1 The Informed Patient The Doctor Knows Best, Does He? Gastein, October 6, 2005.
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Transcript of 1 The Informed Patient The Doctor Knows Best, Does He? Gastein, October 6, 2005.
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The Informed Patient
The Doctor Knows Best, Does He?
Gastein, October 6, 2005
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Contents
Where we are Where we need to be Bridging the gap Overcoming the obstacles Roadmap towards the
Informed Patient
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Where we are Bizarre situation
- Information overload on Internet- Inadequate information flow from health
professionals, particularly physicians Inadequate policy Evidence of inadequacy of health
information in practice- TIP II Report- Health Communication Journal
No single training manual
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Where we need to be
“The European Patients Forum believes that all patients, no matter their condition, background or nationality, have a fundamental and legitimate right of access to all kinds of information about their health, medical conditions and the availability of treatments including the best available management for their disease”
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Where we need to be (2)
« Informed Decisions .. in full partnership with health care professionals » (EPF)
EU Policy which facilitates patient empowerment and information
Institutionalized Part of Health Professional Training
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Benefits: Informed Patient
Better quality life More discerning about health Prevention of disease Awareness of risks & benefits Optimize health outcomes Healthy patients an asset to society
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Bridging the Gap
Involve the right PEOPLE(Patient Representative Groups = IAPO, Health Professionals, WHO, Young generation)
Develop clear and effective POLICY Provide the most effective TRAINING
material Develop PARTNERSHIP projects Create POLICY platforms for debate &
influence EU agenda
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PEOPLE & Existing Policies
International Association of Patients Organizations (IAPO) + EPF
World Medical Association (WMA)« Decl. Lisbon on the Rights of the Patient »
International Council of Nurses (ICN)« Informed Patients »
International Pharmaceutical Federation (FIP)« Standards for Quality of Pharmacy Services »
FDI World Dental Federation « International Principles of Ethics for the Dental Profession »
World Health Organization?
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POLICY (Common Principles)
Right to Information & Informed Decisions Confidentiality & Privacy Accessible, Timely, Accurate, Clear,
Relevant, Reliable Focus on Prevention Risks & Benefits should be communicated Importance of Partnerships Training Imperative
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POLICY (Common Statement)
Common Statement on the Principles of Good Practice in Health Communication and Information Practice
Inclusive of existing policies Concise & Global context
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TRAINING (Common Manual)
Pocket Edition Training Manual Examples of successful manuals
(Good Clinical Practice for Biomedical Research, WMA Ethics Manual, Human Rights)
Inclusion in curricula of health professions’ training
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OBSTACLES
Government Informed Patient = Expensive Patient?
Health Professions- Turf Wars- Older Generation vs Millenium Kids
Patients- Team dynamics
(Storming, Norming, Performing)
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ROADMAP
WMA policy & training material development (2005 – 2006)
Consensus Seeking Platform – towards a COMMON STATEMENT(Health Professions, IAPO + WHO)
Training Manual – Scholarly piece, seek endorsement & distribution by HPAs
Joint Advocacy
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Paradigm Shift: Old New
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