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eHealth

International Visitors Programme 2017

Break-out session

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Agenda

MAIN ROOM

eHealth

10:45 eHealth PolicyRon Roozendaal, Chief Information Officer, Ministry of Health, Welfare & Sport

11:10 Q&A

11:20 eHealth in Practice: Go-FAIR & Personal Health TrainErik Schultes, Dutch Techcentre for Life Sciences

11:40 eHealth in Practice: Privacy & InnovationMichaël Stekkinger, MRDM

12:00 End

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eHealth Policy

Ron Roozendaal, Chief Information Officer, Ministry of Health, Welfare & Sport

Ron Roozendaal

Director of Health Information Policy, Chief Information Officer

Ministry of Health, Welfare and Sport

The Netherlands

5

From the waiting room to the living room

Cold technology for warm care

eHealth = regular healthcare

Low-tech, high impact

Everybody CEO of their own health

Dutch ambitions on eHealth

1. By 2019 80% of the chronically ill have direct electronic access to some of their medical data, such as medication data, vital functions and test results, and is able to use this data in mobile apps or internet applications.

2. Of the chronically ill (diabetes, COPD) and vulnerable elderly 75% who are willing and

able can take their own measurements by 2019, mostly in combination with remote monitoring by a professional.

3. By 2019 everyone in need of care at home will be able to communicate by video with their care professional remotely 24 hours a day. Also, smart home technology will be used to support home care.

Healthcare in The Netherlands

Flourishing ecosystemGood climate and fertile ground

Health deals

Decision support for oncologyChronic pain managementAcademy The Village “Het Dorp”

Fast track eHealth

Voettekst14Sustainable healthinformation complex

Standards

Unity in language

Trusted authentication

Safe communication

Frameworks

Patient access

Fertile groundNational Health Info Council Registers

Indicators

Purchasing

Monitoring Enforcement

Coreinfrastructure

Good climate

2011: Senate votes NO on law for

National Electronic Patient Record System

National Health Information Council:Whole system in a room

Medicatieproces

Actieprogramma

iWlz

Four outcome goals1. Medication safety: standardized patient verified medication data for

exchange used everywhere by 2019

2. Patient empowerment: patients equal in collaboration with healthcare providers, digital copy of their data to be used in a personal health environment by 2020

3. Exchange: digital exchange of patient data is part of the norm for quality of care, with patient informed consent

4. Registration: point of care is primary source of health data, secondary use for purchasing, research, transparency, quality and governance by 2021

Cross-border exchange

Interoperability standards

- Semantic (SNOMED, LOINC, NANDA)

- Structure (Clinical building blocks, MedMij, PatientSummary, ePrescription, FAIR)

- Communication (FHIR, HL7, IHE, eIDAS)

Digital Health Society (Estonia)

Coalition of the willingdoing

International collaboration

a. eHealth Network

b. CEF NCP eHealth

c. Digital Health Society (Estonia/ECH Alliance)

d. BeNeLux

e. HIMSS Europe 2018

f. Learning from the ONC (USA)

To create sustainablesolutions we need to worktogether.

Thank you

www.informatieberaadzorg.nl

r.roozendaal@minvws.nl

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Agenda

MAIN ROOM

eHealth

10:45 eHealth PolicyRon Roozendaal, Chief Information Officer, Ministry of Health, Welfare & Sport

11:10 Q&A

11:20 eHealth in Practice: Go-FAIR & Personal Health TrainErik Schultes, Dutch Techcentre for Life Sciences

11:40 eHealth in Practice: Privacy & InnovationMichaël Stekkinger, MRDM

12:00 End

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eHealth in Practice:

Go-FAIR & Personal Health Train

Erik Schultes, Dutch Techcentre for Life Sciences

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Agenda

MAIN ROOM

eHealth

10:45 eHealth PolicyRon Roozendaal, Chief Information Officer, Ministry of Health, Welfare & Sport

11:10 Q&A

11:20 eHealth in Practice: Go-FAIR & Personal Health TrainErik Schultes, Dutch Techcentre for Life Sciences

11:40 eHealth in Practice: Privacy & InnovationMichaël Stekkinger, MRDM

12:00 End

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eHealth in Practice:

Privacy & Innovation

Michaël Stekkinger, MRDM

Privacy & Innovation

Friend or Foe?

✤Michaël Stekkinger✤ Chief Privacy & Information Security Officer✤Medical Research Data Management✤m.stekkinger@mrdm.nl

Research Data

Quality Registries

Value Based Healthcare

Decision Support

MRDM

People who underwent a breast reduction surgery were also interested in:

An extra sandwich with chocolate sprinkles

An extra night at the intensive care department

A shot of morfine

Privacy 101

Personal Identifiable Information (PII)

Informational Privacy only concerns PII

Social security number / Name / Patient ID / Date of birth

Direct vs Indirect identifiable

Data controllervs.

Data Processor

Legal basis for gathering data

OECD Guidelines

Collection limitationData qualityPurpose specificationUse limitation

Security safeguardsOpennessIndividual participationAccountability

•Helen Nissenbaum•Professor of Media, Culture, and

Communication & Computer Science•Author of Privacy in Context:

Technology, Policy, and the Integrity of Social Life

•Contextual Integrity Theory

Solutions

EHR WearablesR&D

Experts PatientsSensors

Manage the patients’ information in a portal provided by the healthcare institution.

Using the portals to manage consent, PROMs or provide data upload/download services.

Patient Portals

Status:18-08-2016

• Patient journeys• Watson For Oncology

Big data

Cognitive Decision Support System

PersonalisedInformation

EvidenceBased

MedicalScientificLiterature

Health Deal Collaboration between industry, healthcare sector,

government and patient organisations.

Policy framework for decision support systems

Decision support

Healthcare institutions united in a processing model contract to ensure baseline compliance with GDPR.

Processing model contract

Grey areas

No personal identifiable information = No applicable privacy law

Law does not prevent big data use and regulates only

slightly

8743b52063cd84097a65d1633f5c74f5

Anonymous public transport dataAnonymous cell towers data

Re-identification risk

Anonymous mobility data?

Anonymous public transport dataAnonymous cell towers data

Re-identification risk

All transportation movements via vehicles

Car insurance increases when your address contains a letter

(182a instead of 182)

Take away(1) Governments

Facilitate by guiding innovation & respecting patient privacy.

(2) Industry Lead by example - true innovation breaks boundaries, but adheres to

others. Strike a balance by adding true value.

(3) Healthcare industry Think smart! - Combining data is the way forward.

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Thank you!Let’s have some lunch