20 1 9 ANNUA L R E PORT

Thank you for trusting the Dystonia Medical Research Foundation (DMRF) to lead the charge to find a cure and for your confidence in the scientific process to deliver thebreakthroughs we are fighting for every day.

Hope keeps the DMRF moving forward. Hope is the powerfulfeeling of expectation that an achievement will be fulfilled.The research continually provides an abundance of hope. We see proof that the work of the Foundation is producing results. Countless lives have been changed for the better because of the vibrant research field dystonia has becomeand the resources DMRF makes available to patients andfamilies every day.

Hope feeds the endurance required to seek answers, no matter how complicated the questions and despite whateverinevitable obstacles appear. DMRF-funded investigators

know that families are counting on them to make meaningfuldiscoveries and ultimately improve quality of life.

Hope is essential to living with dystonia. Hope provides thestrength to manage everyday challenges, to wait and see if anew treatment approach will help, and to trust that dystoniaresearchers are on the cusp of the next breakthrough.

Thank you for trusting the DMRF with your hope. All of theaccomplishments highlighted in this report were made possiblebecause of you—because of your generous support and yourvision for the future. We are in this together. The DMRF willnot stop until a cure is available for every dystonia.

Art Kessler Janet L. HieshetterPresident Executive Director

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art KessLerPresiDent

Janet L. HiesHetterexecutive Director

“The DMRF is responsible for almost all the dystonia research that’s done today.”

Joel S. Perlmutter, MD, Scientific Director

MESSAGE FROM LEADERSHIP

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Every member of the Board of Directors is personally impacted by dystonia—either theyor a loved one has been diagnosed. The Board is acutely aware of the urgency of DMRF’swork because they experience dystonia in their own lives every day. They are tirelessin their dedication to finding a cure and supporting affected individuals and families.

The dedication of the Board of Directors was reflected in the successful surpassing ofpersonal Board fundraising goals from the previous year. Board Members were alsoactive in supporting DMRF events such as Dystonia Zoo Walks and Advocacy Day.

THE BOARD OF DIRECTORS IS COMMITTED TO FINDING A CURE. MISSIONthe mission of the Dystonia Medical research Foundation(DMrF) is to advance research for more effective treatmentsand ultimately a cure, to promote awareness and education,and to support the well-being of affected individuals and families.

ABOUT DYSTONIADystonia is a neurological disorder that causes excessive, involuntary muscle contractions. these involuntary contractionsforce the body and limbs into abnormal movements and postures.Dystonia may affect a single body area or be generalizedthroughout multiple muscle groups. Dystonia affects men,women, and children of all ages and backgrounds. estimatessuggest no fewer than 250,000 people in the united statesare affected. Dystonia causes varying degrees of disability andpain, from mild to severe. although treatments exist, dystoniaremains a chronic disorder for which there is not yet a cure.

“This is a more complex and richer field than I ever imagined, and one

that keeps budding new flowers. We understand more and more now,

and that understanding can be translated into more

successful treatments.”Mahlon R. DeLong, MD, Scientific Director Emeritus

& Lifetime Honorary Board Member

Niccolo Mencacci, MD, PhD is among the20 member Medical & Scientific AdvisoryCouncil (MSAC), which advises the DMRFBoard of Directors on research matters.

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Mahlon R. DeLong, MD retiredafter 25 years of exceptional serviceto DMRF as Scientific Director. He remains involved as ScientificDirector Emeritus and LifetimeHonorary Board Member. Joel S.Perlmutter, MD, Elliot Stein FamilyProfessor of Neurology and Headof the Movement Disorders Programat Washington University in St. Louis,now serves as DMRF Scientific Director. Dr. Perlmutter is a long-time member of the Medical & Scientific Advisory Council (MSAC)

and Co-Director of the Dystonia Coalition. As Scientific Director, Dr. Perlmutter works closely with DMRF Chief Scientific Advisor Jan Teller, MA, PhD and DMRF Vice President of Science Richard Lewis, MD in planning and evaluating the Foundation’s scientific efforts. He also serve as the Chairperson of the MSAC and offers guidance to the Board of Directors on dystonia research matters.

“It has been an absolute honor to

serve as President of the DMRF

with Dr. DeLong as our Scientific

Director. His contributions to

the DMRF’s scientific program

will resonate forever. We are

fortunate that Dr. Perlmutter

is stepping into this role, in

continuance of his steadfast

dedication to the Foundation.

I am deeply appreciative for

their leadership in the dystonia

field and devotion to patients

and families.”

Art Kessler, President

SMOOTH TRANSITION OF SCIENTIFIC LEADERSHIP ENSURED RESEARCH CONTINUES WITHOUT INTERRUPTION.

Joel Perlmutter, MD (R) became DMRF’s Scientific Director after Mahlon DeLong, MD transitionedto Scientific Director Emeritus and Lifetime Honorary Board Member.

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Role of the X-linked Dystonia Parkinsonism(XDP) Causative Gene TAF1 in the Striatal Development and MaintenanceMaria Cirnaru, PhDMount Sinai School of Medicine (USA)Mentor: Michelle Ehrlich, MD

CRISPR/Cas9 System Targeting Specific DYT1 Allele Mutation in Patient iPSCs: A Strategy for Phenotype Reversion in iPSCs-derived Neurons Lilian Cruz, PhDMassachusetts General Hospital (USA)Mentors: Xandra Breakefield, PhD & Cris Bragg, PhD

Developmental Regulation of eIF2alpha Pathway Activity and its Significance for DYT1 DystoniaAshley Helseth, MD, PhDDuke University Medical Center (USA)Mentor: Nicole Calakos, MD, PhDBarbara Oliver Memorial Dystonia Research Award

Using the Nematode Caenorhabditis elegans toIdentify Candidate Substrates for OOC-5/torsinAGabriela Huelgas-Morales, PhDUniversity of Minnesota (USA)Mentor: David Greenstein, PhDBarbara Oliver Memorial Dystonia Research Award

A Genetic Approach towards Identifying Torsin Function in Relation to DYT1 DystoniaAnthony Rampello, PhDYale University (USA)Mentor: Christian Schlieker, PhDSupported by the family of Barbara and Ron Oliver

Impact of Microglia on Abnormal SynapticPlasticity and Development of Dystonia inTransgenic DYT1 Mouse ModelsLisa Rauschenberger, MD, PhDUniversity Hospital of Würzburg (Germany)Mentor: Chi Wang Ip, MD, PhDDavid M. Rudolph Dystonia Research Fund Award

“The dystonia community cannot wait for new pharmaceutical and biotech companies to get

interested in dystonia on their own. DMRF has a responsibility to encourage and support drug

discovery efforts while we work constantly to engage pharma and industry partners.”

Jan Teller, MA, PhD, Chief Scientific Advisor

A healthy research field requires attracting young investigators. DMRF provides funding opportunities at strategic stages in a young researcher’s career. DMRF funded six research fellowships:

RESEARCH FELLOWSHIPS ENGAGED BRIGHT NEW INVESTIGATORS AND IDEAS.

DMRF MSAC Member and grant recipient Roy Sillitoe, PhDis clarifying the role of the cerebellum in dystonia. 6

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The DMRF continues to work every day to nurture and expand the field of dystonia research and partner with experts across scientific disciplines. Since1976, DMRF has funded hundreds of research investigations. In 2019, DMRF-funded investigators pursued new treatment strategies, explored dystoniabrain networks, targeted dystonia-causing genes, and studied the proteins encoded by these genes. DMRF funded the following 19 investigations:

RESEARCH INVESTIGATIONS MADE CRITICAL SCIENTIFIC ADVANCEMENTS TOWARD NEW THERAPIES AND A CURE.

Neuroanatomical Substrates for Disrupted eIF2alpha Signaling in DystoniaNicole Calakos, MD, PhD, Duke University Medical Center (USA)

Myoclonus-Dystonia, A Study of Motor and Non-Motor Symptoms: Is there a Role for Serotonin?Marina de Koning-Tijssen, MD, PhDUniversity Medical Center Gröningen (The Netherlands) Supported by Brown Family Foundation

Machine Learning Guided Deep Brain Stimulation to Cure Neurological DiseaseJesse Goldberg, MD, PhD, Cornell University (USA)Supported by Dorothy Feiss Scientific and Medical Research Fund

Variable Expressivity in SGCE-associated Myoclonus-Dystonia: Insights from Epigenetics and Transcriptomics Karen Grütz, PhD, University of Lübeck (Germany)Supported by Brown Family Foundation

Striatal Neuron Activity Patterns in DystoniaEllen Hess, PhD, Emory University (USA)

Tremor, Oscillations, Synaptic Plasticity, and DBS for DystoniaWilliam Hutchison, PhD, Toronto Western Hospital (Canada)Supported by Dystonia Medical Research Foundation Canada

Unraveling Hierarchical Network Loops in Isolated Dystonia Xin Jin, PhD, The Salk Institute for Biological Studies (USA)Supported by Cure Dystonia Now & Benign Essential BlepharospasmResearch Foundation

Using Functional Connectivity toOptimize Deep Brain Stimulation inDystoniaAndrea Kühn, MD, Charité University Berlin (Germany)Supported in collaboration with Cure Dystonia Now

Banking of Myoclonus-Dystonia Biological Materials Mark LeDoux, MD, PhD, University of Memphis (USA)Supported by Brown Family Foundation

CONTINUED ON PAGE 8

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CONTINUED FROM PAGE 7

Determining the Role of Torsin in Nuclear Pore Complex AssemblyPatrick Lusk, PhD, Yale University (USA)

Synaptic Plasticity in a Mouse Model of Paroxysmal DystoniaAlexandra Nelson, MD, PhDUniversity of California, San Francisco (USA)

Investigating Multimodal Neuroimaging for Probing Brain Networks in Cervical Dystonia Richard Reilly, PhDTrinity College Dublin (Ireland)Supported in collaboration with Cure Dystonia Now

Investigation of Striato-Pallidal Connections in a Mouse Model of DYT1 DystoniaGiuseppe Sciamanna, PhDUniversity of Rome Tor Vergata (Italy)

Integrative Network and its Proprioceptive Modulationto Probe Physiology and Therapy of Cervical DystoniaAasef Shaikh, MD, PhDCase Western Reserve University (USA)Supported by Estate of Jocelyn Baker

Interregional Brain Connectivity in a Mouse Model of Cerebellar-Induced DystoniaRoy Sillitoe, PhD, Baylor College of Medicine (USA)Supported in collaboration with Cure Dystonia Now

Dystonia-associated Endoplasmic Reticulum Dysfunction in the (de)Regulation of NeurotransmissionPatrik Verstreken, PhD, VIB Leuven (Belgium)

Three-Dimensional Network Architecture of DystoniaAn Vo, PhD, The Feinstein Institute for Medical Research (USA)

Identification of Neuronal Mechanisms of Agency in Myoclonus-DystoniaYulia Worbe, MD, PhDPitié-Salpêtrière Hospital (France)Supported by Brown Family Foundation

Deciphering the Sources of Myoclonus in DYT-SGCE PatientsYulia Worbe, MD, PhDPitié-Salpêtrière Hospital (France)Supported by Brown Family Foundation

Erwin Jackson, PhD is among the 20+ members of the DMRFBoard of Directors who are leading the mission to cure dystonia.

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The Dystonia Coalition is a collaboration ofmedical researchers and patient advocacygroups supported by the Office of Rare

Diseases Research in the National Center for Advancing Translational Sciencesand the National Institute of Neurological Disorders & Stroke (NINDS) at theNational Institutes of Health (NIH). The mission is to advance the pace of clinical and translational research in the dystonias to find better treatments and a cure. The objectives are to develop a fuller understanding of the many features of dystonia and how they change over time, to develop validated diagnostic strategies and rating tools for diagnosis and monitoring patients inclinical trials, to establish a biorepository where blood and other samples can be stored and distributed for research, to stimulate clinical trials for new treatments, and to promote education and awareness.

The DMRF plays an integral role by providing administrative support at no cost,which means Coalition funding is directed fully to science. This has saved the Dystonia Coalition $1.5 million in indirect costs, maximizing funds invested inresearch. The Dystonia Coalition was renewed in 2019 and is funded through 2024.

The Global Dystonia Registry is a collab-orative research

initiative that depends on the DMRF for operational andadministrative management. The Global Dystonia Registrysupports future dystonia studies, including clinical trials,through the confidential collection of patient data anddistribution to dystonia investigators. To date, more than5,800 individuals have joined.

The Dystonia Brain Collective is anotherDMRF-led collaborative effort among participating dystonia organizations. The purpose is to promote brain donation

registration in support of research and provideinvestigators with access to tissue samples. Two brainswere successfully recovered in 2019. DMRF extends ourdeepest condolences and gratitude to donors’ families for enabling these invaluable contributions to research.

INVESTIGATORS HAD ACCESS TO SHARED DATA FOR NEW STUDIES.

THE DYSTONIA COALITION WAS RENEWED TO CONTINUE GLOBAL RESEARCH PROGRESS.

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Clinical fellow Noreen Bukhari-Parlakturk, MD, PhD and teamare studying TMS therapy as a novel dystonia treatment.

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Evaluation by a movement disorder specialist has a dramatic impact on timely diagnosis and maximizing benefit from treatment. Many patients throughout the country must travel significant distance or endure long waits for appointment openings to access a physician with the qualifications to diagnose and treat dystonia.

In response to the need for additional clinical experts, the DMRF sponsors one-year clinical fellowships to train second-year fellow physicians in the diagnosis and treatment of movement disorders with special emphasis in dystonia. The outstanding clinicians who complete training have joined movement disorder programs at prestigious institutions and begun practicing in communities previously without a dystonia expert.

Noreen Bukhari-Parlakturk, MD, PhD (2018–2019)Duke University Medical Center (USA)Mentor: Nicole Calakos, MD, PhDResearch: Development of Plasticity Rectifying Approaches for Therapy of Task-Specific Dystonia Using Noninvasive Neuromodulation

Abhimanyu Mahajan, MD, MHS (2019–2020)University of Cincinnati (USA)Mentor: Alberto J. Espay, MD, MScResearch: Cerebellar Degeneration in Tremor-Dominant Cervical Dystonia: Clinical and Neuroimaging Cohort Study

The 2019 Clinical Fellowship Training Program is supported by grants from Merz Pharmaceuticals and The Allergan Foundation.

“I want to close the gap

between understanding

the disease and targeting

it with therapeutic trials so

patients walk away feeling

their treatment makes a

major positive change

in their quality of life.”

Noreen Bukhari-Parlakturk, MD, PhD,

Clinical Fellow

PHYSICIANS TRAINED IN MOVEMENT DISORDERS TO QUICKEN DYSTONIA DIAGNOSIS AND TREATMENT.

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On March 26–27, 2019, the DystoniaAdvocacy Network (DAN) hosted Advocacy Day in Washington, DC to encourage Members of Congress to support the DAN’s legislative priorities. Advocates asked that dystonia continue to be recognized

as a condition eligible for study through the Department ofDefense Peer-Reviewed Medical Research Program and toprovide the National Institutes of Health with ample funds for the 2020 Fiscal Year. The DAN also advocated for increasedfunding for the Centers for Disease Control & Prevention andprotections for the Americans with Disabilities Act of 1990.The DMRF continued to provide staff support to ensure theDAN implemented and achieved the legislative agenda.

The Douglas Kramer Young Advocate Award recognizes exceptional young people who are giving voice to dystoniathrough advocacy. Recipients in 2019 were Melissa Alvarado,Sam Ashkenas, Serina Griffin, Amy Yurchision, and Haseeb Khawaja.

Jeff Shair, Amy Yurchision, and Raman Patel were among theadvocates attending Dystonia Advocacy Day in Washington, DC.

DYSTONIA ADVOCACY NETWORK REQUESTED MEMBERS OF CONGRESS TAKE ACTION TO HELP FIGHT DYSTONIA.

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Since 2010, the Department of Defense (DOD)has funded dystonia research because volunteeradvocates push every year to make sure dystoniais included in its Congressionally-DirectedPeer-Reviewed Medical Research Program(CDMRP). Unlike the National Institutes ofHealth and other federal medical research initiatives, the CDMRP only funds research into conditions that are deemed eligible forstudy by Congress. The eligible conditions listis renewed by Congress every year.

The hard work of dystonia advocates on this issue has resulted in $17+ million from the DOD awarded tooutstanding dystonia investigators.

The DOD integrates patients and family members into the CDMRP scientific review process by assigningconsumer reviewers to participate alongside research experts. The DMRF is invited each year to nominatemembers of the dystonia community for these important positions.

Action taken by legislative advocates has resulted in millions of new dollarsawarded to dystonia investigators, including Cynthia Comella, MD andPedro Gonzalez-Alegre, MD, PhD.

“I loved participating in

Dystonia Advocacy Day.

It was a great privilege

to see our elected officials

at work, to engage with

them, and to promote

awareness about such an

important issue alongside

such wonderful advocates

and new friends.”

Serina Griffin, Douglas Kramer Young

Advocate Award Recipient

DYSTONIA WAS INCLUDED IN THE DOD CONGRESSIONALLY DIRECTED PEER REVIEW MEDICAL RESEARCH PROGRAM.

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DMRF BROUGHT FACTS TO THE HOT TOPICS THE COMMUNITY WAS TALKING ABOUT.

Through online webinars, newsletter articles, and new brochures, DMRF offered exclusive contenton issues the community wanted to know more about: the role of medical cannabis in dystonia, drugdiscovery efforts, deep brain stimulation, emerging treatments with non-invasive brain stimulation,and the relationship between dystonia and social anxiety. Community-wide surveys sought feedbackabout treatment experiences as well as perceptions and use of medical cannabis.

Jon Davis is among the 20+ members of the DMRF Boardof Directors who are leading the mission to cure dystonia.

Access to accurate information about dystonia and treatment options is as vital to livingwell as access to appropriate medical care. Sharing a brochure about dystonia can be a simple but powerful act to help inform family members, educators, colleagues, and evenstrangers about the disorder and promote greater awareness. More than 25 brochures andpamphlets are available for free mail order or download from the DMRF website. These materials are also distributed through local dystonia support groups, educational meetings,awareness events, and in medical offices.

The DMRF offers programs and information to 50,000+ people annually.

DMRF PROVIDED FREE EDUCATIONAL MATERIALS TO PEOPLE SEEKING INFORMATION AND REASSURANCE.

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1,500+ people completed a DMRF survey seeking feedback from individuals with dystoniaabout the diagnosis process and experience with botulinum neurotoxin injections, a common treatment.

Among the most significant findings is that individuals diagnosed with dystonia within the last five years were diagnosed faster than those diagnosed more than five years ago,suggesting that diagnosis times continue to improve.

NEW WEBSITE CENTRALIZED INFORMATION FOR PATIENT

AND RESEARCH COMMUNITIES.The DMRF website was re-designed with a number of new-and-improved features

including more intuitive navigation, resourcesfor researchers, social sharing, and

lots of updated content.

WWW.DySToNIA-FoUNDATIoN.oRg

GREATER DYSTONIA AWARENESS RESULTED IN QUICKER DIAGNOSIS.

Rushed medical appointments in which physicians have limited time with patients are not always a constructive time for in-depth learning about dystonia and the latest clinicaladvancements. DMRF creates opportunities for individuals to interact with clinicians andresearchers in an educational setting, with ample time for interactive discussion. DMRFprovided thousands of people with the latest information on living well with dystonia byorganizing free educational meetings across the country. These meetings also provideopportunities for peer support and social connection. Locations included Denver, Cincinnati, Providence, Detroit, Atlanta, Las Vegas, and Omaha.

DMRF BROUGHT THE LATEST INFORMATION TO LOCAL COMMUNITIES.

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The DMRF partners with volunteersand support groups around the countryon creative and fun events that unitethe local dystonia community, promoteawareness, highlight movement disorderprograms, and raise urgently neededfunds for research. More than 20 specialevents took place in 2019, raising over $525,000.

Among DMRF’s most popular community programs are Dystonia Zoo Walks, family-friendly gatherings to raise awareness and support DMRF.Thirteen Zoo Walks attracted morethan 5,000 participants in 2019. Locations included Bronx/New YorkCity, Detroit, Cleveland, Cincinnati, Los Angeles, Philadelphia, Phoenix,Pittsburgh, Portland, Providence, St. Louis, Toledo, and Twin Cities.

COMMUNITY EVENTS RAISED AWARENESS LOCALLY AND SUPPORTED RESEARCH TO FIND A CURE.

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“DMRF is fortunate to have

strong partnerships with local

volunteers who are dedicated to

serving their local dystonia

communities. These volunteers

give of themselves to run support

groups, moderate online forums,

and organize local awareness

events. Remarkably, they do

this extraordinary work while

coping with dystonia themselves

or alongside a loved one.”

Janet Hieshetter, Executive Director

“Having a support network

is vital to coping with

dystonia and in my case

that starts with Shanna,

my wife. There’s also a

certain moral uplift that

comes from connecting to

a support group and being

surrounded by people who

are experiencing the same

things you’ve dealt with.”

Brad Schmitt, Co- Leader, Minnesota Dystonia

Support Group

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(L-R) DMRF President Art Kessler,Board Member and EditorialBoard Member Diane Rudolph,Leadership Chair and EditorialBoard Member Paula Schneider,and Vice President of SupportKaren Ross, PhD show their appreciation for DMRF SupportGroup Leaders and Online Moderators.

SUPPORT GROUPS AND MODERATED ONLINE FORUMSPROVIDED LIFE-CHANGING SOCIAL CONNECTION.

Feelings of isolation are common among individuals and families impacted by dystonia, and can be devastating to physical and emotional health. Social connection and peer support are vital to living wellwith dystonia. DMRF support groups provide local peer support, offering the opportunity to gather withothers who know the challenges of living with dystonia. Online forums provide connection to thousandsaround the country, and around the world. The DMRF volunteer network is also made up of individualsdevoted to awareness, fundraising, and/or serving as area contacts.

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BOARD OF DIRECTORSFrances BelzbergHonorary Chairperson & Co-Founder

Stanley Fahn, MDLifetime Honorary Director

Art Kessler, President

Richard A. Lewis, MDVice President of Science

Barbara KesslerVice President of Awareness & Education

Karen K. Ross, PhDVice President of Support

Rosalie LewisVice President of Public Policy

Dennis KesslerVice President of Development

Sandra Weil, Network Liaison

Mark Rudolph, Treasurer

Jon Davis, Director

John Downey, Director

Donna Driscoll, Director

Nancy Harris, Director

Marilynne Herbert, Director

Ronald Hersh, Director

Erwin Jackson, PhD, Director

Stefanie Jackson, Director

Carole Rawson, Director

Liz Rawson, Director

Diane Rudolph, Director

Paula Schneider, Director

Pamela Sloate, JD, Director

Mahlon R. DeLong, MDLifetime Honorary Member, Scientific Director Emeritus, ex officio

Joel S. Perlmutter, MDScientific Director, ex officio

Billy McLaughlinAwareness Ambassador, ex officio

Janet HieshetterExecutive Director, ex officio

NON-PROFIT RATING ORGANIZATIONSACKNOWLEDGED

DMRF EXCELLENCE.

DMRF earned the highest marks from Charity Navigator

and guidestar, highlighting DMRF’s commitment to fiscal

responsibility and transparency.

COMMUNITY LEADERSHIP COUNCILGinny Bryan

Beth S. Farber

Karen A. Flanagan

James A. Metherell

Melissa Phelps

Shanna Schmitt

Rosemary Young

DYSTONIA DIALOGUE EDITORIAL BOARDBarbara Kessler, Chair

Ed Cwalinski

Paul Kavanaugh

Dee Linde

Anneliese Ornelis

Diane Rudolph

Paula Schneider

Todd Spotti

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Mahlon R. DeLong, MDScientific Director EmeritusEmory University School of Medicine

Joel S. Perlmutter, MDScientific DirectorWashington University School of Medicine in St Louis

Nicole Calakos, MD, PhDDuke University Medical Center

Michelle Ehrlich, MDMount Sinai School of Medicine

Jesse Goldberg, MD, PhDCornell University

Mark Hallett, MDNational Institute of Neurological Disorders & Stroke

Niccolo Mencacci, MD, PhDNorthwestern University

Jill Ostrem, MDUniversity of California, San Francisco

Alvaro Pascual-Leone, MD, PhDHarvard Medical School

Terence Sanger, MD, PhDUniversity of Southern California

Christian Schlieker, PhDYale University

Thomas Schwartz, PhDMassachusetts Institute of Technology

Roy Sillitoe, PhDBaylor College of Medicine

Kristina Simonyan, MD, PhDHarvard Medical School

Cynthia Comella, MDex officioDystonia Study Group

H.A. Jinnah, MD, PhDex officioPrincipal Investigator, Dystonia Coalition

Codrin Lungu, MDFederal Liaison

Jill Ostrem, MD is among the 20 member Medical &Scientific Advisory Council (MSAC), which advises theDMRF Board of Directors on research matters.

MEDICAL & SCIENTIFIC ADVISORY COUNCIL CLINICAL FELLOWSHIP PROGRAM COMMITTEESusan Bressman, MDMount Sinai Beth Israel

Cynthia Comella, MDRush University Medical Center

Mahlon R. DeLong, MDEmory University School of Medicine

Stanley Fahn, MDColumbia University Medical Center

Hubert Fernandez, MDCleveland Clinic

Mark Hallett, MDNational Institute of Neurological Disorders & Stroke

Joseph Jankovic, MDBaylor College of Medicine

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Nathan AbbottTess AckermanAnn Burns AdrainPeggy AllenRobert AloscoJohn F. AndersonCecilia AntonilliDorothy ArmstrongEsther AusterLaurie Ornstein AvonaBernice BarasGlenn BarkerBasya Rochel Bas Shmuel Hirsh obmMary Lou BattyEthel BeanShirley BellDavid BelskyLylia BennettLaurel A. Bradley John BrookelmanJoyce Britt BrownSteve BrownWillie Robert Brown

James R. Bulmer Sharon CadwalladerRay CahillIan C. CampbellAllen CapozioMelissa Anne CentrellaDr. David CohenMartha ColombiniEnid ColumbusJanene Conte-Clark James CookseyCatherine CornettoJoAnna CraigHelene CranerDavid Cullinane Harold Leicester DavisEulinia “Nini” Del Rosario Paul DelsandroJean DemorayJoseph DolceRobert DufaultEd DyeJohn Earnisse

Bill EleyIsaiah Erb-WhiteVirginia FairbankShari Farber-Tritt Rita FarnkoffRita FlanaganEvelyn FlorjancicArthur FoxRosemary FrassettoSaul FriedmanWilliam FrindtAdele GarberSharlene GordenCarol GreenblattGordon GrossLewis E. HalleyChristopher HarrisParis HiltonRhoda HitrysDoris HoffmanMary Ann HohensteinRon IsacoffYale KanterGary Kauffman

Margie KellyBonnie KeszlerMiriam KimmelmanNovyce KingMaciej KocurMary KollsStephanie Kopec Deanna KotchPaul Kovacs, IIIFlorence KramerRose KremenSteven LesperanceValerie F. Levitan, PhDKevin LorenceNorma MaglionePhillip MarshallDavid McClureMary Frances McMahonJerilyn McNamaraBeverly MellonJoseph NemethDaniel NewmahrMary OdellSusan Owens

Marie PerusseGinny PetersonBrent PetriHelen Carol PiecznyskiLev PlitmanSol PollanRon ReichsteinDee Ann ReynoldsCarl Donald RichardsJoann RichardsonAnnie Ritsch Craig R. RosenRoberta RosenbaumJoan RosenbergBrunilda RuizVirginia RuthDr. Marty SchulmanBernice SchwartzGertrude ShaferNrupendrarai ShahNancy SheafferTerrie ShortMatthew SimmonsAnita Gail Simon

Bruce Slepian Sam SlepianSarah SlepianPhil SmithRobert SnowMichael SparishCaroll SpinneyGail StanzialeMurray SteinfinkIris StolerStephen K. SveridRonald SwitzerOwen ThompsonWillard “Tommy” Thompson Virginia ThrowerRandall Warning, Sr.Sol WassermanElaine Weinberg Madeline WerleKim WeyerAllan Womac

THE DMRF WISHES TO ACKNOWLEDGE THE GENEROUS GIFTS RECEIVED IN MEMORY OF THE FOLLOWING:

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A complete copy of financial statements audited by Barnes, Givens & Barnes, Ltd. is available upon request from the Dystonia Medical Research Foundation, One E. Wacker Drive, Suite 1730, Chicago, Illinois 60601.

Dystonia MeDicaL researcH FounDation | year enDing DeceMber 31, 2019

REVENUES, gAINS & SUPPoRT Without Donor Restrictions With Donor Restrictions Total

STATEMENT OF ACTIVITIES

ExPENSES

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Dystonia MeDicaL researcH FounDation | year enDing DeceMber 31, 2019

ASSETS 2019

STATEMENT OF FINANCIAL POSITION

EXPENSESScience 55%

Awareness & Education 16%

Fundraising 11%

Administration 7%

Membership & Support 6%

Advocacy 5%

REVENUESDonations & Grants 77%

Special Events 17%

Bequests 6%

LIABILITIES & NET ASSETS 2019

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$25,000 or MoreTeam Ali’s ZooGooders/BronxTeam AllerganTeam Merz

$10,000 to $24,999Team Dystonia Muse/BronxTeam Flanagan/ClevelandTeam Ipsen

$5,000 to $9,999Team Braden’s Brigade/PittsburghTeam Kristin/ToledoTeam US WorldMeds

$2,500 to $4,999Team A Twist of Ed/PittsburghTeam Barrow Neurological Institute/PhoenixTeam BillyMac/Twin CitiesTeam Chief Spencer/PhoenixTeam E-Team/PortlandTeam Jester/Los AngelesTeam Kohl’sTeam Liam’s Unshakeable Ninjas/Pittsburgh

Team MedtronicTeam Mount Sinai/BronxTeam Movers & Shakers 2019/Twin CitiesTeam Olivia & Madison/CincinnatiTeam Rawson/Los AngelesTeam Sophia’s Squad/St. LouisTeam X-Treme Apparel/Phoenix

$1,000 to $2,499Team Allegheny Health Network (AHN)/PittsburghTeam The Big Tall Guy/PittsburghTeam Cedars-Sinai/Los AngelesTeam Columbia/BronxTeam Dawn’s Angels/PhiladelphiaTeam Dee/PortlandTeam Feinstein/BronxTeam Gestrich Dream Team/PittsburghTeam Hakuna Matata Sweeney/PhiladelphiaTeam Henry Ford Healers/DetroitTeam JJ’s Jaunt/ProvidenceTeam Joanna/PhiladelphiaTeam Kathy’s Krusaders/Twin Cities

Team Kavin/DetroitTeam Marianne/CincinnatiTeam Monroe/St. LouisTeam Novi Surgery Center/DetroitTeam Paige’s Peeps/PittsburghTeam Riverhills/CincinnatiTeam Rolling Stones/PhoenixTeam Rudolph/Los AngelesTeam SeasonPassSales.com/ProvidenceTeam SEP Dystonia Support Group/PhiladelphiaTeam Sullivan/BronxTeam Tilted Theisens/Twin CitiesTeam Twisted Troops/PittsburghTeam University of Pittsburgh Medical Center (UPMC)/Pittsburgh

$500 to $999Team Alright Alright Alright/DetroitTeam Annie/PhiladelphiaTeam Awareness & Support/PhoenixTeam BBVA/Los AngelesTeam Blueberry/PhoenixTeam Bowser Automotive/PittsburghTeam Breanna’s Brigade/St. Louis

Team Caitlyn/PhiladelphiaTeam Captain Dystonia & the Movers/PittsburghTeam Cardinal USA Fuel Oil/BronxTeam Carol’s Curesaders/PhiladelphiaTeam Carson Strong/CincinnatiTeam Cyara’s Pack/PhoenixTeam Cyborgs/PhiladelphiaTeam Daphne/PortlandTeam Debbi’s Tribe/PhiladelphiaTeam Destiny’s Squad/ProvideneTeam East River Energy/BronxTeam Eisel/ToledoTeam Flamingo King/PhiladelphiaTeam Glacier Tek/Twin CitiesTeam Hartford HealthCare/ProvidenceTeam Henry Ford Healers/ToledoTeam IHG Walks for Johan/BronxTeam Impact HVAC/PittsburghTeam Interpretations Dance Academy/ClevelandTeam Jared’s Journey/PhiladelphiaTeam Karen/Los AngelesTeam Kayla/Cincinnati

DYSTONIA ZOO WALK TEAMS 2019

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Team McDonald’s Archway/CincinnatiTeam Melton & Friends/BronxTeam MGC Supports DMRF/CincinnatiTeam Montefiore Medical Center Dept of Neurology/BronxTeam Newbold/St. LouisTeam NYU Langone Medical Center/BronxTeam Omy’s Team/BronxTeam Overcomers/Los AngelesTeam R. W. Hemelgarn Foundation - 4 U MATT/ToledoTeam Rachel/DetroitTeam Reese’s Pieces/St. LouisTeam Robin’s Nest/BronxTeam Scotty & Quintyn/St. LouisTeam Sigma Financial/ToledoTeam Stony Brook Medicine/BronxTeam Tonya’s Tribe/CincinnatiTeam Trowbridge Financial Services, Inc./ToledoTeam Twisted Troop/Twin CitiesTeam Yale School of Medicine/Bronx

$250 to $499Team #DancingWithDystonia/PhiladelphiaTeam Agony of DeFeet/St. LouisTeam Allison Dahlstedt/ProvidenceTeam Becky D’s Superstars/PhoenixTeam Bellisario/PittsburghTeam DaCota Js/Los AngelesTeam DE LA VEGA/Los AngelesTeam DeAnne/PortlandTeam Donna’s Dream Team/CincinnatiTeam Double B/ProvidenceTeam GS 463/PhiladelphiaTeam Jansen/PittsburghTeam Keith’s Tribe/CincinnatiTeam Kinetic Kruses/CincinnatiTeam Liz’s Team/BronxTeam Maddy/DetroitTeam Maynard’s Motley Crew/ProvidenceTeam McLynn/PhoenixTeam Michelle/ProvidenceTeam Moving With Dystonia/Los Angeles

Team Nancy/PortlandTeam Nicko/CincinnatiTeam Pain in the Neck/St. LouisTeam Paula S/ProvidenceTeam Poetry In Motion/PhiladelphiaTeam Rita’s Roses/PhiladelphiaTeam Ruczynski/PhiladelphiaTeam Twitchy/Twin CitiesTeam Vicki Glicken/ClevelandTeam VITA CORS/Los AngelesTeam Wood/Providence

$100 to $249Team Anderson/BronxTeam Arya’s Red Hot Chili Steppers/CincinnatiTeam The Bad Struts/PittsburghTeam Bailey/PhoenixTeam Chicken Wing... Ain’t No Thing!/PhiladelphiaTeam Cincinnati Children’s HospitalMedical Center/CincinnatiTeam Cosplay It Forward/PittsburghTeam Go Team Goldman!/ProvidenceTeam Jan/St. Louis

Team Jean Abbott/Twin CitiesTeam Kavin/ToledoTeam MJ/PhoenixTeam Mo/ToledoTeam Mo$4Dystonia/ClevelandTeam MooMoo/BronxTeam Movers and Shakers/PhoenixTeam Pat/PhiladelphiaTeam Rogers/Twin CitiesTeam Sandy/ToledoTeam Solstice Sisters/PhiladelphiaTeam St. Louis Dystonia Support Group/St. LouisTeam Twisted Sister/St. LouisTeam Zooney/Cincinnati

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$50,000 or MoreAllergan CorporationAllergan FoundationFrances BelzbergWendy Bloom and Arthur KesslerBrown Family FoundationEstate of Stacey ChasenCure Dystonia Now, Inc.Jonathan DavisDystonia Medical Research Foundation CanadaFamily Alliance FoundationJune and Ron HershIpsen Biopharmaceuticals, Inc.Barbara and Dennis KesslerRosalie and Richard Lewis, MDMerz North America, Inc.Ronald Oliver/Barbara OliverMemorial Research FundC. Northrop and A. Marder Pond FoundationDonald SaundersPamela Sloate/Bronx DystoniaZoo WalkSandra Weil

$25,000 to $49,999AnonymousAnonymousPeter Briglia/Joan Miller Young Investigator Award

Jacquelyn Coello/Janis Eiler/Los Angeles Dystonia Zoo WalkMike Delise/$5Cure4DystoniaDMRF Dystonia Support & Action Group of Greater Philadelphia/Southeast Pennsylvania Support Group/Philadelphia Dystonia Zoo WalkDMRF Western PA Dystonia Support Group/Pittsburgh Dystonia Zoo WalkFarber Family/Basket BashFlanagan Family/Cleveland Dystonia Zoo WalkStefanie and Erwin Jackson, PhDEstate of Stanley PahotaCarole and Doug RawsonDavid M. Rudolph Research Fund

$10,000 to $24,999Baron Family/Paolero Family/Paula Schneider/Brian Smuda/Providence Dystonia Zoo WalkBenign Essential Blepharospasm Research Foundation, Inc.David and Dorothy Brennan/ Brennan Family Foundation

Kristin Cinglie/Toledo DystoniaZoo WalkDMRF Minnesota Dystonia Support Group/Twin Cities Dystonia Zoo WalkDMRF Phoenix, AZ Dystonia Support Group/Phoenix Dystonia Zoo DayMelissa and Roger Phelps/ Ann Falci/Cincinnati Dystonia Zoo WalkThe Dorothy and Murray Feiss FoundationSusan and Richard GraverKelly and Brian KeaneSheila Killham/Dogs4DystoniaDog WalkDeborah and Roger LebbinDee Linde/Portland DystoniaZoo WalkRuth NussdorfDiane and Mark RudolphCharles and M.R. Shapiro Foundation, Inc.Karen Ross, PhD/Symonds FoundationJune Tritley/Pam Wheatley/St. Louis Dystonia Zoo WalkThomas Tuft/Tuft Family FoundationWeinberg/Newton Family Foundation

Carol and Larry WeissenbergRosemary and Edward Young/Detroit Dystonia Zoo Walk

$5,000 to $9,999Barbara and Bruce AustinThe Bachmann-Strauss Dystonia & Parkinson Foundation, Inc.Vicki BermanMaria Carrera and Corey FaymanR. Barry CaslerChelsi Christman/Sarah Ernstberger/Sunshine Fox/Hunt for a CureThe Rick and Roberta Cummings Charitable FundDrs. Mary and Mahlon DeLongTimothy EssonBetty FitzpatrickKathleen and Timothy FlanaganHeymann-Wolf FoundationLance Howitt/50th Birthday FundraiserHumboldt Family FoundationJoyce JenereauxEstate of Miriam KimmelmanMeg and Daniel LewisEmily and Thomas McNaughton

Medtronic Foundation Employee Giving CharitableProgramJames Metherell/Toss for DystoniaMG O’Neil FoundationAbigail PetersonFlorence K. Ferguson and E. Michael ShineEric Slaasted/Nini Del Rosario FundAmanda Sleeper/Nashua Dystance4Dystonia WalkArlene and Robert SubinSyneos Health, LLCThe Henry and Marilyn Taub FoundationThe Tomeo Family CharitableFundUS WorldMeds, LLCElaine and Brian Weinberg

$2,500 to $4,999AnonymousArchitectural Designs, Inc.Barrow Neurological InstituteDeAnne and Dan BeanJonathan Boone/House PlanZoneElaine BridgesSusan and Howard CodeThe Concannon FamilyCustomInk, LLC

Mark Daus/X-Treme ApparelMark EnglundFirer Family/Dystance4DystoniaPatrick GutierrezMarilynne HerbertBarbara and Edward HoltvluwerJohnson & Johnson Family of CompaniesKohl’s Department Stores, Inc.Lenore KramerLGR Fund/American Endowment FoundationLouise Chazen Banon FamilyCharitable TrustMacy’sThe Madison Square Garden CompanyCherryl and Bob MangelsMedtronic, Inc.Charles MengesMicrosoft Giving CampaignThe Mount Sinai School of MedicineFrances and Jerry NewbergHope Nightingale and David EllisMichele and Randy Oxford/Musical FundraiserRose and Arthur PerrinJacob Peterson/Dystance4Dystonia

THANK YOU 2019 DONORS!

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Sarahmay & Larry RobbinsJudi and Jay RobinovitzStephanie Sorgie/Dystance4DystoniaJoann Gerardi, PhD/Alexandra and Martin Symonds Foundation, Inc.Nancy and Bruce ThayerCarrie and Stanley ValiulisAnna Voytovich and Steven RudolphLinda and David WestfallDavid Wiggins

$1,000 to $2,499Allegheny Health NetworkAlliance BernsteinAmazon.comMargie Anik, MS, CCCAnonymousAnonymousDebra Ronning/Justin Badgerow/Starlight TeaConcertNancy and Rick BaerMary Ann and Richard BakerLisa and Mark BarbadoraJennifer and Michael BeauryHoward BermanPatricia BiedessDiane BrandtJeffrey Brodsky, PhDJudith and Richard BryanVirginia Bryan/Dogs for Dystonia Virtual Dog WalkLisette Bunting-Perry, PhD, RN

Eoin BurkeRegel CabreraHelen Capparell/Dystance4DystoniaMichele CarruozzoCedars SinaiJacqueline and James Cerqua/West Winds Cafe & Catering, Inc.Tracy and Harlan CherniakJoyce and Kim CinglieMary Clark JanisLaura CobbColumbia University Movement Disorders DivisionKay Cooksey/Letter WritingShirley CooperCostco WholesaleBarclay and Richard DardenCarol and Joel DavisLinda DeitersFrank Demilo, CPADMRF South Carolina Support GroupDominion FoundationMarilyn FedakDoreen and Todd GelfandBernice and Sam GreenbergAndrea and Robert GreeneHappy Valley Blended Products, LLCEric HarmonHarriet HartsteinDenise and Stephen HarwoodJoshua Hecht

Henry Ford Neuroscience InstituteLaura Herbert/Dogs for Dystonia Virtual Dog WalkRobert HerkenhoffMitchell HernandezThe Hershey CompanyJanet Hieshetter and Eric Greenberg Maureen and Raymond HillerAmanda HueneMary Hurley Morton and Gregory MortonSusan and Jim HuserElaine IgelmanJulie and Ed Irvin, Jr.Susan JosephPatrice KabramNancy KaplanGaidaa and Ayad KashatWendy and Leonard KayeTimothy KeeganNancy and Alan KesslerSusan KovacsJonathan Kovler/Kovler Family FoundationLancaster Church of the BrethrenBarbara and Harry LehrTricia and Brian LewisWilliam R. Lewis Charitable FoundationRegla LichyJeffrey Lipsett and Lisa TabakAllison and Dan LondonRobin and Bud London

Carol and Edward MaierJacob MandelsonMarathon Petroleum Corporation PAC - MatchingGift ProgramJane MarksMargaret McCullaMichael and Lori Milken Family FoundationSusan Miller and Daryn PakcykSuzanne and Brendan MulshineJanice and Len Nachbar/Dogs for Dystonia Virtual Dog WalkHenry NissleyJ. S. Nolan & Associates Lighting DesignNorthwell Health/Feinstein Institute For Medical ResearchNovi Surgery Center, LLCThomas O’ConnellFredelle and Martin OhlhausenLori and Joel Oxman, PhDBharti and Raman PatelPayPal, Inc.Tom PerryPatrice and Jeffrey PierceThe Pittsburgh FoundationKrista and Ronald ReedLeslie RichmanRiverhills NeuroscienceShirley and Mark RobinsonEvan RothRubens Family Foundation

Gail and Saul RudoTammy and Robert SandersSusan SarilSuzan and Dennis SchadeggJil and Jordan SchapsMichele SchusterMaureen SheehanLeslie SiegelSylvia and Donald SimonEric SlaastedLois SlaastedMichael SlaastedPamela Sloate/The Martin & Roberta Sloate Dystonia Research FundCarol Anderson Smith and Frederick SmithBrian Smuda/SeasonPassSalesJudy SoleyCarole and Joel Steiger/A.L. Levine Family Foundation, Inc.Arlene and Joseph Taub FoundationJean and Dan ThompsonMark TricolliLinda TroyMary Ann TuftMary Lu TuthillUBS Employee Giving ProgramUniversity of Pittsburgh Medical Center (UPMC)Verizon Foundation - Matching Gift ProgramJean and John WalterBinbin Wang and Aaron Lewis

Daniel WeinbergSally WeinmanSherri and Mark WeinmanMorris Wenman Memorial Foundation, Inc.West Jefferson Hills School DistrictKathy and Mike WorleyPatricia and W. Dan Wright

$500 to $999Barbara and Robert AdelsteinAetna Foundation, Inc.Ellen Air, MDJennifer Love AndresStefan AntoniakArchways McDonald’sFelice AxelrodBancroft-Tubbs Family Fund at the Rochester Area Community FoundationBBVADeborah Bender-Palaniuk and Gary PalaniukSamuel BlankTodd BofingerBoston Scientific CorporationBowser AutomotiveMarjorie BrookeKaren BrownBernice BryanBuffalo BillsSuzanne BullerDonna and Dan BuntenMatt Burke

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Drs. LuAnnette and John ButlerDera and Jeffrey ByersKay and Ronald Cabay, DDSJ. Michael CahallLaura Anne Cahill and James T. HemphillCardinal USA Fuel OilEdward Carnvale, DPMLisa and Stephen CartolanoPatricia and Kennie CombsDiddy and John CullinaneKenneth DavidsonJan and Charles DavisJanet and Roger DeBard/DeBard Johnson FoundationJirome DeCastro/Dystance4DystoniaElizabeth Zimmerman Donaldson and Jeffrey Donaldson, MDFrancine DonnerJanet DrierFlorence Duggan-BayneDebbie Durrer and Richard FantozziSharon EasdaleEast River Energy, Inc.Marcia and Richard EisenbergDavid EllisSally and Michael ErnstbergerDoris and Stephen FaberJill FacineAnn and Joseph FalciJoel Farber

Rhona and Leonard FeigenbaumJulie FireNancy FischerGayla Forbes and Hal ForbesJohn GentryVicki and Ernie Ginter, Jr.Glacier TekThe Goldie Anna Charitable TrustCarol and Peter GoldmanJennifer and Seth GoldmanNancy and Joel GoodmanGoogle, Inc.Melissa Greenberg/Dogs for Dystonia Virtual Dog WalkDiane and David GrossmanAbby and Neil GurevitzMartin GutenplanJudy and Geoffrey HandlerDelores and Gordon HansenKimberly HarringtonBrian HaysStacey HendersonJanet Hieshetter and Eric Greenberg/Dogs for DystoniaVirtual Dog WalkJoyce HirschHeather and Martin HolfordTeresa and Ronald HortonKenneth HortopCharlene and Howard SchwartzImpact HVACInterpretations Dance Academy

Julie KaiserSusan and Daniel KastenChristine Kim, MDEllen and Ronald KisnerLori and Jimmy KrantzJeanne LavanaMiles Lazerwitz, DDSNorma and David LefkowitzLucy and Kenneth LehmanKasey and Todd LeinbachMeryl and Joseph LevinArthur LevineElaine and Shaul LevyLiberty Mutual InsuranceJohn Jay Mann Foundation, Inc.Lizzy MarkusCarla and Robert McFaddenArlene MeintzWayne MellonDebbi and Steve MelzerMarcy Zinn and John MillerNan and Howard MillerKelli and Marc MontanaroMontefiore Medical Center/Department of NeurologyMaria and Terry MullenZita NathansNational Fuel Gas Company FoundationNew Directions FoundationMichael NovakNYU Langone Medical CenterStacey and Mark OvertonBeth and Tony PaoleroAmy and Bruce PaulJill Pazolka

Gloria and Ron PetriGail PhippsDaniel PinkertPledgeling FoundationNancy and Larry PresentDavid PrestonPrince of Peace Lutheran ChurchR. W. Hemelgarn Foundation - 4 U MATTLisa and Daniel RabeNancy and William RackoffDavid RamirezBarbara RaubSteven Regenstein, DDSRehoboth Beach Running Company/Rehoboth SeashoreMarathonDiane and Evan RenzMegan Ridley-KayePatricia RoixRalph RoseMaxine and Gerald RosenBetty and Edward RudolphLauren SchleyerCarol and Ken SchwartzMarisa and Tomer SeifanLynn and Jim ShafferJonathan ShefferJacki SiewertSigma FinancialLev SkolnikRobert SlaastedMitchell SlepianThomas Smith

Ronna Stamm and Paul LehmanStony Brook MedicineBonnie and Tom StraussPatricia Swanson and Ivan ClatanoffKim, Danielle and Ed SweeneyJoyce ThielenHillary and Brett ThomasJoan ThompsonTravelers Community ConnectionsTrowbridge Financial Services, Inc.United Way of Greater Philadelphia and Southern New JerseyRoberta and Arnie UrsanerMichael WalbergMr. and Mrs. Milton WarsawGail WebbJulie and David WeismanWestwood DentalSusan and David WilliamsonKaren WinterWolverine Packing CompanyMary J. B. Work Fund of the Community FoundationZimmerman Giving FundPatricia Ziner

$250 to $499Mary Jo AbbottJudy and John AlldredgeCharles AllenAllied Asset Management

Allina Health SystemVirginia AmesLinda and Dennis AndersonApple Creek KennelApplebee’s Neighborhood Grill & BarSandra Aresta and Michael KatzJoy and Avi AvidanLauren and David AviramJack AvonaCindy and Jack BalcolmKelly and Brian BallariniBank of America Charitable FoundationBanna’s CraftsPhyllis BassMary Ellen and Michael BattipagliaJudy and Ted BaumhauerBelaCoop Animal Hospital of North Park and Beauty BarDiane and Joe BelkevichErica BenderJo and Larry BenesiPatricia and Andrew BeranZelda and Sol BergerLinda Berman and Paul AbramsonRonald BeverickBig Tree Fitness, LLCAnn BikalesAnni and Henry BlackEsther and Charles BleyBloomberg LPBlunt Slocomb

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Barbara and Ronald BordenJeri BoydShirley BradleyHoward BrandeiskyMarjorie BrandenburgCarole and John BrighamWendolyn BroadrickDorothy and Roger BrooksJeffrey BrownBernard BrownsteinAnne BryanMageen CainesMichael CaravelloBarbara and Donald CarowHelena and Sean CawleyAimee and Randy ChalusChapter 3 Copyediting, LLCJocelyn CharnasCarol ChatotDonna CiokiewiczCircus Saints and SinnersBert CohenCollins Community Credit UnionJennifer and Paul ColoneCommunity Health Network -Physical Therapy and Rehab- Stone’s CrossingEllen, Caitlyn and Marc ConnellyConstellation Energy Group/Exelon FoundationKay CookseyPatience CrollCarolyn CruzMary and Edward Curvey

Deborah and Douglas DarbyLinda DavisSam DavisMarcia and Kenneth DenbergStacie and Richard DeSalvoDIECUTSTICKERS.COMCarol and David DirectorDM Moore Marketing CorporationDMRF Central Pennsylvania Support GroupThe Doggie DenDouglas DudgeonJulie DunnE & B Paving, Inc.Janis EilerErie Fire-Fighters AssociationJanet FairbankAnna FaragunaJessica Feeley/Dogs for Dystonia Virtual Dog WalkDaniella and Jeff FialaKara and Richard FingardAnn and George FisherMonna and Danny FisherSara FlohrLisa and Michael FlorjancicCarol and Luther FlynnDavid FosterMr. and Mrs. J.M. FoxAnne FrederiksenRebecca FrelighAbby and Michael FriedmanPaul FulgencioLarry GarberCyara Garcia

Ani GarrickDenise and Greg Gaskell/Dogs for Dystonia Virtual Dog WalkDenise and Bill GibsonEmma and Robert GilbertVicki and John GlickenThe Goat Farm Petroleum TerminalMindy and Michael GoldbergBetsy GoldinColleen GoldsteinPatricia GollmerGreen State BankHoni and Dennis GreenwaldGwen’s Pet GroomingThe H Group, Inc.Dawn HamiltonRichard HammAnne HanfordCarol HarwellMichael HerkoHiway Federal Credit UnionScott HoppingRichard HorwitzNancy and Jack HowieLinda and John HugginsVanessa and Marc JacobsFrank JansenMarguerite and David JonesJerome A. Kaplan and Deena L. Kaplan Family Foundation, Inc.Lisa and Steve KatzJamie and James KaylerKemper House

Laura KingJanet KinseyKristina Kittilsen and Steve WellerVicki KlingerSusan and Matthew KnightDavid KormanCraig KoshkarianMelanie and Randolph KraftKrebs Chrysler Dodge Jeep RamLinda KricfalusiRyan KruseGail LandeJessica LawlerLenny’s BarLawrence LesserEric LevineKaren and Ben LewisDee LindeDee Linde/Dogs for Dystonia Virtual Dog WalkLindsey’s Tumbling SchoolJamie and Gary LittViolet LivshizRobert LosikLubeck Community Baptist ChurchAnnette and Michael LynchManning & Napier Advisors, LLCDebra and Joel MargolisRyan MarinerStanley MaronBarbara and Sheldon MarsMaryvale Teachers Association

Judith and Glenn MasonShelley and Guy MaynardJoe MazzoLinda McGlassonEllen McHughSuzanne McIntireMarjorie and Robert MellenClara MelmanMichigan Head and Spine InstituteBarbara and Richard MillerMiller Cooper & Co., Ltd. Charitable FoundationMaryanne and Ronn MillerAnnie MitchellCarol and Jim MollerPaulette Mondschein and Kenneth GarrettMontachusett Community YMCAJessica MorrisVicki and Steven MorrisMartha Murphy/San Diego Dystonia Zoo DayDeborah and Isaac NachbarJanice and Len NachbarMarilyn and John NewhouseLonnie and Jerry NicholsGale NolanJohn O’DonnellLily and Jon OtisJohn PageJohn PazolkaDebbie PearcePetersen Pet HospitalKathleen and Peter Pflock

Pamela and Roger PhelpsPhysical Therapy OrthopaedicSpecialists, Inc. (PTOSI)Jolene PiazzaJoan and James PiedmonteHallee and Dave PitterGrace FisherMargaret PowellMacKenzie Prater and Jaykob WalkerSally and Frank PrestiLaureen PrimmerNancy K. Pruett, DDSSally and Ronald RabinowitzChristine and Andrew RawsonJanet ReynoldsTeresa and Craig RiceMelinda RochaJody Roosevelt/Dogs for Dystonia Virtual Dog WalkMargot Rosenburg and Kara PutnamSusan and David RosnerNancy RothSakata Seed America, Inc.Johan Samanta, MDMalerie SamonaKathleen SamuelSusan and Samuel SandbergMargaret SchlegelDonald SchlosserShanna and Brad SchmittJames SchoenadelDouglas SchoonoverGloria and John SchroederJoyce and William Sederburg

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Joan and Arthur SegalShell Oil CompanyArielle and Philip SherrillJean SiegelJoyce and Sheldon SilversteinNatalie SimsJoanne and John SmithRheta SmithSusan SmithNancy and Steve SohnJoanne and Howard SorkinMary Specker Stone and John StoneLarry StahlStandard Insurance CompanySusan SteinfinkMyra and Jerry StemermanMarilyn StoknesIra StraffRepresentative Katie StuartRebecca and Collin StuartMichael SuidaSynchrony Matching Gifts ProgramMichele Tagliati, MDTakeda Pharmaceuticals North America, Inc.Karen and Jeff TanenbaumCindy and James TannerChristopher Taylor and Parichat ChaiyaFreda and Danny TaylorJanice and Richard TillisTransUnion, LLCTraci and Jamie TrappJune Tritley

Alecia and Gregory TroyVITA CORSKaren WagnerJulie WagshalSharon WagshalLoretta WallisLisa WalterIrvina WarrenMartie and Stephen WartalskiMarilyn and Jerome WassermanSandra WassermanDiane WebberAdrian WeigartRoberta and William WeinsheimerAndrea WeisbrotLeona Weiss McCargar and Scott McCargarLynne and Huntley WhitacreLisa WhiteSherry and Douglas WhitleyAnnette WilsonPeggy and Bill WiseCatherine Wollenberg MacDonaldScott Wood, JrJulie and Bruce WoolfCarol WyattLaurie and Gary YarnellAnne YatesMarian and Ted ZacharySaundra and Marvin ZessarAlana Zinn and Jeremy BeydaBonita and Michael Zurek

$100 to $249Jean AbbottAbbott Laboratories - EGCRonald AbelBeth and Larry AbneyNikki AbramsonPaige and Dennis AdamsSarah AdamsCarole and Kenneth AdashekLaurie and Steve AdesGreta AdlerLoraine and James AhearnCatherine and John AhlersErdal AksoyStephanie Albanese and Gary WhelpleyCarlene and Roger AlbinAndrea AllenAnn and James AllenNancy AllenAngie and Louis AmatoLorraine and Curt AnastasioRuth AndersonJoan AndrewsAnonymousAnonymousChristine AntolikBraelyn AntonAnn AppelbaumLaurie Arnow-EpsteinJudy and Tom AronsonBarbara and Judy AsazawaLora AshcraftAstraZeneca Pharmaceuticals LPMuriel Baay

Alice and Marvin BaderM. Rebecca and John BadgettMark BaguhinChristina and Douglas BairEthel BakerLee BaldwinSusan Baldwin and Gary GepnerEllen BallLisa BanachMichelle BanachJoan BarasJeanne BarbetAmy Barkin and Claude JacksonSusan and Cliff BaronJames BarrieRex BarronRita and Guido BattagliniEmily Cyndy BauerDiana and Kenneth BauerJennifer BaurleyRhonda and James BeaneDana BeattyCathy BeaversSarah BechtoldDavid BeckKara BeckFelicia and Irv BeitlerAlfred BelangerSara and William BelkovEnid BellStuart BellRosemary and Thomas BellaireAshlyn and Richie BellisarioAvinash Bengathody

Janet and Marvin BenjaminMarcie BenjaminGlenn BennettTeddi BergerMeredith BerkmanRayzella and Frederick BerkoHelene and Roger BermanJackie and Richard BernardJoan BernardinoStacy and Paul BernhardtArlene BernsteinBobbi BernsteinCharles BienerJoanne and Peter BlaauboerJill and Barry BlackerFrances BlackmanKaren Blacksburg and Leslie BlacksburgNatalie Blake and Steven SchwartzValerie BlakeslerTwila BlankenshipJoe BlantonStephanie BleichStephanie Bleich/Dogs for Dystonia Virtual Dog WalkPaul BlieseShirley and James BlueMelanie and Lanny BodenDenise and David BoenteDonna BooneLisa BorowitzPhyllis and Thomas BouthillierKay BoydJanice BoydBarbara and Richard Bradley

Mary BradyDianne and Marc BraerJean and Lowell BraxtonEugene BraySharon BrelloOlivia and Norman BrennerDeborah and Mitchell Brin, MDEllen BrintonJan BrockPatrick Brogran/Help Find a Cure for DystoniaAfua BromleyEd and Deb BrownGregory BrownJana and Jared BrownJo-Ann and John Brown and Peter BrownStephen BrownCraig BrubakerPaula and James BrunDon BuchalCrissie BuckwalterMary and Paul BuengerLaura BulmanMargaret BulmerTonette BurbidgeSuzanne BurgeJulie BurkeMary BurkeMelissa BurkeDanielle BurnsMargaret and Richard BurtonMichael BuschEllen BusseShawn and Richard ButlerKathy and David Buyansky

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Nancy Byl, PhD, PTDorothy CaldwellElizabeth CaldwellCharles CallaisTommy CammTerri and Dennis A. CammaranoKeli CampbellRebecca and Todd CampbellThomas CampbellJohn CapobiancoMartha CappellaToby CappelloDeirdre and Ronald CarlsonSheila CarneyYvonne and Thomas CarneyMyra and Robert CarrierSusan and Paul CarrollHelen and Joseph CarusoJennifer Caruso MeadeRoberto CasanovaDolly and Thomas CassidyWilson CastilloAnnette CatalanoNancy CederquistJanet and Patrick CeruttiGeorgia Chamblee/Dogs for Dystonia Virtual Dog WalkCynthia ChapmanTerri and Charles ChapmanTami CharlesJohn Chen, PhDValerie and Darren ChildersLinda and Harold ChizewerA. Michael Chodorcoff, CLU, ChFC

Evelyn and Joseph ChoroserThomas ChristensenJoyce ChurchJohn CinaKristin Cinglie and Paul IvankovicsRebecca Cinglie-FahrerSusan CiolekMichael CirelliEmanuel CirenzaJames Clark, Jr.Marilyn ClemBeth Cliffe Richardson and Harry RichardsonBelinda and Michael CohenElaine CohenJennifer CohenLenora CohenMiriam and Aaron CohenRocco ColangeloHelen ColemanMargaret and Frank ColoneAnthony ColucciThe Community College of Rhode IslandAmanda ConnellyMary ConteKaren and Charles ConwayElaine CookManori Cooray-WeerarathneCatherine Cote-VervilleBarbara and Martin CotlerPatricia CowleyJennine and John CraigSharon and Warren Craig

Jackie and G. Patterson Crandall, IIINebra and Jacob CraneJodi CrawfordLaura CrawleyBrea CrisseyKaren and David CunninghamTammi CunninghamJohn CurryMyrna CurtisEdward CwalinskiEmily, Rosemary and Jacques DahlstedtCindi DaleMegan DaleyAngela D’AloiaSusan and Willard DanielsCaroline DavidsonChristian DavidsonDanny DavisJoallen and Carl DavisMaria and John DavisDavis Research, LLCSuzanne DavisMary Ann Davison-FernandezGinger DawsonCristina De La Ossa and Hector SalazarLynn DeAngeloJulie DeLaurentiBecky DelawareMike DeliseBarbara and Michael DeLouiseJeanne DelSignoreReed and Beverly DelucaSandra Dempsey

Kathleen DennickMatthew DennieDavid DesmaraisJoseph DeStefanisNancy and John DickLoretta Dimuro and Manuel DaSilvaLaurie DiTarantoMary Anne and Matthew DohertyJay DolanAmy and Ira Dolnick, DDSNancy DonaldsonKatherine DonhamJennifer DonhauserDonald DonovanChristina DonzelliMary Ann DrimerDonna DriscollJudith and Sydney DromgoolePhyllis DubetskyRichard Dubinsky, MDJoan and Dennis DuBoseAlan DubrowMargaret DuckettAnnette Duffy OdellBarbara and Ron DuncanNicole DunkleJacqueline and Matthew DunnJanet and Christopher DurantRichard DwyerSandra DwyerJoyce Darlene EatonMaureen EatonCharlotte and Annelise Edelman

Christine EdwardsPaul EhrlichBrooke and Kenny EhrmanNancy and Mike EisenstadtRegina and Gregory EitzenLinda and Jeff EksteinJoyce and Donald ElingEvelyn EllisBarbara EmersonJohn EmeryJennifer EndejanDorothy and Edward EngelkenPat EnglebretsonSarah and Charles EnzorJason EpsteinCynthia and J. Michael ErdeyIrene and Carl ErsingKari Escobar/Dogs for DystoniaVirtual Dog WalkEstée Lauder Companies International, Inc.Themmi EvangelatosEricka Evans BayerJean EvansWendy EvansJeanne and John FadaleSheryl Falb-JoslinJennifer FalikKevin and Morgan Fantozzi/Dogs for Dystonia Virtual Dog WalkDonna FaraoneBeth Farber and Steve LaserVirginia FarleyFarmer Scott Ozete Robinson& Schmitt LLP

Mary and William FarrLinda and Ronald FaulJoAnn FaviaRosa and Frank FedericiTim FeeleyCarrie and Greg FehlbergLeslie FeinbergTheodor FeinstatMichael FeinsteinBarbara FeldmanBruce FeldmanEllie Feldman and Charlie DrogarisElizabeth and Pavel FeldshteinHoward FeroJill and Thalia FerranteKristen FesseleKristen Fessele/Dogs for Dystonia Dog Walk Ed FetzerMargaret and Richard FinchDiane and John FioreMichael FirerFirst Financial TrustFirst Presbyterian Church at CaldwellCheryl FisherAlice Fishman and Michael DipietroMyrna FishmanAnn FlammGale and Tim FlanaganLynn and Saul FleerWilliam FletcherCarol FontaineIrene Forbes

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Kellie and Ally FordJeanette ForsterFortune Fish & GourmetJennifer ForwoodPeggy and Donald FosterVirginia and Charles FosterNoreen FournierMary Jo FowlerJeanette Franco and Alex MilhommeBette and Louis FrankeSammie FranksRishi FreejoySusan FreemanDeborah FreyIrwin FriedmanRoberta and Charles FrischFujirebio Diagnostics, Inc.Lualhati FulgencioLynn and G. Jeffrey FullertonJudy and Mel GabrielRosa GabryelskiSharon Gallagher and Michael SussmanDeborah GanoeCindy-Lu GansVendora and Arthur GappertGarden City Children’s Center/Dance-A-Thon FundraiserAngela GardinerDoris GarlichPhyllis GarrisonNancy and Thomas GarsonBarbara and Edward GartsideMaureen and Tom GarveySissy Garvey

Daisy and Dan GaryDenise and Greg GaskellNina and Andrew GasparThomas GatelyEmily GausmanBetty and Robert GayRobert GebeloffPaul GeihsBarry GeislerJanet and Thomas GensertMary Kay GenzlingerMichele and Gregorey GerberRandal GestrichJennifer GetchellDonna and Edward GewirtzGail and Bruce GilbergBarbara GilbertAllyson GillDavid GillmanEleanor and Paul GilmanMatt and Michael GilmoreCindy and Neal GittlemanMorgan GlaserGlaxoSmithKline FoundationJoan GlennonJudith GlickmanDarlene GlowczewskiDeborah and Allan GoladGail GoldmanJudith and Alfred GoldmanLauren and Matthew Goldmanand Alexander GoldmanCraig GoldsmithGail and Donald GoldsteinTahl and Eric GoldsteinRita Golub

Elizabeth GoodgionJames Goodwin, DDSBarbara and John GottliebArthur and Gwen GowerPamela and Douglas GraysonDavid GreenbergMelissa GreenbergRonald GreenbergMary GreeneSusan and Adam GreeneZee Jay GreenspanKaren GretoBarbara and Robert Griffith, MDMr. and Mrs. John GriswoldNancy GroomLynn and Gary GrossmanSheri GrubeYuki GuffeyGulf Beach Masonic Lodge No. 291 F.&A.MNicholas GumasTodd GundersenBarbara GunningVictoria and Benjamin GuterElaine GuthrieJames GutierrezNancy GutierrezCaryn HaagJean HaidPhil HamiltonArthurene James HaneyAlanna HarperLaura Harrington and Irving SteinfinkElizabeth Harris

Heather HarrisRenee HartTodd HartBarbara HarteRobert HartmanLauren and Marc HausmanGloria and Gershon HayatLoretta and James HedgesStephen HegnerJerome HeisdorfMolly HeiseSuzanne Henley and James ColeKathryn and Ted HenryPeggy and William HermanCynthia HernandezNancy and Robert HershfieldJosefa HetheringtonShirley HewittJennifer Hickey/Dogs4Dystonia Virtual Dog WalkCoral Hilby, MDPatricia HillCharlotte HinesPatricia HirschRyan HirtJ. Carroll HitchBarbara and Brian Hoar, MDJoyce and Timothy HoerstHilary and Mark HoffmanKaren HoffmanKarl HofstetterSandra HolderCarrie HolderbaumKristina Holland

Heather Holland and John JacksonJoan and Steve HolzmanDaniel HomJudith HomerRona and Seymour HomerNancy and Albert HomiakVirginia and Timothy HornsbySandra and Richard HouseworthSandra HowardConstance and Edward HoweNicole and Roger HowePatricia and John HowlettTasha and Lonnie HubbardCarol and Jeffrey HuchkoChristine and Kenneth HudsonCarol and Ben HumanSandra HuntNancy and Norman HyamsRuth HynesJudith IngelidoFaith and Stacey IrwinBeth IsraelMike IvankovicsStephanie IvanusicBrooke IversonSylvia and Bert IwanakaDavid IwanierDouglas JackMr. and Mrs. Terry JacksonNancy and Allen JacobsonDenise and Alan JaffeBarbara and Eric Jaffe, MDAlfred JaoJanice Javernick

Maria and Robert JefferiesDanae JeffreyTeresa and James JoergerJoe’s PizzaJudy and Roy JohansenAakike JohnsonBarbara JohnsonJack JohnsonJillian and Mark JohnsonMaurine and LeRoy JohnsonRaymond JohnsonVirginia JonesMargie and Ronald JoryCatherine JosephsJoan JoynerKay and Randy JudsonDavid KabatSherri Gelber KahnLee KainsCharlotte KaiserSteven KalinaSusan KaneTony KantorAnita and Michael KaplanDaryl KaplanMichele KarpovichDiane KatzDyan Kaufman, PhDPatricia KavanaughPaul KavanaughKathleen KeeganLaurie and Charlie KeenanCindy KehoeCelina KeithSusan and Richard KelinGail and Mark Kelley

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Pamela KellyStephanie and Steve KellyKenergyCarrol KerriganJoyce KesslerMarilyn and Mark KesslerSharyn and Ronald KesslerCarole and F. William KiddCheryl KillhamGregory KimmJoel KingDebra Kittay and Josh ParkerKaren KlausegerRae and Evan KleinViolet and Chandis KlingerMichael KlowdenMargaret KnappWanda and Jared KnisleyJudith and Jerome KochDonna KoehlerCassandra KopecRhoda KopyPhyllis and Martin KornStephen Kossuth, Jr.Andrew KosztyoJoy KottraGeorge KramerHarriet KraverJessica and Barry KraverLynn KrejciChrist KreuterKrogerSandra KrollCarol and David KrootBarbara KrzyzekKelly Kuczewski

Elizabeth Kugel-WhetstoneRalph KuhnHarvey KulawitzAda Kulbak, ODSandra and Kenneth KuskaEmily and Jeff KuvinKristin LabuttaAnne LackritzAnitta and Andrew LafuenteMartha and David LambertJudith and Deno LangisMark LangwerowskiDoris LarshPhyllis and Fred LaskySusan and Howard LaskySerena and Dick LaVineCorinne LaxLarry LazarowDoug LederCeleste LeeMaureen LehonJudith LeinbachDebbie and Beth LennexLeominster Monument Co.Barbara and John LeschisinMarisa LetoNancy and Howard LeVantCheryl LevensonJane LevineKaren and William LevineLisa and Scott LevyCarol LinchGeri and Lonnie LittMarci and Richie LittLorena LittonLinda and Howard Litvack

Millie LoebBruce LoeserFerrah and Ethan LondonPhyllis and Matt LondonPearl and Ronald LooneyPatricia Loquet and Larry TrachtenbergSusan LotzBronlyn LouckNadine LuisBernita LundquistDelana and Michael LynchMichelle Annette Lynn and Janet Mae McKayChristina LyonsBruce LysterBrandi and James LytleDalisay MacalincagMargarita and Guillermo MacalintalRandall MackBrian Maddux, MDMartha MaederPatricia MageeDaniel MagnuszewskiEllen and Cletus MagsamenKatrina MahanStephanie MajcaAnn and Rob MalakMichael MalakKathleen MaloneMary MaloneMusetta MaloneJanet MalsanThe Mandel FoundationGail Mandelblatt

Anita ManesJennifer ManningRoger and Gina ManusovJon ManzanaresTom ManziMarchetti FamliyJohn MarcucciMarkle Gift FundJoyce and Michael MaronPeggy Marquoit and MargaretMarquoit and David MarquoitDeborah MarshLaura MarshGina and Carl MarshallKathryn Matheson and James MacMillanIone and Robert MathiasAnnemarie and Larry MatthewsAlisa and Edward MatushekAmy MauderRebekah MaynardEdwin Mazoue, Jr.Carmine MazzeoJacki and Scott MazzucaAnnette and Charles McAteerDonna McCagueBeverly McCarterDavid McCarthyDavid McConnellMary Kay McCoyRick McCrackenDiane McGauranMike McGinnLinda McGovern

Margaret and Joseph McHughand Ellen McHughBilly McLaughlinStacy McMinnJennifer and John McNabolaKathy McPetersRebecca McReynoldsRobert McWilliams, jr.Pamela MeadMark MeanySteven MedvinBarbara Mehring and Robert MoranGrace and Jonathan MeltonSharon Menaldino, EdDJahaira MendezJanis and Alan Menken Charity FundJulia MesserMathew MetcalfMichelle and Wendell MetteyJessica and Aaron MeyerMarlene MeyerKathie and Jack MichaelEdoardo MiglioriJohn MilburnEileen and Andrew MillerJanet and Douglas MillerMichelle Miller/Dogs for Dystonia Virtual Dog WalkTammy MillerMaria MiriMarla and Robert MishlerDeborah MitchellSally MitchellMargaret Mizer

Jeanne Moltke-Hansen andHarry SchenkGloria Monahan andJohn DonohoeJanell and Gary MonettiJean MonigalNathan MonroeBrandon MontgomeryAngie MooreDeanna MooreReta MooreTonya MooreJay MorsteinKaren MossLori Moss and Gary Oltmans, PhDVirginia and Thomas MulfordJeanette MullerJames MulqueenTeresa MundyGail and Thomas MurawskiJane and Mack MurphyMichelle MurphyRobbie and Ron NaborsJoyce NachbarJohn NanniniSandra and Robert NathansChristi NeeseDebbie and Ed NelsonCarl NemethChristina NeriEsta and Randy NeugroschelRobert NewmanTruth NicholsMr. and Mrs. Steven NicolaAlexander Nicoloff

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Jacob NicoloffJennifer and John NidifferBrenda and James NixPatricia NobsSheryl NoelteNokes and NokesElaine and Jerald NortonSamantha and Michael NussbaumMary O’BrienMelba and Norman O’BrienShirley O’ConnellChristina and Jeremiah O’ConnorJeanne and John O’ConnorMartin O’ConnorPaula and Richard OkolowiczRose OleksakMadison OlleBernadette and Thomas OlsonOmniSource, LLCPriscilla OnizukMegan Oots/Dogs for DystoniaVirtual Dog WalkJudith OpperDiane and Richard OppermanOrange Leaf Frozen YogurtTamara OrletKaren OrnsteinJoan and John O’RourkeGoly Ostovar and Paul RickersonLeonard OstrovskyBarbara OvertonElizabeth OvertonAndrea Oxman

Patricia and John PaceJulie PallachLori PalluchDeborah and Gary PanasPatricia PanuskaTheresa and Frank ParenteRaminder Parihar, MDBarBe and Dave ParisJoseph PasquitoDebra and Joel PasternackJodie PastoreKailash PatalayMary and Jerry PattonMary Lou and John PattonLisa PaulCynthia PearlDena PearsonRosse Mary PeaveyVicki and Schuyler PeckSusan and Peter PenselAlfonso PerezElizabeth PerkinsPatricia and James PerkinsJoel Perlmutter, MDLeslee and Michael PerlsteinMarlene PeroutkaGail PestineJamie and Matt PestineSheldon PestineZachary PestineAlan Peterson, MDGary PetrieJan PierceBarbara and Jeff PiermontMary and Tom PietteJane Piro

Barbara PisonCatherine PlankDaphne Plaut and Jeffrey ShowellAlice PolcasterCarol PollackLynn PollackLee PollanBarbara Pollard and Mitch SteinValerie PoulletteRoxanne and Robert PoundsJim PowellPraxair Matching Gifts ProgramNaomi PrellPreppy PetDana and Marc PriceSharon PriceJanice and Kenneth PrintenCarolyn PritchardDiane and Robert PritchardJane ProsnitGail ProvineBarbara PryorKathleen Puhr and Louis AxemanPatricia PulliamCarol and David PurdyDebra PushSandra QuinnFreida and Charles RabautEstelle and Bruce RabinJoyce and Jeffrey RabinHeidi RamosKristy Ramos

Linda and James ReedS. and W. ReeseJudy and Kenneth ReevesLynda ReevesRichard ReillyPaula and Thomas RevekantRevive Family ChiropracticDonna and Michael ReyesMaria ReyesAnna and Joseph RichardBarbara RichardsAnn RichterMarie and Charles RiemerCarla and Jonathan RindeThomas RiniBarbara and Howard RobertsRose and Alvin RobinsKim RobinsonKim Robinson/Dogs for Dystonia Dog Walk Kim and Terrance RobinsonWilliam RodgersBetty and David RoehmSusan RogersJamie and Jon RomickJody RooseveltBarbra and Reid RosenLori RosenNorman RosenbaumLisa RosenfeldLee Rosenstein-GregorySusan RoserBradley RossMichael RotayJoyce and Walter RoubaRichard Rousseau

Carol RowbergKathleen Rubino and Stephanie RubinoRoberta Rudolph Salas and Javier SalasMary Martha and Peter RuscoeColleen RushRuth and Jonathan RuskinCarol RyanCorrine and Robert SadeLinda and Michael SahnSandy and Sammy SahnEric SalasHoward SaltzmanMerry SalyersRosaria SanteeTonya SapreElizabeth and Henry SchaedlerGloria and Larry SchaffelGail SchafferSusanna and Noah SchanklerCarole ScheibJacqueline SchiffMiriam and Theodore SchiffmanDebbie and Alan SchimmingAlta SchmidtMary Ann SchmitRobin and Donald SchoberTerry SchraderPamela and W. Winslow SchrankMarilyn and Monroe SchulderDonna SchultzMichele SchulzErin Schwartz

Loredana and Stephen ScrobeJennifer SeemanVirginia SeidelDeborah and Charles SeminerioCheryl SgrignariMarilyn ShaferRobin ShaffertMelanie and Shidfar ShahriaryShari ShapeKevin SharkeyLauren ShawverRebecca SheaJoAnn and W. SheehanSharon SheesleyCliff SheetsDenise SheffieldNancy SheffieldElizabeth ShermanDonna SheynfeldSarah ShortJustin ShrumCarol and Norman ShubertE. Chandler ShumateSam SidneyRadienne and Frank SikorskiSara SillArlene and Charles SimpsonSue and Steven SimringJessica Singer and Etan SpiraLaurie and Rick SleeperKenneth SloateChristopher SmithBarbara SmithBonnie SmithGeorge Smith

35

Georgia SmithLinda SmithLinda and Douglas SmithSarah and Scott SmithSusan Smith-Manning and Mr. Roger ManningGail and Jeffrey SmoulderMichael SobelBirgit SoerensenPaula SogardSusie SokolJohn SommerTom SonnenbergAnne Marie SorgieStephanie and John SorgieMaricela and DaCota SotoSouth Orange Lodge #1154/ Special Children’s CommitteeSteve SowkaJanice and Steven SpeckerGregg SpielbergBarbara SpiriLinda and Glenn SpungenWilma StableyKaren and Eric StarkFelica and Mark StarkerStaroba Plastics, Inc.Sharon StarobinChris SteblaySusan SteckelPatti and Dan SteinRemy SteinfinkSherry and Jeremy SteinfinkTatyana and Gregory StepanetsSharon and James StephensWarren Stern

Nona and Bob StevensScott StevensAlan StewartTina StierErinn StimsonMarta Stoeckel-Rogers and Tim RogersCharlene StoltenhoffMelissa StoneJohn StonerMargaret StorozynskyLaurie Strawgate-Kanefsky,PhDand Paul Kanefsky Esq.Rachel StrohmengerBarbara StruchenKeith StuderSuzanne Stutman and Jon WilkenfeldLaura Subin/Dog for DystoniaVirtual Dog WalkAviva SufianAili SumeriJudith and Douglas SwagerPeggy and Jim SwartchildJenna SweeneyKevin SweeneyEdward SwellGay SwensonSusan and Jeff SymondsMarilyn and Jeffrey TabakMary TapperJoanne TaxSophia Taylor and William LapkeMargaret Teed

Karen Telengater and Julius TelengaterHillary TescherBarbara Theisen and Ruth TheisenCathy and Joe TheisenGrace ThielenDebra and Jeff ThomasEdward ThomasThomas FuelMadison ThomasRoy and Rebecca ThomasBarbara ThompsonDorothy ThompsonDeborah and John ThornburyJohn ThornleyWilliam TinklepaughJudith TirellaLauren TobeTom & Danielle Aman FoundationEamon ToneyMollie and Ken TraubShirley TrettenbachLaura TubridyTuesday at Ten Bible StudyJanet TunneyKaren and John TuozzoloLinda TuttleUnited Methodist Women Christ United Methodist ChurchUnitedHealth GroupCheryl VaiknorasAllynne ValerioStacy and Erik Van Gunten

Gertrude Van WienenRuth VanderburghFrancine VasquezShanthi and Prabaker VenkatachalamMelissa and Art VercilloKim and Guy VerronaJoanne VolponiJames WagnerEmily and Steven WagshalVirginia WalkerConstance and Craig WallaceElizabeth WatsonLauren and Jeff WaxmanStephanie and Phillip WayWilliam WebbMiranda WebberEdward WeberNancy WeberPamela WeberMarilyn and Frederick WegnerSarah WeidmanLes WeinbergDebra WeinsteinRobin WeintraubMargie WeishaarJill and Arnold WeissAllison WeitzmanKris and Connor WeldonGail and Gerald WellsSusan WenselJudith and Alan WertheimerKimberly WestShannon WetzelSherri and John WheelerAna and Thomas White

Valerie Whyte-BianchiBernard WiczerBarbara WigginsMollie WightmanJulie and Dennis WilewskiChristine and Robert WilliamsMartha WilliamsLesley and Raleigh WillsonMary Ann WilsonWintrust BankJill Fink and Jerry WiseLloyd WittenmeyerGary Witty, PSDiane and Don WixtedAnn WolffWendy Woods PallettNancy and Jeff WorthingtonRobert YandtPaula and Paul YanoshikMarisa Yeres GillSolomon YiAlice YoungLaurie and William YoungRosemary and Edward YoungTina and Joseph YoungBeverly ZalkindMaureen and Irving ZangwillTalia ZapolanskiTammy and Cody ZarrJoni and Michael ZavisJodi and Tom ZavosElizabeth ZimmermannKatie and Frank ZlotnickDavid ZuckerMarie Zuidema

On the cover: Dystonia Coalition Director H. A. “Buz”

Jinnah, MD, PhD, andDMRF Board MembersSandra Weil and MarkRudolph demonstratethe many dimensions

of the Foundation.

One East Wacker Drive, Suite 1730 | Chicago, Illinois 60601-1980Phone 312.755.0198 | Toll-Free 800.377.DYST (3978)

www.dystonia-foundation.org