Post on 27-Dec-2015
Sarah Buckland, Director, INVOLVE
sbuckland@invo.org.uk02380 651088
People Centred Public Health
Research
www.invo.org.uk
A national advisory group funded by the National Institute for Health Research (NIHR). Established 1996.
Supporting active public involvement in NHS, public health and social care research
What is INVOLVE? How we do it:
INVOLVE Strategy 2012 – 15 Annual work plansINVOLVE MembersINVOLVE Coordinating Centre
33 members
service users carers members of the public researchers public involvement specialists research managers health and social care practitioners people from voluntary sector organisations
INVOLVE members
Public InvolvementWhere members of the public are actively involved in research and in research organisations. e.g.
• involvement in identifying research priorities • commenting on research plans and the acceptability of research to the public• membership of steering committees• undertaking research
Public EngagementWhere information and knowledge about research is provided and disseminated to the public. e.g.
• science festivals open to the public with debates and discussions on research• open days where members of the public are invited to find out about research• using media to inform and raise awareness of research with the public
What do we mean by involvement and engagement?
invo.org.uk
Broad democratic principles of citizenship, accountability and transparency. Public involvement in research can lead to empowerment for people who use health and social care services, providing a route to influencing change and improvement in issues which concern them most.
Public involvement can lead to better quality research that is - more relevant accessible and acceptable to participants and lead to better practical outcomes
Why is public involvement important?
Public involvement and engagement – emphasis on engagement / communicating research findings- terms often used interchangeably
Language and definitions of ‘public’
Not just health interventions – research often involves healthy people who may have less motivation to get actively involved in research
Some of the challenges for public involvement in public health research
Watcome Study – Randomised Controlled Trial of how housing conditions in Torbay affected the health and wellbeing of residents
Born in Bradford Study - birth cohort of 10,000 babies born in 2007, being followed up for 20 years
On the Buses study – public health impact of free public transport for young people in London.www.lshtm.ac.uk/php/hsrp/buses/youth/index.html
Some examples of public involvement in public health research
www.borninbradford.nhs.uk
• Involve people as early as possible
• Be clear with the people you want to involve
• Be accessible
• Resource the involvement
• Offer training and support
• Clarify organisational responsibilities
• Document and record involvement in your research
How best to involve the public?
INVOLVE Strategy
LEAD across the National Institute for Health Research
Build and share the EVIDENCE BASE
Develop CAPACITY and
CAPABILITY
Influence research
POLICY and PRACTICE
Leading on public involvement across the NIHR and influencing research policy and practice
Supporting NIHR e.g.
Public involvement in research funding decisions
Public involvement in research funded by the NIHR Research
Plain English summaries
NIHR wide approach to Learning and Development
Principles and standards for involvement
Influencing policy and practice e.g.
• Regulation of research e.g. Health Research Authority (HRA)
• Paymente.g. Payment guidance
• International e.g. Denmark and Netherlands
Building and sharing the EVIDENCE BASE – e.g.
Evidence Libraryhttp://www.invo.org.uk/resource-centre/evidence-library/ An on line database of 200+ lay summaries of reports on the nature, extent, impact of public involvement.
Examples of public involvementUser controlled research, social care research, impact on the quality of research, examples of involvement in research design.
invoNET http://www.invo.org.uk/invonet/ A network of 200+ people with a shared interest in researching nature, extent and impact of public involvement in research.
Developing CAPACITY and CAPABILITY – e.g.
Sharing knowledge and experience:• Responding to enquiries • Newsletter and email alerts
Resources:• Briefing Notes for Researchers• Public Information Pack (PIP)• Training and support for public involvement• Involvement cost calculator
Databases and maps:• Putting it into practice database• People in Research database• invoDirect
Sarah Buckland, Directorsbuckland@invo.org.uk
02380 651088
People Centred Public Health Research
www.invo.org.uk