age caused to bones, m ay never im prove. It is im portant to

    seek help as early as possible as m any of the m ore seriousm edical consequences of anorexia nervosa are only associated

    w ith long-term eating problem s.

    Will someone with severe anorexia

    nervosa have to go into hospital?O ccasionally w hen w eight loss becom es so severe that it is a

    threat to som eones life, hospital m ay need to be considered as

    an option. D octors need to be very careful about taking people

    into hospital, how ever, as the im m ediate physical need for

    m edical intervention can im pact on the m ore long-term need for

    autonom y. W hat people w ith anorexia nervosa generally need

    above all else is to feel that they are in control of their ow n lives.B eing adm itted to hospital and having responsibility for their

    intake of food or uids m anaged by others can be extrem ely

    distressing.

    If doctors feel that som eones life is in im m ediate danger, and

    they see no other option, they can force som eone to go into

    hospital for treatm ent - this is allow ed under the M ental H ealth

    A ct. C om pulsory treatm ent is alw ays seen as a last resort and

    w ill only be continued for as long as doctors and other

    professionals see it as the only solution. If hospital treatm ent

    is going to be effective, then it m ust be seen as part of a m uch

    w ider approach to the anorexia nervosa w hich includes looking

    at the reasons w hy the condition rst started and w hy it is so

    difficult to give up.

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    How can I help if I suspect someonehas anorexia nervosa?

    If you suspect that som eone you know has anorexia nervosa or

    is show ing signs of developing it, you should try to talk to them

    about your w orries and urge them to seek help. If they seem

    unw illing to discuss their eating problem s w ith you, or becom e

    aggressive, try suggesting that they at least read about the

    condition. This w ill help to get them used to being confronted

    w ith som e of the term inology as w ell as alerting them to som eof the dangers. They m ay not realise that they have such a

    serious a problem or m ay be anxious about giving up

    som ething w hich they feel helps them to cope.

    Try to learn as m uch as you can about the condition and be

    prepared to offer w hatever support your friend or relative

    needs. B e guided by w hat they say they need rather than by

    w hat you think they should be doing. You m ust realise that it

    can be very frightening to give up a regim e w hich is at the verycentre of som eones life. Talk to your friend about w hy they

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    think they need their anorexia nervosa and w hat they fear about

    giving it up. It m ay be that they need som ething to feel proud

    of, or som ething over w hich they have com plete control. If this

    is the case, then you m ay be able to help them to think of otherareas in their lives in w hich this can be achieved.

    You m ay nd it helpful to use som e of the self-help books listed

    at the end of this booklet. They are generally w ritten by m edical

    professionals w ith m any years experience in treating eating

    disorders but m ost of them also have input from people w ho

    have lived w ith the condition them selves. These books can be

    very helpful in show ing you how you can structure the recoveryprocess, giving practical suggestions for w ays forw ard and

    explaining w hy people m ay act as they do. You and your friend

    or relative m ay also nd it very reassuring to see that the w ay

    they are feeling is a recognised condition and that there are

    effective w ays of dealing w ith these feelings.

    O nce you have got som eone to talk about their condition, you

    should try to stress the im portance of getting professional help.There are effective treatm ents for anorexia nervosa, and the

    earlier your friend or relative has access to these treatm ents,

    the better their chance of recovery (see G etting help below ).

    What should I do if I have anorexia

    nervosa?The rst thing you should try to do is to talk to som eone about

    your anorexia nervosa. If you are already very underw eight, you

    m ay not need to tell anyone that you have a problem , but you

    should try to talk to som eone about w hy you think you are

    starving yourself. U nlike bulim ia nervosa, anorexia nervosa is

    a difficult condition to keep secret because there are very

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    obvious changes in your appearance. Your friends and fam ily

    w ill have noticed that you are losing w eight and w ill alm ost

    certainly be w orried about you.

    Try to explain to som eone you trust w hat you get from having

    anorexia nervosa. If you feel you need to starve yourself in

    order to m aintain control over your life, or to suppress other

    em otions you m ay not feel able to deal w ith - then tell

    som eone this. The people close to you w ill be able to

    understand the dangers associated w ith your extrem e w eight

    loss. Those w ho have been on diets or w ho struggle to control

    their ow n w eight m ay also be able to understand howfrightened you feel about gaining any w eight. W hat people m ay

    need help w ith is understanding that in som e w ays your

    anorexia nervosa can help you to cope w ith other pressures

    you face. Try to be honest w ith yourself about your condition

    and share your thoughts w ith som eone else if you can.

    You probably feel very afraid of putting on any w eight. You

    m ust try to begin to understand that this fear is part of yourcondition and try to listen to people w hen they tell you that you

    should not be losing any m ore w eight.

    You m ay also nd it helpful to read m ore about anorexia

    nervosa or talk to other people w ho live w ith it. The Eating

    D isorders A ssociation can send you inform ation and has self

    help groups you can join. There are useful books and leafl ets

    listed at the back of this booklet.

    Getting help

    B efore you decide to get help, you m ust be honest w ith

    yourself about w hether you are ready. N obody w ill be able to

    help you get better unless you are able to accept that you w illhave to at least m aintain your current body w eight. There are all

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    sorts of w ays you can approach your condition and you m ust

    chose one w hich suits you. R em em ber that if you have

    m anaged to open up to som eone and started to think and talk

    about your anorexia nervosa, you have already taken a big stepforw ard. D o not try to rush your recovery, but feel proud of

    each advance you m ake.

    Professional help

    If you decide that you are ready to seek professional help, you

    should rst approach your ow n doctor (G P) for advice. N ot all

    G Ps are expert in eating disorders, but they can help you toaccess specialist services. They can also be very helpful in

    discussing your physical needs and in helping you to adjust to

    a healthier w ay of eating. If you have been fasting for a long

    tim e you m ay nd that you have problem s w ith certain food.

    Your digestive system w ill not be used to coping w ith norm al

    am ounts of food and you m ay need to start by eating sm all

    portions of easily digested foods until your system catches up.

    Your G P can tell you w hich foods should cause you least

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    problem s w hilst still providing you w ith the nourishm ent you

    need. H e/she m ay also w ant to w eigh you regularly as a m eans

    of m onitoring your progress. D o not be afraid of this - try to see

    it as a challenge and aim to have m aintained your body w eightor even have gained a few pounds each tim e.

    Your G P should also refer you to a psychiatrist or therapist

    specialising in eating disorders. This can be very helpful as

    they w ill have experience of treating m any people w ith anorexia

    nervosa and w ill be used to the challenges. If you are sent

    for specialist help, see this as a valuable opportunity and try

    to be open to the suggestions they m ake. You should alsobe prepared to tell them w hat you feel w orks best for you

    or w hat your particular fears are - after all, w e are all different.

    If you are very thin, your doctor m ay w ant to adm it you to

    hospital for a short tim e (see previous section - w ill som eone

    w ith severe anorexia nervosa have to go into hospital?).

    This m ay be frightening and m ake you feel as if you are losing

    control. M ake sure you keep as m uch control as you can- ask questions, m ake sure you understand w hat is happening

    and w hy and challenge anything you are not happy about.

    Your tim e in hospital should only be a sm all part of your overall

    treatm ent and you should try to see it in this context.

    Self help

    There are a num ber of very good self help books available.Som e of these are listed at the back of this booklet. These

    books can tell you about w ays other people have found to

    get better, can suggest som e of the reasons w hy you m ay

    be feeling as you do and can give practical suggestions of

    m easures you can take in your life to try to recover. They

    are alm ost alw ays w ritten w ith the help of people w ho have

    anorexia nervosa them selves and so do not m ake unrealistic

    claim s.

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    You w ill probably nd that as w ell as providing you w ith som e

    practical w ays forw ard, these books w ill also be very

    com forting as they w ill show you that others think and act as

    you do. The books are m ost effective w hen used by you andsom eone else together. If you can get som eone to read

    through the advice and help you apply it to your ow n set of

    circum stances, then you should be able to develop a w orkable

    plan for getting better. If you do not have a friend or relative

    that you feel can help you w ith this, then your G P or practice

    nurse m ay be able to help.

    Friends and family

    D o not underestim ate the effect of friends and fam ily on your

    recovery. Their support can be invaluable. N ot only can they

    help w ith practicalities, they can also support you through the

    bad tim es and help you celebrate your successes.

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    R ecovering from anorexia nervosa is difficult. M any people only

    seek help w hen they have been living w ith the condition for

    years. A ny w ay of thinking and behaving w hich has been

    established for a long period of tim e is difficult to overcom e.People trying to recover from anorexia nervosa should be

    prepared for the process to take som e tim e and be really

    com m itted to achieving results. A norexia nervosa can be

    beaten and there are a range of very effective treatm ents

    w hich can be tried. O n the next page you w ill nd are

    addresses w here you can get further help, inform ation and

    support.

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    15

    Eating Disorders Association

    First Floor

    W ensum H ouse

    103 Prince of W ales R oad

    N orw ich

    N orfolk N R 1 1D W

    H elpline: 0845 634 1414

    (8.30am -8.30pm M on-Fri)

    Youth H elpline - 18yrs and under:

    0845 634 7650

    (4.00pm -6.30pm M on-Fri)R ecorded m essage about

    eating disorders: 0906 302 0012

    (m essage lasts approx 10

    m inutes and costs 50p per

    m inute)

    w w w .edauk.com

    The EDA provides telephone

    helplines, information sheets,

    leaflets and newsletters and runsa national network of self-help

    groups. They are able to advise

    on both bulimia and anorexia

    nervosa.

    MIND

    G ranta H ouse

    15-19 B roadw ay

    Stratford

    London E15 4BQTel: 020 8519 2122

    Inform ation Line: 0845 660163

    w w w .m ind.org.uk

    National charity which offers

    information on all mental

    illnesses. MIND have leaflets and

    information sheets on eating

    disorders and sell some of the

    self-help guides listed below.

    The Samaritans

    Tel: 0845 909090

    w w w .sam aritans.org.uk

    UK Helpline for anyone

    experiencing emotional distress.

    Someone to talk to in confidence

    24 hours a day.

    The Womens Therapy Centre

    6-9 M anor G ardens

    London N 7 6LATel: 020 7263 6200

    (M on-Fri 10am -12pm and 2-4pm )

    Individual and group

    psychotherapy for women.

    Where to get further help

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    Further reading aboutanorexia nervosa

    The follow ing list is intended as a guide to seeking further inform ation

    and the M ental H ealth Foundation does not necessarily endorse or

    support the content of the publications listed.

    General reading

    Anorexics on Anorexia

    R osem ary S helley. Jessica Kingsley, 1997

    The Anorexic Experience

    M arilyn Law rence. The W om ens Press, 1995.

    Eating Disorders: the facts

    Suzanne A braham and D erek Llew ellyn-Jones.

    O xford U niversity Press, 1989.

    Talking About Anorexia

    M M onro. Sheldon, 1996.

    Self-help books

    Anorexia and Bulimia: your questions answered

    Julia B uckroyd. Elem ent B ooks Ltd, 1996.

    Anorexia Nervosa: a guide for sufferers and their families

    PL Palm er, Penguin, 1989.

    Leaflets

    Anorexia and Bulimia. Help is at Hand Guide

    R oyal C ollege of Psychiatrists - call 020 7235 2351.

    Understanding Eating Distress

    M IN D - call 020 8519 2122

    The Eating D isorders A ssociation also produces a range of lea ets on

    eating disorders - call them on 0870 770 3256 for further details.

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    A s the U Ks only charity concerned w ith both m ental health and

    learning disabilities, the M ental H ealth Foundation plays a vital

    role in pioneering new approaches to prevention, treatm ent and

    care. The Foundations w ork includes: allocating grants for

    research and com m unity projects, contributing to public

    debate, educating and infl uencing policy m akers and health

    care professionals.