13th Moebius Syndrome Foundation Conference … · 12:45 pm Child Care/Camp Moebius Closes...
1
Thursday July 19 5-7 pm Registration Desk Opens 7-9 pm Welcome Reception for Attendees Friday July 20 7 am Morning Yoga 7-9 am Breakfast 8 am - 5 pm Registration Desk Opens 8:30 am Child Care/Camp Moebius Opens 9 am - 9:25 am Conference Overview 9:30 am - 5 pm Communications Workshop Ages 12 - 18 9:30-10:30 am Breakout Sessions Disability and SSI Overview of Collaborative Moebius Syndrome Research Initiatives IEP and 504 Hand Surgery 9:30-11:30 am Session for Siblings 10:45-11:45 am Breakout Sessions Speech and Feeding Sleep in Adults and Children Special Needs Trusts and Estate Planning Genetic Research 12-1 pm Lunch 1 pm - 2:30 pm Opening Session Keynote Speaker, Jono Lancaster 2:45 pm - 4 pm Breakout Sessions Smile Surgery Depression and Anxiety in Children & Teens Eye issues in Adults and Children Autism Social Skills for Children 3-4 pm Teens Meet Jono 4:15-5:45 pm Just for Sessions Moms, Dads, Women, Men, Grandparents Gathering of Adults with Moebius & Jono 6 pm Child Care/Camp Moebius Closes Dinner on Your Own 7:30 pm Ice Cream Social and Dive In Movie Saturday July 21 7 am Meet for a Morning Walk 7-9 am Breakfast 8 am-5 pm Registration Desk Opens 8:45 am Child Care/Camp Moebius Opens 9-9:15 am Welcome: Moebius Foundation Activities 9:15-10:30 am Panel: Therapy Session Kind Campaign for Girls Wonder Session for Kids 10+ Saturday July 21 (cont’d) 10:45-12 pm Breakout Sessions Dental Issues in Adults and Children Smile Surgery Alternative Medicine Want to Host a Regional Event? Wonder Session for Kids 6 - 10 12 pm Group Photo 12:30-2 pm Lunch and Rick Guidotti Keynote 2:15-3:15 pm Breakout Sessions Adults and Teens: Employment resumes, mock interviews - part 1 OT for Facial Paralysis Orthopedic and Club Foot Issues Respiratory Issues Empowering Youth Activists 3:30 - 4:30 pm Breakout Sessions Adults and Teens: Employment resumes, mock interviews - part 2 Bullying/Communication for parents Tracheostomy & Ventilator-Dependent Patients: Life at home and in the community Anxiety & Depression Topics for adults 4:45-5:30 pm Just for Sessions Moms, Dads, Adults, Grandparents 5:45 pm Child Care/Camp Moebius Closes 6:30-10 pm Dinner, Awards & Talent Show Sunday July 22 7-9 am Breakfast 8 am-12 pm Registration Desk Opens 8:15 am Child Care/Camp Moebius Opens 9- 10:15 am Fire Truck Visit 8:30-10 am Let’s Get Creative! Music for adults and teens Writing Workshop for adults and teens Art Workshop for adults and teens 10:30-12 pm Art Activities for kids ages 6 to 12 10:15-11:15 am General Session Scientific Advisory Board 11:15-12:30 pmAdult Panel for Everyone 12:45 pm Child Care/Camp Moebius Closes 12:30-2:30 pm Lunch & Closing Session Consults Individual appointments for research and therapy are scheduled throughout the day Friday and Saturday. Monday July 23 9 am-6 pm The Florida Aquarium Excursion 13th Moebius Syndrome Foundation Conference Tentative Schedule
Transcript of 13th Moebius Syndrome Foundation Conference … · 12:45 pm Child Care/Camp Moebius Closes...
Thursday July 19 5-7 pm Registration Desk Opens 7-9 pm Welcome Reception for Attendees
Friday July 20 7 am Morning Yoga7-9 am Breakfast8 am - 5 pm Registration Desk Opens8:30 am Child Care/Camp Moebius Opens9 am - 9:25 amConference Overview9:30 am - 5 pmCommunications Workshop Ages 12 - 189:30-10:30 am Breakout Sessions Disability and SSI Overview of Collaborative Moebius Syndrome Research Initiatives IEP and 504 Hand Surgery9:30-11:30 am Session for Siblings10:45-11:45 amBreakout Sessions Speech and Feeding Sleep in Adults and Children Special Needs Trusts and Estate Planning Genetic Research12-1 pm Lunch1 pm - 2:30 pmOpening Session Keynote Speaker, Jono Lancaster2:45 pm - 4 pmBreakout Sessions Smile Surgery Depression and Anxiety in Children & Teens Eye issues in Adults and Children Autism Social Skills for Children3-4 pm Teens Meet Jono4:15-5:45 pm Just for Sessions Moms, Dads, Women, Men, Grandparents Gathering of Adults with Moebius & Jono6 pm Child Care/Camp Moebius Closes Dinner on Your Own7:30 pm Ice Cream Social and Dive In Movie
Saturday July 21 7 am Meet for a Morning Walk7-9 am Breakfast8 am-5 pm Registration Desk Opens8:45 am Child Care/Camp Moebius Opens9-9:15 am Welcome: Moebius Foundation Activities9:15-10:30 am Panel: Therapy Session Kind Campaign for Girls Wonder Session for Kids 10+
Saturday July 21 (cont’d) 10:45-12 pm Breakout Sessions Dental Issues in Adults and Children Smile Surgery Alternative Medicine Want to Host a Regional Event? Wonder Session for Kids 6 - 1012 pm Group Photo12:30-2 pm Lunch and Rick Guidotti Keynote2:15-3:15 pm Breakout Sessions Adults and Teens: Employment resumes, mock interviews - part 1 OT for Facial Paralysis Orthopedic and Club Foot Issues Respiratory Issues Empowering Youth Activists3:30 - 4:30 pm Breakout Sessions Adults and Teens: Employment resumes, mock interviews - part 2 Bullying/Communication for parents Tracheostomy & Ventilator-Dependent Patients: Life at home and in the community Anxiety & Depression Topics for adults4:45-5:30 pm Just for Sessions Moms, Dads, Adults, Grandparents5:45 pm Child Care/Camp Moebius Closes6:30-10 pm Dinner, Awards & Talent Show
Sunday July 22 7-9 am Breakfast8 am-12 pm Registration Desk Opens8:15 am Child Care/Camp Moebius Opens9- 10:15 am Fire Truck Visit8:30-10 am Let’s Get Creative! Music for adults and teens Writing Workshop for adults and teens Art Workshop for adults and teens10:30-12 pm Art Activities for kids ages 6 to 12 10:15-11:15 amGeneral Session Scientific Advisory Board 11:15-12:30 pmAdult Panel for Everyone 12:45 pm Child Care/Camp Moebius Closes12:30-2:30 pm Lunch & Closing Session
Consults Individual appointments for research and therapy are scheduled throughout the day Friday and Saturday.
Monday July 23 9 am-6 pm The Florida Aquarium Excursion
13th Moebius Syndrome Foundation Conference Tentative Schedule
