Post on 19-Jun-2015
description
VOICES FROM THE FIELDUSING DAP TO FIND NEW INTERVENTIONS FOR ASD
Amber FanteBaker College of Clinton Township
Amber Fante
ECE Department Chair at Baker College of Clinton Township
Contact me Facebook me (put Autism recovery in
message line) Links to video presentation
Presentation Copies E-mail me at amber.fante@baker.edu
(Subject Line: Autism Recovery)
Meet the Fantes
Emotional Journey of Finding Zeke
1)Gain insights into the emotional journey of being an autistic recovery family.
2)Share resources from established organizations.
3)Share my unique approaches for recovery.
TACA Video – Hope After Diagnosis
http://www.tacanow.org/family-resources/autism-hope-after-diagnosis/
Zeke’s Timeline
Joyous Birth (Jan, 2004) 18 month shots (2005)
Mike’s Approach Amber’s Response
2 year old ASQ test (March 2006) 2 year. 9 months ISD evaluation (August.
2006) MIPPS (Macomb Infant Pre-School) program
(Sept 06-Jan 05 ECDD (Early Childhood Developmental
Delay) program (Jan 06)
Not Ready to Try Welcome
Weds. Watching
August–Oct. 2007
Welcoming Eden – Nov 2007 Finding Doctor
Blood Work for Zeke
A New Baby & Numbness
Friday, March 21st, 2008Spring Break
“What did we do today?” Mike’s Ultimatum
Saturday, March 22th My Son’s Reflection
Stimming Obsessive Play No Eye Contact A Runner Massive Sensory Issues Demanded Routine Echolalia – 95% of his speech Little Social Referencing Soulless existence
Sunday, March 23th Grief Cycle
Sadness and Sorrow Arrive at 22119 Shady Lane
"Would you tell me, please, which way I ought to go from here?“
"That depends a good deal on where
you want to get to." -Lewis Carrol
Defining Autism Autism definition : A lifelong
developmental disability that affects the way a person communicates and relates to other people. It's also known as autistic spectrum disorder, or ASD. People with autism have difficulties with everyday social interactions. Autism is often described as a 'spectrum disorder' because the condition affects people in many different ways and to varying degrees.
Autism Recovery Jenny McCarthy on autism recovery:“There's like two controversies with
autism. It's how they got there and the possibility of recovery. Recovery, the real thing, it's not a cure, a really great analogy I give is autism is like getting hit by a bus. You can't be cured but you can recover all those lost things that you once had.”
Interview: Jenny McCarthy 'On the Record' on Her Autism Crusade
Retrieved from: http://www.foxnews.com/story/0,2933,364496,00.html
October 18, 2010
Amber Jumps off the Cliff
Advise for Professionals
Respect the right to grieve If parents aren’t ready to “deal with
it” KEEP TRYING! Offer support by helping them
connect to other families: Speech and language delay groups, Autism Groups, Judson Center, Parent Mentor Groups, local groups
Offer support options (Recovery and NON-Recovery)
Monday, March 30th “Recovery”?
Attempting “recovery” is an emotional journey.
Are their recovery “failures”?
Advise for Professionals
Helping Parents who are considering a Recovery
Remember the outcome is always HOPEFUL! Recovery requires a STRONG TEAM
COMMITMENT! Read Mother Warriors Look at the Reviews on Amazon for Autism
Recovery Books Check out Generation Rescue Website Watch TACA video; Autism Hope After
Diagnosis
Tuesday, April 1st Dr. Susan Syed and I Go Back to 1800’s
Bio-Medical BeginsNothing to LoseFood heals the body
45% of kids eat no fruit 20% eat one serving of veggies or less
Of this only 8% eat green veggies Fitness: 90% Rule Top 5 sources of calories are; whole and
chocolate milk, pizza, soft drinks, low-fat milk and cold cereal.The analysis of NHANES III data was conducted by Block Dietary Data Systems of Berkeley,
Calif., and was sponsored by Dole Food Company, Inc. NHANES III was a study conducted by the National Center for Health Statistics (NCHS) at the U.S. Centers for Disease Control
and Prevention (CDC) from 1988-1994. The study included 2400 5 to 10 year-olds. Facts cited above also come from previously published data from the USDA’s Continuing Survey
of Food Intake by Individuals (CSFII), 1989-1991 and 1994-1996.
Intervention #1: Bio-Medical Detox
Part 1: Dietary Intervention 3 Food (Oatmeal Cookies, Waffles,
Ramen noodles) Amber’s Culinary Skills An organic lifestyle NO CHEATING EVER!!!!! Cost, Preparation, Resistance
Bio-Medical Interventions
Why does this work? Try The Specific Carbohydrate Diet
Theory: Environmental Toxins and Canaries in the Coal Mine
Non-expert status Natural homeopathic approach vs.
intensive approaches
Advise for Professionals
Finding a Doctor: Keep this in mind Expense Open minded humility Willingness to try new things Remember when nicotine didn’t
cause cancer? Longitutidal data doesn’t exsist for
most environmental pollutins.
Supplements and Sneaky Chef
Fruit and Veggie Supplement (Veggie Brownies)
Acidophilus (Soy Ice Treat)Fish Oil (Fishy Pancakes)
B-12 Shot
Advise for Professionals
It’s mostly FOOD and VITAMINS! Be Sensitive Parents feel – sad, angry, guilty, and
protective Buy a snack (Trader Joe Snicker
Doodle's) Share a recipe Provide connections to Celiac groups
or GFCF groups
Your Turn
What impact do you think diet has on learning and behavior?
What modern challenges do we face in preparing healthy meals for our families?
Ezekiel Responds
Hi, mom! 2 weeks improvement Increased eye contact Echolalia decreases More social referencing
Bio-Medical:
Part 2: Homeopathic Detox Process Process to remove the toxins from
the body Similar to a colon cleanse Digestion Problems Regression and Healing
Summer-Time Blues
Detox begins in June 4th of July Agony August Blue Bird Wishes 24 hours one word, “Pancakes” An evening to remember, “Stay with
Me.” Managing my depression “He’s been stung by bees”
Bio-Medical Detox Timeline April 1st 2008 – Gluten Free June 1st 2008 – Yeast, Dairy Free,
Supplements June 15th, 2008 – Detox Begins 2 weeks on 1 week off 1 year of Detox Summer 2009 – 1 maintenance
round detox Now – Entire family gluten free
Behavioral Interventions meets DAPAmber’s Do-it Yourself InterventionsBased on my knowledge as a professionalCommitment to healing my childUniquely designed for Zeke Screen time Detox Isolation Detox
Facing Fear (Vygotsky – Scaffolding) Willing to Accept Change(Piaget – Stages of
Development)
Play, The “endangered” species of early childhood
“We don't quit playing because we grow old, we grow old because we quit playing.”
George Bernard Shaw
The Predators of Play
“Play now appears to be a minor activity in most kindergarten classrooms.”Edward Miller, Director of Alliance
for Childhood
Unique Approach #2: Screen time Detox
Echolalia: Good vs. Bad Mike’s approach vs. Amber’s
approach Relationship Development
Intervention: RDI Program and Education pg. 17-21
Temple Grandin on stimming Echolalia provides an auditory map
of the brain.
Static vs. Dynamic
The Dangers of the Screen
Levels of Static in Screentime Elijah’s Greatest Gift Fante TEAM Commitment
Screen time Detox Timeline May 2008 –PURGE!
July 2008- Speech In-Take -24
January 2009 – +18 August 2009 -Released from speech May 2009– Adding Sports Christmas 2009 – Wii Sports Present Day – No Screen during Week 1
hr/day weekend.
Neurons and Dendrites
Creating a Neural Pathway
Screen Time Detox Article
Neurons and Memory
Your Turn:
Does the science make sense? How will caregivers, teachers,
parents respond? Does it have the same impact on all
kids?
Advise for Professionals
Limit use of “static” inputs and rewards in therapy
Replace repetive routines with dynamic interaction
Educate parents about the dangers of screen time
Unique Approach #3: Isolation Detox
Facing Fear Social responses are
inappropriate. May 2008 - The
Jungle Playscape: Zeke and Amber’s Greatest Fear.
Advise for Professionals A will of steel and the velvet touch Be sure you are “reading” the right
emotion in the child. Research HALO and Rapid Prompting
Method Soma Mukhopadhyay and Tito
Tito has written 2 books about autism New book: Understanding Autism through
Rapid Prompting Method
Halo and Non-Verbal Children and Self Regulations http://www.amotherscourage.org/ http
://www.youtube.com/watch?v=m1OAqtAR_-E
http://video.google.com/videoplay?docid=7322238338056531303#
What self-regulation strategies do you notice this mom use with her non-verbal son as he learns his science lesson?
Templeton Grandin
Note all of the pieces of advice Temple makes to parents:
http://www.youtube.com/watch?v=Ok6jkDiJFAQ&feature=related
Permissive Parenting and Autism Why do you think some parents
struggle with having different expectations for autistic kids?
Become a Dragonfly
Master of Change & Piaget
The more the schemata are differentiated, the smaller the gap between the new and the familiar becomes, so that novelty, instead of constituting an annoyance avoided by the subject, becomes a problem and invites searching.
Jean Piaget
Still More to Learn
Providing Social Practice Friendship at least once a week
Increased Modeling The Next Level- Hitting the Wall
Got rid of soy Summer time detox Body’s response to gluten
Meet Zeke Fully recovered Loves sports, cub scouts, learning
Chinese, his siblings, plays baseball, basket ball, play dates w/ friends.
Hates bullies. Extremely social Talks about his emotions freely Very loving Wants to be a bus driver, doctor, and a
priest when he grows up. A FULL CHRISTMAS LIST!
Amber’s Journey Our work as God’s servant’s gets validated -or not – in
the details. People are watching us we stay in our post, alertly unswervingly, in hard times, tough times, bad times; when we are beaten up, jailed mobbed; working hard; working late; working without eating; with pure heart, clear head, steady hand; in gentleness, holiness, and honest love; when we’re telling the truth, and when God is showing his power; when we’re doing our best setting things right; when we’re praised and when we’re blamed; slandered and honored; true to our word though distrusted; ignored by the world though recognized by God; terrifically alive though rumored to be dead; beaten within an inch of our loves, but refusing to die; immersed in tears, yet always filled with deep joy; living on handouts, yet enriching many; having nothing, having it all.
2 Corinthian 6 – The Message
Meet Amber Natural healing for
our whole family Decreased the static Faced my fears I am the Dragonfly
I cook I run I write
The Dragonfly becomes a Butterfly