Action for Carers and Employment (ACE National): An Evaluation

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Action for Carers and Employment (ACE National): An Evaluation Final Report July 2005 Eleanor Formby and Sue Yeandle CENTRE FOR SOCIAL INCLUSION (CSI) Sheffield Hallam University Howard Street Sheffield S1 1WB Tel: 0114 225 5786 action for carers and employment ACE National led by CARERS UK

Transcript of Action for Carers and Employment (ACE National): An Evaluation

Page 1: Action for Carers and Employment (ACE National): An Evaluation

Action for Carers and Employment(ACE National): An Evaluation

Final Report July 2005

Eleanor Formby and Sue Yeandle

CENTRE FOR SOCIAL INCLUSION (CSI)Sheffield Hallam UniversityHoward StreetSheffield S1 1WBTel: 0114 225 5786

action for carers and employment ACE National

led by CARERS UK

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CONTENTS

Executive Summary 3

PART ONEAchievements of the ACE project 2002-5

1. Introduction 6

2. Shaping the national policy agenda 8

3. Working in partnership 11

4. Empowering individual carers 15

5. ‘Learning for Living’ - the City and Guilds e-learning programme 21

6. Working with local employers 23

7. Sharing ideas and experiences 25

8. The ACE partnership with F&MPower 29

PART TWOLearning from experience; exploring issues and opportunities

9. Issues and opportunities 32

10. Recommendations 37

– Recommendations and suggestions for carers' organisations

– Recommendations and suggestions for employers

– Recommendations and suggestions for policymakers, Government, and statutory agencies

Appendices

11. Evaluation methodology 39

12. Carers' participation in ACE activities: summary data 41

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This executive summary relates to the evaluation ofthe Carers UK led Action for Carers and Employment(ACE National) project, completed by the Centre forSocial Inclusion in June 2005. ACE National wasfunded by the European Social Fund's EQUALCommunity Initiative Programme and ran May 2002-May 2005. It sought to address the barriers faced bycarers and former carers in entering, re-entering, orremaining in the labour market, through establishinga national partnership to influence the developmentof services and policy at local and national level.

The successful ACE partnership included: nationalpolicy partners; a national employers' group; fourlocal pilot projects in England (Ealing, Kirklees,Sunderland and Surrey); a City and Guilds e-learningpre-vocational training course designed specifically forcarers; and a transnational partnership withF&MPower in Vorarlberg, Austria (working withparents returning to the labour market).

How effective was the ACE Nationallocal training and support for carers? Local ACE delivery successfully empowered carersthrough: facilitating increased confidence; access toappropriate training; and high levels of individualsupport, guidance and information. This was doneacross four sites. Kirklees Carers Gateway includedACE clubs (group personal development courses),individual support, a residential break, a five-weekintroductory IT course, and a Carers TrainingPlacement Scheme based within Kirklees MetropolitanCouncil. Surrey Action for Carers and Employmentalso offered ACE clubs, one-to-one support, carerawareness training for local Jobcentre Plus staff andemployers, and specialist workshops on volunteering,learning / training opportunities, and job skills. EalingContact a Family ran ACE clubs and IT courses as wellas offering individual support and guidance. A groupof carers who were active in the project establishedthe ACE Training Network for continued support andinformation relating to training, work, leisure andchildcare. Sunderland Carers Centre and People intoEmployment supported carers with job-search and

personal development skills to prepare them for theworkplace; offered individual advice and support; andran personal development courses. They alsospecialised in working with local employers on aCarers in Employment Charter accreditation scheme,and delivered carer awareness training to localJobcentre Plus front-line staff.

The most important factors in the success of theselocal projects appear to have been the levels of localresponsiveness and the links with local carer supportagencies. ACE staff stressed that the informality of theproject and the high level of flexible, one-to-onesupport on offer to beneficiaries had been particularlyempowering for participant carers, with projectworkers mentioning carers' growth in confidence andself-esteem as the most visible impact of projectparticipation. Carers' views on ACE provision wereequally positive with the constructive benefits mostoften mentioned being the value of one-to-onesupport and enabling them to mix with other carers,thereby sharing problems and making new friends.Limited assessment of the distance travelledmonitoring tool data showed broadly positive results.

ACE National, with City and Guilds, also successfullydeveloped an introductory e-learning course for carers,called Learning for Living, which was uniquelydesigned with carers' particular needs in mind.Delivering the course via the Internet allowed carers toparticipate in their own home, or in social / groupsituations in connection with local pilot areas. Thecourse was endorsed with National QualificationsFramework approval in 2004, enabling thequalification to become a Level 2 personaldevelopment award entitled the 'Certificate in PersonalDevelopment and Learning for Unpaid Carers'.

How effective was ACE National’simpact on flexible employmentpractices / work-life balance policiesand alternative care provision?The national Employers for Carers group was veryactive, producing a dedicated website offering advice

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Executive Summary

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to both carers and employers on good practice work-life balance policies and flexible employmentprocedures, including a Benchmark Assessment Tooland a good practice case study brochure and videofor employers.

There are also good prospects for long-term benefitsfrom the limited local ACE work with employers whichcould be developed with the time and resourcesavailable. As all the local projects are continuing theirwork with employers, drawing on different fundingsources, it is likely that there will be continuingpositive outcomes in the future. Some carers still needto be supported at the local level if they are toidentify flexible and understanding employers. Todate, the ACE project has been effective mainly (witha few important exceptions) in large, nationalorganisations. It may take some time to developsuccessful work with small firms and organisationsoperating only at the local level.

How effective was the project’simpact on local and national policyregarding carers in the labour market,and what was the impact of publicityand awareness raising achieved by theproject?ACE National achieved impact and engagement withpolicy-makers well in excess of its originalexpectations, in particular through supporting anddrafting the Private Members' Bill which subsequentlybecame the Carers (Equal Opportunities) Act 2004,thereby helping heighten public and media awarenessof carers’ needs.

Communication mechanisms within the ACE projectwere strong, including regular local partnershipmeetings and national steering group meetings;annual partnership forums; and a variety of successfulnetworking and publicity events, including innovativework with an interactive theatre company. This helpedraise awareness among local practitioners and localand national policy-makers.

A wide variety of publicity and training materials werealso developed by ACE at the national level. Theseincluded: a dedicated website, a Carers Rights Guide,an awareness raising DVD, regular newsletters, aninformation booklet for carers on learningopportunities, a European Glossary of Social CareTerms brochure, and specific training resources for

working carers, union representatives, and managers.These have helped effectively disseminate keymessages about carers in employment to carers,practitioners, service delivery planners, andemployers.

How effective was the contributionmade by the TransnationalPartnership?This was an effective element of ACE provision.Regular transnational meetings between the Englishand Austrian projects included both formalopportunities for projects to present their activities,and informal opportunities for networking andexchange of ideas. Evaluation of the transnationalwork confirmed that most participants felt verypositive about this part of the project, and thoughtthat they had gained new ideas about ways ofworking with the client group as a result.

What is the potential formainstreaming ACE National’s work?There is great potential for developing and replicatingsome of the ACE work in mainstream services, both atthe local and the national level. While ACE projectsand/or general carer support delivered by specialistagencies help carers to overcome their individualbarriers, systems and/or labour market barriers maystill remain, such as inflexible or poor-quality localalternative care provision; the benefits trap; andlocalised labour market issues relating to jobopportunities, transport arrangements and culturalexpectations about caring. These are factors thatCarers UK and other providers need to bear in mindin future service-delivery planning. In particular, thethree remaining issues in this field which Carers UKcould now address are:

• influencing the improvement of local alternativecare provision;

• campaigning for the right to request flexibleworking, and

• tackling the difficulty carers find in bridging thegap between benefits and paid work.

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PART ONE

Achievements of the ACE project

2002-5

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The Action for Carers and Employment (ACE National)project, led by Carers UK, was funded by theEuropean Social Fund's EQUAL Community InitiativeProgramme. Comprising a planning stage (Action 1),a project delivery stage (Action 2) and a disseminationand mainstreaming stage (Action 3), the project ranfrom May 2002 to May 2005. This report exploresACE National’s scope, impact and achievements, andnotes lessons learned through the innovative activitiesand approach undertaken. The report was preparedby the authors as part of the independent evaluationof ACE National commissioned from the Centre forSocial Inclusion at Sheffield Hallam University.

Aims and Objectives of ACE NationalThe ACE National project sought to address the barriersfaced by carers1 in entering, re-entering, or remainingin the labour market. The long-term goal of the projectwas to mainstream the support offered to carers.

Within this, ACE National’s specific aims andobjectives were:

• the development of a pre-vocational trainingprogramme and accreditation framework, inpartnership with City and Guilds2;

• the promotion of flexible employment policies andpractices, through work with employers;

• the development of more effective local carerindividual support and guidance, including workwith employment services;

• the improvement of local alternative care servicesfor the dependants of carers;

• the delivery of carer awareness training to supportthe development of good practice;

• the development of a national partnership ofcarers, unions, employers and voluntaryorganisations to influence the development ofservices and policy at local and national level.

Prior work, by Carers UK and others, had identifiedmany of the barriers faced by individuals wishing tocombine caring and employment. These included:

loss of confidence and/or work skills; limited access totraining; the invisibility of carers in relation tomainstream employment services; the problem offinding flexible, understanding employers; difficultiesin bridging the gap between benefits and paid work;and inflexible and inadequate alternative careprovision.

Carers UK and their partners3 hoped that the ACENational project would achieve the followingoutcomes for carers: increased ‘soft’ skills (includingwork, personal and practical skills); increasedparticipation in Jobcentre Plus/New Deal options;increased participation in the labour market generally;and increased retention of working carers byemployers. Desired policy-related outcomes included:the inclusion of carers in campaigns promoting work-life balance; the dissemination of the accreditationframework specifically designed for carers; thedevelopment of carer awareness training materials fordissemination through Jobcentre Plus, trade unions,and local authorities; a good practice guide foremployers; an employers' charter; a tool kit for settingup local mentoring schemes; and an informationbooklet on carers and employment for health workers.ACE National also hoped to achieve increasedawareness of the need for appropriate, good quality(and affordable) alternative care to enable carers toengage/re-engage with the labour market and/oravailable training.

The ACE Development Partnership initially comprisedthe following, discussed in further detail later in thisreport:

• National policy partners responsible for influencingthe development of policy areas, including theEqual Opportunities Commission (EOC); two tradeunions; central Government departments includingthe Department for Work and Pensions (DWP) andthe Department of Trade and Industry (DTI); Cityand Guilds; Contact a Family, and Crossroads-Caring for Carers.

• A national employers' group was establishedthrough the ACE National policy partnership,

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1. Introduction

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responsible for promoting work-life balance issuesand raising the profile of carers in the workplace.This group included BT, HSBC, Centrica, theDepartment for Constitutional Affairs, the BBC, theMetropolitan Police, Business in the Community,the Confederation of British Industry, theDepartment of Trade and Industry, Jobcentre Plus,Nestor Healthcare, the NHS, Listawood andPricewaterhouseCoopers.

• Six local pilot projects responsible for local deliveryof ACE in Anglesey, Carmarthenshire, Ealing,Kirklees, Sunderland and Surrey.

• Two national pilot programmes responsible forproject delivery across the six local pilotprogrammes: Parents at Work offering a 'Wavingnot Drowning' mentoring scheme, and City andGuilds developing an e-learning pre-vocationaltraining course especially designed for carers.

• A Transnational Partnership with F&MPower,working in Vorarlberg, Austria, on activities tosupport parents returning to the labour market.

• An implementation and delivery partner, theEuropean Institute for Social Services, University ofKent, responsible for financial monitoring andarrangements for the transnational activities.

The Evaluation of ACE National The evaluation of ACE National explored the project’sachievement of specific project-related aims, and itspursuit of broader objectives in relation to the EQUALprogramme. As regards ACE National, it explored:

• the effectiveness of the ACE National local trainingand support for carers, and its carer awarenesstraining

• ACE National’s impact on flexible employmentpractices / work-life balance policies and alternativecare provision

• the project’s impact on local and national policyregarding carers in the labour market

• the contribution made by the TransnationalPartnership

In relation to the objectives of the EQUALProgramme, it assessed:

• the extent to which ACE National’s work has beeninnovative

• the potential for, and success of, mainstreamingACE National’s work

• the impact of publicity and awareness raisingachieved by the project

1 Where ‘carers’ are mentioned in this report, the termincludes both carers and former carers.

2 City and Guilds is the leading provider of vocationalqualifications in the UK.

3 Carers UK was the lead partner in the ‘DevelopmentPartnership’ established for ACE National (see later in thereport for details).

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ACE National set itself a large and demanding agendain relation to its impact on national policy. It aimed:

• to influence the development of services inemployment and welfare policy (Jobcentre Plus andthe New Deal); and in policy on carers and thosewith related responsibilities (National Strategy forCarers, National Care Standards Commission,National Childcare Strategy)

• to raise overall awareness with policy makers andservice providers of carers as a discrete groupfacing disadvantage and discrimination, with thelong term objective of including them in theirmainstream support services

• to influence the development of provision in thecare sector by highlighting the alternative careneeds of working carers and raising the profile ofworking carers (through influencing theGovernment's Work-Life Balance campaign,working to develop carer-friendly working policiesand practices, and disseminating good practicethrough employers' organisations and unions).

ACE activities at national level designed to support theachievement of these aims included:

• its prevocational training for carers developed withCity and Guilds

• working with Jobcentre Plus at the national level toencourage it to focus attention on reaching carersand offering them appropriate services

• developing an employers’ guide to support thedevelopment of carer-friendly employment,working through the Employers for Carers Groupdrawn together by ACE National

• contributing to debates about issues of access toand delivery of appropriate services for carers, indialogue with the Department of Health and otheragencies

This area of ACE National's work achieved impact andengagement with the policy-makers well in excess ofits original expectations. This arose in part throughthe good fortune which (via Hywel Francis MP's

success in the Private Members' Ballot in the House ofCommons) enabled Carers UK and its partners tosupport the drafting and development of theParliamentary Bill which subsequently became theCarers (Equal Opportunities) Act 2004. This was oneamong many significant policy impacts. By seizing theopportunity to contribute to the Prime Minister's BigConversation about policy issues, ACE National playedits part in encouraging the Government to make acommitment to extend the review of the statutory'right to request flexible working' to other carers inaddition to those who have a disabled child. Itbrought together a powerful and influentialpartnership of major and progressive employerscommitted to developing employment policiessuitable for supporting carers, determined to lead byexample, and to give voice to their perspectiveemphasising the business gain to be achieved byproviding good working arrangements for workingcarers. The national partners also grasped a numberof opportunities to engage with other relevantagendas and debates, including becoming activelyinvolved in the Equal Opportunities Commission'sParents And Carers Coalition activities.

In face-to-face interviews with the evaluators, ACEstaff had no difficulty in identifying the nationalimpact of the ACE project. An impressive range ofevidence cited included the establishment of theactive Employers for Carers group; increased centralgovernment interest in carers' work-life balance andequality issues, and the introduction of the Carers(Equal Opportunities) Act 2004. Some ACE staff feltthat this development, in particular, had beeninfluenced by ACE National making a high profile andeffective contribution at what was a ‘right time’ forcarers’ issues to be on the national governmentagenda.

"it's a great vehicle for the whole carers'movement"

"..the most successful part of the project has beento get major national organisations on board"

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2. Shaping the national policyagenda

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Success in this area was more impressive than hadbeen anticipated and set an important context for theACE National work relating to beneficiary outcomes.Beneficiary numbers across all sites were lower thanoriginally estimated, reflecting the time needed tobuild local partnerships and to recruit carers onto theproject.

By establishing a strong national partnership ofemployers, government agencies and employmentorganisations, ACE has been particularly effective ininfluencing the national development of services andin shaping public policy regarding carers' issues.These national policy developments, and perhapseven more importantly, a heightened publicawareness of carers’ needs, have been some of themost successful features of ACE, with carers, andCarers UK, now firmly on the political map.

A retrospective survey of the ACE National Partners,which asked them to reflect on what had beenachieved, was strongly positive. However, there weresome differences between respondents’ perspectives,with most partners saying they “knew a lot about”policy level work but only “a little about” the ACEclubs and individual carer support offered at locallevel. The impact of ACE for individuals activelyinvolved in the partnership was often an increasedawareness of carers’ issues. Most national partners

mentioned the impact of ACE on the development ofcarer friendly policies in workplaces, through the workundertaken by the Employers for Carers group. Thepractical and informational support of the ACENational Partnership by Carers UK was praised, withparticular mention of the strong contribution madeby individual members of staff. Suggestions forimprovements included: more educational partners;less paperwork; more involved trade unions; andclarity of expectations and operational mechanismsfor national partners. The majority of participantsstressed that the key future development for carerswhich they hoped to see was improved alternativecare services.

The national partnership produced the ‘Employers forCarers’ group, which has launched its own campaignwebsite, promoting the business benefits ofsupporting carers in the workplace, and aiming to“influence employment policy and practice to createa culture which will support carers in and into work”(www.employersforcarers.org.uk, 2004). Recentevents hosted by this group included a ‘Face Up ToCarers’ breakfast event in November 2004 topromote the launch of a series of good practice casestudies of employers with working carers.

The evaluation questionnaire sent to Employers forCarers (EfC) members revealed that most members of

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A triumphant DrHywel Francis, MPfor Aberavon(centre) whosponsored theCarers (EqualOpportunities) Act,joined by the othertwo politicians whobrought inlegislation for carers– Lord Pendry (left)and Malcolm WicksMP (right).

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this group knew more about the EfC group itself andthe work of ACE National staff than they did about'Learning for Living', local ACE delivery or individualcarer support. Aspects of EfC work that wereconsidered particularly effective included thedevelopment of the website and the benchmarkingtool. Many respondents felt that there were noweaknesses or limitations within the ACE partnership /project as a whole. Within the EfC group, membersdrew attention to some over-reliance on theinvolvement of a 'core' group within the employermembers, with difficulty in engaging others outside ofthis 'core'. Possible improvements suggested includedestablishing a clearer remit for organisations involvedin EfC, the inclusion of more SMEs (Small andMedium-sized Enterprises), and the extension /continuation of the group beyond the lifetime of theACE project. Proposals that this group felt would helpcarers in employment included an extension of thestatutory right to request flexible working, and thedevelopment, by central government, of a NationalCare Strategy to mirror the National ChildcareStrategy. Individuals were extremely positive abouttheir involvement in the group:

"One of the best and most successful groupswith real output that I have been part of in myrole."

"This has been an excellent group and hasprovided a unique opportunity for like mindedorganisations to meet and share best practice."

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Imelda Redmond, Chief Executive of Carers UK;Caroline Waters, Director of Policy and People atBT; and Dr Stephen Ladyman, then ParliamentaryUnder-Secretary of State for Community, DoH atthe launch of ‘Employers for Carers’.

Carers outside number 10 Downing Street, before a‘Big Conversation’ with the Prime Minister.

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The ACE National project contained a commitment toworking in partnership, both at the national level(previously discussed) and at local level. This sectionfocuses on the local pilot ACE sites, and the activitiesbased within these. The approaches taken by each ofthe organisations aiming to provide direct carersupport as part of ACE National, either locally oracross the local sites, have been summarised below.

Kirklees Carers GatewayThe ACE programme in Kirklees built upon an existingproject established via ESF Objective 3 funding andundertaken through Carers Gateway (the KirkleesMetropolitan Council carers' centre). Here ACE wasoperationalised by a Team Manager based withinCarers Gateway, a part-time Carers Support Officer, afull-time Project Co-ordinator, and a part-time ProjectAdministrator. Provision included: ACE clubs; piloting'Learning for Living' (in groups and via distancelearning); individual carer support; a three-dayresidential break at Northern College; and a five-weekintroductory IT course. Continuation funding for theproject from Jobcentre Plus (commencing October2004 under the guise of 'ACE Plus') will allow the staffto provide a 26-week training programme for carersinvolving ACE club modules, job-search skills, andwork-experience placements.

Kirklees also developed a Carers Training PlacementScheme, funded through the NeighbourhoodRenewal Fund, which provided placements for atrainee in the equipment shop, a carer support officer,a receptionist with the Citizen's Advice Bureau, atrainee IT technician and two trainee clerical officerswithin Carers Gateway. The Carers Support Officerwas subsequently appointed as Employer LiaisonOfficer for the ACE Project, who will be responsiblefor taking forward the dedicated work with employersin Kirklees (see Working with local employers).

Surrey Action for Carers andEmploymentThis was the longest running project (c1998), havingstarted life as an ESF INTEGRA funded project, similarto Kirklees. In Surrey, ACE was split across two sites inGuildford and Reigate, with no actual carers centre.This project had the largest number of staff, with afull-time Project Co-ordinator, three Project Workers(two full-time equivalents), and a part-time ProjectAdministrator.

The project offered ACE clubs (in various locationsacross Surrey): one-to-one support for carers; the Cityand Guilds 'Learning for Living' pilot; carer awarenesstraining for local Jobcentre Plus staff, and foremployers; and specialist workshops coveringvolunteering, learning / training opportunities, and jobskills. Towards the end of the project, Surrey ACEexperienced some difficulty recruiting carers, probablyas a result of its activities prior to receiving ACEfunding. This meant that the team had already reachedmany local carers interested in and/or ready to returnto employment or training. Despite putting great effortinto concerted and targeted advertising campaigns,this resulted in the cancellation of a number of plannedACE courses in 2004/5. However, more recently, thecampaign has started to lead to new referrals.

Ealing Contact a FamilyThe Ealing ACE pilot was based within the localbranch of Contact a Family (CaF), a voluntaryorganisation providing support for parent carers. Itaimed to follow the examples of Kirklees and Surreyin providing employment-related carer support, byrunning ACE clubs and offering individual supportand guidance. One part-time worker staffed thisproject. The project ran a number of very successfulIT courses, and was the first to pilot the City andGuilds e-learning programme. A group of Ealing CaFparents who were active in the ACE project haveestablished the ‘ACE Training Network’, for continuedsupport and information relating to training, work,leisure and childcare.

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3. Working in partnership

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Sunderland Carers Centre and Peopleinto EmploymentThe ACE partnership in Sunderland comprised thevoluntary organisation ‘People into Employment’ (PIE)and the national charity The Princess Royal Trust forCarers (PRTC), through its Sunderland Carers Centre.Three members of staff were involved in theSunderland project: a Co-ordinator at the CarersCentre; and a Team Leader and Project DevelopmentOfficer at PIE. PIE supported carers with job-searchand personal development skills needs, to preparethem for the workplace. The Carers Centre offeredindividual advice and support, and personaldevelopment courses for carers.

Since 1995, Sunderland Carers Centre has specialised inworking with local employers on its Carers inEmployment Charter accreditation scheme (see Workingwith local employers). Organisations awarded thecharter have included: Littlewoods Home Shopping;City of Sunderland Council; Wearside Benefits Agency;the Child Benefit Centre; and Tyne and Wear FireBrigade. Sunderland ACE also delivered carer awarenesstraining to local Jobcentre Plus front-line staff.

Carers WalesThe Carers Wales partners planned to provide carersupport in two localities as part of the ACE project: inAnglesey in North Wales, and in Carmarthenshire inSouth Wales. Agencies working alongside CarersWales to achieve this included: local trainingproviders; voluntary agencies; local employers; theBenefits Agency and local Jobcentre Plus; Angleseyand Carmarthen County Councils; North Wales Police;and Contact a Family. However, in April 2004 CarersWales confirmed that due to the "very limited take upby carers" of ACE project provision, the post of ACEProject Officer in Wales would cease as of the 5th ofMay 2004. The focus then turned to increasing thepolicy development work in Wales.

The City and Guilds ‘Learning forLiving’ e-learning for carersThe ACE National e-learning course ‘Learning forLiving’ was designed with carers' particular needs inmind and drew on City and Guilds’ extensiveexperience of adult learning: the context for thelearning thus had to be flexibility to suit individuals'circumstances, with carers able to cover ‘bite-sizedchunks’ of learning at their own pace. Delivering

courses via the Internet also allowed carers toparticipate in their own home, or in social / groupsituations in connection with ACE clubs run in localpilot areas. The presentation of the materials washighly visual, and contained audio, instead of relyingon a large amount of reading time. Face-to-facesupport was offered via the local ACE programmes.

The successful development of this course wasendorsed via National Qualifications Frameworkapproval, granted in 2004, enabling the qualificationto become a Level 2 personal development awardentitled the 'Certificate in Personal Development andLearning for Unpaid Carers'. The website for this is:www.learning-for-living.co.uk. The final product wentlive in September 2004.

Parents at Work mentoringprogrammeAlthough this national voluntary organisation (now re-branded Working Families) was not a local ACE pilotproject, it agreed to operate a mentoring programmefor parent carers who were currently in / planning toenter the labour market across each of the ACE pilotareas. It aimed to pilot the provision across each ofthe local sites, to help carers with general support,and with CV preparation and interview skills.Unfortunately, the scheme became delayed becauseof staffing difficulties, and in July 2003 theorganisation formally confirmed that it had ceasedwork on the pilot, explaining that:

• the recruitment and logistics of training mentors,and of developing working partnershiparrangements with other organisations, had provedtoo difficult (mainly due to financial and staffingresource constraints); and that

• parents of children with disabilities were a tinygroup compared with its other key stakeholdergroups, such as lone parents, the group on whichthe mentoring model had originally been based

Inter-agency referralsIndividual carers were referred to local ACE projects inthe following ways:

• By other local agencies in the voluntary sector

• Word of mouth among carers

• Local statutory bodies / departments

• Contact with local special needs schools

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• Self-referral by the individual carer (arising frompublicity leaflets, posters, events, local media, etc.)

• The ‘host’ / attached organisation i.e. EalingContact a Family, Kirklees Carers Gateway,Sunderland Carers Centre

The variety of sources for referrals demonstrates thelocal ACE projects’ commitment to working inpartnership with other local agencies, whethervoluntary or statutory. Nevertheless, most pilot areasreported self-referral as the most important source ofcarers participating in their activities.

Impact of the partnership activitiesAlthough the evaluation was not designed tocompare the performance of individual local ACEprojects, it is clear that all projects which sustainedtheir involvement throughout succeeded in providingenhanced direct support for carers, with this supportdelivered in a variety of ways. The City and Guilds e-learning programme was also successfully designed,piloted, and began its marketing stage during thelifetime of ACE. The most important factors in thesuccess of the local projects appear to have been:

LOCAL RESPONSIVENESS

Each project was able to mould its provision, andrespond to the needs of the local community ofcarers, offering a variety of tailored support. Thisaspect of the evolution of local ACE services wasillustrated by Kirklees, which developed workplacements, and by Surrey, which developed specialistworkshops on volunteering, training, and job skills.

LINKS WITH CARER SUPPORT AGENCIES

The placement of an ACE project within a widerframework of carer support also contributed tosuccess, especially in facilitating the referral process.However, some projects experienced someinappropriate referrals, as not all carers wereemployment or training-focused. Reasons for thisprobably included both the referral process, and stylesof delivery, for example a support worker makingemployment seem more 'scary' than it needed to be.As one interviewee put it, the key to successful ACEprovision was removing the fear on the part of a carerabout entering work.

Evaluation evidence from the staff interviews showedthat a collective impact of the ACE partnership was to

boost confidence among ACE workers, with the localwork aided by national involvement, and associatedprestige. Focus groups held with ACE staff to exploretheir perspectives on ACE produced a list of coreelements of ACE provision, with a consensus on howsuccessful these were (see Table 1 overleaf).

Exchange of good practice Most local ACE staff felt that they had learned fromthe experience and approach of other ACE pilot areas.Sunderland developed a service level agreement withtheir local Jobcentre Plus, using the Kirklees approachas an example, and both Surrey and Kirkleesdeveloped their work with employers building on theexample of the Sunderland Employers’ Charter. Thosewho regularly attended partnership meetings for thelocal projects were able to exchange the mostinformation, and had most opportunities to engage inextensive good practice exchange. Those who weremore willing to trial new areas of provision probablygained most through the inter-agency dialogue.Good practice exchange could have been improvedfurther with more active engagement of some staffmembers.

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Perhaps inevitably, the structure of the ACE Nationalproject engendered something of a ‘them and us’atmosphere, with the national staff in more influentialroles than the local teams. The Carers UK nationalstaff were charged with overseeing the ESFmonitoring requirements and co-ordinating theoverall project. Some improvements in thecommunication between the national partners/staffand the local teams could have prevented somegradual separation of aims for local projects and ACEnational staff. Staff participating in one of the focusgroups concluded that building close partnershiprelationships was always a very slow process, withoperational issues relating to the logistics and processof partnership working taking time to achieve. CarersUK perhaps under-estimated how much time andeffort this would take in their initial EQUAL bid. CarersUK acknowledge that the energy and effort thisaspect requires need to be borne in mind in anyfuture work of this nature.

During the evaluation, staff at all levelswere very positive about the outcomes ofACE. Two key successful elements of ACEhighlighted through this aspect of theevaluation were the strong impact local ACEprovision had on individual carersparticipating in the project (discussed in thenext chapter), and the strong andcontinuing impact of ACE on the policyagenda.

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Table 1: Views of ACE staff on the success of different elements of ACE provision

ELEMENT OF ACE PROVISION SUCCESS LEVEL

Helping carers explore/access training opportunities High

Helping carers with work preparation High

1 to 1 support, building confidence and self-esteem High (for those reached)*

Bringing carers together High

Policy influence High

City and Guilds e-learning provision High

Monitoring and research activities High

Raising awareness among local agencies/ employers Quite high (this was more successful at the national level)

Reaching carers Quite high

Work with alternative care providers Low

*This caveat both demonstrates that project workers were aware of the smaller than planned numbers of carers engaging with theproject, and shows they believed the quality of the service provided was very good.

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As mentioned earlier, a key aspect of the ACE projectwas its work with individual carers to:

• increase their confidence;

• support them in accessing appropriate training;

• help them progress on their journey towardsemployment (the distance travelled); and

• provide individual support, guidance andinformation

Staff stressed that the following had been particularlyempowering for participant carers:

• the informality of the projects and staff

• the use of local networks' information-exchange,with benefits to carers

• the high level of flexible, one-to-one support onoffer to beneficiaries (for example, having no time-limit on the carer contact)

• offering free training to carers, especially in IT skills,which helped 'hook-in' carers to the projects, andproved empowering for some individualsfacilitating carers' socialising:

"giving them a sense of belonging.. and theyshare experiences"

• being centred on individual carer’s needs – notbeing target-driven or 'rushing' individuals, andallowing them to develop at their own speed:

“it is different.. a superior service”

• When asked to assess the impact of ACE worklocally, project workers provided a number ofinsights:

"Helping some to stay in work and supportingthose trying to re-enter and those just thinkingabout [employment]… is making a difference"

"[I think] it does move people towardsemployment for those worked with"

“The ones we get to, we do meet their needs”

"[Participants] .. may not be in employment bythe end of the project, but [they] will be furtheron… and in a better situation to be in, in thefuture”

Many project workers mentioned carers' growth inconfidence and self-esteem as the most visible impactof project participation. They felt that the ACEprojects were especially effective in:

• tackling carers’ lack of confidence (both at thesocial level and with regard to enteringemployment)

• providing carers with general advice on job seeking

• increasing awareness among employers / managersof carers’ issues

• helping carers with assertiveness and their own self-esteem

• identifying options and choices and providingcarers with course information

• highlighting carers' transferable skills, andencouraging them to think about skills they mayalready possess

• supporting carers by getting them together

“…makes a huge difference”

Carers' and former carers' views on each ACE project'sprovision were equally positive. Almost everybodyinterviewed said they were satisfied with the ACEservices they had received or been involved in, andwould recommend the project to other carers livingin the area (or had already done so).

The positive benefit most often mentioned by carerswas the value of one-to-one support from individualmembers of staff, which often involved keeping intouch with carers over a long period of time:

"They cover everything here, let you know aboutjobs, training, etc."

"It’s good to have somewhere like this to fallback on … the Jobcentre is impersonal."

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4. Empowering individual carers

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"A shoulder to cry on."

"It’s my lifeline.. [I’ve] not a bad word to sayabout anyone."

"Very helpful and understanding... [I] can'tspeak more highly of them."

“The individual support is brilliant."

The second most common advantage spoken aboutwas the ability to mix with other carers, therebysharing problems and making new friends.

"Lovely to join others on the course … meetingothers for light-hearted relief."

"Good to meet other carers, to know you're noton your own."

“Meeting people in small groups was a big stepfor me, but it was nice and friendly. Informalgroups was very good. It was daunting, buteverybody helped each other.”

“Meeting other people, having something todiscuss and someone to discuss it with. Itmakes you feel part of the human race!Something to get up and put my make-up onfor!”

Although this type of one-to-one support and mixingwith other carers were not directly tied to gainingemployment, these were crucial steps for thosestarting out on a journey towards a paid job. Onecarer had not left her house after 4.30pm for nineyears before becoming involved in the project. Forher, participating in ACE, even as a social activity, wasa valuable and challenging first step towards trainingand/or employment in the longer term, even if theimmediate discernible impact was only her greatersocial confidence. How to draw the line betweenoffering employment-specific support and recognisingthe role of non-work related support for some carersis a complex issue. ACE workers held a range ofdifferent views about how important it was to focusACE provision on those carers appearing job-ready,and those who may be further away from this goal.Some workers argued that any personal developmentcourse or activity was 'moving forward' towards work,and hence fell within the remit of ACE, even if theactual activity was not in itself employment or trainingrelated.

Other forms of carer support offered by ACE projectsincluded:

• help with applications for welfare benefits

• help in organising alternative care

• support for carers enrolling on training coursesspecific to their career goals or personal interests

Most staff felt that carers’ increased confidence couldalso be attributed to their involvement in ACE coursesor group work.

Carers themselves also commented on the holisticway in which ACE affected them as well:

“It gives me a reason to leave the house.”

"It’s more than what I expected… I would wavetheir flag and sing their praises.. they've done alot for me."

16 ACE National led by CARERS UK

Carers attending ACE clubs, offered by local projects

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"Otherwise my life is limited to my kids, myhouse. They are really helping me out.”

"You don't realise you need the support untilyou get it."

"It has given me a start; that I can dosomething in life … [it’s a] bit exciting, that Ihave capabilities."

The successful yet slow nature of the work was alsoemphasised:

"The project is about people working towardswork, rather than into work."

For future provision, carers identified three groups ofbarriers to successful outcomes for project participantswhich may remain, and may need to be recognisedand tackled:

(i) Carers' fears and feelings

• carers' fear of losing their benefit entitlement (Onecarer recounted how only a week after her motherdied she felt she was being “pushed” back into work.)

• carers fearing failure in the labour market

• carers' feelings of guilt about leaving theirresponsibilities (i.e. the cared for partner or relative:“your loyalty is split because if you work you wantto give your all, but you still need to care.”)

• carers’ own health problems

(ii) The limitations of carer support provision andalternative care provision

• the availability, and cost, of alternative care andemergency care cover (Carers often reported feelingsimply too mentally and/or physically exhausted toparticipate in any non-caring activities, such asproject involvement or employment.)

• the inflexibility of specialist transport services forcare recipients, and the implications of this forcarers’ availability for employment

• inflexible and/or poor timing of project support

• carers remaining 'hidden', and therefore hard tohelp

(iii) Labour market and training issues

• the need for flexible work opportunities, and formore awareness amongst employers and managersof carers' needs

• employers not recognising the contribution madeduring the years a former carer may have spentcaring: “Trying to get a job after is hard – theydon’t count those years of caring as anything, theyare dead years. I feel cheated.” (Obtaining a firstinterview, and securing references, were said to beparticularly hard.)

• the desire for greater understanding, and lessstigmatisation, among colleagues: “some people atwork were very resentful. They complained when Iwas late once – I was doing stuff for my Mum. Theysaid I was getting special treatment.” (Many carersreported hostile treatment from colleagues thatgreatly added to their stress and unhappiness inthe workplace.)

• inflexible and/or costly training courses which donot recognise the needs of carers

• remaining difficulties for carers in finding a jobafter ACE participation (Some carers felt thatalthough the ACE training and support boostedtheir confidence, they were later left trying to findwork and feeling increasingly demoralised.)

• periods out of the labour market de-skillingindividuals in what had previously been their fieldof expertise

• carers choosing self-employment as a viable flexibleoption for employment, but then struggling withthe stresses this could entail

Reflecting on their experiences of ACE, carers oftenstressed its impact on their own identity. Prior to ACE,many had seen themselves as merely mothers,daughters, or sons, and had not felt entitled to anysupport. The social aspect of their raised self-esteem isalso important, and the opportunity to haveconversations with other carers was high on carers’lists of the benefits of the project. An example of howACE helped improve confidence was given by onecarer who explained that, outside of ACE, mostconversations with her started with the other personasking after her mum’s health; by contrast, in ACE,she was the central focus of any conversations, whichboosted her feelings of self-worth. As one carer statedwhen asked to name the best thing about ACE:“confidence, confidence, confidence!”

Table 2 overleaf shows the results4 from the distancetravelled monitoring tool, the Individual CarerReviews (ICRs 1, 2 and 3). The first two versions of

17 ACE National led by CARERS UK

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the reviews were completed in face-to-face settingswith ACE participants by project workers, whilst thethird version was a self-completion postal survey sentout at the end of project provision (April 2005).Whilst showing some positive movement, the resultsshould be treated with some caution as they wereonly completed by a small percentage of the overallnumbers of ACE participants (87 returns in total). In

particular, some questions have lower response rates,for example around alternative care provision.Moreover, the surveys were administeredinconsistently between different project sites andnumbers of completions for ICRs 1, 2 and 3 vary withsome ACE participants completing all three whilstothers completed only one of these5.

18 ACE National led by CARERS UK

Table 2: Participant ‘distance travelled’ during ACE support

QUESTION ICR 1-2 CHANGE ICR 2-3 CHANGE ICR 1-3 CHANGE

Enjoyment of learning new things increased N/A* N/A

Importance of gaining (more) training / education no change N/A N/A

Certainty about type of training / learning wanted no change increased increased

Readiness for training / education increased no change no change

Importance of getting / having a job or volunteer work increased N/A N/A

Certainty about type of work / volunteering wanted no change no change increased

Readiness for taking on a job / volunteer work increased no change increased

Confidence about applying for job / training course increased N/A N/A

Confidence with reading and writing skills increased no change no change

Confidence about using telephones and speaking to new people no change no change no change

Confidence about using computers decreased no change no change

Motivation about taking on new training, employment or volunteer work increased no change no change

Positive feelings about future decreased no change increased

Confidence about taking up training, a job or volunteer work increased N/A N/A

Information possessed about training and/or job and voluntary opportunities increased N/A N/A

Support needs when training or in job / volunteer work increased decreased increased

Happiness with current replacement / alternative care arrangements increased N/A N/A

Level of progress affected by caring / former-caring responsibilities no change no change decreased

Happiness with own health decreased increased decreased

Stress levels decreased decreased decreased

Feelings of control over future increased decreased no change

* The N/A responses refer to questions not asked in the third, smaller postal version of the ICR, hence comparison is unavailable.

4 The analysis of these outcomes was carried out by adding together those responses which had reduced, increased or not changedtheir self-rating from the previous ICR (whether or not these had changed by one point or more). The majority result is thereforegiven in the table as the dominant outcome. Although responses varied by question, in most cases there was a very clear majorityoutcome.

5 The greatest number of respondents, and therefore the most reliable column of data are those completing ICRs 1 and 3.

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The areas showing an 'increased' response representthe impact ACE projects had on participants'enjoyment of learning; certainty about the type oftraining wanted; importance attached to getting ajob; confidence in applying for and taking up trainingor work; and information levels on training / workopportunities. In feeling more positive about theseaspects the expected level of progress affected bycaring responsibilities reduced. The consistentdecrease in stress levels may also demonstrate apositive outcome of ACE support, tying into thequalitative data on carers' appreciation of the holisticone-to-one support on offer.

Readiness for training reportedly increased betweenICR 1 and 2 with no further change in this area,meaning their readiness levels were maintained at thenew, higher level. Reading and writing skills andmotivation levels similarly increased earlier on inproject participation and remained at these levels.Certainty about the type of work wanted took longerto increase, however, as did carers’ readiness for this,though there were positive impacts in these areas.

Overall, most 'movement' was positive, with the maindifferences appearing to be whether these changesoccurred earlier or later in project participation.Feelings of control over the future were the oneinconsistent area, with both increases and decreasesduring project participation, with a final 'no change'outcome. This may reflect the instability of manycarers' individual circumstances. Similarly, readinessfor taking on a job / work varied greatly, with 13%stating that they were 'not at all' ready and 16%responding that they were 'completely' ready onjoining ACE. This highlights the variety of carers ACEworked with, at many different levels of readiness foremployment.

Despite much distance travelled for manyrespondents, there remained a proportion of 'nochange' outcomes. This may be because of theirunsuitability for ACE, or the degree of their caringresponsibility meaning it was unfeasible for them tocommit further to employment or training. However,some levels of no change appear to have beenbecause of very high levels of carers' confidence tobegin with, for instance with using telephones andspeaking to new people, 55% of carers were 'veryconfident' at the point of project registration.

Confidence in using computers appears to havedecreased for ICR respondents, though this may notbe representative of the wider group of ACEparticipants. It could also be that as carers werebeginning to use computers more through ACEtraining courses that confidence would drop before itthen rose. Similarly, support needs reported by carersincreased over the lifetime of the project. This againmay be that as carers were 'opening up' to thepossibility of training and/or employment theyrealised the further support that they might require inthis move. It may also demonstrate the sometimesslow development of carers’ confidence and self-esteem. Health levels of carers during the lifetime ofACE worsened. This may be an issue to investigatefurther in future, not in relation to ACE but as an issueaffecting carers in general. In future, distance travelledmonitoring could attempt to track whether carers hadceased project participation by the last survey to see ifcarers then 'stand still' when provision ceases or ifthey continue to develop in employment / training.

Local ACE delivery certainly empoweredcarers through facilitating: increasedconfidence; access to appropriate training;and high levels of individual support,guidance and information. Even where thisdid not lead directly to employment, itallowed carers to progress along a pathleading towards employment in the future,if they wished.

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Three short illustrative case studies are included belowwhich show the involvement of three carers in ACE, inthree different areas. The information is taken fromthe central database of ACE information and the datagathered from the completed soft monitoring tools.They show information about the carers' background,the activities undertaken, and the final outcomes.

KIRKLEES: BARBARA’S STORY6

Barbara is a former-carer in her late fifties living inKirklees who was involved with the ACE project for anine month period, having becoming a widow someyears ago. She became aware of the project via thecarers centre, and received support on twenty-fiveseparate occasions. These consisted of her projectworker having individual appointments with her,talking on the telephone, or doing research on herbehalf. She received: general work advice; applicationform support; training course access information; helpwith researching job and training opportunities;interview preparation guidance, and assistance withapplying for course funding.

During her time with the project, Barbara’s certaintyabout the type of training and employment shewanted dramatically increased, as did her readinessfor education and employment. She felt far morepositive about the future, and went from needing “alot of” support to none (in her words). On leavingACE, she had gained part-time employment as a careassistant (having been unemployed for around threeyears); 2 vocational qualifications (having had nonebefore), and had started volunteer work. At the end ofher time with the project she said “The ACE projectand all the lovely people associated with it have beenabsolutely positive and helpful towards my aims. Ihave achieved a new job. Thanks for everything.Watch this space - I'll keep in touch."

SUNDERLAND: BRIAN’S STORYBrian, a carer in his mid forties, was involved in the ACEproject in Sunderland for 14 months. During this time,he received support on average once a week, mostly byindividual appointments with a support worker, orsometimes over the telephone. The advice he receivedincluded support with filling out application forms; helpwith researching job opportunities; general workadvice; interview preparation; confidence buildingsupport, and assistance with researching and/oraccessing training opportunities.

When he registered with ACE he was unemployedand had been out of work for about two years. Overthe course of his involvement in ACE, Brian’s certaintyabout the type of training and work he wanted to doimproved, as did his readiness for training. Overall, hefelt more positive about the future and his stress levelsreduced. By the end of the project, he was verysatisfied with the support he had received from ACE,and felt that he would need less support from them inthe future. When he finished being involved in ACE,he was expected to re-enter further education ortraining within the next three months.

SURREY: PATRICIA’S STORYPatricia is a carer who had three weeks of intensivesupport from Surrey ACE during one month in thesummer of 2004, most of which took place in herown home. She was given general work advice; helpwith researching/accessing training opportunities, andcompleted an Adult Directions software package oncareers advice.

Over the course of her time with ACE, she becamemore certain about the kinds of training and work shewanted to start; felt more ready to take on training,and gained part-time employment. Her confidence inIT improved, as did her positive feelings about herfuture. Her stress levels slightly reduced, and herfeeling of control over her own future increased.Patricia felt that she would need less support fromACE in the future, and her support worker added thatshe felt she had under-estimated her abilities.

As a result of her short involvement with ACE, shegained part-time employment; started doing somevoluntary work, and was working towards an ITqualification (NVQ level 1).

6 Pseudonyms have been used in all three case studies.

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The development, via City and Guilds, of a 'pre-vocational training system' (an entry-level trainingcourse) leading to a recognised qualification (an'accredited framework') was one of the key initial aimsof ACE. This has been successfully achieved, with theLearning for Living programme's Certificate inPersonal Development & Learning for Unpaid Carersapproved as a Level 2 (GCSE level) personaldevelopment award within the National QualificationsFramework. Learning for Living comprises four units,each made up of four learning topics (see Box 1).Each unit was developed with input from carersparticipating in the local ACE projects who piloted thematerials, either through distance learning or ingroup settings.

Designed specifically for carers, with carers, the onlinelearning programme is the first learning resource andqualification of its kind. It is now available throughCity & Guilds centres nationwide, and aims to helpbuild carers' confidence and develop their computerskills, with the hope that it will subsequently helpcarers progress into further study or employment.Registering for the qualification is optional, enablingcarers to complete the course without formalassessment if they wish. The interactive technologyincludes visual and audio materials, and offers instant

feedback on progress. An e-tutor is also available forfurther support. The course continues to be availablevia distance learning or in group situations.

ACE project staff reacted to the City and Guilds e-learning programme in different ways. Project workersconsidered the material well designed, andcommented that most carers enjoyed using it,especially when delivered in group settings where itcould also offer an opportunity for social interaction.They felt it provided an opportunity for carers to hone

21 ACE National led by CARERS UK

5. ‘Learning for Living’ the City and Guilds e-learning programme

Box 1: ‘Learning for Living’ programme outline

Unit 1: Moving forward

Topic 1 - Return to Learn

Topic 2 - Tuning In

Topic 3 - Standing Firm

Topic 4 - Shaping Your Future

Unit 2: Taking care

Topic 1 - Keeping Healthy

Topic 2 - Managing Life's Ups and Downs

Topic 3 - You in the Caring Role

Topic 4 - Enjoying Life

Unit 3: Living with others

Topic 1 - Welcoming Difference

Topic 2 - Understanding Relationships

Topic 3 - Why Do We Do the Things We Do?

Topic 4 - Living with Loss

Unit 4: Managing as a carer

Topic 1 - Safety Matters

Topic 2 - Managing Money

Topic 3 - Understanding & Influencing Care Services

Topic 4 - What Next?

Each topic takes about two and a half hours to complete.About half of this time is online, reading through materials,completing activities, and e-mailing a tutor. The rest of thetime is off-line: reading, and completing some writtenactivities.

Carers enjoying a Learning for Living pilot inSunderland

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their (often newly acquired) IT skills, and helped themto think about their future. Some workers felt therewere weaknesses in the piloting process relating toorganisation, feedback, discussion, and forwardplanning. Given that this was the first ever City andGuilds e-learning pilot programme, for such issues toarise in the developmental stages is not surprising: theimplementation problems reflect the innovativenature of this work. Some ACE staff were a littledisappointed to feel distanced from the final productwhich they had been so closely involved in piloting,although this may also have been an inevitable resultof the process of developing and rolling out aninnovative programme.

As only a very small number of ACE participantsinterviewed as part of the overall evaluation had beeninvolved in Learning for Living, a summary ofparticipants’ views cannot be given. A separateevaluation of one Learning for Living pilot wasconducted by Jane Massy on behalf of ICCA and canbe found on the ICCA website atwww.iccaonline.co.uk.

Despite some inevitable teething problemsin developing this programme, a majorsuccess for ACE has been its successfulpartnership with City and Guilds to producethis product, which is now well establishedand producing an ongoing impact. It is aunique resource, designed specifically forcarers, incorporating new methods ofdelivering training and support online.

22 ACE National led by CARERS UK

More carers participating in a Learning for Living pilot in Sunderland

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ACE National placed considerable emphasis on its aimof promoting flexible employment practices, anddeveloped a range of direct work with employers,including awareness raising activities and training.The approach adopted involved developing bothlocally based interventions and national activities andlobbying. At the national level, the Employers forCarers group was very active, producing a dedicatedwebsite offering advice to both carers and employers.This featured a Benchmark Assessment Tool to helpemployers look at the support they offer for carers,and ways to improve it; a Face up to Carers goodpractice case study brochure and video to raiseawareness; and further information for employers andworking carers. Most of the local ACE projects begantheir direct work with employers only towards theend of the project’s lifespan, although SunderlandCarers Centre was able to build on its previous workwith local employers, and maintained this focusthroughout ACE, providing an example of how todevelop this type of work for other projects.

Sunderland Carers Centre's work in this field built onits successful work with local employers which hadbeen developed over a number of years. Its approachincluded an Employers’ Charter awarding a 'kite mark'to local employers who offer carer-friendly policiesand practices. Since 1995, the Carers Centre has beenencouraging employers to sign up to this scheme,demonstrating their commitment to helping carers inemployment. Organisations awarded the charter haveincluded: Littlewoods Home Shopping; City ofSunderland Council; Wearside Benefits Agency; theChild Benefit Centre; Tyne and Wear Fire Brigade,and, most recently, the NHS Prescription PricingAuthority. Sunderland ACE also delivered carerawareness training to local Jobcentre Plus front-linestaff in September 2004. This focused on enablingJobcentre Plus staff to identify carers and ex-carerscoming to them for help and support, by giving themACE contact details, information leaflets, and websiteaddresses. They were also commissioned by SouthTyneside Primary Care Trust to carry out a series ofcarer awareness training sessions early in 2005.

In Kirklees, the ACE project developed the CarersTraining Placement Scheme, operating within KirkleesMetropolitan Council. This provided work placementsfor carers,7 who were subsequently supported tomove into permanent employment where possible.Successful examples included a trainee Carer SupportOfficer in Carers Gateway, who went on to becomethe Employer Liaison Officer for ACE, withresponsibility for setting up a new area of work.Building on Sunderland's example, Kirklees also madearrangements to hold a Carers Charter launch eventfor employers and managers during Carers Week2005 (shortly after the EQUAL ACE project period).Within Kirklees Council, the ACE team were also ableto negotiate carer awareness training as part of awider programme of corporate training. The firstsession of this training was facilitated by an ACEsupport officer in March 2005.

Surrey ACE also developed most of their work withlocal employers during 2005. They built upon theircarer awareness training for local Jobcentre Plus staffby developing carer awareness training for otheremployers in March 2005. This half-day session wastargeted at the health sector, and specifically athuman resources managers and line managers.Working with ACE, Surrey County Council have alsoput carer awareness material on their staff intranetsite, and have publicised this via wage slips andnewsletters. ACE Surrey organised an employers’conference to launch their work in this field and giveit higher profile in April 2005, with keynote speakersfrom Surrey County Council, Centrica, and theDepartment for Constitutional Affairs (the latter twoare both members of EfC).

Ealing ACE did rather less work in this area due to alack of capacity. Ealing had the smallest staff team ofall the projects (just one dedicated ACE part-timeemployee). After their ACE funding ceased in January20058, Ealing Contact a Family also had to spend timeand resources to source continuation funding for theACE project until May 2005, limiting its scope foremployer work.

23 ACE National led by CARERS UK

6. Working with local employers

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Each of the projects reported some frustrations in itsdealings with local agencies, including local JobcentrePlus offices. A small number of individual carerscommented on the “terrible” or inappropriatesupport they received from local Jobcentre staff,giving examples of feeling ’forced’ to apply for jobswhich did not fit in with their caring responsibilities.These experiences contrast strongly with Carers UK’sexperience of working with Jobcentre Plus at thenational level. Time and resource constraintsprevented the development of more direct work withemployers, and its limited impact during the period ofthe EQUAL award.

During the evaluation, many staff commentedpositively on the ACE projects’ impact on their widerlocal community. Staff in one project proudly reportedimproved local awareness of carers' needs amongprivate sector employers, local authority departments,and statutory agencies. The difference observed in thelocal Children's Services department, demonstratingheightened awareness of the needs of working parentcarers, and leading to more flexible summerprogrammes, was a particularly pleasing example ofthis impact.

There are good prospects for long-termbenefits from the limited local ACE workwith employers which could be developedwithin the time and resources available. Asall the local projects are continuing theirwork with employers, drawing on differentfunding sources, it is likely that there will becontinuing positive outcomes in the future.

7 At least 6 carers took up these placement opportunities.8 At project start date, Contact a Family were only able to

identify funding for two years of activity, but subsequentlysecured additional resources to continue their work withinthe context of ACE National.

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Sharing ideas and experiences has been a crucialelement of the overall ACE project. Carers UK haveused regular meetings and events to cascademessages out to both current and futurecollaborators. They have also raised the profile ofcarers and of Carers UK among local and nationalgovernment through key events, such as the finalproject conference in March 2005 held in BT'simpressive London conference centre and attendedby over one hundred people including a number ofMembers of Parliament.

Communication mechanisms By designing regular mechanisms for communicationinto the ACE local and national partnerships, theproject provided frequent opportunities for goodpractice exchange and learning from one another.The overall project structure included several regularand well attended meetings which provided all partieswith a chance to take part:

LOCAL PARTNERSHIP MEETINGS

These quarterly meetings were chaired by the ACENational Development Officer and regularly involvedthe six (later four) local pilot programmes, City &Guilds and the evaluation team (CSI), who kept thegroup informed of developments in the researchprocess. The meeting venue rotated between each ofthe local partnership sites. These meetings were a keyforum for discussions of each local project's deliverystyles and methods and an opportunity to meet stafffrom other organisations working with the local sites.

ACE NATIONAL STEERING GROUP MEETINGS

This was the internal steering group for the project,led by Carers UK, including a carer representativefrom the Carers UK board, a member of thetransnational partnership team, and EISS. Its role wasto oversee the direction of the project, including bothlocal and national delivery elements.

ACE NATIONAL DEVELOPMENT PARTNERSHIP (DP)FORUMS

These annual meetings were a showcase for theprogress of the ACE project (and evaluation),including all local and national partners. At the finalforum meeting in December 2004, participant carerswere also invited, and lively, interactive sessionshighlighting the challenges and opportunities carersexperience in relation to employment were facilitatedby Arc Theatre Company.

ACE staff members' views on the ACE localpartnership meetings were sought as part of theevaluation. These views were generally very positive,

25 ACE National led by CARERS UK

7. Sharing ideas and experiences

A group of parent carers get together.

Dr Hywel Francis MP hosts the launch of apartnership between NIACE and ACE National; Carers and Learning – Something for You.

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with most staff reporting that the meetings wereinformative, useful, interesting and enjoyable. Manyindividuals had developed new ideas for their ownprovision based on feedback from different localprojects, and had learned from other projects' use ofmarketing materials. The social aspects of thesemeetings were also valued, and served to helpparticipants feel part of the wider national project.The monthly bulletin emails from the NationalDevelopment Officer were also considered valuablefor this purpose. Comments on the meetingsincluded:

"They are essential for finding out informationand exchanging ideas."

"Important information gets fed back."

"Meetings are well organised.. it's nice to meetcolleagues."

Communication also took place between the differentlocal projects. One worker pointed out that the localprojects had become more supportive of each otheras they had got to know one another, which she sawas the “natural evolution of groups”. Although somestaff mentioned that ACE newsletters were "not veryspecific", other staff commented that they did notwant too much information, and thought it wasbetter to ask if they wanted more:

"There’s [a] decent balance now.. and we knowwho to ask".

ACE events In addition to these regular sources of project supportand information there were other national eventsorganised, and meetings which took place, oftengeared to specific audiences. These are listed in Table3, overleaf. They show the range of opportunitiesCarers UK and its partners created to disseminate theACE work and to engage in relevant debates with thefull range of stakeholders.

A final event to celebrate the achievements of the ACEproject took place on 10th March 2005. This includeda day conference entitled 'ACE National andF&MPower European Partnership Final Conference'. Itincluded: sessions on 'A Returner's Journey'; apresentation about ACE key successes; the researchagenda relating to employment and caring: andEuropean partnership working, led by EISS, which

played a crucial role in facilitating these activities.Invited guests at this well attended event includedproject workers from across the national and localpartnership groups, and carers’ leads from localauthorities as well as potential transnational partnersfor the forthcoming Carers UK EQUAL 2-fundedproject. A celebration dinner was held that evening,serving as a public policy awareness-raising event,with many key stakeholders present and an engagingafter dinner speech from a well-known broadcasterwho spoke entertainingly and movingly about hisown experiences of caring, something he had neverdiscussed in public before.

26 ACE National led by CARERS UK

Dr Hywel Francis MP; Kim Howells, Minister of State,DFES; Imelda Redmond; and Alastair Tomson, Policyand Development, NIACE at the Partnership Launch.

Caroline Waters, Imelda Redmond and Iain Waugh, aworking carer for British Gas at the launch of theEmployers for Carers Self-Assessment Tool.

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ACE materialsA wide variety of publicity and training materials weredeveloped by the ACE National staff team during thelifetime of the project, in addition to the localmarketing resources used by the local projects toadvertise their work. These have made a significantcontribution to the impact of the project, andinclude:

• Redressing the Balance: Inclusion, Competitivenessand Choice, Marilyn Howard's report on barriersand bridges for carers in employment,concentrating on three types of barriers to work:individual, systems, and labour market barriers. Sheconcluded that one or all of these barriers canaffect carers.

• The ACE News regular newsletters.

• Articles in Parliamentary Monitor; the EuropeanParliament Magazine, and House Magazine.

• Carers and Learning: Something for You booklet.

• Juggling Work and Care leaflet and DVD (featuringinterviews with human resources staff, linemanagers, and working carers from BT, British Gas,Centrica and the Department for ConstitutionalAffairs).

• European Glossary of Social Care Terms brochure,developed by EISS and F&MPower.

• The ACE website9

(www.carersnet.org.uk/acenational).

• The separate dedicated website for the Employers

27 ACE National led by CARERS UK

Table 3: Summary of ACE National events 2002-2005

2002

• ACE project launch, held at the House of Commons, Westminster

• Transnational partnership launch and welcome for Austrian partners, London

2003

• Launch of the Employers for Carers group, held at BT Tower, London

2004

• Carers UK invited to Department of Trade and Industry ‘Round Table’ consultation event on carers and flexible working

• Carers UK invited to No. 10 Downing Street with Prime Minister Tony Blair as part of his ‘Big Conversation’ consultation event (alsoon carers and flexible working)

• King’s Fund local authority networking conference on carers' issues, London

• EfC benchmark assessment tool launch, House of Commons, Westminster

• EfC breakfast event to launch Face up to Carers good practice case studies, held at BT Tower and attended by key business figures,employers and policy formers

• Carers (Equal Opportunities) Act 2004 celebration reception event, held at Bishop Partridge Hall

2005

• Launch of partnership with NIACE, the National Institute of Adult Continuing Education (England and Wales), and the Carers andLearning: Something for You brochure, held at Port Cullis House, aimed at professionals working with carers to promote access tolife-long learning

• The King’s Fund local authority networking conference on carers' issues, London, forming a key part of the public consultationabout the Policy Guidance for the Carers (Equal Opportunities) Act 2004

• Final ACE Transnational Conference, held in the BT Conference Centre, London, to mark the achievements of the ACE project

• Celebration policy dinner, held in London at the Plaisterers’ Hall, to mark the end of the project and its achievements

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for Carers group, including their BenchmarkAssessment Tool and the Face up to Carers casestudies video and brochure(www.employersforcarers.org.uk).

• The Carers Rights Guide, written by Luke Clements.

• Other training resources packages developed byACE, including:

– Supporting Working Carers: a Managers Guide

– Supporting Working Carers: a Guide for Carers

– Supporting Working Carers: a Guide for UnionRepresentatives.

9 The second phase of the Action for Carers and Employment(ACE) National Partnership that will run 2005-2007 has anew website, at: www.acecarers.org.uk.

The communication strategies in place aspart of ACE were a key elementunderpinning the partnership workingamong local service providers. This willcontinue to benefit carers using relevantservices.

The national events made a criticalcontribution to the policy impact of ACE,and included very significant direct contactwith Government, including the PrimeMinister. The documents and materialsproduced as part of ACE will havecontinuing impact in supporting carers inemployment, and on the practices andpolicies offered by employers. These threeelements have all added to the long-terminfluence of the ACE project on thesituation of carers in relation toemployment.

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In common with other EQUAL projects, ACE Nationalestablished a Transnational Partnership at the outset,in its case working with F&MPower in Austria. Thesetwo organisations developed the following jointobjectives for their work together:

• Joint development of support mechanisms, usinginnovative solutions to overcome the labour marketdisadvantage of women/carers

• Dissemination and mainstreaming of results,influencing policy makers in the development ofservices for target groups

• Development of methods to assist men, womenand carers to reconcile work and family life

• Activities to encourage employers to realise thepotential for women/carers in the workplace

• Development of a pre-vocational trainingcurriculum for labour market returners

The Transnational Partnership hoped to add value tothe work of each national partner by:

• Introducing new ideas into the development oftools and processes for including target groups

• Influencing policy development and practice re thetraining and employment of target groups

• Challenging currently accepted employmentpractice

• Developing a successful process of disseminationand mainstreaming

• Creating opportunities for exchange of informationand enhanced understanding of options in takingforward the employment/care agenda

A separate report on the Transnational Partnership hasbeen produced10, outlining the full range of activitiesundertaken and how participants in the transnationalpartnership worked together. Here it is appropriate tohighlight the following:

• The regular transnational meetings, which wereconducted in line with the original agreedschedule, all included both informal opportunities

for networking and exchange of ideas, and formallyarranged opportunities for projects to present theiractivities or to learn from others, including someexperts invited to make presentations. A range ofinnovative methods for exchanging ideas andinformation were developed. These included the'bus stop' approach used in the Surrey meetings atHillcroft College, and the 'open space' techniqueused very effectively in Austria.

• Evaluation of the transnational work confirmed thatmost participants felt very positive about this partof the project, and that they had gained new ideasabout ways of working with the client group. Manyalso felt that the exchange of ideas they hadengaged in had enabled them to comparepractices in working with their client group, andexchange ideas with a worker from anothercountry doing a similar job. In the future, mostparticipants felt their experience of thetransnational activity would enable them to changetheir own practice as a result of what they hadlearned, and to suggest improvements to the waytheir own organisation worked with clients. ACEEaling supported participant carers in visiting theConstanze Project in Austria as part of thetransnational partnership. The carers concernedwrote about their experiences on return andhighlighted the benefits they had gained11.

In the ACE evaluation interviews with staff, awarenessof the Austrian transnational partners amongst EnglishACE partners varied, with opinions on this partnershipsomewhat mixed. When interviewed in the summerof 2003, mid way through the transnational projectactivity, most staff thought it was "interesting" to havea partnership, but felt they knew relatively little aboutit or how it could impact upon their own work. Someemphasised the difference between the projects'target groups and the social contexts within the twocountries (Britain and Austria). The study visits andtransnational seminars were considered helpful,although one member of staff felt that her agencyhad been slow to build on others' good practice.

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8. The ACE partnership with F&MPower

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"Interesting, might learn from it.. [but] theirbrief is quite different"

"Useful for anyone... [but] they're verydifferent"

“Best practice fascinating”

The main differences of opinion arose between thosewho attended transnational events and those staffmembers interviewed as part of the overall evaluationwho did not take part. Those workers who chose tofully engage with this element of ACE clearly gainedmost from it. Some ACE staff stressed that they hadlearnt at least as much from the Austrian partners’methods of communication as from substantivediscussion of issues relating to their respective targetgroups.

10 This report has been made available to Carers UK and toF&MPower.

11 ACE National News, Summer 2004.

30 ACE National led by CARERS UK

Table 4: ACE Transnational seminars and study visits

SEMINAR / VISIT FOCUS DATE LOCATION

Study visit: included employers event held at Canary Wharf; June 2003 (Carers week) London / Surrey, Englandparticipatory event at Hillcroft College

Returners to the labour market seminar October 2003 Bregenz, Austria

Flexible working with employers and employees seminar January 2004 Sheffield, England

Study visit: ACE Ealing beneficiaries visited Austrian project May 2004 Bregenz, Austria

Alternative care services for childcare October 2004 Canterbury, Englandand dependant care seminar

Flexible working and mentoring networks seminar January 2005 Bregenz, Austria

ACE National’s Austrian partners at a transnationalseminar in Sheffield.

Parent carers from Ealing enjoying a study visit toVorarlberg, Austria.

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PART TWO

Learning from experience;

exploring issues and opportunities

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In this part of the report each of the topics dealt with inthe previous chapters is explored further, to drawattention to key lessons learned, issues relevant to anysimilar activities, and future opportunities for Carers UK.

Shaping the national policy agendaACE achieved its aim of developing a nationalpartnership of carers, unions, employers and voluntaryorganisations. It was successful in influencing thedevelopment of services at local level, and policy atnational level. Although the active engagement ofsome of the national partners, such as trade unions,was variable, ACE achieved greater policy influencethan could have been anticipated. The Carers (EqualOpportunities) Act 2004 was certainly influenced byACE, and by the impact the ACE partnership had onkey stakeholders. Carers UK’s original hope was thatcarers would become central to campaigns promotingwork-life balance. If an extension of the legal right torequest flexible working to all carers results, this willalso in part be an achievement of the ACEpartnership.

ACE was also successful in its aim of creating anational employers' group, based within the nationalpolicy partnership, responsible for promoting work-lifebalance issues and raising the profile of carers in theworkplace. This in turn impacted upon national policydevelopment. Two critical outcomes for Carers UKwere the production of a good practice guidedesigned for employers, and an employers’ charter.The former has been achieved through the Face up toCarers booklet and video, whilst the employers’charter approach has been extended, albeit at a morelocalised level, with Sunderland Carers Centrecontinuing their work in this field, and providing anexample which Kirklees and Surrey began to build on,and plan to develop in the future.

Working in partnershipOverall, ACE was successful in developing a networkof local projects that provided effective support tocarers. How far carers can distinguish between theemployment-focused support of ACE, and more

general support available to carers - and how muchthis distinction matters - remains open to debate.Certainly some carers interviewed during theevaluation were confused about what differences toexpect between ACE and more general carer support,perhaps arising from some lack of clarity in localprojects' aims, or from the way individual support wasdelivered by some support workers:

“[I’m] still not sure what they really are therefor. [I] find the carer’s group [gives] moresupport, like with their yoga”

“Carer’s support groups are better as they givesocial meetings.”

“I don’t see it as any different from any othercarer support group.”

Within the ACE partnership, some local staff felt theywere less well informed than was desirable about thenational partnership and staff team’s activities. Anumber even reported feeling isolated or divorcedfrom ACE as a national project. Some staff wantedmore information about “the big picture”, forexample regarding the Employers for Carers meetings.When this was discussed in the evaluation focusgroups for staff, one worker likened the overall projectto two wheels: one the national project and the otherthe different local projects. Another commented thatshe sometimes felt Carers UK didn’t value them,although this was very much a minority opinion.

These less positive experiences mainly arose from thetime and resource pressures on staff at national level,who were pursuing a large and demanding agenda.The national staff team were aware of the need formore resources for the national activities, and haveresponded to this in their subsequent projectproposals and bids. The national team, at times, alsofelt a lack of active engagement from local partnerstowards the national partnership. In future projects,'official’ updates from the national staff team mayneed to be provided more frequently to help developand maintain good long-term relationships betweenlocal partners and Carers UK. The lesson learned here

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9. Issues and opportunities

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is that partnership working takes a long time todevelop, and needs to be actively sustained, both onthe part of national and local partners. As it hasbecome aware, Carers UK needs to allocate more staffresources, and time, for this element of its work infuture, to build the most successful, trusting andeffective relationships. However, all partners have toremain fully engaged with the wider partnership for itto achieve the best results. This includes respondingto information requests and using networkingopportunities fully.

Empowering individual carersAs this report has already indicated, for those carersparticipating in ACE, the local projects were verysuccessful in offering them individual support andtraining, especially with personal development and ITcourses. Apart from the two Welsh projects, whichceased offering direct carer support, this was equallytrue of the different projects in Ealing, Kirklees,Sunderland and Surrey, although each locality offereddistinct styles of provision, and had varying levels ofexpertise in different areas.

Beneath this success, it is worth exploring how farcarers were able to improve their general confidenceas a result of ACE, and how much they improvedtheir work skills (both factors being barriers to workidentified by Carers UK in their preparation for theACE project). The evaluation data identified manycarers who said they personally had gainedconfidence during their time on the project. However,fewer said that ACE had had a direct impact on theiremployment status. This may relate to the issue ofwhich carers were being referred to the project, andto what extent ACE support workers werehighlighting employment as an end goal ofparticipation in ACE. The ‘distance travelled’monitoring data showed carers' increased: importanceattached to getting a job; certainty about the type oftraining or work wanted; confidence in applying forand taking up training or work; and information levelson training / work opportunities, which could have amore direct impact in the future.

‘Learning for Living’ - the City andGuilds e-learning programme The ACE project successfully developed, with City andGuilds, an e-learning pre-vocational training systemand accreditation framework, especially designed for

carers. This achievement fulfilled one of the key aimsidentified by Carers UK. The difficulties andfrustrations local projects experienced whenimplementing this programme were perhaps greaterthan anticipated. Full dissemination of the product byCity and Guilds has still to be completed, and themainstreaming process through which the course willbe made available in Further Education establishmentsin the UK has taken rather longer than was originallyenvisaged, principally as a result of the lack ofinfrastructure within local Learning and Skills Councilsfor the delivery and funding of e-learning. However, itis clear that once mainstream delivery of the coursehas been achieved, it will have a lasting impact,providing an ongoing learning and accreditationopportunity for carers, and giving those who need itan important stepping stone towards employment.

Working with local employersUndoubtedly the creation of an effective Employersfor Carers group at national level was the mostsuccessful element of ACE’s work with employers. ACEalso set itself the goal of extending and enhancingwork with individual employers in the ACE local areas,although local teams began delivering carerawareness training to support the development ofgood practice among local employers only towardsthe later stages of the project. This has meant thatthe local promotion of work-life balance policies andflexible employment practices has been quite limited,and arises partly from limited staff resources. It is alsoa consequence of giving a lower priority to thisobjective in some projects.

The development of more effective local carersupport, through work with employment services(such as Jobcentre Plus) also took some time toestablish. The evidence gathered during theevaluation (which gives the perception of ACE staffonly) suggests this arose primarily from localJobcentre Plus resistance to engaging with thisagenda, rather than from any lack of effort on thepart of the ACE projects. At this stage, it is too earlyto assess how far the training offered by ACE willimprove carers’ visibility within the delivery ofmainstream employment services.

Further work is still needed at the local level if carersare to be supported in identifying flexible andunderstanding employers. This further provision willneed to build on the successful examples offered by

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the Sunderland Carers Centre’s Employers’ Charter,and on the work of the Employers for Carers group atnational level. To date, the ACE project has beeneffective mainly (with a few important exceptions) inlarge, national organisations. It may take some timeto develop successful work with small firms andorganisations operating only at the local level.

Sharing ideas and experiencesACE identified the development of carer awarenesstraining materials for dissemination by Jobcentre Plus,trade unions, and local authorities as one of its desiredpolicy outcomes. New resources of this type havebeen produced and are now available via the CarersUK website. It has not been possible to judge thetake-up and wider impact of these resources at thisstage.

Another outcome has been increased awareness ofthe need for appropriate, good quality (andaffordable) alternative care to enable carers toengage/re-engage with the labour market and/oravailable training. The importance of this issue hasbeen underlined time and again in the evaluationevidence, both in the interviews and focus groupswith carers, and throughout our consultations withACE partners. Much work on this still needs to bedone, and major progress on this was always beyondthe scope of the 2002-2005 ACE National project. Ithas now become the focus of Carers UK's successfulEQUAL 2 bid, which draws together a new set ofpolicy and practitioner partners dedicated toachieving significant impact in this area, and runsfrom May 2005 to May 2007.

Finally it is important to mention the original projectplans for delivery of a toolkit for setting up localmentoring schemes. The challenges of completingthis were underestimated, both by Carers UK and byParents at Work, which did not fully appreciate theresources needed in terms of time, staff andexperience to promote this work successfully.Nevertheless, Carers UK can build on this experiencein the future, having gained much information aboutsuccessful ways of establishing this type of work fromthe transnational partner's mentoring programme.

There was some scope for improving communicationwithin the ACE partnership. In the evaluation, somestaff reported being disappointed at the level of goodpractice exchange; they felt project staff wereinterested in, and took note of best practice examples

during exchange meetings, but that the knowledgegained was not always applied in their own projectdelivery. There was perhaps some resistance tochange on the part of some project workers.Furthermore, the lead partner may have been over-reliant on email communication in cascading outmessages. Some staff indicated that more phone orface-to-face contact would have been welcomed.

Some local project staff would also have liked moredirect and prescriptive guidance from the nationalACE project team, and felt there could have beenmore direct feedback and organisation prior tostarting the project. One of the staff discussion groupsconcluded that, with hindsight, national staff teammembers could have done this, but were perhapskeen not to be over-directive in their contact withlocal partners, especially in the early stages of thepartnership. An opinion was also expressed thatsometimes prescriptive instructions from national staffwere ignored by local partners. In future, these issuesand concerns could be addressed more explicitly inthe planning stages of developing new partnerships.

The ACE partnership with F&MPowerThe ACE partnership with F&MPower provided anexcellent range of opportunities for exchanging goodpractice and learning from others' experiences. It alsoopened participants' eyes to alternative contexts,policies and welfare systems in useful ways, andstimulated much reflection on similarities anddifferences of approach between the UK and Austrianpartnerships.

Learning from experienceFocus groups set up in three of the local pilot areaswith carers who were not ACE participants found thatmost had not heard of ACE12. While this explainedtheir lack of participation in Sunderland and Surrey, itwas a little surprising, as some of these carers werereceiving other forms of carer support from theagency ‘hosting’ or linked to ACE, including sendingout publicity to its members and contacts. The waypublicity was disseminated, or the material itself, maynot have been sufficiently attractive to these carers.Some carers said that personal letters would havebeen more effective than leaflets sent with otherinformation (such as newsletters). Other agencieshave found that recipients of marketing and publicitydo not always read (or even notice) it, and thus it is

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to be expected that some carers would remainunaware of the ACE opportunities. Nevertheless, thisunderlines the need to pay particular attention tomarketing. In Ealing, a lack of participation wasattributed to misunderstandings of who or what theACE project was aimed at. The detailed findings inthe evaluation revealed at least twomisunderstandings about ACE among carers:

1. Some carers thought ACE was only providing ITtraining (One woman commented, “I had a goodjob at a University. I don’t want a patronisingwoman telling me how to do word processing.”)

2. Another observed, “I thought it was [only] forpeople in work who also care – to help them legally,with time off and that.”

The flexibility of ACE perhaps needed to be signalledmore strongly in some of the recruitment literature,emphasising the individual nature of the services onoffer, and the project's scope for offering supportappropriate to carers with varying levels ofemployment experience.

Carers' suggestions for ways of enhancing any futurelocal provision included:

• Reduce the number of forms needing to becompleted on first joining ACE

• Improve local alternative care

• Provide work placements

• Offer free advice on benefits

• “Make it clear that it’s individualised”

• “Help with CVs. I panic… [I'm] not sure what to putdown… how to put [caring] across”

• Facilitate / arrange voluntary work

• Advise on how to find home-working opportunities

• Use general publicity leaflets describing the varietyof provision offered, rather than specific leafletsabout certain courses

• Give dedicated careers advice on local jobopportunities, suitable employers, progression fromspecific training courses, etc.

• Include debt counselling in the services offered

• Develop drop-in advice sessions

These carers also suggested developments for futureprovision which were not related to employment.

Their ideas included massage sessions and socialgatherings, emphasising the wider demand for carersupport that is needed: “it’s having 'me' time”; “a dayin a nice environment”. For some of the carersinvolved in these focus groups, ACE needed toprovide more general support than was availablethrough the project's explicit focus on movementtowards training or work.

An important question which arose frequently indiscussions with the local projects concerns whethermore general carer support is needed throughout thecountry. What is it that brings these carers to ACErather than to another form of support? Thishighlights the complexity of helping carers faced withmultiple barriers into work, highlighted by MarilynHoward (Howard, 2002). While ACE projects and/orgeneral carer support delivered by specialist agencieshelp carers to overcome their individual barriers,systems and/or labour market barriers may stillremain, such as inflexible or poor-quality localalternative care provision; the benefits trap; andlocalised labour market issues relating to jobopportunities, transport arrangements and culturalexpectations about caring. These are factors CarersUK has identified as important for its futureprogramme of work, and will be addressing viaEQUAL 2.

Some carers who had not participated in ACE rejectedwhat ACE was offering and any pressure to return towork:

“The Government must think we can just switchoff and then wake up fresh and go to work.”

“You can’t care and work. Up all night,cleaning up mess. It’s just not possible.”

“Any spare time needs to be spent asleep.”

“You can’t work while caring. Caring is a full-time job… you cannot leave them [elderlyparents].”

“[I] go to bed exhausted – [and] wake up at3am. All unbalanced, emotional. [It's] veryhard with little sleep.”

These responses highlight the impossibility ofcombining work and care for carers who retain thesole caring responsibility for a person with veryintensive or complex needs. The ACE projects

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targeted support to those able to combine care andwork, or to those who had ceased caring. There aredifferent support needs for carers who are unable towork, for example, appropriate benefits, pensionprotection etc. Employment-related projects for carersneed to consider this in developing their futureprovision, and in deciding on their publicity andrecruitment strategies.

12 It was not possible for the evaluators to arrange a focusgroup of non-participants in Kirklees because no carersresponded to the request for participants in this area.

The ACE project has provided a variety ofinnovations, aimed at different audiences.There is great potential for developing andreplicating some of this work in mainstreamservices, both at the local and the nationallevel.

ACE has been very successful in raisingawareness of carers and employment issuesat the national level, with the Carers (EqualOpportunities) Act 2004 giving an extraopportunity to raise the profile of carers inthe media and society as a whole.

The three remaining issues in this fieldwhich Carers UK could now address are:

• influencing the improvement of localalternative care provision;

• campaigning for the right to requestflexible working, and

• tackling the difficulty carers find inbridging the gap between benefits andpaid work.

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This section offers some suggestions andrecommendations relating to the experience gainedin ACE National's work on carers and employment,both at the local and national level. These commentsare focused on (i) carers' organisations; (ii) employers,and (iii) policymakers, government, and statutoryagencies.

Recommendations and suggestionsfor carers' organisations:1. Take particular care in targeting, disseminating andpublicising projects, making it clear which areexplicitly employment-focused. Initial approaches canoverload carers with a wide range of information, forexample in newsletter mailings, and this may not bethe most appropriate method. Consider whetheremployment-related provision should be targeted atcarers whose caring responsibilities are less intensiveor more flexible.

2. Respond to the variety of employment relatedprovision called for by carers, both ACE participantsand those who did not join ACE. Provision needs toinclude: work placements; specific job-related skillstraining (such as CV writing); placements offeringopportunities in voluntary work; and professionalcareers advice.

3. Disseminate carer publicity as widely as possible,using settings such as hospitals, schools, doctors'surgeries, dentist practices, public buses, bus stops,residential homes, and local Jobcentres. Increasepublic awareness of carer support organisations andopportunities through posters with clear, simplemessages, rather than detailed leaflets which may beignored or only partially read.

4. Provide information and support in hospitals wherecarers may first learn of a new caring responsibility,when they are right at the beginning of makingdecisions about their future. One carer told us thatshe had immediately decided to leave work, while herhusband was still in hospital. With hindsight she feltthat, with appropriate support, she could havenegotiated flexible working with her employer.

5. Explore options for providing carer-aware adviceand business support services focused on self-employment and home working. (One carer hadbeen supported by ACE into self-employment, buthad subsequently been left with limited support: “Ifelt launched into this - they ran with me for a bit, butnow I am on my own which is scary”.)

6. Improve advocacy provision and support servicesfor carers whilst in work: “[ACE] don’t prepare you forthe attitudes of other people. [I] felt very unsupported inthis”.

7. Facilitate networking and support between carers,using group email lists, regular local newsletters andwebsite chat rooms or message boards. In addition,support group work for carers to meet each other andexchange experiences and advice. The impact thatthis can have on carers' confidence and self-esteemcannot be over-estimated.

8. Consider carefully the specialist support needed forcarers following bereavement, aware of the impactthis can have on carers’ confidence (“Your identityand role has gone”).

9. Allow enough time and staff resources to extendproject delivery into new areas of activity, for exampledeveloping mentoring schemes, and placeconsiderable emphasis on effective and sustainablepartnership development and good staff relationships.Issues and concerns about shared aims and objectives,levels of supervision, or project direction should beplanned and negotiated prior to projectcommencement, and openly discussed as they arise.

10. Forge closer links with mainstream employmentservices, for example automatic referrals to ACE-typeprovision for claimants of Carers Allowance. Explorewhether co-location of carer support projects andmainstream employment services (for instance a ‘onestop shop’ on a town High Street) would help carersseeking employment.

11. Commit sufficient time and resources to ensure thesuccessful engagement of all partners, whether policyor employer, throughout the lifetime of a project.

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12. Explore ways of using Carers UK's knowledge ofthe Austrian approach to mentoring (seen in thetransnational partnership) and apply lessons from thisexample in developing carer mentoring programmesin the UK.

Recommendations and suggestionsfor employers:1. Groups of carer-sympathetic employers need toassess the viability of designing a national goodpractice employers' charter that individualorganisations could sign up to, based on their policesfor carers, following the example of the Sunderland-based employers' charter.

2. Design policies and explore ways of raisingawareness to promote the need for flexible workingand more support for carers from employers,managers, and colleagues. This was a key aim forboth ACE participants and non-participants, still farfrom fully achieved. Methods for tackling thestigmatisation of carers among colleagues are crucial,as this was reported as a key source of stress andunhappiness by working carers. To this end,employers should develop carer awareness training asan integral part of inductions and updating for allemployees.

3. In carer awareness training aimed at HumanResources staff, highlight the issues that carers face inexplaining periods of absence from employment, thedifficulties they may have in gaining references, andthe hurdles they face in obtaining their first interviewafter a long period away from work.

Recommendations and suggestionsfor policymakers, Government, andstatutory agencies:1. The Government should extend the right torequest flexible working in employment to all carers.

2. Local authorities and national Government shouldrecognise the vital need for appropriate, good quality,and affordable alternative care to enable carers toengage, or re-engage, with the labour market and/oravailable training. This was a primary point ofagreement between ACE staff, partners, carerparticipants, and non-project participants.

3. Policymakers in the Department for Work andPensions should integrate carer awareness traininginto the induction process for all front-line staff

working in Jobcentres around the country. The needfor carers to have flexibility in their work should alsobe borne in mind when designing new, or assessingcurrent, New Deal options.

4. Policymakers and analysts need to develop ways oftackling the difficulty carers face in bridging the gapbetween benefits and paid work. Benefit advice,especially regarding thresholds, was sought by manyACE participants and non-participants. It was alsosuggested by carers participating in the ACE projectthat positive discrimination policies could be used tohelp carers seeking employment, such as carers beingguaranteed interviews for jobs.

5. Statutory agencies should investigate ways in whichACE services could be successfully mainstreamed andincluded in local authority provision and/or localregeneration partnership work.

6. One ACE staff member also suggested that thereshould be a specific Government Minister responsiblefor carers' needs.

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39 ACE National led by CARERS UK

Following the team's successful bid for the evaluationcontract in a competitive tendering process, theevaluation was developed as follows:

STAGE 1: Preparation (Sept 02 - Dec 02)• addressed outstanding issues; evaluation design

finalised

• evaluation action plan presented to a meeting ofACE National key staff, 13th September 2002

• baseline information collected e.g. ACE pilot areapublicity material, work plans etc.

• a 'soft' outcome / distance travelled monitoringsystem was developed for use throughout theproject's lifetime

The evaluation team developed its ‘distance travelled’monitoring tool, the ‘Individual Carer Review' (ICR),to be used as a measurement of soft outcomes gainedfor those participating in the project, for example inenhanced personal confidence, IT competency,speaking skills, and reading and writing levels. Thiswas developed via extensive consultation with localACE pilot projects and ACE National staff, and built onan original model known as the Rickter Scale(www.rickterscale.com). It was designed to becompleted in a face-to-face setting by a projectworker, in discussion with the participant, askingindividuals for their own assessment of their strengthsand weaknesses, and including a short assessment ofthis by the staff member. The ICRs were to becompleted on a regular basis whilst the carer /former-carer continued involvement in ACE, thuscapturing the ‘journey’ carers may make. A shortfollow-up questionnaire was also designed to be usedin a postal survey at the end of the project for all ACEparticipants. The completed ICRs were analysed bythe evaluation team at the end of the project. TheICRs and questionnaires were used with varying levelsof consistency in the different ACE pilot areas,resulting in uneven availability of evaluation data.

STAGE 2: Research design and piloting(Jan 03 - June 03)• innovation of project design and delivery assessed,

and baseline report produced, 31st March 2003

• interviews for the stage 3 in-depth face-to-faceinterviews with those identified as key personnel,including staff from ACE National and the pilotprojects developed, arranged and piloted

• developed questions, gained access, and arranged /piloted interviews with a sample of carersparticipating in the pilot projects

• produced area profiles for the six initial pilotprogramme areas, including census 2001 data,information on local labour markets, and mappingof local carer support services and trainingprovision in each area13

• produced first interim report, including areaprofiles, review of documentation to date, andfeedback from piloting of staff and carer interviews,24th June 2003

STAGE 3: Face-to-face interviews (July 03 - May 04) • completed the main phase of the qualitative

fieldwork (face-to-face interviews with 10 staff and22 participants)

• produced second interim report combiningobservations of ACE National local partnershipmeetings and findings from interviews to date,28th May 2004

The 10 in-depth staff interviews included three withnational staff, and seven from the four pilot areas ofEaling, Kirklees, Sunderland, and Surrey. Theinterviews were all arranged by identifyingappropriate members of staff for each project, orwithin the national project team, and requesting themto take part. No members of staff refused. Interviewslasted between forty and ninety minutes.

The 22 participant interviews were spread across thefour operational ACE areas (Ealing, Kirklees,

11. Evaluation methodology

Appendices

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40 ACE National led by CARERS UK

Sunderland and Surrey). Fifteen were current carers,and seven former carers. Of these, twenty werewomen, two were men. The majority of intervieweeswere aged 35-54 years old, though one was from the25-34 age range, and two were over 65. Mostreported their ethnicity as White British, although insome pilot areas with larger ethnic minoritypopulations, some participants were drawn fromminority ethnic groups (six individuals in total).

All respondents were asked to participate in theevaluation by their local project workers, hence theevaluation team did not control who was chosen. Theinterviews lasted between fifteen and sixty minutesand were all tape-recorded and subsequently writtenup and analysed by the interviewer.

STAGE 4: Focus groups (June 04 - May 05)• 9 focus groups were designed, arranged and

conducted: two with ACE staff, four with ACEparticipants and three with ACE non-participants(across the four pilot sites, including some of theindividuals involved in stage 3 face-to-faceinterviews)

• post-focus group follow-up telephone interviewswere completed with a sample of project staffattendees, to provide an additional opportunity forstaff to raise any further issues

• a postal/email self-completion questionnaire wasdesigned and distributed to Employers for Carers(EfC) members and ACE National partners

• a final report, including the collation and analysisof all quantitative and qualitative monitoring andevaluation data gathered throughout the fourstages of the evaluation was produced

The EfC survey distribution (and reminder) produced a40% response rate; this may partly reflect one of thefindings reported, that the group contained a coreengaged and active cohort of members with othersdisengaged from the group’s activities. The nationalpartner questionnaire had a 69% response rate.

Throughout the project time-period there were manyopportunities for observation at ACE meetings andCarers UK events by members of the evaluation team,which informed the progress of the evaluation.

13 Contained in the ACE Evaluation Interim Report 1, June2003.

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41 ACE National led by CARERS UK

12. Carers’ participation in ACEactivities: summary data

Table 5: ACE beneficiary characteristics

BENEFICIARY CHARACTERISTICS FEMALE MALE BENEFICIARY TOTAL

AGE

16-24 10 3 13

25-49 225 45 270

50+ 123 44 167

ETHNICITY

White British 283 78 361

White Irish 3 0

White other 13 6 19

Mixed – white and Black Caribbean 2 0 2

Mixed – white and Asian 0 1 1

Asian/Asian British – Indian 13 3 16

Asian/Asian British – Pakistani 20 1 21

Asian/Asian British – Bangladeshi 2 0 2

Asian/Asian British – other 3 0 3

Black/black British – Caribbean 7 2 9

Black/black British – African 5 0 5

Black/black British – other 2 0 2

Chinese 1 0 1

Other 4 1 5

DISABILITY

Physical disability 43 13 56

Mental disability 11 9 20

Learning disability 6 4 10

No disability 298 66 364

Total 358 92 450

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42 ACE National led by CARERS UK

Table 6: ACE beneficiary activities undertaken

ACTIVITIES UNDERTAKEN BENEFICIARY TOTAL

Work advice, guidance and counselling 394

Helping people to join in, assessing the needs of individuals and planning for individual action 351

Motivation and orientation 292

Training 203

Help into lifelong learning 183

Employment aids and job-search help (including self-employment) 173

IT and ICT training and support 120

Key and basic-skills support 23

Help into self-employment 17

Help with organising care packages 13

Help into volunteering work 8

Work placements 5

Training in the workplace 4

Table 7: ACE beneficiary qualification levels existing and gained

QUALIFICATION LEVEL BENEFICIARY TOTAL ON JOINING ACE BENEFICIARY TOTAL GAINED DURING ACE

No qualification gained 97 351

Below NVQ level 1 24 24

NVQ 1 or equivalent 91 31

NVQ 2 or equivalent 79 29

NVQ 3 or equivalent 75 12

NVQ 4 or equivalent 55 3

NVQ 5 or equivalent 14 0

Other 2 0

Not known 13 0

Total qualifications 353 (pre-existing) 99 (gained)

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43 ACE National led by CARERS UK

Table 8: ACE beneficiary outcomes

BENEFICIARY OUTCOME UNEMPLOYED EMPLOYED BENEFICIARY

ON JOINING ACE ON JOINING ACE TOTAL

Continued to receive support from project 143 34 177

Started further education, training, other government programmes 87 19 106

Gained part-time employment 34 11 45

Gained voluntary work 35 4 39

Gained full-time employment 27 5 32

Remained in same employment as a result of ACE support N/A 18 18

Moved into self-employment 9 4 13

Not known 11 1 12

Became unemployed 3 4 7

Retired 1 0 1

Total 350 100 450

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For more information on the ACE National partnership,please contact:

Mark MurphyACE National AdministratorCarers UK20/25 Glasshouse YardLondon EC1A 4JT

Tel: 020 7566 7641Email: [email protected]

Registered in England and Wales as Carers National Association. Number: 864097

Registered Charity Number: 246329

www.carersuk.org

CARERS UKthe voice of carers