ALBURY WODONGA BREAST CANCER SUPPORT GROUP Hilltop-...

8
Hilltop- What an Asset ALBURY-WODONGA BREAST CANCER SUPPORT GROUP T he Albury-Wodonga Breast Cancer Support Group meets on the third Friday of each month, 10am to noon, at the Mitta Mitta Canoe Club building, Noreuil Park, Albury, a confidential and caring meeting, sharing knowledge and experiences and offering comfort and friendship. Coffee and tea are supplied and you can bring nibbles to share if you wish. PLEASE JOIN US DATES FOR THE DIARY 20 September AWBCSG MEETING 10am Mitta Mitta Canoe Club 18th birthday celebrations and e-Health presentation 15 October and 3 December LOOK GOOD FEEL BETTER– to enrol Contact Rosemary Creed 02 6021 3604 18 October AWBCSG MEETING 10am Mitta Mitta Canoe Club 24 October Mini-Field of Women and BCNA Forum The Cube Wodonga 10– 3pm 26-27 October Relay for Life Bunton Park North Albury www.relayforlife.org.au to register 15 November AWBCSG MEETING 10am Mitta Mitta Canoe Club 6 December AWBCSG Christmas Lunch 11.30am Stanley Room, Commercial Club, Albury The Tit Tattler would not be possible without the generosity of Conway Printing at Jindera who print the newsletter without charge. Thanks also to Kellie and Kelvin Davies of K2 Design who have donated their time and skills maintaining our website and providing technical support. And thank you to our contributors whose input helps us to pass on so much important information, advice or just something to make us laugh. Hilltop is a ―patient and carer‖ accommodation centre, a home away from home with 20 lovely motel-style rooms, a communal sitting room and kitchen area. The communal area or ―The Hub‖ as we call it , is a great place for communication and support for both the patient and carer, discussing day to day movements and comparing treatments or just generally chatting. The first patient/carer checked in on March 20th this year. As Manager, it is enormously satisfying to hear the noisy sounds of someone cooking and their onlookers keeping them amused by telling their day to day experiences or other topics of interest. This, I feel is a very healing part of their treatment , to give and receive support. I have heard on numerous occasions that it is not known who can stay at Hilltop. Patients who are undergoing chemotherapy/radiation or any other medical treatment and their carer and who live outside the Albury/Wodonga perimeter. Please phone me on 0260 214874 and inquire if you are eligible to stay at Hilltop. Hilltop, located beside Albury Hospital, can be your home for as long as the patient is undergoing treatment at a hospital or is an inpatient, this gives both the patient and carer a safe, financially economic and stress free environment to live close to treatment. If you live 100kms from your place of treatment and are from NSW you are eligible for IPTAAS (Isolated Patient Transport/Accommodation Subsidy) or from Victoria you are eligible for VPTAS (Victorian Patient Travel/ Accommodation Subsidy) and you will be out of pocket $15.00. I am able to advise you on how to apply for this subsidy. For those who live closer and cannot claim IPTAAS or VPTAS the cost is $50.00 per room per night. Helen Murray Manager 600 KEENE STREET (PO BOX 7055) ALBURY EAST NSW 2640 PHONE: 0260 214874 - FAX 0260 214814 Testimonial from Judith: “Firstly heartfelt thanks to all persons who were responsible for making Hilltop , Albury/Wodonga Patient and Carer Accommodation Centre a reality. Whilst caring for my husband with multiple myeloma, I was diagnosed with breast cancer and after surgery required 6 weeks of treatment. We did not know how we were going to cope with the travelling everyday then we were given the information on Hilltop. I am now in my fifth week of treatment and staying here at Hilltop is our „Home away from Home.‟ Being able to prepare our meals in the kitchen has been a huge benefit. Manager, Helen has been wonderful and given me great support. Des and I wish you Helen every success in your new position”. Hilltop is operated by Fight Cancer Foundation on a not for profit basis. Albury Wodonga Patient & Carer Accommodation Centre

Transcript of ALBURY WODONGA BREAST CANCER SUPPORT GROUP Hilltop-...

Page 1: ALBURY WODONGA BREAST CANCER SUPPORT GROUP Hilltop- …awbcsg.com/newsletter/TittattlerSpring2013.pdf · Albury Wodonga Patient & Carer Accommodation Centre. hydrotherapy pool every

Hilltop- What an Asset

ALBURY-WODONGA BREAST CANCER SUPPORT GROUP

T he Albury-Wodonga Breast Cancer Support Group meets on the third Friday of each month, 10am to noon, at the Mitta Mitta Canoe Club building, Noreuil Park, Albury, a confidential and caring meeting, sharing

knowledge and experiences and offering comfort and friendship. Coffee and tea are supplied and you can bring nibbles to share if you wish.

PLEASE JOIN US

DATES FOR THE DIARY

20 September AWBCSG MEETING 10am Mitta Mitta Canoe Club 18th birthday celebrations and e-Health presentation

15 October and 3 December LOOK GOOD FEEL BETTER– to enrol Contact Rosemary Creed 02 6021 3604

18 October AWBCSG MEETING 10am Mitta Mitta Canoe Club

24 October Mini-Field of Women and BCNA Forum The Cube Wodonga 10– 3pm

26-27 October Relay for Life Bunton Park North Albury www.relayforlife.org.au to register

15 November AWBCSG MEETING 10am Mitta Mitta Canoe Club

6 December AWBCSG Christmas Lunch 11.30am Stanley Room, Commercial Club, Albury

The Tit Tattler would not be possible without the generosity of Conway Printing at Jindera who print the newsletter without charge.

Thanks also to Kellie and Kelvin Davies of K2 Design who have donated their time and skills maintaining our website and providing technical support.

And thank you to our contributors whose input helps us to pass on so much important information, advice or just something to make us laugh.

Hilltop is a ―patient and carer‖ accommodation centre, a home away from home with 20 lovely motel-style rooms, a communal sitting room and kitchen area. The communal area or ―The Hub‖ as we call it , is a great place for communication and support for both the patient and carer, discussing day to day movements and comparing treatments or just generally chatting. The first patient/carer checked in on March 20th this year.

As Manager, it is enormously satisfying to hear the noisy sounds of someone cooking and their onlookers keeping them amused by telling their day to day experiences or other topics of interest. This, I feel is a very healing part of their treatment , to give and receive support.

I have heard on numerous occasions that it is not known who can stay at Hilltop. Patients who are undergoing chemotherapy/radiation or any other medical treatment and their carer and who live outside the Albury/Wodonga perimeter. Please phone me on 0260 214874 and inquire if you are eligible to stay at Hilltop.

Hilltop, located beside Albury Hospital, can be your home for as long as the patient is undergoing treatment at a hospital or is an inpatient, this gives both the patient and carer a safe, financially economic and stress free environment to live close to treatment.

If you live 100kms from your place of treatment and are from NSW you are eligible for IPTAAS (Isolated Patient Transport/Accommodation Subsidy) or from Victoria you are eligible for VPTAS (Victorian Patient Travel/Accommodation Subsidy) and you will be out of pocket $15.00. I am able to advise you on how to apply for this subsidy. For those who live closer and cannot claim IPTAAS or VPTAS the cost is $50.00 per room per night.

Helen Murray Manager 600 KEENE STREET (PO BOX 7055) ALBURY EAST NSW 2640 PHONE: 0260 214874 - FAX 0260 214814

Testimonial from Judith:

“Firstly heartfelt thanks to all persons who were responsible for making Hilltop , Albury/Wodonga Patient and

Carer Accommodation Centre a reality.

Whilst caring for my husband with multiple myeloma, I was diagnosed with breast cancer and after surgery

required 6 weeks of treatment. We did not know how we were going to cope with the travelling everyday then we

were given the information on Hilltop.

I am now in my fifth week of treatment and staying here at Hilltop is our „Home away from Home.‟ Being able to

prepare our meals in the kitchen has been a huge benefit.

Manager, Helen has been wonderful and given me great support. Des and I wish you Helen every success in your

new position”.

Hilltop is operated by Fight Cancer Foundation on a not for profit basis.

Albury Wodonga Patient & Carer Accommodation Centre

Page 2: ALBURY WODONGA BREAST CANCER SUPPORT GROUP Hilltop- …awbcsg.com/newsletter/TittattlerSpring2013.pdf · Albury Wodonga Patient & Carer Accommodation Centre. hydrotherapy pool every

hydrotherapy pool every Wednesday at 12.30pm. For women who have or have had breast cancer, the exercises are gentle and focus mainly on lymphatic drainage. The format for the class is meet and change in time for a 12.30pm start, stretching, gentle exercise using equipment and relaxation to finish. The class ends at 1.30pm The cost is $5.

H ydrotherapy is held at the Albury Base Hospital

CONTACTS

Committee Robyn Daly (02) 6021 5353

Marg Harrison (02) 6021 4551

Heather Knott (Treasurer) (02) 6059 2314

Jody Hart (02) 6025 4697

Marlene Gibson (02) 6021 6364

Barbara Iverson (02) 6056 1437

Genevieve Black Feel free to contact any committee member for information or support.

Correspondence to: Robyn Daly– Co-ordinator 286 Ashman Ave East Albury 2640 [email protected] Editor: Heather Knott [email protected] Hydrotherapy contact: Marlene Gibson (02) 6021 6364

Ruminations Robyn with

Hi Everyone,

We hope you have all kept warm and dry over the past few months. It certainly has been very wet this last week and making our Lake Hume look wonderful again. When you see the beautiful wattle blooming in all the different colours of gold and the pink bloom of the cherry blossom you know that spring is just around the corner, making you feel that little bit brighter.

On the 19th of June, Heather and I were invited to the Albury Croquet Club to receive a cheque of $333. We want to thank past President Elwyn Ried and the members of the Club for this donation which will go towards the Prosthesis Program.

One of our wonderful members, Di Russell celebrated her 70th Birthday with us at our June meeting. Di has been a long standing member of the group and she is an inspiration to us all. We all wish you many more birthdays Di.

On June 20th, Heather and I, along with Fiona Jones and Pauline Harbick from Brave Hearts and about 10 other interested people, attended the National Breast Cancer Foundation 2013 National Community Conversations Forum. I was very disappointed with the lack of response to the evening as this major organisation does such wonderful work in the Research Field. It was a very interesting couple of hours. Heather‘s report is on page 6.

Albury Wodonga Cancer Services Trust Fund held their Gala Dinner on the 28th June. I didn‘t think they could top last year‘s inaugural Gala Dinner, but they did, with that wonderful host Steve Bowen keeping the evening flowing and Glen Starr as Entertainment Director, showing us the versatility of his voice and stage presence. Young Amanual Visser had us all spell bound with his wonderful singing. The dancing, singing and music from all the other talented performers kept the night hopping. As usual the Commercial Club served up a delicious menu and the service was outstanding. $30,000 was raised on the night. Towards the end of the evening a very excited Editor of the Border Mail, Di Thomas, announced that Albury was to get a Headspace. So I think that topped off a very wonderful evening.

Our July meeting was held at ―Hilltop‖ Albury Wodonga Patient and Carer Accommodation Centre. As you can see we have featured ―Hilltop‖ on the front of the tit tattler. Manager Helen Murray showed us through this wonderful facility and no wonder Helen is very proud of the centre. It is a home away from home and everyone who has stayed at ―Hilltop‖ have felt safe and supported.

Helen has started a library in what is called ‗The Quiet Room‘, so to complement the comfortable lounge chairs and sofas, the AWBCSG members decided to donate two small coffee tables to this room. They are frosted glass so blend in beautifully with the Foundation Members Board of Opaque glass affixed to the wall of The Quiet Room.

We want to congratulate Shane Crawford on his wonderful achievement for his mammoth bike ride of 3,600 kilometres from Melbourne to Perth. The ‗Tour De Crawf‘ raised just over $1.3 million for Breast Cancer Network Australia. We all know what wonderful work BCNA do. See Heather‘s article on BCNA on page 6.

The Lions Club of Wodonga has once again included us in their annual donations to Community Groups with a wonderful cheque of $500. We appreciate their continued support and thank them for their generosity. This money will go towards the Care Bag Project.

Our good friend Louise Humphrey from Health Focus Physiotherapy, was our guest speaker at our August meeting. Louise covered everything from exercise though to lymphoedema. We always look forward to Louise coming, as we always get our questions answered in terms we can understand. Thank you Louise.

I, along with 600 community members, attended the Winter Solstice Evening for Survivors of Suicide and Friends. I lost my brother Ian to suicide on the 21st August, 2006 at age 63. Ian was my only sibling and I loved him very much and I miss him terribly. To this day we don‘t know why he took his own life. The support, warmth and friendship was very evident on this freezing cold night, as you found yourself talking to total strangers and sharing the grief over the loss of a loved one or friend. Don‘t hesitate to ask ―Are you OK?‖ if you think someone is struggling. That‘s why the Headspace Campaign was so important and the Border Mail should be very PROUD that it bought this issue into the public arena to try and help demystify suicide.

SAVE THE DATE We will be holding another Christmas Raffle, which will be drawn at our Christmas Buffet Lunch, in the Stanley Room, at 11.30am, Friday 6th December. Breast Cancer Survivors lunch will be subsidised. Contact Marg Harrison - 6021 4551 to book. Bring along a Kris Kringle present to go under the tree.

Yours in Friendship,

Robyn Daly

Page 3: ALBURY WODONGA BREAST CANCER SUPPORT GROUP Hilltop- …awbcsg.com/newsletter/TittattlerSpring2013.pdf · Albury Wodonga Patient & Carer Accommodation Centre. hydrotherapy pool every

Hi and welcome back all our members who have travelled over the winter months. For those who stayed in the area I hope you were able to keep a cold or the flu at bay. Our hydrotherapy group felt these absences with only 6 or 7 some weeks. The sunny days of spring should motivate us all to get out and about and feel like exercising again.

At our June meeting Leanne Hodge reminded us of the importance of exercise. She offers Pink Pilates for newly diagnosed women and those who have finished treatment. It was interesting to hear how Pink Pilates originated in New Zealand. Leanne is hoping to start group classes on a Wednesday at rooms in Albury. These classes would focus on breathing technique, stretching and range of movement as well as core strength with new exercises introduced each week depending on the skill level of participants. A group of 4 to 6 is needed and if there is enough interest it would start during September. The cost would be $25 a session. If you would like to be part of this group class please contact Leanne. Details and more information can be found on page 7. One of our members has been having individual sessions and several of the ladies from the Holbrook Support Group attend group classes and they find them very beneficial.

Exercise featured in both keynote speeches and breakout sessions at the Summit I attended, along with Judy Ross - Holbrook Culcairn Support Group, Fiona Jones- Brave Hearts, Jude Peterkin and Linda Alleyne- Mayflies, in Sydney on Thursday 8th and Friday 9th August. Many of the keynote speakers stressed how important it was to exercise each day. You don‘t need to launch into a vigorous program but gradually increase what you do each week and make it a habit that you can‘t do without.

Professor Kerryn Phelps AM was our first speaker. She spoke about a health scare she had back in 2003 that required her to change her lifestyle if she wanted to regain her health. She has devised a 3 Step Plan for Ultimate Wellness which is featured in her newly released book of the same name. Audit your lifestyle factors and health behaviours, Reboot your life habits and attitude and decide what you want to change then for the Sustain phase with the challenge being how to incorporate the changes into your life to benefit your wellbeing. Her talk was very uplifting and emphasized that we needed to do a better job at putting ourselves higher on our own ‘to do‘ list.

It was difficult to take notes and concentrate on the speakers so BCNA have taped the presentations and will have them as podcasts on the website along with the slides from each presentations. Once they become available I will place a notice on our website informing you how to access them as well as inform you through the next tit tattler.

LOOK GOOD… FEEL BETTER

for 2013

The final sessions for the year will be held on the following Tuesdays 15th October and 3rd December. Please register at least 2 weeks prior to the session you wish to attend.

Contact Rosemary Creed 02 6021 3604 or email on

[email protected]

YMCA Encore

Gentle Hydro-therapy

Exercise Program

Eight week program - 2 hours per week for women who have had breast cancer

at any time in their lives.

The program is FREE of charge

The next program is 3 to 5pm 8th October - 3rd December, 2013

Albury Base Hospital

Participation is by enrolment Contact: Sigrid Brown: 0428 253 046

Judy Ross, Raelene Boyle,

Heather Knott and Fiona Jones

The conference was held at Waterview, a function centre set in lovely grounds with a beautiful view at Olympic Park. Unfortunately the weather was inclement on the first day so we opted to bus to and from the venue. The next morning and evening we walked, following the Pink Ladies that lined the path. The walk was needed to shed the calories consumed from the morning and afternoon teas and lunch. On Friday night a dinner was held in the Novotel Ballroom. The food was absolutely delicious followed by really fabulous entertainment.

Raelene Boyle, who is a Member of the BCNA board attended the Summit and we were fortunate enough to have a photo taken with her in amongst the special Summit Mini– Field of Women.

We are hoping that Raelene will be able to attend the BCNA Forum and Mini-Field of Women on 24th October to be held at The Cube in Wodonga. Mark this date in your diary. If you would like to attend either ring or email Robyn or myself– our contacts details are on page 3. As soon as we know the program I will put it on our website. Hope to see lots of you there, it should be an informative day and a chance to meet fellow breast cancer thrivers. We learnt this new term at the Summit.

A reminder that this year it will be AWBCSG‘s 18th birthday. It would be lovely if you could attend our September 20th meeting and help us celebrate. Past and current members are very grateful to Judy Gray and Carol Stevenson for forming the group after finding there was no support locally as they started on their breast cancer journey. BCNA was formed 4 years later to which we became affiliated. BCNA supports 300 member groups and over 83,000 members with 64% of group members being 55 years +. 187 of these groups were represented at the Summit by 272 ladies and 7 Breast Care Nurses from all over Australia.

In accepting the funding from Pink Pony we were required to submit two reports. One at the half year and then a final report. If you would like to read the final report it is in the News section on our website. We have featured one of the photos used in the report on the back page of the tit tattler. We have only 12 bags left for Jude and Jodie to present from this funding and then our Department of Health –Victoria Grant will be used.

Heather Knott

Holbrook/Culcairn Cancer Support Group

Meetings are held on the first Monday of each month from 10.30 to 12.30 alternating between Holbrook and Culcairn

7 October Public Holiday– No meeting

4 November 10.30am at Culcairn Bakery

2 December Christmas Luncheon

6 December AWBCSG Christmas Lunch

All enquiries to Judy Ross 0409 445 051

Page 4: ALBURY WODONGA BREAST CANCER SUPPORT GROUP Hilltop- …awbcsg.com/newsletter/TittattlerSpring2013.pdf · Albury Wodonga Patient & Carer Accommodation Centre. hydrotherapy pool every

Robyn and Heather accepting a wonderful

donation from the Albury Croquet Club

past President Elwyn Ried of $333.

Members of the AWBCSG present Manager of Hill Top

Helen Murray with two Coffee Tables for the Quiet Room

Di Russell celebrating her 70th

Birthday at the June Meeting

Robyn presenting the $500 cheque , which

she won with her Albury City Volunteer of

2013 Award to Rachael Graham of Bendigo

Bank for the Albury Wodonga Cancer

Services Trust Fund.

Page 5: ALBURY WODONGA BREAST CANCER SUPPORT GROUP Hilltop- …awbcsg.com/newsletter/TittattlerSpring2013.pdf · Albury Wodonga Patient & Carer Accommodation Centre. hydrotherapy pool every

Maxine Reid, Robyn Daly,

Heather Knott and Barb Seers

Andy and Pauline Harbick

Albury

Wodonga

Cancer

Services

Trust Fund

Gala Dinner

Brian and Wendy Manzie Fiona and Ken Jones

Page 6: ALBURY WODONGA BREAST CANCER SUPPORT GROUP Hilltop- …awbcsg.com/newsletter/TittattlerSpring2013.pdf · Albury Wodonga Patient & Carer Accommodation Centre. hydrotherapy pool every

BRAVE HEARTS

NEWS Brave Hearts news this quarter seems to be mostly about the Inaugural Gala Dinner! What an exciting night with a great MC, great band, good company and the chance to witness some deserving people receiving their awards. A full run down next time.

Pleasure cruising has been the way to go over the winter months, with at least one boat out each Sunday, with sometimes as few as 8 paddlers! But, we never let a mere detail such as a boat less than full deter us! Bob is in charge of these sessions, with Hilly or Mike as sweep. To say that Bob is entertaining is an understatement!! Some of our newer paddlers have had a wonderful introduction to the joys of dragon boat paddling.

Those wishing to train seriously and be considered for regatta teams, training will start on Wednesday Sept 4th and these sessions will also be held on Fridays and Sundays, with paddlers expected to train on 2 out of the 3 days. Gentle paddling sessions for those who do not wish to participate in regattas, but want to keep up the paddling, will continue of a Sunday at 4pm. Also, the 4 Sundays in September will be ―come and try‖ days. So if you know of anyone who would like to find out what dragon boat paddling is all about, please tell them about it. Come one, come all!

Cheers Mel

Who does my donation help? With so many breast cancer fundraisers during a year it is often hard to know who to support as you are not always sure where the money goes. NBCF (National Breast Cancer Foundation) funding research for prevention and cure. Money raised from the Mother‘s Day Classic, Pink Ribbon Events, selling of pink ribbon products and sponsorships allows the NBCF to grant funds for many varied research projects both big and small. The article on Spider Venom to cure breast cancer, featured in our last edition has NBCF funding. A recent study was conducted to establish the impacts a breast cancer diagnosis has on male partners. The report found they were the ―silent , invisible causalities‖ and struggle with little support to change roles from partner to carer. It also found that more social supports were urgently needed to help men cope with their own feelings while they ―held it together‘ for their families, advice on maintaining intimacy in relationships, and how to interact with clinicians. Results from many of the research projects help not only breast cancer but other cancers as well. Robyn and I found the NBCF Community Conversations event held recently in Albury very informative. NBCF has been in operation since 1994 and has awarded more than $81 million to fund over 300 Australian based research projects. They are aiming for zero deaths from breast cancer by 2030.

BCNA (Breast Cancer Network Australia) funding support for women with breast cancer and advocacy work. Money is raised through the Pink Bun Campaign, Pink Lady events, donations, community fundraising and Government funding. BCNA has been able to provide free the ‗My Journey Kits‘, ‗My Care Kits‘ with a berlei bra included, Hopes and Hurdles pack, resource booklets, brochures and fact sheets, The Beacon and The Inside Story— produced quarterly, organize regional forums, create a great website which also provides online support, obtain the listing of expensive drugs on the PBS and are currently pushing to have more tests and treatments receive a Medicare rebate. BCNA also provides support and guidance to run support groups, as well as providing insurance cover when you attend a support group meeting or BCNA sanctioned event. BCNA has come a long way in 14 years. As a result of her experiences when diagnosed with breast cancer, Lyn Swinburne, became a committed advocate on behalf of women with breast cancer and their families and in 1998 founded BCNA for which we are all grateful. Maxine Moran took over as CEO in 2011 just after being diagnosed with breast can-cer. AWBCSG is looking forward to BCNA coming to Wodonga on Thursday 24th October and conducting a forum and Mini-Field of Women. Hope you can come along and experience the wonderful work of BCNA.

I hope this gives an insight into the help and support that has allowed us to be a survivor and to thrive after a breast cancer diagnosis. All donations are gratefully received by both organizations.

Border Wellness Circle is held every second Thursday 10.30– 3pm at Murray Valley Private Hospital Nordsvan Dv Wodonga

in the Boardroom.

Women who have experienced any form of cancer are welcome to come along and enjoy complimentary therapies, self care

activities as well as craft and pamper days. $2.50 covers lunch. Come along on September 12th, 26th, October 10th, 24th,

November 7th, 21st for a fun day of relaxation and friendship. For more details contact Brigitte on 0400681720 or email

[email protected]

Webinar reassures Australian women who have a

“family history of breast cancer”

Hosted by Cancer Council Victoria, guest presenter Lucinda Hossack, Clinical Genetic

Counsellor at Peter MacCallum Cancer Centre, informed participants who logged in to the

webinar that “although breast cancer was common in Australia, only 5% to 10% of cases

were linked to known genetic factors". “For most women, she said, having a family history

of breast cancer will not significantly increase their risk.” “Genetic testing is complex,

she continued, “so I urge anyone with specific questions to call the Cancer Council

Helpline on 13 11 20 or talk to their GP to discuss their individual situation". Marcia Hills

who logged onto the webinar from her home in Wangaratta, said "It was a very

informative event that helped relieve my anxiety about my genetic risk, and that of my

daughters. I now appreciate how important it is to focus on making positive lifestyle

choices to reduce my cancer risk as much as I can. Thank you for giving me this

opportunity to learn more." Cancer Council Victoria - 26 June 2013

A recording of last month‟s webinar, “breast cancer in my family” is now available online

to view, just in case you missed it!

Visit: http://www.youtube.com/watch?v=CGL9OAeG_Ss

The resources referred to on the Webinar are also available to download via this link:

http://www.cancervic.org.au/how-we-can-help/family-cancer

Due to the success of the webinar, Lucinda Hossack, is presenting another webinar on Tuesday 24

September at 7.30pm for women who are considering their options after being

diagnosed as a carrier for the BRCA 1 and/or BRCA 2 gene.

Register online at www.cancervic.org.au

Page 7: ALBURY WODONGA BREAST CANCER SUPPORT GROUP Hilltop- …awbcsg.com/newsletter/TittattlerSpring2013.pdf · Albury Wodonga Patient & Carer Accommodation Centre. hydrotherapy pool every

THOUGHTS, PRAYERS and RAINBOWS

For any suffering loss, grief, sadness, any illness, just not feeling good or awaiting

results, our thoughts, prayers and rainbows go out to you.

Braedon H & family, Vicki H, Jacky D, Kathy M, Hilly W, Denise A, Marg T, Dawn and Rick M, Rex N, and Syd H

If you know of anyone who could use a thought, prayer and a rainbow, please let us know so they can be

included in the next newsletter.

E-Health–

Helping you manage your health When you are regularly treated by different healthcare professionals, it can be challenging to keep track of all your health information. The Personally Controlled Electronic Health Record (eHealth) system will help you take control of all your health information and help your doctors to provide you with the care you need.

An eHealth record means you and healthcare organisations you authorise can quickly access information regarding your health. Other benefits include: Clear Information: a summary of your most important health information will, over time, mean your healthcare professionals have an understanding of your health status. Less stressful: better connected health records will mean you will not have to remember every medication or health-related incident, or repeat unnecessary tests. Safer: doctors and other healthcare professionals at the healthcare organisations you authorise will be able to access key information, such as details of previous adverse reactions to medications or allergies. Better self-management: you can keep your own notes in your eHealth records to better track your progress and response to treatments and medication. Share the load: if you wish, you can nominate a trusted person, like a carer or family member, to view or manage your eHealth record better. Emergency help: if there is a risk to your life or safety, or to public health or safety, health care organisations can temporarily access your eHealth record to ensure you get the best care. This is in keeping with existing privacy laws.

Information that is included in your eHealth record includes Medicare data such as details of prescriptions/medications and medical checks for which a medical benefit was claimed. Your eHealth record can also hold your wishes about organ and tissue donation, as well as details about the location and custodian of your advance care directive (if you have one).

Your doctors, nurses and other healthcare specialists will also be able to add clinical information if relevant, as part of an event summary to your eHealth record as their organisations connect and participate in the eHealth record system. This also includes the creation of a shared health summary that can be written by a healthcare professional such as your GP. A shared health summary will be an overview of your health, such as any allergies you have, details of your medications you are taking and immunisations you may have had. The eHealth record complements your medical records, it does not replace your complete medical records held by providers.

You can register for an eHealth record the following ways: Online: visit www.ehealth.gov.au Over the phone: call 1800 723 471 and select option 1 In person: visit a Medicare Office

For further information on the eHealth Record system, please contact

Misty Howard, eHealth Promotions Officer, Hume Medicare Local on 02 6041 0012.

Come along to our meeting on September 20th to hear Misty speak, ask her any questions and fill in a form to register.

An elderly lady was invited to an old friend’s home for dinner one evening. She was

impressed by the way her lady friend preceded every request to her husband with

endearing terms such as: Honey, My Love, Darling, Sweetheart, etc. The couple had been

married almost 70 years and, clearly, they were still very much in love.

While the husband was in the living room, her lady friend leaned over to her hostess to say,

'I think it's wonderful that, after all

these years, you still call your

husband all those loving names.'

The elderly lady hung her head, 'I

have to tell you the truth,' she said,

'his name slipped my mind about 10

years ago, and I'm scared to death

to ask the cranky old asshole what

his name is.'

PINK PILATES Pink Pilates has made it to Albury. You may have read the article in our Summer edition– now you can try it for yourself. Leanne was guest speaker at our June meeting. This is what Leanne Hodge offers.

Pilates is a unique program of exercises that promotes good posture, flexibility and strength. An ideal form of gentle exercise for rehabilitation from injury, surgery and illness. The exercise program promotes effective breathing techniques to promote the feeling of relaxation, releasing muscle tension, enhances normal movement patterns, re-awakens the core muscles, strengthens the postural muscles and stimulates our energy levels, reducing fatigue. The “Pink Pilates” program is conducted by an experienced Physiotherapist/Pilates Instructor, specially trained to provide rehabilitation for people who have been diagnosed with cancer. “Pink Pilates” is normally a 10 session, one on one program, designed for women currently undergoing treatment & on the road to recovery from cancer. The sessions aim to slowly introduce exercise and movement back into the body to minimise the effects of surgery and the associated medical interventions. Group Pilates classes are available after the initial program and also for women years down the track. It is never too late. There is a wealth of evidence to support “exercise therapy” to improve physical and psychological health for people diagnosed with cancer and in reducing the risk of the cancer returning. The “Pink Pilates” programs can start as early as 2 to 4

weeks post-surgery, depending on the surgeon, or once the adjuvant treatments have commenced. The programs are a combination of manual physiotherapy, scar management, massage, breathing and relaxation techniques and Clinical Pilates to improve strength, posture and energy levels.

Phone Leanne Hodge on 0417616957 or Email: [email protected] Leanne is advertising on our website– check out the link at http://awbcsg.com Private Health rebates available or ask your GP for a Chronic Disease Management Plan and have 5 visits rebated by Medicare.

Page 8: ALBURY WODONGA BREAST CANCER SUPPORT GROUP Hilltop- …awbcsg.com/newsletter/TittattlerSpring2013.pdf · Albury Wodonga Patient & Carer Accommodation Centre. hydrotherapy pool every

Jacky, Jill, and Anne-Maree pictured here with Robyn, Heather and Kathy Murray had all

received Care Bags from our McGrath Breast Care Nurses and wanted to thank the group

for their thoughtfulness.

Please advise if your mailing details are incorrect or if you do not wish to receive this newsletter. The newsletter can be emailed to you or you can access it from our website.

Have you visited our website lately? You can check out the calendar for details of our next meeting, and in the section– all the latest news you can subscribe to the newsletter and organise to be

notified when the website has been updated . Log in at http://awbcsg.com

The aim of the Albury-Wodonga Breast Cancer Support Group is to provide a confidential and caring meeting place where a group of women who have or who have had breast cancer can share knowledge, information and experiences. We can give and receive comfort, friendship and be a source of hope and acceptance to other women on their journey.

If undelivered

Please return to:

A– W BCSG

286 Ashman Ave

East Albury 2640

WISE WORDS Happiness is a butterfly which, when pursued, is always beyond our grasp,

but which if you sit down quietly, may alight upon you.