Post on 24-Dec-2015
New England Regional New England Regional Spinal Cord Injury Spinal Cord Injury Center (NERSCIC)Center (NERSCIC)At Boston Medical Center & At Boston Medical Center &
Gaylord HospitalGaylord Hospital……in affiliation with Northeast in affiliation with Northeast
Rehabilitation HospitalRehabilitation Hospital
OverviewOverview
January 17, 2007January 17, 2007
About NERSCICAbout NERSCIC
At BMC, est. in 1955 as the first civilian SCI At BMC, est. in 1955 as the first civilian SCI rehab unit in USrehab unit in US
Recently re-designated by NIDRR as 1 of Recently re-designated by NIDRR as 1 of 14 National Model Spinal Cord Injury 14 National Model Spinal Cord Injury SystemsSystems• BMC & Gaylord constitute NE network of care, BMC & Gaylord constitute NE network of care,
in association w/ Northeastin association w/ Northeast Conduct socio-medical research and Conduct socio-medical research and
educational programseducational programs More attention to rigor in research & multi-More attention to rigor in research & multi-
center collaborationscenter collaborations
NERSCIC ComponentsNERSCIC ComponentsPI: Steve WilliamsPI: Steve Williams
Gaylord PI: Dave RosenblumGaylord PI: Dave Rosenblum
Clinical SvcCoordinationSteve Williams
Dave RosenblumDirectors
ResearchAlan Jette
Research Director
Training & DisseminationBethlyn Houlihan
Director
NERSCIC Major GoalsNERSCIC Major Goals
ResearchResearch focus area: Technology and focus area: Technology and Science for Health and FunctionScience for Health and Function• Use computer technology to measure function Use computer technology to measure function
and to reduce secondary conditionsand to reduce secondary conditions ClinicallyClinically, develop a New England , develop a New England
Standard of CareStandard of Care Develop regional capacity forDevelop regional capacity for
disseminationdissemination Minority/underserved focusMinority/underserved focus
• Representation in researchRepresentation in research• Reduce clinical disparitiesReduce clinical disparities• Consumer products—ex. Low literacy wordingConsumer products—ex. Low literacy wording
Model System of CareModel System of Care
Comprehensive ServicesComprehensive Services• Emergency careEmergency care• Acute careAcute care• Inpatient acute rehabInpatient acute rehab• Outpatient / follow-up servicesOutpatient / follow-up services
Interdisciplinary team: nursing, physiatrist, Interdisciplinary team: nursing, physiatrist, PT, OT, RT, psych., social work, case PT, OT, RT, psych., social work, case mngmtmngmt
Other required services: Vocational Other required services: Vocational rehabilitation education, peer mentors, rehabilitation education, peer mentors, psychosocial servicespsychosocial services
National SCI Database:National SCI Database:PurposePurpose
~250 participants from BMC, Gaylord~250 participants from BMC, Gaylord• Northeast Rehab in Salem, NHNortheast Rehab in Salem, NH
To ID & evaluate trends over time in: To ID & evaluate trends over time in: etiology, sociodemographics, injury etiology, sociodemographics, injury severity, health services delivery, severity, health services delivery, treatmenttreatment
To establish standards of treatmentTo establish standards of treatment To facilitate other research (both internal To facilitate other research (both internal
& external)& external) 30 new patients REQUIRED per year30 new patients REQUIRED per year NMSCIS publicationsNMSCIS publications
National SCI Database: National SCI Database: MethodsMethods
Two data collection instruments:Two data collection instruments: Post-discharge (“Form I”)Post-discharge (“Form I”)
• medical record, physiatristmedical record, physiatrist• Demographics, acute care & rehab received, Demographics, acute care & rehab received,
treatment outcomes treatment outcomes Phone interview @ 1 yr & every 5Phone interview @ 1 yr & every 5thth year year
thereafter (“Form II”)thereafter (“Form II”)• Change at Year 1, health status, psychosocial Change at Year 1, health status, psychosocial
statusstatus• FIM, CHART, CHIEF, Patient Health FIM, CHART, CHIEF, Patient Health
QuestionnaireQuestionnaire If refuse participation If refuse participation Registry Registry