A good death
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A good death examines dying and death from a design and user experience perspective. The project re imagines legal forms such as living wills and durable power of attorney to improve the emotionally complex process of End of Life planning. The project challenges it’s users to explore and create end of life experiences. It considers the role of interactive technologies and strives to design a dynamic and unique experience-based journey through EoL decisions to encourage more open, comfortable, and proactive End of Life planning. A Good Death is a toolkit that aims to clarify difficult choices and encourage dialogue among families and friends. The project leverages the comfort, privacy, and flexibility of online spaces to reduce the stigma of death offline. The project responds to the legal and economic forces that shape these decisions as well as the cultural and religious beliefs that define an individual’s role in their own death and dying experience.
Transcript of A good death
NavitKeren
NavitKeren
HEALTH CARE DIRECTIVES
living will
DNR ORDERS
body disposition
organ doantion
durable power of at�torney of health care
life prolonging care
Organ Donation
palliative care
Body Disposition
dnr orders
Organ Donation
ADVANCE DIRECTIVES
health care declaration
anatomical gifts
medical power of attorneymedical directive
designation of surrogate
These are a broad term used to describe health care documents that includes both a health care declaration and a durable power of attorney for health care. It is currently used in more than one-third of the states.A legal document in which you state your
wishes about life support and other kinds of medical treatments. The document takes e!ect if you can’t communicate your own health care wishes.A living will is more limited than a health care power of attorney. It generally applies only when you are unable to speak for yourself, and you are terminally ill or permanently unconscious. It also only gives written instructions about certain things that might happen and does not cover every health care situation that could come up. This means it may not cover your situation when you need it. With a living will, you cannot choose an agent or proxy to make decisions for you or be sure that your wishes are carried out.
Some people who do not wish to receive life-prolonging treatment when close to death -- most likely those who are already critically ill -- may also want to prepare a “do not resuscitate” order, or DNR order. If a medical emergency occurs, this form alerts emergency personnel that you do not wish to receive cardiopulmonary resuscitation (CPR).
In more than half the states, there is a statutory obligation for survivors to honor the written wishes of the deceased, to follow your personal preference. The form gives you the right to authorize your own cremation or disposition in writing. The law clearly states that no one else’s consent - not your spouse’s, not your childrens’ - is required.
Organ donations are often referred to as “anatomical gifts”. All fifty states have passed some version of the Uniform Anatomical Gift Act, generally providing that you may make a gift of your organs and tissues during your lifetime with the gift to take e!ect on your death. Additionally, family members may gener-ally donate your organs and tissues after your death if there is no indication you were opposed to such a donation.
A legal document in which you give another person permission to make medical decisions for you if you are unable to make those decisions yourself.
VISUALIZED INFORMATION
ARTIFICIAL NUTRITION AND HYDRATION
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NUMBER OF PATIENTS IN THEU.S. WHO RECEIVE TUBE FEEDING
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93%
DATA FROM
405 outpatients at Massachusetts
General Hospital.
Want Have
20%
ADVANCE DIRECTIVES
A set of written instructions that a
person gives to specify what
actions should be taken for their
health if they are no longer able to
make decisions for themselves.
ATTITUDES TOWARD
ADVANCE DIRECTIVES
Source:
N Engl J Med 1991
MODEL SCENARIOS
How Important Is A Pain Free Existence To You? How Much Pain Can You Tolerate? A Good Death Toolkit RaisesThese Intricate Issues, Encouraging You To Consider Them.
The current content is not interactive or dynamic
LIVING WILLWhich of the following do you fear most
near the end of life?
Being in pain To be aloneLosing the ability
to thinkOR OR
you were in severe discomfort most of the time, such as nausea, diarrhea:
Want Treatment
Do notWant Treatment
2 3 4 51
WHAT IF...
SENSE OF COMMUNITY
YES NOOR SKIPOR
Now that you have choosen a person you can trust with your health care issues, it’s
important that you share your decision with this person.
Would you like to send him a message?
To:
Subject: Health Care Proxy!
SEND
Hey I have decided to make you my health care proxy. I trust you to make health care decisions as I would for myself if I lose the ability to make them.
I choose you because you are reliable and will uphold my wishes when I am unable to.
To continue this partnership, I would like to have a meaningful conversation with you!
I started a dialogue about my end-of-life intentions through agoodeath (link) .
Will you be my proxy?
COMPLEXITY VSSIMPLICITY
Lack of design thinking in the process
DID YOU KNOW?
� � More than 68,000 patients are on the national organ transplant waiting list. Each day, 13 of
them will die because the organs they need have not been donated. Every 16 minutes, a new
name will be added to that waiting list.
� � Organs you can donate: Heart, Kidneys, Pancreas, Lungs, Liver, Intestines.
� � Tissue you can donate: Cornea, Skin, Bone Marrow, Heart Valves, Connective Tissue.
� � To be transplanted, organs must receive blood until they are removed from the body of the
donor. Therefore, it may be necessary to place the donor on a breathing machine temporarily or
provide other organ-sustaining treatment.
� � If you are older or seriously ill, you may or may not have organs or tissue suitable for
transplant. Doctors evaluate the options at or near the time of death.
� � The body of an organ donor can still be shown and buried after death.
Tool #5
After Death Decisions
to Think About Now
Name & Date_______________________________________
After the death of a loved one, family and friends are often left with some tough decisions. You
can help ease the pain and anxiety by making your wishes—about burial, autopsy, and organ
donations—clear in advance.
1. Do you want to donate viable ORGANS for transplant? (Circle one)
Yes
Not sure
No If Yes, check one:____ I will donate any organs.
____ Just the following: _______________________________
2. Do you want to donate viable TISSUES for transplant? (Circle one)
Yes
Not sure
No If Yes, check one:____ I will donate any organs.
____ Just the following: ____________________________
Attention! If you circled Yes for either of the above, be sure to write this into your health care
Advance Directive. You may also fill out an organ donor card or register as an organ donor when
you renew your driver’s license. But be sure to tell your proxy and loved ones. Make sure they will
support your wishes. Even with an organ donor card, hospitals will usually ask your proxy or
family to sign a consent form.
ORGAN AND TISSUE DONATION
TITLEEXIT
MENUE
INFO
STATISTICS
SOURCE
OPTION 1 OPTION2
tHIS IS WHERE THE QUESTION GOES
PROGRESS BAR
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