Post on 11-Jun-2015
From Social to Sexual Networks: Developing a provincial sexual health websiteMark Gilbert, MDOnline Sexual Health Services, BCCDC
Health Care 2.0: Social Media CampQuality Forum 2012
March 9, 2012
Outline
• Why we’re doing it
• How we’re doing it
• What it’s going to look like
• How it’s been so far
Sexual Health Services
• Testing, treatment, contraception, counseling• Disparities in access and burden
– Rural versus urban– By population
• Increased service demands– Increasing STIs (chlamydia, gonorrhea)– Delays to care are missed prevention opportunities
Barriers to Conventional Services
Source: Klausner et al. JAMA 2000: 284(4):447-449.
“New era of STI prevention”
• Educational websites• Online partner notification• Online prescriptions• Social marketing campaigns• Social media • Interactive risk reduction programs• Virtual support communities• Internet-based testing• And more…
Mobile health
Rationale
• Highly acceptable • Patient-centred• Reach affected populations• Reduces barriers to access• Consistent quality• Better use of clinician resources• Cost-effective• Economies of scale
Source: Sandstra et al. Cyber-outreach: STI/HIV education online. Can Nurse 2008; 104(6): 24-28, 30-21
Impact
• Recent survey of sex workers, patrons (n=99)
– 36% had regular HCP with whom felt comfortable talking about sexual health
– 98% found service important, useful
– Reported impacts on:• sexual knowledge
(91%)• sexual behaviour
(34%)– 76% would be likely to
use internet-based testingSource: Hottes TS. Impact of a Nurse Cyber-Outreach Program for Sex Workers and Patrons, and Appeal of Internet-
Based Testing in this Population. 2012 National STD Prevention Conference.
Vision
• Using online and other new technologies to:– Deliver innovative sexual health services– Reduce barriers to accessing appropriate sexual
health care – Reduce overall burden of STI in BC
Clients accessing online services
Clients accessin
g clinic services
• e-mail based partner notification
• Interactive, sexual health website
• Internet-based testing for STIs
“ The trouble with quotes on the internet is that you can never tell if they are genuine. ”
- Abraham Lincoln
Rationale?
• Top searches on BCCDC site• High traffic to current website
STDresource.com • Foundation for online services, including cyber-
outreach• Interactive, integrated with social media
• Final development stages• Launch spring 2012
Current status
Create a Working Group
Establish partnerships
• Internal:– Working groups (design, functionality, content, process)
– Content Subject Matter Experts– PHSA Communications (communication strategy)
– PHSA Privacy Office (advise privacy)
– PHSA Legal (advise risk)
• External:– UBC Researchers– Consultants, vendors– Community Consultation working group (community
perspective)
– RHA/MoH Public Health partners (public health perspective)
– End Users (usability testing)
Website Vision (June 2010)
• To create a comprehensive sexual health website for British Columbians that:
– Provides local, relevant sexual health education and promotion
– Provides access to sexual health nurses
– Is a resource for BC health care providers & agencies
– Stays relevant through dynamic content, new and appropriate technology, and ongoing evaluation
Take stock - internal
Mar-08
May-08
Jul-08
Sep-08
Nov-08
Jan-09
Mar-09
May-09
Jul-09
Sep-09
Nov-09
Jan-10
Mar-10
May-10
Jul-10
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Nov-10
Jan-11
Mar-11
May-11
Jul-11
Sep-11
Nov-11
0
10000
20000
30000
40000
50000
60000
Site Visitors to STDResource.com
Unique visitorsNumber of visitsPages
Axis
Title
Take stock - external
Concept Jam (Dec 2010)
Website Strategy (Dec 2010)
• Options for supporting discussion
• Options for disseminating information
• Health care providers and community partners
• Outreach and Dissemination
Research and
Evaluation
ProgramPlanning,
development, Implementation,
maintenance, evolution…
Online STI Testing & Youth (2010-2012)
• Important aspects of youth’s social contexts affect their engagement in online sexual health services
• Study uses multiple data collection and analysis techniques
Data Analysis
Focus Groups
Individual Interviews
Youth Roundtable
Ongoing Development of SmartSexBC & GetCheckedBC
Youth’s Preferences on Sexual Health Websites
Youth desired:• Practical information• Peer-generated information• Professional approaches to
design and content• Organizational affiliation
prominently displayed
Sources: Shoveller J et al. Youth and Online Sexual Health Services (CJPH 2011, in press)Davis W et al. Lessons for the development of sexual health resources for youth. Presentation, Nov 2011.
“I would be more likely to read than to post. I guess I would just feel weird knowing that anyone else can read it. It would be a mental thing even though they don’t know who you are.”
Website development (Feb 2010-April 2011)
• Wireframes, technical requirements• RFP, vendor evaluation and selection• Logo, colour palette• Design & Layout• Further specification of requirements (interactive features)• Content planning & development & editing & editing &
editing…• Image collecting, photo shoot• Build• Role-based training• User acceptance testing & final testing• LAUNCH
…many, many, many meetings!
Know the risks
What to do if…About STIs Get tested Ask UsSex TalkFor Health Providers
(landing page)
Got symptoms?
(landing page)
Prevention
Just diagnosed
Tests & Exams
Confidentiality
Results
HOME
Pleasure
Dating, Hookups &
flings
Protection
(landing page)What to do7 scenarios
Top 10
(landing page)Blog
(Twitter?)(E-newsletter sign
up?)Link to BCCDC
Journal ClubTrend Watch
Condom broke
unprotectedGeneral worry
pregnant+ sex
partnerBlack out
Sexual assault
Handouts
What to expect
(carousel)
A to Z
About UsTerms of
UsePrivacy
Sex Concerns
Landing page
STI Profiles
Carousel pages
New KnowledgeClinical Practice tips
Program updatesEvents &
Announcements
STIs in BC
Clinic Finder Ask a Question
Hot Topics
News & Events
(landing page)
New partners
Chat
Just In
Sign-in
Not just creating a website!
• Conceptual and Final Privacy Impact Assessment• Policies/procedures
– Privacy policy, Terms of Use (for website)– Nursing, online outreach– Operational (e.g., account management)– Blog content guidelines– Content style guide– Social media / Administrator procedures– Complaints & quality assurance
• Legal & Professional Practice review • Communication strategy• Promotion strategy• Maintenance & sustainment plan
Highs…
• Making something useful• Everyone gets it• Fantastic, collaborative, supportive teamwork• Satisfaction of research : program partnerships• Pushing the boundaries
…and Lows
• Unexpected challenges• Resource constraints: $, people, time• Competing priorities• Delays• Pushing the boundaries
Lessons we’re learning
• It’s not the year 2000 anymore• Need infrastructure in place to support online
presence• Can’t please everyone• Things take a lot longer than you think they will• Devil’s in the details• Many things are out of your control• So much more than just building a website
• Giving clients control means giving it up, and instead focus on mitigating the risks
…to a URL near you
• Devon Haag• Mark Bondyra• Travis Salway Hottes• Jenny Matthews• Ian Roe• Ellen Fraser• Wendy Davis• Derek Kline• Elaine Jones• Amanda Bonnell• Sandi Mitchell• Wendy Conway-Brown• Liz Elliot• Nadine McGraw• Lisa Schaffer
Props to:
For updates, comments, questions:
Lovebytes blog:Bclovebytes.wordpress.com
Email: OSHSP@bccdc.ca mark.gilbert@bccdc.ca
Twitter: mpjgilbert