Introducing The Brain Tumour Charity

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Presentation by Elissa Coster of The Brain Tumour Charity at the London Cancer Children, Teenager and Young Adults Study Day, held on 25 July 2013.

Transcript of Introducing The Brain Tumour Charity

Introducing

The Brain Tumour Charity

Elissa Coster

Children and Families Worker

The UK’ s

largest

brain

tumour

charity

Merger of three

charities:

• Brain Tumour UK

• Joseph Foote Trust

• The Brain Tumour

Charity

Support

and

Information

Service

The Support & Info Line

Support and Information Service

Support and Information

Service

Information

Informatio

n Days

around

the UK

“Quote can go

here” Research

< 2%

£2.5million every year

= largest dedicated

funder of brain

tumour research

“Quote can go

here”

Research funded across

the UK

Raising awareness

• Longer diagnosis times

in the UK

• More children dying

and suffering from severe

life-limiting disabilities

• Based on research

with professional support

• Aim: Reduce average diagnosis time

from 12-13 weeks to less than five

headsmart.org.uk

Professional

partnerships

• HeadSmart is run by a partnership between:

• Supported by many other organisations:

• Shortlisted for BMJ award, highly commended by QiC:

The campaign

• Public and professional awareness

• Promoted and funded by The Brain Tumour Charity

• Disseminated by:

• The Charity

• Community Champions & volunteers

• We need more Community Champions in Scotland!

• Clinical Champions in every paediatric

neuro-oncology centre

The resources

FREE mobile

symptoms guide

Text SMART to

81400

The impact Average Symptom Interval

Pre-guideline

12-13 weeks

Pre HeadSmart launch

9.3 weeks

JUNE 2012

7.3 weeks

TODAY

6.9 weeks

Our incredible fundraisers

and supporters

Thank you

Find out more:

www.thebraintumourcharity.o

rg

Contact us:

0808 800 0004

support@thebraintumourcharity.org