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Moving the Conversation Forward:Tools to Engage the Family

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o Introduction to Charting the LifeCourse

o Overview of the Core Belief and Foundation of the LifeCourse Framework

o Tools & Resources

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The future is not something we enter. The future is something that we create. And creating that future requires us to make choices and decisions that begin with a dream.

• -Leonard L. Sweet

Vision for a Good Life

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Foundation of the LifeCourse Framework: The Principles

ALL People

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LifeCourse Principles

Family System and Cycles

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LifeCourse Principles

Life Outcomes

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LifeCourse Principles

Life Domains

Social & Spiritual

Community Living

Safety & SecurityHealthy Living

Citizenship & Advocacy

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LifeCourse Principles

Individual & Family Supports

Discovery & Navigation

Connecting & Networking Goods & Services

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LifeCourse Principles

Integrated Delivery of Supports

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Personal Strengths & Assets

Technology Relationship Based

Community Based Eligibility Specific

SUPPORT

STAR

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LifeCourse Principles

Policy & Systems

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LifeCourse Principles

Life Stages & Trajectory

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Michael is a 26-year-old male with Autism. He is an only child and lives at home with his parents. His parents pride themselves in being very supportive of Michael. Michael’s father has a good job and his mother has been able to stay in the home to support Michael. It is clear that Michael is their world and there isn’t much that they wouldn’t do for him.

They have been with him through all the Early Intervention services, BHRS services while in school, attending multiple school meetings each year, and sitting in and advocating for Michael during IEP meetings. As an adult, Michael is now receiving services through the Adult Autism Waiver. He receives Community Support services, which have really allowed him the opportunity to become involved in more community events.

Michael has recently expressed an interest in getting a job and maybe one day moving out on his own. His parents are uncomfortable with the idea and don’t understand why he would need a job or to move out considering they are able to give him anything that he wants or needs. His parents have expressed that he already has a really good life and they don’t see why anything would need to change.

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Have a job doing something that I enjoy. Not relying on my parents for the rest of my life. Being able to budget and have enough money to live on my own. Getting more involved in community activities.

To continue to rely on my parents and live with them.To not know where I will live or what I will do if something happens to my parents.

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Have a job doing something that I enjoy. Not relying on my parents for the rest of my life. Being able to budget and have enough money to live on my own. Getting more involved in community activities.

To continue to rely on my parents and live with them.To not know where I will live or what I will do if something happens to my parents.

-Support Services

-Volunteering at Church

-Relying on his parents for transportation

- Relying on his parents for financial support

- Participating in activities in the community

- Further explore interests, passions, abilities, skills-Explore options of volunteering to gain any necessary skills- Explore possibilities of Job Services- Talk to people who have similar interests and explore what kinds of jobs exist in those areas-Explore ways to build new skills to support areas of need (budgeting, independent living skills, communication skills, etc.)

-Explore transportation options

-Staying at home and playing video games

-Remaining stagnant and not learning new skills

-Relying financially on his parents and not learning to budget

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LifeCourse Framework

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o Have a better understanding of Charting the LifeCourse

o Have a foundation of the LifeCourse Principles

o Feel comfortable to using Tools & Resources available through LifeCourse

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Lifecoursetools.comFor access to the tools and more detailed resources from UMKC Institute for Human Development, UCEDD

Supportstofamilies.orgTo learn more about the National Community of Practice

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How to ensure you have all the information to do your job as a provider• Have you visited the ASERT website (www.paautism.org)?

– Did you create profiles for the participants you support?– Did you sign up to receive the ASERT monthly newsletter?– Do you follow ASERT on facebook or twitter?

• Are you signed up on BAS list-servs (all providers and SC specific)?– Are you receiving Admin Notices and Communications via the list-serv?

• Do you visit the online training platform (www.myodp.org) and save all pertinent documents and watch trainings? Do you participate in live training opportunities?

• Do you communicate with the Regional and Clinical Reps to ask questions and share participant concerns?

If you have questions on any of the above, please contact the Provider Support Mailbox (ra-basprovidersupprt@pa.gov)