Post on 19-Jan-2016
description
1
Launching a European Platform
Towards a common European policy Jan Busschbach
2
Scarcity of donor organs
Scarcity of donor organs Ever since transplantation started
Although it has been contested by medical progress
Scarcity will increase Has not been solved by medical progress
as medical progress will continue
Scarcity In fact distribution problem Scarcity seems function of health policy
We should address ‘Ethical, Legal and Psychological Aspects’
3
No fluid progress
In health policy progress seems less clear than the medical advancements
Examples Failure to increase post mortem donation
Failure to control commercial donation
No real progress over 20 years some even suggest decline
4
Obstructive factors
One can think of several obstructive factors In the progress of ‘Ethical, Legal and Psychological Aspects’
Embedded in local…. National values
Health care systems
National political systems
Difficulty implementing international research
5
Chances
Local differences, increases variances We can observe real life experiments
Often on a nation size level
Quality increases when comparing the differences General rule; bench marking
So… facilitate communication!
6
Communication
“Communication is the problem to the answer…” 10 cc, The thinks we do for love, 1976
As there is no specific communication platform Journal
Society, foundation
• At least in Europe
Conference
• At least not a regular one
10 cc
7
Ad hoc initiatives in the past
Last initiative by Land, Gutman,Sells & Daar International Congress on Ethics of
Organ Transplantation
December 2002
Munich
Successful Bring together scientist and policy
Report in books
Nevertheless ad hoc
8
Continuity: platform
There seems to be a need… ..but can we establish continuity?
Try to replicate last initiative in Munich Initiative of Erasmus MC, Dutch Transplantation Foundation,
and Dutch Health Council
Add continuity: Establish a European Platform
9
The platform: ELPAT
What; European platform
Ethical, Legal and Psychological Aspects of Transplantation
How: Facilitate and structure communication about European
research initiatives in this field of science
Quality improvement
Wherefore: To make progression in resolving the scarcity in donor organs,
within well establish legal, psychological and ethical boundaries
10
5 objectives of ELPAT
1. Organize a conference to mark the start of the platform
2. Establish a secretariat and initial resources to initiate the Platform
3. Bring continuity and structure in the dialogue (communication)
4. Be helpful in solving differences between European countries,
and in formulating guidelines
5. Inform the general public
11
International conference
Objective 1 Organize a high quality international conference to mark the
start of the platform
Facilitate high quality scientific communication Help to formulate priorities in research and
policy for the Platform
A start is a necessary but not sufficient condition of continuity…
12
Secretariat and initial resources
Objective 2: Establish a secretariat and initial resources to initiate the
Platform
The ELPAT Platform has successfully applied for a grant of the European Union For the conference
For the platform
Sufficient for 0.2 FTE secretariat and 0.5 FTE coordinator for the first year, that is until April 2008
13
Continuity and structure
Objective 3: Bring continuity and structure in the dialogue
Research agenda A book
reflecting the main discussion themes of the conference
A willing publisher and sufficient resources are already arranged
www.elpat.eu Will be continued
Newsletter Twice a year
14
Continuity and structure: ESOT
Cooperated with ESOT Look for possibility to professionalise
Meetings Small task force meetings for specific priority topics
• Obviously, topic identified here during the meeting
Organize small general meetings
• Preferably satellite meetings synchronized with ESOT meetings
Organize large ‘stand alone’ conference every 4 year
15
European guidelines
Objective 4 Be helpful in formulating European guidelines on ethical, legal
and psychological aspects
Towards a common European policy
Focus on the priorities as put forward during the founding conference
Make draft recommendations and guidelines Organize task force meetings to establish the guidelines
The Platform will try to be a link with European organizations e.g. EU, Council of Europe, ESOT
16
Inform the general public
Objective 5 Informing the general public about new developments in the
field of ethical, legal and psychological aspects of organ transplantation
Health policy needs public communication Much of our work is determined by media
Making pages at website for lay people Provide state-of-the-art information
An internet discussion platform
17
5 objectives of ELPAT
Organize a high quality international conference to start the platform
Establish a secretariat and initial resources
Bring continuity in the dialogueESOT
- Be helpful in formulating European guidelines
Inform the general publicPress have already been active
18
Further items
19
Leaving Rotterdam
Do not forget your possible book contributions….
Have a last lunch with us… We wise you a comfortable and safe journey
home