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2nd November 2007 www.eufami.org 1
GAMIAN-Europe’s 10th Anniversary2007 Annual Educational Convention
Stigma – by and in the family
2nd November 2007Zagreb, Croatia
Inger NilssonPresident
2nd November 2007 www.eufami.org 2
AGENDA
• EUFAMI - Introduction• Mental Illness• Education• Stigma• Discrimination• Media and Mental Illness• Stigma - Consequences• Ways to eliminate Stigma• Guidelines
2nd November 2007 www.eufami.org 3
History
• European Federation of Associations of Families of People with Mental Illness
• Founded 1992 ‘seed’ sown at family congress at De Haan in 1990 The De Haan Manifesto
• Founding Principle commitment to improving care and welfare for all
people affected by mental illness – including families and carers
The right to be heard as a group with a ‘vested’ interest
• Based in Leuven, Belgium
2nd November 2007 www.eufami.org 4
MENTAL ILLNESS
• Major Health Problem untold suffering
• Effects most families at some stage• 1 in 4 will experience a mental health problem• One of the most excluded from society• Economic costs are enormous
2nd November 2007 www.eufami.org 5
EDUCATION
• Some of the common myths
People with mental health problems are violent and dangerous
People with mental health problems are poor and less intelligent
Mental health problems are caused by personal weakness
Mental illness cannot be treated
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STIGMA
Stigma means a mark or sign – of shame, disgrace or disapproval
Being shunned or rejected by others Disrespect Negative labels
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DISCRIMINATION
• The stigma surrounding mental illnesses, such as schizophrenia, is strong in our community
• Discrimination is experienced constantly, e.g. employment accommodation healthcare finance simply making friends
• Stigma affects not only those with the illness, but their families and carers as well
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The First Year
• 1993• Family/relatives – friends• Work• Accusations• Silence - Pricken• Sick leave - Depression
2nd November 2007 www.eufami.org 9
MEDIA AND MENTAL ILLNESS
• Topics most commonly reported crime - homicides, drugs, violent incidents
• Topics least commonly reported mental health services, family or user stories
• Most commonly quoted lawmakers, victims, health officials
• Least commonly quoted people with mental illness, families, carers
• Media reporting - adverse effect on people with mental illness and their families
• Reporting is unfair, biased and unbalanced
2nd November 2007 www.eufami.org 13
STIGMA - CONSEQUENCES
• Stigma - one of the most serious and oppressing factors confronting persons with mental illness and their families
• Impact can be devastating and sometimes fatal• Result of stigmatisation
Feelings of isolation and depression are a common• The effects of stigma include
Discouragement, hurt and anger Lowered self-esteem Broken or disrupted relationships Negative labelling Decreased chance of employment
2nd November 2007 www.eufami.org 15
•Increase in Stigma
•Feelings, fear, shame
•“Lumping everyone together”
•Without nuances
Personal Experience Effects – Carer and users
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WAYS TO ELIMINATE STIGMA
• Education• Talking Openly• Quality Support and Treatment• Personal Role• Language• Media
2nd November 2007 www.eufami.org 17
GUIDELINES
• Treat Mental Illness as a health rather than safety issue • Check for internal guidelines for reporting mental illness copy • Be aware of language• Try to obtain family and carers comments• Always consider quoting either user or family/carer• If reporting in a ‘crime’ context, be aware of the statistics• Consider all sides and the effects that the story may have• Media Packs are now available from main voluntary bodies• Be sensitive and responsible
Nobody is asking for special favours, just balance and justice