Academic Practice Partnerships

Kerry Silvey & Nan Newell

Oregon Public Health Genetics Program

April 28, 2008

Overview

Partnership with Oregon Health and Science University (OHSU)

Education & Training At universities For public health

Investigations and publications with academic partners

Genetic privacy for Oregonians Advisory committee membership

Partnership with OHSU

Genetics Program is a formal partnership

PH Office of Family Health and OHSU Center for Children and Youth with Special Health Needs

We contract with faculty member Kerry Silvey part time

Education and Training at Universities

Combined MPH program – Collaboration among: OHSU Oregon State Univ Portland State Univ

Mentoring students/ interns

Presentations and posters at annual MPH symposia

Education and Training at Universities

Genetics grand rounds at OHSU Telemedicine to improve access to genetic

services Kaiser family history project

Talks at other Oregon institutions Western Oregon University Linfield College University of Portland Pacific University

Education and Training for Public Health Workforce

Genetics, environment, and cancer risk

Dr. Joanna Cain, Director of Women’s Health, OHSU

Education and Training for Public Health Workforce

Obesity, nutrition, and nutrigenomics

Dr. Karen Edwards, Director of the Center for Genomics and Public Health, U. of Washington

Education and Training for Public Health Workforce

Colon cancer and family history

Barbara Pettersen, Genetic Counseling of Central Oregon

Education and Training for Public Health Workforce

How do the American people feel about a biobank? Portland one of five

cities included in public assessment using town hall meetings

Dr. Kathy Hudson, Director of the Genetics and Public Policy Center, Johns Hopkins University

Education and Training for Public Health Workforce

Fetal Alcohol Syndrome &Fetal Alcohol Syndrome &

the Genetics of Alcoholismthe Genetics of AlcoholismSeptember 2004September 2004

Kerry Silvey - Public Health Genetics Specialist

Kiley Ariail - State Genetics Program Coordinator

Investigations with Academic Partners

With an MD/MPH intern from OHSU, FQHC study investigating family history collection

Investigations with Academic Partners

Kaiser Permanente Qualitative study on how primary care providers collect

and use family history information in the Kaiser system.

Providers also evaluated the CDC Family HealthwareTM tool

Manuscript in preparation University of Washington

Using PRAMS, determine public awareness of prenatal testing

Are there differences in awareness between rural and urban areas?

Preliminary results presented at the Public Health Genomics Summit in Atlanta, January 2008

Investigations with Academic Partners

OHSU Genetics and telemedicine project – Brought

together a physician, a nurse, a genetic counselor, and a nutritionist to review 23 potential rural genetic cases using telemedicine

Genetics Program contracted for a literature review: Use of family history and modifiable risk factors to reduce the incidence of chronic diseases

Investigations with Academic Partners

OHSU, con’t A Model Framework for Integrating Genomics

into Public Health Programs Creation of a genomics integration model

framework for public health programs based on the Stages of Change model of individual behavior change. The model serves as a guide to program planning and evaluation.

Results presented at the Public Health Genomics Summit in Atlanta, January 2008. Manuscript in preparation.

OCTRI Grant Application

Oregon Clinical Translational and Research Institute (OHSU and Kaiser)

To study family history practice and use of informatics in medically underserved patient populations.

Population: Federally Qualified Health Centers (FQHCs) in the Oregon Community Health Information Network (OCHIN).

Will identify salient themes, clinician variability, and consensus relating to family history and clinical decision support.

Genetic Privacy for Oregonians

Oregon passed a genetic privacy law in 1995

Mandated an advisory committee to assess the implementation and propose updates as needed

Members include people from OHSU, PSU

Genetic Privacy for Oregonians

Educate IRBs

Genetic Privacy for Oregonians

Report to legislature every other year

Genetic Privacy for Oregonians

Develop fact sheets for researchers and the public

Advisory Committee Membership with Academic Partners Breast Cancer Prevention Colorectal Cancer Prevention Oregon Diabetes Coalition Oregon Newborn Screening Program Western States Genetic Services

Collaborative Newborn Screening for Cystic Fibrosis Oregon Medicaid Genetic Services Genetic Privacy and Research

Conclusion

Our academic partnerships have been very productive.

Partnerships have brought multiple organizations together to leverage resources and provide diversity.

We have made progress on: Understanding how family history is used in the clinic Helping clinicians and researchers in navigating the

Genetic Privacy Law Bringing awareness of how genomics fits into day-to-

day public health Understanding how genetic and prenatal information is

used in rural areas