A National Technical Assistance System for Early Hearing Detection and Intervention Programs in the...
-
Upload
trinity-hoover -
Category
Documents
-
view
214 -
download
2
Transcript of A National Technical Assistance System for Early Hearing Detection and Intervention Programs in the...
A National Technical Assistance System for
Early Hearing Detection and Intervention Programs in the
United States
Number of Hospitals Doing Universal Newborn Hearing Screening
3 3 11 26 60 120243
462
712
934
1384
0
200
400
600
800
1000
1200
1400
Nu
mb
er o
f P
rog
ram
s
.
Status of Universal Newborn Hearing Screeningin the United States
.Percentage of Births
Screened
90%+
21 - 50%1 - 20%
3
51 - 90%
Tremendous Progress During the Last Decade
• Less than 30 with UNHS in 1993; compared with almost 1400 today
• Almost 2 million babies are screened every year prior to discharge
• 32 states have passed newborn hearing screening legislation
• The federal government is providing financial support to encourage expansion
The Other Side of the Coin . . . .
• 2,800 hospitals are not yet screening for hearing loss
• More than 2 million babies are NOT screened every year prior to discharge
• Most states which have passed legislation have not yet implemented it
• Only 9 states (accounting for 7% of the births) have implemented reasonable state wide programs
Status of EHDI Programs in the United States
• Universal Newborn Hearing Screening
• Effective Tracking and Follow-up as a part of the Public Health System
• Appropriate and Timely Diagnosis of the Hearing Loss
• Appropriate and Timely Early Intervention Services
• A Medical Home for all Newborns
• Culturally Competent Family Support
• Elimination of geographic and financial barriers to service access
Efforts by the Federal Government toPromote Early Identification of Hearing Loss
• Federal funding for research and program development
• NIH Consensus Development Conference in 1993
• Consortium for Universal Newborn Hearing Screening funded in 1993
• Marion Downs National Center for Infant Hearing Established in 1996
• National EHDI Technical Assistance System Established in 2000
Goal of the National EHDI Technical Assistance System
• Every child born with a hearing loss will be identified before 3 months of age and provided with timely and appropriate early intervention before 6 months of age
• Every family of an infant with hearing loss will receive culturally competent family support as desired
• All newborns will have a medical home
• State will have tracking and data management systems which are linked to appropriate public health information systems
National EHDI Technical Assistance System
• Web site (www.infanthearing.org)
• Telephone Technical Assistance
• Distribution of printed materials
• Training Workshops
National EHDI Technical Assistance System (continued)
• EHDI Network members located in each of ten geographic regions
-
VIII
IX
VII
VI
V
IV
III
II
I
X
Guam, American Samoa,Marshall Islands, Palau,
No. Mariana Islands,Fed. Micronesia
Puerto RicoVirgin Islands
Region I(38% currently bornin UNHS hospitals)
Antonia Maxon
Region IV(46% currently bornin UNHS hospitals)
Faye McCollister
Region III(49% currently bornin UNHS hospitals)
Sean Kastetter
Region VI(38% currently born in UNHS hospitals)
Karen DittyPatti Martin
Region VII(33% currently bornin UNHS hospitals)
Les Schmeltz
Region IX(23% currently bornin UNHS hospitals)
Randi WinstonYusnita Weirather
Region II(16% currently bornin UNHS hospitals)
Beth Prieve
Region V(26% currently bornin UNHS hospitals)
Karen Munoz
Region X(21% currently bornin UNHS hospitals)
Curt Whitcomb
Region VIII(91% currently bornin UNHS hospitals)
Terry Foust
Figure 2. National EHDI Assistance Network*
= indicates the locations of MCHB Regional Offices which will collaborate with NCHAM.
* experience and expertise of Network members described briefly on Table 1.
National EHDI Technical Assistance System (continued)
• EHDI Network members located in each of the MCHB Regions
• Annual National EHDI Conference
National EHDI Technical Assistance System (continued)
• EHDI Network members located in each of the MCHB Regions
• Annual National EHDI Conference
• Collaboration with Other Groups and Agencies
National EHDI Technical Assistance System (continued)
• Groups actively promoting and assisting with EHDI activities– AG Bell, NCHH, ASHA, AAA, JCIH, AAP, ASDC
• Relevant groups whose main focus is elsewhere– MCHB Regional Staff, SKI-HI, NEC*TAS, Early Head
Start, 0-3, Family Voices, NCCC, KidsNET, STC, AMCHP, AHEC
Collaboration with Other Groups and Agencies
www.infanthearing.org
Some babies are born listeners . . .
Others need your help!