Adult Congenital Heart Disease in the 21st Century

April 13 14, 2018 College Park Marriott Hotel & Conference Center | Hyattsville, MD

Course Director:

Anitha S. John, MD, PhDChildrens National Health System MedStar Washington Hospital Center MedStar Heart & Vascular Institute Washington, DC

Course Co-Director:

Melissa H. Fries, MDMedStar Washington Hospital Center Washington, DC

Faculty

Charles I. Berul, MDChief, Division of Cardiology Co-Director, Childrens National Heart Institute Childrens National Health System Washington, DC

Kristin M. Burns, MDMedical OfficerNational Heart, Lung, and Blood InstituteBethesda, MDPediatric CardiologistChildrens National Health SystemWashington, DC

Kathleen H. Byrne, MSN, CRNPNurse PractitionerThe Johns Hopkins HospitalBaltimore, MD

Dawn M. Calderon, DOChief, CardiologyJersey Shore University Medical CenterJersey Shore, NJ

Scott Cohen, MDAttending Physician, Wisconsin Adult Congenital Heart Disease ProgramMedical College of WisconsinMilwaukee, WI

Stephen C. Cook, MDDirector, Adult Congenital Heart CenterCongenital Heart CenterSpectrum Health Helen DeVos Childrens HospitalGrand Rapids, MI

Jane E. Crosson, MD Director, Pediatric ElectrophysiologyDirector, Adult Congenital Heart DiseaseThe Johns Hopkins HospitalBaltimore, MD

Yoav Dori, MD, PhDDirector, Pediatric Lymphatic Imaging and Interventions and Lymphatic ResearchDivision of CardiologyChildrens Hospital of PhiladelphiaPhiladelphia, PA

Tacy Downing, MD Interventional and Adult Congenital Cardiologist Washington Adult Congenital Heart Program Childrens National Health System Washington, DC

Alexander R. Ellis, MDPediatric and Adult Congenital Cardiologist Childrens Hospital of the Kings Daughters Norfolk, VA

Stacy D. Fisher, MDDirector, Womens and Complex Heart DiseasesUniversity of Maryland School of MedicineBaltimore, MD

Vicki Freedenberg, PhDElectrophysiology Nurse Scientist Childrens National Health SystemWashington, DC

Danielle M. HileDirector of ProgramsAdult Congenital Heart AssociationPhiladelphia, PA

Seiji Ito, MDPediatric CardiologistWashington Adult Congenital Heart ProgramChildrens National Health SystemWashington, DC

Maan Jokhadar, MDProgram Director, Adult Congenital Heart Disease FellowshipEmory Adult Congenital Heart CenterEmory Center for Advanced Heart Failure TherapyAtlanta, GA

FACULTYCourse Director

Anitha S. John, MD, PhD Director, Washington Adult Congenital Heart Program Childrens National Health System MedStar Washington Hospital Center MedStar Heart & Vascular Institute Associate Professor, Pediatrics George Washington University Washington, DC

Course Co-Director

Melissa H. Fries, MD Chair, Department of Obstetrics/Gynecology Director, Genetics and Fetal Medicine MedStar Washington Hospital Center Professor, Obstetrics and Gynecology Georgetown University School of Medicine Washington, DC

Yuli Y. Kim, MDDirector, Philadelphia Adult Congenital Heart Disease CenterPenn Medicine Heart and Vascular CenterChildrens Hospital of PhiladelphiaPhiladelphia, PA

Nancy H. Klein, BSN, RNClinical Program CoordinatorWashington Adult Congenital Heart ProgramChildrens National Health SystemWashington, DC

Scott C. LeezerVice President, Government RelationsCURA StrategiesArlington, VA

Jodi LemacksNational Program DirectorMended Little HeartsWashington, DC

Alejandro J. Lopez-Magallon, MDPhysician, Cardiac Critical Care Medicine Division of TelemedicineChildrens National Health SystemWashington, DC

Christian D. Nagy, MDDirector, Adult Congenital and Structural Interventional CardiologyGeorge Washington University HospitalDC Veteran Affairs Medical Center Washington, DC

Laura Olivieri, MDDirector, 3D Cardiac Printing ProgramDivision of CardiologyChildrens National Health SystemWashington, DC

Ruth PhillippiProgram Coordinator Washington Adult Congenital Heart ProgramChildrens National Health SystemWashington, DC

Diego Porras, MDChief, Division of Invasive Cadiology Boston Childrens Hospital Boston, MA

Richard E. Ringel, MDDirector, Pediatric and Congenital Heart Catheterization The Johns Hopkins University Catheterization HospitalBaltimore, MD

Mark D. Rodefeld, MDCongenital Heart SurgeonRiley Childrens HospitalIndianapolis, IN

Mark RoederPresident and CEOAmerican Congenital Heart AssociationPhiladelphia, PA

Emily S. Ruckdeschel, MDAttending Physician, Philadelphia Adult Congenital Heart Disease CenterPenn Medicine Heart and Vascular CenterChildrens Hospital of PhiladelphiaPhiladelphia, PA

George Ruiz, MDChief, Cardiology MedStar Union Memorial HospitalMedStar Good Samaritan HospitalBaltimore, MD

Jacqueline H. Sanz, PhD, ABPP-CNClinical NeuropsychologistCo-Director, Cardiac Neurodevelopmental Outcome ProgramChildrens National Health SystemWashington, DC

Pranava Sinha, MDAttending Pediatric Cardiac SurgeonChildrens National Health System Washington, DC

Emily Stein, LSWClinical Social Worker, CardiologyChildrens National Health SystemWashington, DC

Rachel Steury, MSN, FNP-CNurse Practitioner, CardiologyChildrens National Health SystemWashington, DC

Christopher J. Talluto, MDDirector, Adult Congenital ClinicChild Cardiology Associates Fairfax, VA

Catherine R. Weinberg, MDAttending Physician, Adult Congenital Heart Disease ProgramNYU Langone HealthNew York, NY

Gil Wernovsky, MDAttending Physician, Division of Cardiology Childrens National Health SystemWashington, DC

Ali N. Zaidi, MDDirector, Montefiore Adult Congenital Heart Disease ProgramDirector, Montefiore Einstein Pulmonary Hypertension ProgramMontefiore Einstein Center for Heart & Vascular CareThe Childrens Hospital at MontefioreBronx, NY

FRIDAY, APRIL 13: PROVIDER ONLY

AGENDA

12:00 PM Lunch and Visit the Exhibits

7:15 AM Registration and Continental Breakfast

7:45 AM Welcome and Introduction

SESSION 1 ACHD Overview: Insights from a Family Perspective Moderator:AnithaS.John,MD,PhD

8:00 AM Challenges in Medical Decision Making as an Emerging ACHD Patient PatientPerspective

8:20 AM Questions and Discussion

SESSION 2 Coarctation of the Aorta Moderator:PranavaSinha,MD

8:30 AM Diagnosis, Imaging, Long-term Outcomes StephenC.Cook,MD

8:55 AM Catheter versus Surgical Therapies DiegoPorras,MD

9:20 AM Pregnancy and Left-sided Obstructive Lesions SeijiIto,MD

9:45 AM Panel Discussion

10:00 AM Break and Visit the Exhibits

SESSION 3 BREAKOUT SESSIONS | 10:30 AM - 12:00 PM

BREAKOUT A: Cardiac Catheterization and ACHDModerator:TacyDowning,MD

10:30 AM Transcatheter Pulmonary

Valve Replacements: Current Options and New Horizons

RichardE.Ringel,MD

10:50 AMAtrial Septal Defects and Pulmonary Hypertension:

When Should We Close the Defect?AliN.Zaidi,MD

11:10 AM Transcatheter Tricuspid Valve

Replacements in ACHD: What are the Options?

TBA

11:30 AMACHD and Left-Sided Therapies:

MitraClip and Transcatheter Aortic Valve ReplacementChristianD.Nagy,MD

11:50 AM Questions and Discussion

BREAKOUT B: Pregnancy and ACHD

Moderator:ChristopherJ.Talluto,MD

10:30 AMRisk Stratification in ACHD Patients

YuliY.Kim,MD

10:50 AMHow to Set Up a Pregnancy Program: Key

Elements for SuccessAnithaS.John,MD,PhD

11:10 AMAnesthesia and Delivery Considerations:

A Case-based ApproachMelissaH.Fries,MD

11:30 AMInfertility in ACHD: CardiacClearance in Assisted Reproductive Technology

CatherineR.Weinberg,MD

11:50 AM Questions and Discussion

BREAKOUT C: Psychological Health and Stress

Management for Patients and ProvidersModerator:RachelSteury,

MSN,FNP-C

10:30 AMMood Disorders in ACHD Patients:

Risk Factors and Implications for Outcomes

EmilyS.Ruckdeschel,MD

10:50 AMAdvanced Care Planning:

Practical Strategies for Patient DiscussionNancyH.Klein,BSN,RN

11:10 AMHypnotherapy and its Role in Stress

Management for the Patient, Family and Provider EmilyStein,LSW

11:30 AMMindfulness Based Stress Reduction:

Utility for Health Care Providers and Patients

VickiFreedenberg,PhD

11:50 AMQuestions and Discussion

SESSION 2 BREAKOUT SESSIONS | 9:00 AM - 10:15 AM

BREAKOUT A: (Patient/Family)

Skills Session Workshop: What to Do When You are

Away from Home?Facilitators:KathyH.Byrne,RN,CRNP;NancyKlein,BSN,RN;RuthPhillippi;Emily

Stein,LSW

Workshop Topics:

Identifying Symptoms: When Do I Seek Medical Care?

How Do I Get My Medical Records?

How Do I Find a Doctor/Medical Center/Surgeon?

How Do I Handle Emergency Room Visits?

Insurance: How Do I Figure Out What Is Covered?

BREAKOUT B: (Provider)

Other Medical Issues Associated with CHD

Moderator:ChristopherJ.Talluto,MD

9:00 AMPulmonary

ScottCohen,MD

9:20 AMLiver

AnithaS.John,MD,PhD

9:40 AMKidney

YuliY.Kim,MD

10:00 AMQuestions and Discussion

BREAKOUT C: (Provider, Patient/Family)

Pacemaker/ICD 101 Moderator:ScottC.Leezer

9:00 AMMRI in Patients with Pacemakers: What are the Recommendations?

YoavDori,MD,PhD

9:15 AMPacemaker Pearls of Wisdom: Remote

Monitoring, Activity, Travel, etc. JaneE.Crosson,MD

9:30 AMPractical Pearls and Tips for Dealing with Stress/WorryVickiFreedenberg,PhD

9:45 AM How to Find a Center to

Perform your EP ProcedureJeffIshida;RachelSteury,MSN,FNP-C

10:00 AM Questions and Discussion

SATURDAY, APRIL 14: FAMILY/PATIENT/PROVIDER

10:15 AM Break and Visit the