1. 2 Health Care Transition A Parent, Family and Caregiver’s Guide to Helping Youth Transition...

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Health Care Transition

A Parent, Family and Caregiver’s Guide to Helping Youth Transition from Pediatric to Adult Health Care

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Brought to you by:The NC Family to Family Health

Information CenterA project of the Exceptional Children’s Assistance Center

Carolina Health and Transition (CHAT)

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CHAT : Carolina Health and Transition


A federally funded project though the NC Division of Public Health, Children and Youth Branch.

• Youth Initiative

• Family Initiative

• Health Care Providers

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Goals of this workshop


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What is Transition?


Types of transition:

• School

• Work

• Independence

• Health

Our focus will be on transitioning from pediatric to adult health care systems.

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7Carolina Health and Transition (CHAT)

Keys to Understanding Health Care Transition

Health Care Transition is:

• A process

•different from transfer of care

which is an event

• Individualized

•one size does not fit all

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Why Understanding Health Care Transition is Important


•What are some transition realities?•Where can successful transition lead?•What does it mean for youth to manage their own health care?

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Potential Barriers:


• Personal barriers (Individualized)

• Service barriers (Access)

• Structural barriers (External)

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Tips for Successful Transition:


• Teachable moments

• Assess your situation

• Partners

• Make sure your child knows…

• Resource materials

• Record keeping

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Checklists and Timelines


Page 49-51

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What is a Medical Home?


Primary care that is:• Accessible• Family Centered• Continuous• Comprehensive• Coordinated• Compassionate• Culturally Effective

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Skill Builders:Medical Home Family Index

Pages 55-58

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Health Care Transition and the Patient Centered Medical Home


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• Pediatric Provider• Adult Provider

Transition Team• Communication• Support services and ongoing education• Care Coordinators

Roles of Pediatric vs. Adult Health Care Providers

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Record Keeping Skill Builders: Care Notebook and

Portable Medical Summary


Pages 61-64

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Roles of Care Coordinators


•Assess and identify needs•Develop a Plan of Care•Put the plan into action•Evaluate

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Skill Builders: Transition Planning

Page 67

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Health Care Coverage and Legal Issues

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•Age restrictions for insurance •Medical Power of Attorney 93-94•Health Insurance Portability and Accountability Act (HIPAA) 91-92•Family Educational Rights and Privacy Act (FERPA) 73-74•Guardianship

Legal Issues Related to Health Care Coverage:

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• Cultural competence• Health literacy

•“Ask Me 3”

Cultural Competence and Transition:

Pages 97-104

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• Advocacy Skills for Parents• Support

• Circle of Friends 107• Mentoring

Advocacy, Support and Mentoring:

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• Timelines and checklists• Medical Home Family Index• Portable Medical Summary & Emergency

Medical Form• Transition Care Plan• Health Insurance & Legal issues• Cultural Competence & Health Literacy• Advocacy, Support Networks• Resources

Health Care Transition Toolkit

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• National• State• Care Notebook• ICE

Resources

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Questions?

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For more information please contact:

NC Family to Family Health Information Center

At ECAC(800) 962-6817 ext. 35

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1. 2 Health Care Transition A Parent, Family and Caregiver’s Guide to Helping Youth Transition...

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