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Scientific Advisory Board Fragile X AFrAHM asbl Monday November 18th, 2013 Olivier Crevoulin &...
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Transcript of Scientific Advisory Board Fragile X AFrAHM asbl Monday November 18th, 2013 Olivier Crevoulin &...
![Page 1: Scientific Advisory Board Fragile X AFrAHM asbl Monday November 18th, 2013 Olivier Crevoulin & François Rycx.](https://reader035.fdocuments.us/reader035/viewer/2022062422/56649f2e5503460f94c48647/html5/thumbnails/1.jpg)
Scientific Advisory BoardFragile X
AFrAHM asblMonday November 18th, 2013
Olivier Crevoulin & François Rycx
![Page 2: Scientific Advisory Board Fragile X AFrAHM asbl Monday November 18th, 2013 Olivier Crevoulin & François Rycx.](https://reader035.fdocuments.us/reader035/viewer/2022062422/56649f2e5503460f94c48647/html5/thumbnails/2.jpg)
Introduction
Round table - intro
Simply using your native language
Feel free to intervene at all time – this is your meeting
![Page 3: Scientific Advisory Board Fragile X AFrAHM asbl Monday November 18th, 2013 Olivier Crevoulin & François Rycx.](https://reader035.fdocuments.us/reader035/viewer/2022062422/56649f2e5503460f94c48647/html5/thumbnails/3.jpg)
Agenda
Pre-mutation and related disorders
Awareness campaign for doctors and non-medical professionals
PAH: Plateforme Annonce Handicap
Conference for families 2014
How to best support schools and related centers
Latest news –clinical trials; medical & non-medical research
![Page 4: Scientific Advisory Board Fragile X AFrAHM asbl Monday November 18th, 2013 Olivier Crevoulin & François Rycx.](https://reader035.fdocuments.us/reader035/viewer/2022062422/56649f2e5503460f94c48647/html5/thumbnails/4.jpg)
Pre-mutationDiagnostic for child, teenager
FXTAS & FXPOI in Belgium
![Page 5: Scientific Advisory Board Fragile X AFrAHM asbl Monday November 18th, 2013 Olivier Crevoulin & François Rycx.](https://reader035.fdocuments.us/reader035/viewer/2022062422/56649f2e5503460f94c48647/html5/thumbnails/5.jpg)
Awareness Campaign
early detection & right intervention
Postcard for pediatricians & GPEuropean folder
Quid non-medical staff ?
![Page 6: Scientific Advisory Board Fragile X AFrAHM asbl Monday November 18th, 2013 Olivier Crevoulin & François Rycx.](https://reader035.fdocuments.us/reader035/viewer/2022062422/56649f2e5503460f94c48647/html5/thumbnails/6.jpg)
PlateformeAnnonceHandicap
![Page 7: Scientific Advisory Board Fragile X AFrAHM asbl Monday November 18th, 2013 Olivier Crevoulin & François Rycx.](https://reader035.fdocuments.us/reader035/viewer/2022062422/56649f2e5503460f94c48647/html5/thumbnails/7.jpg)
Conference 2014for Families
Round table - hot topics in your field
![Page 8: Scientific Advisory Board Fragile X AFrAHM asbl Monday November 18th, 2013 Olivier Crevoulin & François Rycx.](https://reader035.fdocuments.us/reader035/viewer/2022062422/56649f2e5503460f94c48647/html5/thumbnails/8.jpg)
Supporting schools & related center
Round table
![Page 9: Scientific Advisory Board Fragile X AFrAHM asbl Monday November 18th, 2013 Olivier Crevoulin & François Rycx.](https://reader035.fdocuments.us/reader035/viewer/2022062422/56649f2e5503460f94c48647/html5/thumbnails/9.jpg)
Latest News to share?Round table
![Page 10: Scientific Advisory Board Fragile X AFrAHM asbl Monday November 18th, 2013 Olivier Crevoulin & François Rycx.](https://reader035.fdocuments.us/reader035/viewer/2022062422/56649f2e5503460f94c48647/html5/thumbnails/10.jpg)
Thank you!Your personal commitment makes the difference and gives
hope to families
![Page 11: Scientific Advisory Board Fragile X AFrAHM asbl Monday November 18th, 2013 Olivier Crevoulin & François Rycx.](https://reader035.fdocuments.us/reader035/viewer/2022062422/56649f2e5503460f94c48647/html5/thumbnails/11.jpg)
Association X fragile Belgique
Website:www.x-fragile.be
Facebook: https://www.facebook.com/AssociationXFragileBelgique
Contact for SAB:Olivier Crevoulin – [email protected] – 0477 81 13 18François Rycx – [email protected] – 0496 57 35 19