A Call to Action: Commissioning Mental Health Services for 16-25 year-olds
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Transcript of A Call to Action: Commissioning Mental Health Services for 16-25 year-olds
The following publication is produced by the YoungMinds Stressed Out and Struggling (SOS) Project, which
is funded by the Big Lottery Fund. The project aims to highlight the mental health needs of 16-25 year-olds,
and campaigns to improve access to and acceptability of mental health services for this age group.
YoungMinds believes that this group requires particular consideration because of the stresses and strains
they face in making the transition from adolescence to adulthood, which can compound problems already
faced by young people who are vulnerable to mental ill health.
YoungMinds is the leading children’s mental health charity, which is working within the Every Child Matters five
outcomes framework to improve the mental health of all children and young people. If you would like to find out
more about YoungMinds, please visit www.youngminds.org.uk
Other publications produced by the SOS Project include:
• Perspectives on the Causes of Mental Health Problems in Children and Adolescents, in which leading
figures from the fields of psychiatry, nutrition, foetal development, psychotherapy, attachment theory and
evolutionary psychology give their views about the causes of mental health problems.
• Higher Education Institutions and International Students’ Mental Health, which suggests ways in which
higher education institutions can help support the mental health of international students.
• Information for Higher Education Institutions on Helping Students with Personality Disorder or
Personality Difficulties.
• The Stressed Out and Struggling Mentoring Guidelines – of interest to those involved in the running and
funding of mentoring schemes.
• A briefing paper which summarises recent findings from the field of neuroscience into adolescent and young
adult brain development.
• The findings from the YoungMinds Stressed Out and Struggling Service-mapping Exercise is an invaluable
resource for all those interested in how services are meeting the needs of this age group.
• The Stressed Out and Struggling Focus Group Report – the SOS team met with a range of ordinary young
people in England and Northern Ireland to discuss what the transition from adolescence to adulthood felt like,
and what was difficult and what was easy. The report draws conclusions for policymakers about the stresses
and strains young people face today.
For further information about the project or to download these publications, please visit:
www.youngminds.org.uk/sos
STRESSED OUT & STRUGGLING: A Call to Action 1
Executive summary
Who and what is this document for?This document is for commissioners of Child and Adolescent Mental Health Services (CAMHS)
and commissioners of services for ‘Adults of Working Age’ (also known as Adult Mental Health
Services or AMHS) who, between them, commission services for young adults. The purpose of
the document is to highlight the mental health needs of young adults aged between 16 and 25
and to encourage joint working by commissioners with statutory, voluntary and private sector
providers to meet these needs.
This publication is one of several reports from the Stressed Out and Struggling (SOS) Project,
funded by the Big Lottery Fund. The project aims to raise awareness of mental health issues for
young people aged 16-25 among the general public, service users and service providers, and to
encourage better, more targeted provision of services for young adults.1
Why is commissioning so important? Commissioners are central to the planning of effective services. Their overview of local
resources and networks supports joint planning and closer working relationships between
agencies. Commissioners work with housing, education, recreation and employment services,
as well as with dedicated mental health services, to develop effective provision.
What do commissioners need to consider?We suggest commissioners and providers should constantly be asking themselves the following
question: “What would I want for myself as a young person or for a member of my family?”
• Would I want treatment from a service that is interested in my views and feedback?
• Would I want a hospital out-patient appointment at a time that suits me, and quickly, or in
three months’ time?
• Would I want a choice of evidence-based treatment, including ‘talking therapies’, with clear
advice about the strengths and weaknesses of each approach?
• If I had a severe mental illness, would I want to keep using a service that usually engaged
me through coercion or hospitalisation?
• Can I still have hope for the future – that I will go to college, get a job, be in a relationship?
• Is it acceptable that services refuse to talk to me, as a parent of a service user, on the
grounds of confidentiality, but expect me and my family to cope as the key supporters; or
indeed that they offer me no support to deal with the impact on my family and me?
Why is it so important to get services right for 16-25 year-olds?Young people in the UK between the ages of 16 and 25 are in a state of transition:
• From the world of education to the world of work.
• From a dependent relationship, being parented in some form, to being independent and,
for some, to being a parent.
• From dependent living in a home environment, to independent living and creating their
own environment.
2 STRESSED OUT & STRUGGLING: A Call to Action
Commissioners of services for young adults need to be aware that:
• The brain is still developing up to the age of 25 and beyond, with the early adult years being
critical for the formation of self-image, social skills and impulse control.2
• Adolescent mental health in the UK is deteriorating, with emotional problems and conduct
problems worsening over the past 25 years.3 Research suggests a subtle and complex
interplay of factors existing behind such trends.4 Mental health services need to be able to
offer support to young people who are struggling to achieve psychological maturity, as well as
to those who are suffering from a severe and potentially enduring illness such as psychosis,
providing interventions early enough to prevent enduring and chronic ill health from
developing further.
What is the current picture?There has been considerable financial and policy investment in statutory services for children,
young people and adults since the publication of the National Service Framework (NSF) for
Adults of Working Age, published in 1999, the more recent NSF for Children, Young People and
Maternity Services, published in 20045,6 and Every Child Matters7. Even so, mental health
services still offer limited choice of treatment modality and location.8 A recent mapping by the
SOS Project of services for 16-25 year-olds highlighted the low overall level of services
commissioned for this age group.9
There are a number of national drivers for change. Local services for children and young people
are, or will be expected to:
• Improve life outcomes for adults with mental health problems, by ensuring that all those who
need them have access to crisis services by 2005; and for children and young people, by
ensuring a comprehensive CAMHS by 2006.10
• Increase CAMHS provision by 10% per annum from 2002/3 to 2005/6. This can be measured
in terms of capacity and activity.10
• Extend CAMHS to include provision for 16 and 17 year-olds by 2006.11
• Reduce the suicide rate and the number of deaths by undetermined causes by 20%
by 2010.10
• Improve access to general community mental heath services.10
• Reduce the duration of untreated psychosis to a service median of less than three months
and a maxiumum of six months, and provide support for the first three years for all young
people who develop psychosis, by March 2007.12
• Offer crisis resolution services to all eligible patients by 2005.10
• Increase breaks for carers and strengthen carer support and networks to those caring
for people on the Care Programme Approach.10
STRESSED OUT & STRUGGLING: A Call to Action 3
How are services provided and commissioned?In the current planning and purchasing structure, CAMHS and AMHS commissioners are the
lynchpin of a complex interplay of agencies, including:
• Provider services – statutory and voluntary.
• Their own organisation planning and financial management.
• Local strategic partnerships across health, social care and for CAMHS commissioners,
with education.
• Local council members’ interests and aims.
• Service users.
By 2008, CAMHS will be commissioned within a Children’s Trust from a pooled budget,
simplifying some of the organisational relationships. Children’s Trusts will be responsible for
services up to the age of 19 - or 25, for those with learning difficulties/disabilities.
Commissioning for young adults will still require the commissioner within a Children’s Trust to
work closely with the commissioners of AMHS.
The reorganisation of the health and social services adds further complexity to the picture, as
Practice Based Commissioning, Primary Care Trust (PCT) reconfiguration, local authority
enhanced coterminosity, Direct Payments and Payment By Results come into play.
The service provision structure of CAMHS does not match that of AMHS. Access to CAMHS is
often described in terms of four Tiers, first defined by the Health Advisory Service in Together
We Stand.13 CAMHS aim to work in a holistic/multi-systemic way, with the child, family and at
times the school, supporting both the young person and their environment/system through the
process of change.
AMHS are organised around teams and services offering a range of specialist interventions, as
laid out in the Mental Health Policy Implementation Guide.14 Service users may move between
services and may be in receipt of more than one service at a time. Care co-ordination for those
under the Care Programme Approach is in the hands of one professional.15
What characterises much of adult mental health services is the level of severity of the illness
that a service user must demonstrate in order to be accepted by teams other than the GP.16
Young people transferring from a CAMH service to an AMH service may find that they no longer
meet the threshold for clinical teams, thus leaving them unsupported.
Will better service provision result in savings?There is a hidden economic cost involved in not providing services for vulnerable young people.
Long-term mental health problems often manifest themselves in childhood and adolescence.17
The NHS is under pressure to contain costs. It is difficult, at a time of financial crisis, to invest in
services when the imperative is to deliver short-term savings. However, even in the medium
term, investment in community and primary care-based mental health services should deliver
savings within the NHS and to society as a whole, as well as deliver a more humane service that
alleviates misery.
Finance directors in the NHS and local authorities who have doubts about investing in mental
health support and ill health prevention must consider the long-term social cost to service
users, their families and communities if those service users are unable to access a model of
care that supports recovery and rehabilitation.
What should services for 16-25 year-olds look like?Designing services that are acceptable, accessible and appropriate for young adults is key to
enabling them to receive help sooner rather than later.
Services for 16-25 year-olds, or which have 16-25 year-old users, should have the following in
common; they should:
• Routinely involve young people in their planning and outcome measurement. Service
providers need to be ready to be challenged by young people and need to be ready to
change their planned approach if it is not working.
• Be easy to access, with clear and readily understood protocols that make sense to young
people, as well as to professionals.
• Be able to respond in a crisis.
• Be provided in an age-appropriate environment.
• Invest in training and service development to improve pathways from community agencies to
mental health services.
• Be provided in a non-stigmatising environment.
• Be aware of the cultural needs of the young people who should be accessing the service.
• Be able to work systemically with the family and social network, as well as with the individual.
• Be recovery and rehabilitation-focused – to give young people the hope and belief that they
can move on.
• Be multi-agency, multi-problem and multi-disciplinary.
• Be prepared to cross service provision boundaries.
• Offer a range of treatment modalities.
• Offer in-patient services that are age appropriate.
What do we want commissioners to do?• Establish the nature and size of the local problem with a thorough needs assessment
involving young people. Partnerships between AMHS and CAMHS commissioners can
expand on the data in the existing Children and Young People’s Plan to develop a needs
assessment up to the age of 25.18
• Create a partnership for young adults to identify young people up to 25 who either cannot
access or who reject statutory mental health services. The partnership will need to include
education, health and social services, the YOT (Youth Offending Team), all services working
with young adults, such as Connexions, Supporting People, and housing teams and services
provided by the voluntary sector and faith communities.
• Learn from other services: there is a range of existing services for 16-25 year-olds around the
country, which have grown up in answer to local need. Information about these services is
available in the Emerging Practice Guide and via the NCSS website.19, 20
Changing the way services are provided is not just about money. The process of coming
together of CAMHS and AMHS practitioners, service users, carers and commissioners to audit
the picture for 16-25 year-olds will lead to a closer understanding of the problems and the
drivers that individuals face.
4 STRESSED OUT & STRUGGLING : A Call to Action
STRESSED OUT & STRUGGLING: A Call to Action 5
• Involving young people and their parents and carers who are using the service or who have
been through the service will give service providers the opportunity to learn what is good
about their service and what could be improved.21 Building in regular feedback from service
users and carers will enable services to monitor improvement and practice.
• Transition protocols will be examined, challenged and improved.
• Services need to review their referral policy.
• Involving other providers of services for young people with mental health problems will help
the locality to develop holistic pathways of care. Seconding sessions of CAMHS and AMHS
professionals into substance misuse or learning difficulties teams could allow non-specialist
mental health teams to improve early identification and prevention, as well as to hold more
difficult cases with multi-factorial problems.
• Particular attention must be paid to the needs of young people in further or higher education.
• Outreach in environments that young people already use – for example, drop-in centres,
youth clubs, further education (FE) and higher education (HE) colleges and areas where young
people congregate socially, such as nightclubs.
• Work in the local area on stigma and discrimination.
• If there is money available, the first call will be those areas which affect performance rating,
i.e. the development of a comprehensive CAMHS and Early Intervention Teams. However,
Early Intervention Psychosis (EIP) work can be delivered within a larger team with
responsibility for more than just psychosis. A 16-25 service can deliver crisis support,
outreach and a psychosocial, multi-systemic model to young people with other mental health
problems, as well as with psychosis.22
A Call to Action Commissioners need to support service providers to ensure that appropriate services are
available and that the complex web of local agencies is united to take account of young
people’s needs, rather than provide a one size fits all solution that fails to deliver help when it is
most needed. CAMHS and AMHS commissioners need to unite to support young people and to
create an integrated system of local planning that includes the widest possible networks of
agencies that work with young people. CAMHS and AMHS commissioners need to make sure
that they are working together to support young people in transition, rather than allowing age-
related commissioning to exacerbate fragmentation of care.
Young people want services to be accessible when they need them, in an environment that
shows they are worthy of respect, rather than one which stigmatises them further. Young people
want to be consulted, to be involved in the development of services, and commissioners will
find that this involvement will help shape and guide improvement. This does not always cost
money, but does require a willingness to examine and change practice.
There is a growing body of evidence supporting the economic argument – treatment at an
earlier stage is likely to be more effective and less costly than that which will be needed over a
lifetime, if this opportunity for early intervention is missed.16, 23 For those with mild to moderate
illness, going untreated could mean dropping out of college or losing their job. Although they
may never be admitted to hospital, the overall effect of their mental ill health on their life could
be catastrophic. For PCTs, the long-term costs of allowing mental ill health to go untreated until
a young person is in crisis will contribute to financial pressures.
6 STRESSED OUT & STRUGGLING: A Call to Action
However, both the policy imperative and economic argument underpin one fundamental
proposition: young people are in every sense the future. We can do so much to help them when
they stumble to prevent them from falling, but, when some fall, we must extend a hand to pull
them up to walk independently again. Mental health service providers in the statutory and
voluntary sectors cannot create the network of support young people need without the
assistance and commitment of commissioners to establish strategic leadership that crosses
traditional boundaries. Commissioners have the power to shape and develop existing and new
services to enable young people to recover and reach their fullest potential. We call on them to
use this power wisely and well.
STRESSED OUT & STRUGGLING: A Call to Action 7
IntroductionThis document is for commissioners of Child and Adolescent Mental Health Services (CAMHS)
and commissioners of services for ‘Adults of Working Age’ (also known as Adult Mental Health
Services or AMHS) who, between them, commission services for young adults. It is one of
several reports from the Stressed Out and Struggling (SOS) Project, funded by the Big Lottery
Fund. The project aims to raise awareness of mental health issues for young people aged 16-25
among the general public, service users and service providers, and to encourage better, more
targeted provision of services for young adults.
This document proposes that young adults aged between 16 and 25 have particular needs
which require statutory health services from CAMHS and AMHS to work together and with local
authorities and the voluntary sector to ensure that services are accessible and are available
quickly. Services must present themselves in a way which young people who are using mental
health services find acceptable, rather than a source of shame or stigma. Commissioners play a
central role in supporting this process – not just when there is new investment available but in
encouraging local reconfiguration and joint working. Commissioners have an overview of all that
is available within the local arena and of the networks available to bring interested parties
around the table to enable joint planning and closer working relationships between services. We
want commissioners to recognise that this is not just a health service development agenda, and
to see that influencing local authority housing, education, recreation and job opportunities is
critical to the recovery and successful management of these young people’s difficulties.
We suggest commissioners and providers should constantly be asking themselves the following
question: “What would I want for myself as a young person or for a member of my family?”
• Would I want treatment from a service that is interested in my views and feedback?
• Would I want a hospital out-patient appointment at a time that suits me, and quickly, or in
three months’ time?
• Would I want a choice of evidence-based treatment, including ‘talking therapies’, with clear
advice about the strengths and weaknesses of each approach?
• If I had a severe mental illness, would I want to keep using a service that usually engaged me
through coercion or hospitalisation?
• Can I still have hope for the future; that I will go to college, get a job, be in a relationship?
• Is it acceptable that services refuse to talk to me, as a parent of a service user, on the
grounds of confidentiality, but expect me and my family, as the key supporters, to cope, or
indeed that they offer me no support to deal with the impact on my family and me?
In this document we have explored the key issues for young adults, making the case for a new
approach and more targeted services. We have included what aspects of ‘Must Dos’ are
relevant to this age group, some of which require extra resources, but we also consider ‘No
Money’ options to improve services for young people, which can be achieved by localities
working smarter, not harder. We have also detailed the emerging economic arguments which
suggest that investing in services to support young people at an early stage will enable PCTs to
save money in the long term. For commissioners requiring a more detailed, toolkit approach
there are a number of documents available: the Commissioning Friend,24 underpinned by
Standard 9 of the NSF for Children, Young People and Maternity Services;25 the Mental Health
Policy Implementation Guide (MHPIG);14 the protocols being developed by HASCAS;26 the Joint
Commissioning Framework;27 and Every Child Matters.7
8 STRESSED OUT & STRUGGLING: A Call to Action
Why is it so important to get services right for 16-25 year-olds?Young people in the UK between the ages of 16 and 25 experience profound changes
that move them from the world of the child into the world of the adult. There is a general
societal expectation that, by the time they are 25, most young people will have made three
significant transitions:
• From the world of education to the world of work.
• From a dependent relationship, being parented in some form, to being independent and, for
some, to being a parent.
• From dependent living in a home environment, to independent living and creating their
own environment.
There is no other period in life where such transitions are expected to be the norm. At other
points of age-specific transition, such as starting school, starting secondary school or retiring,
most can expect the transition to change only one part of their life – for example, a child starting
secondary school is still within a dependent relationship and a dependent living environment.
Research suggests that the brain is still developing up to the age of 25 and beyond, with the
early adult years critical for the formation of self-image, social skills and impulse control.2 The
timing of the ‘normal’ maturation of brain structures suggests that society’s expectations for
young people’s planning, organisational and self-regulating capacities can be misplaced.28
Indeed, adolescent mental health in the UK is deteriorating, with emotional problems and
conduct problems worsening over the past 25 years.3 The fact that research reveals these
increases NOT to have been caused by changes in family make-up (e.g. increases in single
parent families) or by factors relating to socio-economics points to a subtle and complex
interplay of factors existing behind such trends.4 Young people are experiencing increasing
pressure in relation to scholastic achievement and greater choice in terms of major decision-
making (drugs, sex etc.), and many are financially dependent on parents into adulthood.
They may be affected by environmental factors such as greater cultural conflict, media images
at odds with reality, toxins and pollutants, greater affluence and a decline in social cohesion
and responsibility.
Young people who find society’s expectations of them overwhelming may be left with a
relatively poorly developed capacity to regulate their emotional responses; young adults who
lack the requisite emotional and psychological maturity to surmount the predictable and usual
social challenges they face will be unlikely to fulfil their potential and contribute as meaningfully
as they might otherwise have done to society. If we are to intervene early enough to prevent
chronic ill health from developing further, mental health services need to be able to offer support
to young people who are struggling to achieve psychological maturity, as well as to those who
are suffering from a severe and potentially enduring illness, such as psychosis.
One of the difficulties for commissioners of young adult services is to establish accurate
prevalence figures. There is no national data set primarily concerned with young adults, so
statistical information has to be gathered from a range of sources. The following statistics are
not a comprehensive picture and are probably an underestimation of need, but they illustrate
how many vulnerable young adults there are:
• 16-25 year-olds account for 12% of the total population – approximately 7 million.29
• 0.2% have had an assessment of psychotic disorder in the past year, or two or more
indicators of psychosis – approximately 13,000.30
STRESSED OUT & STRUGGLING: A Call to Action 9
• The average age of first onset psychosis is 22. The average time it takes for a young person
experiencing psychosis to receive help is 18 months. 80% are hospitalised during their first
episode of psychosis. 50% of young people admitted to hospital are admitted under the
Mental Health Act.14, 31
• 13.3% of 16-19s, and 15.8% of 20-24 year-olds have a neurotic disorder – approximately
946,000.30
• 1.4% of 16-19s, and 1.5% of 20-24 year-olds have a generalised anxiety disorder –
approximately 94,000.30
• 1.7% of 16-19s, and 2.2% of 20-24 year-olds have had a depressive episode – approximately
127,000.30
• 3.4% of 16-34 year-olds have a personality disorder – approximately 450,000.30
• Between 1 and 2% of young women have anorexia, and between 1 and 3% of young women
have bulimia.32
• Just over 2 million 16-25 year-olds are full time students; 55% of 16 to 19 year-olds are full
time students; and 20% of those aged 20-24 are full time students.33
• Approximately 2.1 million of 16-25 year-olds are in full time employment; 327,000 are
unemployed; 213,000 are economically inactive and looking after the home/family; and
62,000 are permanently sick or disabled.33
BackgroundThere has been considerable investment in statutory services for children, young people and
adults since the National Service Framework (NSF) for Adults of Working Age was published
in 1999 and the more recent NSF for Children, Young People and Maternity Services, which
was published in 2004.5, 6 CAMHS have benefited from the CAMHS grant and the money
given to PCTs, with targets attached to demonstrate growth in services.34, 35, 36, 37 Every Child
Matters includes good mental health as an element of one of the five key outcomes.7 Despite
this policy attention and financial investment, mental health services still offer limited choice
of treatment modality and location.8 Overstretched services have to concentrate on those
who are perceived to be most needy. Service users with severe and enduring problems often
present late and in crisis, absorbing most of the funding. Many areas struggle to deliver
the innovative services, detailed in the Mental Health Policy Implementation Guide (MHPIG)
and the comprehensive CAMHS, which must be in place by 2006.14,11 Several recent reports
have highlighted poor levels of service, poor transitions and poor choices for this age group.38, 39
A recent mapping by the SOS Project of services for 16-25 year-olds highlighted the low level
of services commissioned for this age group.9
Although NHS and local authorities have not been set explicit targets focusing on the 16-25 age
group, this group’s needs fall into a range of performance measures against which
commissioners will be monitored.40, 41 Commissioners need to consider how they will meet the
needs of young adults in order to fulfil the following:
• Improve life outcomes for adults with mental health problems by ensuring that all patients
who need them have access to crisis services by 2005, and all children have access to a
comprehensive CAMHS by 2006.10
10 STRESSED OUT & STRUGGLING: A Call to Action
• CAMHS are expected to grow by 10% per annum from 2002/3 to 2005/6. This can be
measured in terms of capacity and activity.10
• CAMHS must extend to include services for 16 and 17 year-olds by 2006.11
• Reduce the suicide rate and number of deaths by undetermined causes by 20% by 2010.10
• Improve access to general community mental heath services.10
• Reduce the duration of untreated psychosis to a service median of less than three months
and a maxiumum of six months, and provide support for the first three years for all young
people who develop psychosis by March 2007.12 This is the key target that unites CAMHS
and AMHS, as both services should be present in an EIP team.14
• Offer crisis resolution services to all eligible patients by 2005.10
• Increase breaks for carers and strengthen carer support and networks to those caring for
people on the Care Programme Approach.10
Service users who straddle the transition from CAMHS to AMHS seem particularly hard for
services to cope with – despite the need for services to have robust transition protocols on the
ground. Young people and their families can find themselves in limbo, as AMHS, CAMHS and
commissioners argue about whose budget or service takes responsibility. Some young people
who would have been assessed as needing mental health support or who have been supported
by a CAMHS team are not deemed to be ill enough to receive a service from an AMHS team.
For service users developing severe mental illness, the consequence of poor transitions is that
commissioning decisions are made around the needs of the service providers, rather than
around the young person and their family.
The tensions of the current structures for commissioning and provision
The role of the commissioner is critical in supporting and leading the changes that are
necessary to improve access to mental health services at this key time. Commissioners are the
midwives of NHS and social services planning and service development. Usually in the
background, rarely credited for their role in successful services, the role of commissioners and
their importance in shaping and developing services was acknowledged in the NSF for
Children, Young People and Maternity Services.6 Commissioners walk a tightrope, the best of
them balancing the creative tension that is necessary between the practitioners working in the
micro scale and the commissioners working across a local authority or PCT base, or, in the
case of specialist services, on a macro scale.
In the current planning and purchasing structure, CAMHS and AMHS commissioners are the
lynchpin of a complex interplay of agencies, including:
• Provider services – statutory and voluntary.
• Their own organisational planning and financial management.
• Local strategic partnerships across health, social care and for CAMHS commissioners,
with education.
• Local council members’ interests and aims.
• Service users.
STRESSED OUT & STRUGGLING: A Call to Action 11
By 2008, CAMHS will be commissioned within a Children’s Trust from a pooled budget,
simplifying some of the organisational relationships. Children’s Trusts will be responsible for
services up to the age of 19 - or 25, for those with learning difficulties/disabilities.
Commissioning for young adults will still require the commissioner within a Children’s Trust to
work closely with the commissioners of AMHS.
The reorganisation of the health and social services adds further complexity to the picture, as
Practice Based Commissioning, PCT reconfiguration, local authority enhanced coterminosity,
Direct Payments and Payment By Results come into play.
Commissioners are used to operating within a challenging framework and focusing on
performance-related objectives. The increased speed of change is coupled with the perverse
nature of some targets, which place short-term financial savings against long-term investment
in prevention and recovery-based services. Commissioners and their communities are often
aware of what services they would like to see in place, but struggle to fulfil that vision.
Commissioning mental health services is commonly divided into three age-related bands:
• Child and Adolescent Mental Health Services (CAMHS) – for 0-16s or 0-18s, (the age break
depending on local historical practice, but now required to be up to 18th birthday by the NSF).6
• Services for ‘Adults of Working Age’, also known as Adult Mental Health services or AMHS
from 16/18 to 65.
• Older People’s Services – for those over 65 or suffering from Early Onset Dementia.
There is a range of models for commissioning AMHS and CAMHS. Commissioning can be
carried out by joint social services and PCT commissioners, or by representatives from each
agency who work together when appropriate, but who otherwise work separately in different
organisations. Commissioners may plan and purchase for one client group – for example,
commissioners of children’s services may have CAMHS in their portfolio, and commissioners
for adult services of working age often have drug and alcohol services within their brief.
In the case of CAMHS, this will change with the introduction of Children’s Trusts, where officers
working for the Director of Children’s Services will have overall responsibility for purchasing
from within a pooled budget.
In the future, Practice Based Commissioning may see GP practices purchasing adult mental
health services or ‘buying back’ into PCTs and local authorities for services that need to be
provided on a locality basis. However, where commissioning is divided along the age breaks,
there is a danger that, as each commissioner is charged with staying within budget, a silo
mentality develops between commissioners from the same locality, with each commissioner
protecting his or her budget.
The service provision structure of CAMHS does not match that of AMHS. Access to CAMHS is
often described in terms of four Tiers, first defined by the Health Advisory Service in Together
We Stand.13
12 STRESSED OUT & STRUGGLING: A Call to Action
The four CAMHS Tiers
These Tiers have caused confusion, as an increase in the tier number implies an increase in
severity, rather than a model based on access. To counter this, some services are now
beginning to describe their services as universal, targeted or specialist. CAMHS teams have
received extra funding over the last five years and may include, at Tiers 3 and 4 (targeted or
specialist), services for special needs groups such as Looked After Children, Eating Disorders,
Learning Difficulties/Disabilities, and Adolescent Outreach. However, there is no defined
structure for a CAMHS team, no universally understood menu of services other than that which
is described in the NSF for Children, Young People and Maternity Services under
Comprehensive CAMHS, based on that from Together We Stand.11,13 This is in contrast to the
Mental Health Policy Implementation Guide, in which service models are described in depth,
so that commissioners and providers have a clear idea of what it is they are expected to provide
and fund.14 CAMHS aims to work in a holistic/multi-systemic way, with the child, family and, at
times, the school supporting both the young person and their environment/system through the
process of change.
Tier 4:Specialist
services: out-patient and in-patient requires
referral from Tier 3.
Tier 3: Specialist CAMHSpractitioners working in a multi-
disciplinary team. Usually requiresreferral from a Tier 1 or 2 professional.
Tier 2: Specialist individual practitioner working witha service user/family. The practitioner may be attached
to a non-CAMHS team e.g. within a YOT, or to a CAMHSteam or network. Usually requires referral from Tier 1.
Tier 1: Professional with knowledge of and training in children’sissues, but not a specialist CAMHS practitioner,
e.g. GP, social worker. Users and carers may self-refer.
STRESSED OUT & STRUGGLING: A Call to Action 13
Mental health services commissioned for adults of working age AMHS is organised around teams and services offering a range of specialist interventions, as
laid out in the Mental Health Policy Implementation Guide:14
• Forensic Mental Health Services for service users who have committed a serious crime during
the course of a severe episode of mental illness.
• In-patient services for service users for whom hospital care is the best or only option to allow
them to engage with services – admission can be voluntary or involuntary under the Mental
Health Act. This may include in-patient rehabilitation wards and specialist services, such as
for Eating Disorders.
• Assertive Outreach Teams working with service users with severe and enduring mental health
problems who fail to engage with community mental health teams.
• Crisis Resolution Teams: multi-disciplinary teams working with those experiencing a mental
health crisis to support service users, wherever possible, to be stabilised within the
community, and avoid admission.
• Community Mental Health Teams (CMHT): multi-disciplinary teams working with service users
with severe and enduring mental health problems, usually after referral from a GP or
discharge from an in-patient bed.
• Out-patient clinics for service users who are not eligible for CMHT care but whom the
psychiatrist is not ready to discharge to primary care.
• Psychological therapies for service users who would benefit from talking therapy, e.g.
Cognitive Behavioural Therapy.
• Early Intervention Psychosis teams working with young people aged 14-35 experiencing
their first episode of psychosis: service users stay with the EIP team for up to three years.
• Graduate Mental Health Workers, based in primary care, taking referrals from GPs.
• Employment and training schemes and drop-in centres in the community.
• Primary care provision from GPs.
• Residential care and supported housing, supporting people schemes.
• Day hospital services.
Service users may move between services and may be in receipt of more than one service at
a time. Care co-ordination for those under the Care Programme Approach is in the hands of
one professional.15 What characterises much of adult mental health services is the level of
severity of the illness that a service user must demonstrate in order to be accepted by teams
other than the GP.16 Severe shortages in psychological therapies means that those experiencing
mental health problems, but without a severe and enduring diagnosis, are by and large treated
within primary care using medication. Young people transferring from a CAMH service to an
AMH service may find that they no longer meet the threshold for clinical teams, leaving the
young person unsupported. The issue of confidentiality means that parents and carers of young
people with mental health problems have limited rights to be consulted and involved in the
young person’s care. Although there is a growth in understanding of the need for a psychosocial
model of care – e.g. where children are seen in the contexts of family and school – limited
resources make it very difficult for clinicians to employ this model in many circumstances.
Commissioners should be aware that the particular needs of 16-25 year-olds who are struggling
to make transitions may stem from delayed emotional and psychological development, and it is
therefore all the more appropriate – and necessary – that these young people are seen ‘in the
round’ in terms of their emotional and social networks.
The two areas where CAMHS and AMHS commissioning must overlap within the current policy
and performance management framework are in commissioning Early Intervention Services14
and primary care. Early Intervention Psychosis teams should work with young people from the
ages of 14 to 35, and include both CAMHS and AMHS practitioners. Primary Care Teams work
with all age groups to provide universal services. Although some PCTs have developed creative
new services for 16 to 25 year-olds, many areas are not yet able to meet the needs of young
adults with mental health problems.19
14 STRESSED OUT & STRUGGLING: A Call to Action
CAMHS commissioning AMHS commissioning
The CAHMS and AMHScommissioning overlap for servicesfor 16-25s: where CAMHS andAMHS are required to work together
Early Intervention
Psychosis
Primary care
Services for 16-25s
Tier 4 In-patient and out-patient
Specialist services
Tier 3 Specialist services
CMHT
Out-patient
Assertive outreach
In-patient
Forensic
Residential care
Crisis resolution
Day Hospitalservices
Psychologicaltherapies
Graduate MentalHealth Workers
Tier 2 Targeted services
Tier 1 Universal services
Employment andtraining
STRESSED OUT & STRUGGLING: A Call to Action 15
Will better service provision result in savings?There is an economic cost to not providing, as well as in providing, services to meet the
needs of young people. Long-term mental health problems manifest themselves in childhood
and adolescence. The research by Kim-Cohen et al considered the age of first diagnosis of 226
26 year-olds with a mental disorder in receipt of psychiatric treatment, from a cohort of 976
people who were followed from childhood.17 Of those 226, 57.5% were diagnosed before the age
of 15; 19% between 15 and 18; 10.2% between 18 and 21; and 13.3% after 21 and before 26.
The NHS is under pressure to contain costs. It is difficult, at a time of financial crisis, to invest in
services when the imperative is to deliver short-term savings. However, even in the medium
term, investment in community and primary care-based mental health services should deliver
savings within the NHS and to society as a whole, as well as deliver a more humane service that
alleviates misery.
Previous research into the cost-effectiveness of CAMHS interventions is limited and not very
robust,42 although there are a number of studies currently underway. Clark et al determined that
the cost of services for an average child with complex mental health problems was, at 2000/01
prices, £52,884, of which 5% was a cost to health, 52% to social care, 39% to education, 3% to
criminal justice and 1% to the voluntary sector.43
In June 2004 the Social Exclusion Unit (SEU) summarised the average costs of various adult
mental health services.44
Cost per in-patient per day:
• NHS psychiatric intensive care unit = £420.
• Acute psychiatric ward = £165.
• Long-stay hospital = £141.
Costs of other mental health services:
• Cost per average stay in intensive care unit = around £5,169.
• Community Mental Health Team = around £59 per hour of patient contact.
• Privately obtained talking therapy or counselling = around £732 per year.
• Basic cost of medication treatment for depression = around £170 per year.
The Commissioning Friend states: “From these figures it is clear that, with limited resources
available to meet the needs, it is in the interests of commissioners to invest in the less costly
early interventions to support people experiencing mental health problems in order to minimise
the use made of the most expensive forms of treatment which people may require if their
conditions are left to escalate.”24
In December 2004, Lord Layard described mental health as “Britain’s biggest social problem”,
with a cost to the economy of 2% of GDP, i.e. £25 billion, and with more people drawing
incapacity benefit due to mental illness than unemployed people drawing Jobseekers Allowance.
Lord Layard called for extra provision of evidence-based psychological therapies, local self help
facilities, fast tracking of patients who do not improve within primary care to consultant-led
services, and an immediate expansion in levels of clinical manpower.16
16 STRESSED OUT & STRUGGLING: A Call to Action
If the arguments focusing on the effects of mental ill health and our duty of care to provide
humane and effective support to young people in distress are not enough, it is worth
considering that it makes no sense from an economic perspective to have a significant section
of the workforce unable to work due to mental health problems, many of which are preventable
or treatable. In an ageing society, future generations will need the economic capacity of the
maximum number of the population. Finance directors in the NHS and local authorities who
have doubts about investing in mental health support and ill health prevention must consider
the long-term social cost to service users, their families and communities if those service users
are unable to access a model of care that supports recovery and rehabilitation.
Services to meet the needs of the individualIndividual service users have unique needs, which require mental health professionals to
work to accommodate their needs, rather than provide a ‘one size fits all’ approach. This is
not always possible, because not all localities have access to a full range of services; for
example, EIP teams are new and fragile, and some are ‘virtual’ teams, which may take longer
to function effectively.45 The NHS is changing in its understanding of the need to involve its
users, to offer real and genuine choice. The Choice Agenda, in relation to mental health
services, will offer service users a range of choices about:8
• Life choices.
• How and where they make contact with mental health services and when and where
they are assessed.
• A range of care options and information about what is available.
It is particularly important that commissioners and providers understand what kinds of services
users are most likely to engage with. Young adults have particular issues and needs which need
to be taken into account when designing or reconfiguring services. Commissioners and
providers must be prepared to ask users and carers what services they would like to receive,
rather than designing services that meet the needs of the professional team.
What should services for 16-25 year-olds look like?Making services accessible and appropriate for young adults is key to enabling them to receive
help sooner rather than later. There is considerable research into what young people think about
current services and what needs to change.38, 46, 47
Services for 16-25 year-olds, or which have 16-25 year-old users, should have the following in
common; they should:
• Routinely involve young people in their planning and outcome measurement. Service
providers need to be ready to be challenged by young people and need to be ready to
change their planned approach if it is not working.
• Be easy to access, with clear and readily understood protocols, which make sense to young
people as well as to professionals – young people report difficulties in accessing mental
health services.
• Be able to respond in a crisis – desperate young people in a crisis are highly vulnerable and
are more likely to act on impulse.
STRESSED OUT & STRUGGLING: A Call to Action 17
• Be provided in an age-appropriate environment. A 17 year-old in a child development clinic
that is strewn with baby toys is not likely to feel respected or comfortable.
• Invest in training and service development to improve pathways from community agencies to
mental health services.
• Be provided in a non-stigmatising environment. Young people are very sensitive to the
potential impact on their social circle of being in receipt of mental health services, so a
drop-in type approach where a range of services for young people is available is much more
likely to be attractive than a hospital out-patients clinic. A voluntary sector service can be
more acceptable to young people.48, 49
• Be aware of the cultural needs of the young people who should be accessing the service –
for example, non Muslim service providers need to understand the beneficial effects of prayer
in communities where faith is a key part of their lives.38
• Be able to work systemically with the family and social network, as well as with the individual.50
• Be recovery and rehabilitation-focused – to give young people the hope and belief that they
can move on.
• Be multi-agency, multi-problem and multi-disciplinary – young people rarely have only one
problem. The transitional nature of their circumstances means that they may find their family
withdrawing, so that they lose their home, as well as their education. A number of couples stay
together until their children have left home, and then separate. This can produce a significant
sense of loss of home and security for the children, who may not yet have made a secure
home elsewhere. Services are developing for young people with a substance misuse problem
but in-patient facilities for young people with a dual diagnosis are limited and have a high cost.
• Be prepared to cross service provision boundaries – to follow someone for a period and hand
over care when it is appropriate, rather than on a date which is determined by their birthday.
• Offer a range of treatment modalities. Young people and their families want and need more
than just medication.
• In-patient services need to be age-appropriate. Young people under the age of 18 should be
admitted to an adolescent unit close to home unless there are clinical reasons which indicate
an adult ward is more appropriate.11 If young people under the age of 18 are admitted to an
adult ward, adult services need to have access to and advice from the CAMHS team; be
aware of legal issues pertaining to care for the under 18s; and ensure that the needs of the
young person are met, such as continued access to education. Small Crisis Houses – as per
the model for Early Intervention14 – rather than in-patient wards, are more appropriate for
some young adults who are too old for adolescent units than busy wards with long-term
chronic service users up to the age of 65. The Crisis House can provide short-term respite
and admission prevention, supported by mental health professionals. Young people need to
be kept close to their community to help them to reintegrate when they recover, and
commissioners need to ensure that in-patient services are part of a pathway to rehabilitation,
rather than a place where young people are stuck, by providing good outreach teams.
18 STRESSED OUT & STRUGGLING: A Call to Action
What do commissioners need to do?The first step for commissioners to build services that meet the needs of young adults is to
establish the nature and size of the local problem. All commissioners should have a local
Children and Young People’s Plan which can be extended to include 19 to 25 year-olds.18
Commissioners need to:
• Consult with young people who are currently in receipt of services about their experience of
aspects such as: the referrals process; making appointments; the variety of treatment
modalities available; and what they thought about the environment and the location of the
service. This will help identify areas of concern, as well as areas of good practice. Consulting
service users is not easy, but services that have done so have found the process to be very
worthwhile – see Putting Participation into Practice.21 It can also be very helpful to ask young
people who were referred but who did not attend or who refused treatment why they did not
engage with the service, in order to see if there are blocks in the system which are putting
young people off receiving treatment before they reach a crisis. 25-35 year-old service users
provide invaluable recent insight into how statutory services supported them and what
services they wish had been available to them as young adults.
CAMHS commissioning AMHS commissioning
The CAMHS to AMHScommissioning overlap: what services should becommissioned
Services for 16-25s
Tier 4 In-patient and out-patient
Specialist services
Tier 3 Specialist services
CMHT
Out-patient
Assertive outreach
In-patient
Forensic
Residential care
Crisis resolution
Day Hospitalservices
Psychologicaltherapies
Graduate MentalHealth Workers
Tier 2 Targeted services
Tier 1 Universal services
Employment andtraining
16-25s
Early Intervention Psychosis
Young adults outreach
Young adults out-patient
Age appropriate in-patient
Crisis house
Crisis service
Transition services
Counselling services
Voluntary sector services
Employment and training support
Support for parentsand carers
Primary care
STRESSED OUT & STRUGGLING: A Call to Action 19
• Consult with parents and carers about their experience and views about what parents and
carers need in order for them to feel confident and able to support their young people.
• Ensure that the Local Strategic Partnership is committed to meeting the needs of young
adults.51, 52 The Local Implementation Team (LIT) and CAMHS planning forum need to come
together to audit the numbers of 16-25 year-olds within the current services, the nature and
kind of presentation – how and when they presented, e.g. in crisis – and the diagnosis. The
outcome of the audit should then be compared to national prevalence figures. Consider how
many times the young person tried to access services before the referral was accepted, or
the length of time from the first onset of symptoms to treatment. Comparing CAMHS and
AMHS local ‘hotspots’, localities that generate higher than average referrals and admissions,
can help planners and service providers to target preventative work.
• Audit admission rates to determine how many young people could have remained at home in
the community or who could have been discharged more quickly if there was a dedicated
service, such as an adolescent outreach team, to support them. This data needs to be cross-
referenced with known indicators of mental disorders, such as exclusion, and poverty.
• The LIT and CAMHS planning forum will include education, health and social services and the
YOT, but the audit must include all services working with young adults, such as Connexions,
Supporting People, housing teams and services provided by the voluntary sector and faith
communities to identify young people who either cannot access, or who reject, statutory
mental health services.
• Learn from other services: there is a range of existing services for 16-25 year-olds around the
country, which have grown up in answer to local need. Information about these services is
available in the Emerging Practice Guide and via the NCSS website.19, 20
Changing the way services are provided is not just about money. The process of coming
together of CAMHS and AMHS practitioners, service users, carers and commissioners to audit
the picture for 16-25 year-olds will lead to a closer understanding of the problems and the
drivers that individuals face.
• Involving young people and their parents and carers who are using the service or who have
been through the service will give service providers the opportunity to learn what is good
about their service and what could be improved.21 Building in regular feedback from service
users and carers will enable services to monitor improvement and practice.
• Transition protocols will be examined, challenged and improved. Examining the admission
pathways for specimen cases will help find solutions to operational problems and barriers.
For example, the solution to the problem of funding disputes between AMHS and CAMHS
commissioners for in-patient care of young people in the year before and after transition
between services could be to establish a pooled budget, with both commissioners involved in
the decision to admit. AMHS could agree to instigate treatment for a young person who
presents at an age close to the agreed age break for transition and who is clearly going to
require treatment for a period beyond transition. CAMHS could agree to follow up a service
user who has been in receipt of care for a long period but whose treatment can be brought to
a close within a year of the transition age break.
• Services need to review their referral policy. Young adults may not turn to their GP, and those
that do find that help is limited. Although there is considerable work, for example within the
EIP programme, to support early recognition of problems, services could pilot a range of
referral options, including dissemination of information, to see if self-referral or referral from
other agencies enables young people to access help appropriately before they reach crisis.
20 STRESSED OUT & STRUGGLING: A Call to Action
• Involving other providers of services for young people with mental health problems will help
the locality to develop holistic pathways of care. Seconding sessions of CAMHS and AMHS
professionals into substance misuse or learning difficulties teams could allow non-specialist
mental health teams to improve early identification and prevention, as well as to hold more
difficult cases with multi-factorial problems.
• Particular attention must be paid to the needs of young people in further or higher education
– college counselling services need to have regular contact with agencies that can deliver
enhanced services before problems escalate.
• Outreaching in environments that young people already use – for example, drop-in centres,
youth clubs, further education and higher education colleges and areas where young people
congregate socially, such as night clubs – will both de-stigmatise mental health problems and
make services more accessible.
• The impact of stigma and the need to improve mental health literacy can have a profound
impact on young people seeking help. For instance, commissioners can encourage initiatives
whereby Early Intervention services engage with schools and colleges.
• Providing mental health services for parents and carers can deliver a dual benefit in terms of
supporting parents and carers in their role and can create a pathway for a young person into
seeking treatment themselves.53
• If the commissioners have money available to set up new services, the first call will be those
areas which affect performance rating: i.e. the development of a comprehensive CAMHS and
Early Intervention Teams.10, 12 However, EIP work can be delivered within a larger team with
responsibility for more than just psychosis. A 16-25 service can deliver crisis support,
outreach and a psychosocial, multi-systemic model to young people with other mental health
problems, as well as with psychosis.22
STRESSED OUT & STRUGGLING: A Call to Action 21
A Call to Action As society grows increasingly complex, more and more is asked of our young people as they
take their place as adults. The years of transition require young people to negotiate major
changes but, at the same time, more young people are suffering mental ill health and in
consequence failing to reach their full potential or achieve and maintain their independence.
Commissioners need to support service providers to ensure that appropriate services are
available and that the complex web of local agencies is united to take account of young
people’s needs, rather than to provide a one size fits all solution which fails to deliver help when
it is most needed. CAMHS and AMHS commissioners need to unite to support young people
and to create an integrated system of local planning that includes the widest possible networks
of agencies that work with young people. At the same time, CAMHS and AMHS commissioners
need to make sure that they are working together to support young people in transition, rather
than allowing age-related commissioning to exacerbate fragmentation of care.
There is now a wide range of evidence to demonstrate what young people want from services.
Much of what they want to see does not require pump priming and funds, but requires a
willingness to examine practice and change, if necessary. Young people want services to be
accessible when they need them, in an environment that shows they are worthy of respect,
rather than one which stigmatises them further. Young people want to be consulted and to be
involved in the development of services, and commissioners will find that this involvement will
help shape and guide improvement.
There is a growing body of evidence to support the economic argument – treatment at an earlier
stage is likely to be more effective and less costly than that which will be needed over a lifetime
if this opportunity for early intervention is missed. If we fail to engage with young people at an
early stage, there is a much greater possibility that their illness will become a long-term, chronic
pattern of admission and readmission. For those with mild to moderate illness, going untreated
could mean dropping out of college or losing their job. Although they may never be admitted to
hospital, the overall effect of their mental ill health on their life could be catastrophic. For PCTs,
the long-term costs of allowing mental ill health to go untreated until a young person is in crisis
will contribute to financial pressures.
However, both the policy imperative and economic argument underpin one fundamental
proposition: young people are in every sense the future. We can do so much to help them when
they stumble to prevent them from falling, but, when some fall, we must extend a hand to pull
them up to walk independently again. Mental health service providers in the statutory and
voluntary sectors cannot create the network of support young people need without the
assistance and commitment of commissioners to establish strategic leadership that crosses
traditional boundaries. Commissioners have the power to shape and develop existing and new
services to enable young people to recover and reach their fullest potential. We call on them to
use this power wisely and well.
22 STRESSED OUT & STRUGGLING: A Call to Action
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STRESSED OUT & STRUGGLING: A Call to Action 23
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This paper has been produced as part of the YoungMinds Stressed Out and Struggling (SOS)Project which aims to highlight the mental health needs of 16-25 year-olds, and campaigns toimprove access to and acceptability of mental health services for this age group.
The SOS project team wishes to thank mental health service commissioners, CAMHS RegionalDevelopment Workers, colleagues from the London Development Centre, the Health and Social CareAdvisory Service and the Care Services Improvement Partnership, the national leads from the EarlyIntervention in Psychosis Programme and colleagues from YoungMinds Research, Consultancy andTraining departments for their help and advice.
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