GLRSN ORIENTATION

May 14, 2009

Angela Bray Hedworth, MS, RHEd, CHES, Program Manager/GLRSN

HISTORY

• HDSP Programs collaborated over 25 years.

• Initially funded in 2004, refunded in 2007.

• Current funding ends on June 30, 2010.

Initial meeting of the GLRSN in February, 2005.

GLRSN Meeting 2008

MISSION

• Reduce the burden of stroke and disparities within Great Lakes regional states by optimizing coordination and collaboration.

• Priorities:– EMS Notification and Response– Evaluation and Surveillance– Quality of Care

How We Carry Out Our Mission

• State Advisory Board• Work Groups

– EMS Notification & Response

– Evaluation/Surveillance– Quality of Care

• State Stroke Task Forces• Clinical Advisory Team• Policy and Procedure

Guide

GLRSN STRUCTUREIDPH

State Advisory Board

Work Groups

Evaluation/Surveillance

Quality of Care

EMS Notification & Response

State Stroke Task Forces

Illinois Stroke Task Force

Indiana Stroke Prevention Task Force

Michigan Stroke Initiative

Stanton Shanedling

Michael Gaines

Indiana Rep

Eileen Worden

Barbara Pryor

Fred Petillo

Dilip Pandey

Minnesota Stroke Partnership

Ohio Stroke Council

Wisconsin Stroke Committee

UIC/GLRSN Staff

Effective 07/01/08

Angela Hedworth

RECENT PROJECTS

Foster KeyStroke SystemLevel Changes

Make Vital Contributions toReducing the Burden of Stroke

Secure andLeverageRequired

Resources

Increase andDemonstrate the

Unique Valueof the Network

Expand NetworkEngagement and Increase

Support

Great Lakes Stroke NetworkStrategic Map: 2009-2011

PromotePublic/Provider

Education on Signs,Symptoms and 911

Facilitate Effortsto Improve

Quality of Care

Provide TechnicalAssistance to Improve EMS

Stroke Response

Expand andDiversify Network

Funding

Increase the Use ofExpertise Within

and Across Stroke Networks

Support Uniform Network Epidemiology and

Surveillance System

EnhanceCommunication within

the Network andwith Outside Partners

Build Primary Data Collection

Within the Network

IncreaseNumber of

Network Participantsand Partners

Engage KeyStakeholders and

Champions

Increase Task ForceEngagement in

Implementation ofStrategic Plan

FosterExpanded Use of

Telemedicine

Expand Range andTypes of Partner

Contributions

EducatePolicy Makers

Using Key Partners

Support andFacilitate

Effective StrokeRehabilitation

Develop theNetwork’s Brand

Improve SecondaryPrevention by

Integrating Across Chronic Diseases

The Burden of Stroke in the Great Lakes States

• Released in January

2006, updated 2008.

• 2007 Stroke Atlas

Quality of Care Calls

• Upcoming– Rural Stroke Systems

of Care, June 11, 2009

– Approaches to Dysphagia, August 13

– Maximizing Opportunities for tPA, October 8, 2009

– Stroke Care Neurosurgery, December 10, 2009

A SAMPLING OF SUCCESSES

• Received Heart Healthy Stroke Free Award in 2009

• Created regional stroke plan and 2 strategic maps

• Created a stroke rehabilitation regional inventory tool, collected data, creating report.

• Website (http://glrsn.uic.edu)• Monthly Wave• Inventory of state stroke data

sources• Partnered with NSA on

Regional Stroke Meeting in 2006 and 2008.

• Data Exchange 2007 & 2008.

• Promotional Brochure, FAQ sheet, other promotional materials.

• Burden Documents, Stroke Atlas & state stroke fact sheets

• Partnering with Professional Sports How to Guide

• Compilation of available Stroke Education Materials, Stroke Media campaigns, evidence based guidelines

• Quality of Care calls reaching over 3500 people.

• Over 440 people on listserv glrsn@listserv.uic.edu

2008-2009 INITIATIVES

• Telemedicine Feasibility Study

• Partnership evaluation “Stories from the Field”

• Quality of Care Calls

• State Fact Sheets

• Stroke Rehabilitation Inventory

• Dysphagia workgroup

2009 – 2010 INITIATIVES• Continuing Quality of Care calls

– Collaborate with PCNASR

• Develop online registration system• Discharge Planning/Rehabilitation Project• Rural Health/Critical Access Hospital Initiative• Dysphagia Screening Project• Patient Education Project• ASLS Training for EMS• GIS Mapping Projects/Epidemiology Partnership• Disparity Analysis

WHAT CAN YOU DO?

• Write letter of support

• Respond to listserv questions

• Share success stories

• Complete evaluations

• Share resources, conferences, etc.

• Share pictures

• Promote GLRSN calls and materials

AWARD WINNER

• In 2009, the GLRSN was awarded the Heart Healthy Stroke Free award by the National Forum for Heart Disease and Stroke Prevention.

• State Contacts– Illinois - Michael Gaines, MPA– Indiana – TBD– Michigan – Rochelle Hurst, RN, MS– Minnesota – Stan Shanedling, PhD, MPH– Ohio – Barbara Pryor, MS, RD, LD– Wisconsin – Fred Petillo, MBA

• Program Contact– Angela Bray Hedworth, MS, CHES, RHEd Program Manager

Phone (312) 355-5423 or hedworth@uic.edu. http://glrsn.uic.edu