Faculty Mentor: Judith Holt, PhD

Trainees: Mari Beitman, DMD Julie Martinez, LSW Brandalyn Chidsey, GC Shelley Woeste, DPT

Medical Home Portal Leadership Project

Consumer Consultant: Eric StokerMedical Home Portal Coordinator: Mindy Tueller

Medical Home Portal Website

Medical Home Portal Website

Project OverviewPurpose: Define and organize the services listed in the “Services & Resources” section of the Medical Home Portal Website:

www.medicalhomeportal.org

Goal: To provide clear information and easy access to valuable services and resources listed on this medical reference website for medical providers and families of children and youth with special health care needs

Project Overview

METHODS:– Preliminary communication to solidify the

process• Google+ hang out, email communications, Dropbox• Met with Mindy Tueller, Medical Home Portal

coordinator

– First protocol – solely descriptions– Evolved second/final Model protocol more

comprehensive

Project OverviewPROCESS:– Tracked through Excel Spreadsheet– Protocol• Researched evidence based practices and services

available• Analyzed expected and actual services listed in category • Constructed category description

– Focus– Full explanation & brief description – Key words or phrases

• Peer review and Medical Portal Team Review

Project Overview

• Results– Total of 59 descriptions were created

• Discussion – Benefits for consumers– Benefits for trainees

– Advocacy– Breastfeeding– Care Coordination– Child Abuse/Neglect– Child Care & Respite– Education/Schools

– Finances– Healthcare- Dental– Healthcare- Related Services– Recreation– Transition to Adulthood– Equipment

Project Overview

• CHALLENGES & LIMITATIONS:– Defining project– Knowledge about categories– Appropriate reading level

• FUTURE DIRECTIONS: – Continued maintenance to keep relevant– Increasing awareness to surrounding states

Special Acknowledgments• Medical Home Portal Team

– Mindy Tueller, Medical Home Portal Program Manager– Chuck Norlin, MD-Medical Home Portal Director– Gina Pola-Money – Family Consultant

• URLEND Consumer Consultant– Eric Stoker

• URLEND Faculty & Leadership Project Advisors – Judith Holt, PhD– Janice Palumbos, CGC– Heidi Lane, PT, DPT, PCS– David Derezotes, Ph.D.– James Bekker, DDS

Questions?

URLEND Feedback: Julie

• Interdisciplinary teamwork – Discipline culture– Respecting expertise while contributing outside of

our expertise• Diverse didactic trainings– Family living, Legislative activity, Evidence based

practices, Etc.• Individuals with special health care needs– Learning the lingo– Awareness of their needs and their rights

URLEND Feedback: Mari• Collaboration –– Introduction to specialists in the area – Excellent referral resources– Leadership project

• People First Language – – Awareness

• Family dynamics -– PDC’s – Clinic hours– Parent advocates

URLEND Feedback: Brandalyn

• Legislative Activities– More encouragement and guidance in hands-on

activities in the legislative process • PDC’s – Excellent opportunity to learn about the role of

other disciplines and a model for interdisciplinary care

• Responsibility – Encourage more assignments, pre-seminar

collaboration, and responsibility and for pre-seminar assignments and readings

URLEND Feedback: ShelleyAdvocacy & Leadership• Leadership project online tool; Hx of disability law & policy; South Main Clinic • Suggestions: Online calendar listing legislative/advocacy activities; sharing of

legislative experience; face time with Med Home Portal Team

Medical Home• Child & family-centered approach with partnership by pediatric care team to

provide continuous, coordinated and culturally effective care; panels with young adults & URLEND family partners

• Suggestions: PDC’s have wider range of dx/needs with possible evening time to accommodate schedules; South Main Clinic experience with more info regarding target population/specific questions to meet needs & promote participation; timely sharing of South Main Clinic experience

Knowledge & Networking• Current trends, topics, & research by varied guest speakers & faculty; clinical

experiences foster professional connections among multi-disciplines• Suggestions: Weekly assignments/reading with interactive seminars; online

calendar for clinical opportunities; clearer expectations for trainees

15

URLEND Feedback: Eric

Fun & Interesting•Favorite seminars: Interactive panels with young adults with special needs; transition training lead by Louise Dunn; autism topics

Working with a Great Leadership Project Team •Thanks to Judith Holt as our project mentor

Meeting many new people •Sharing experiences and learning from each other’s perspective

Suggestions:•Some confusion during certain seminars with jumping around between very different topics•Include more interactive panels with individuals & families with special needs•Include Swedish fish for seminar snacks!