Post on 14-Feb-2016
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Day of Research and Engagement for the Community Markham, ILMarch 1, 2014
Aingyea Kellom, MPAProgram Associate, Patient Engagement
Ambassador Program - Introduction
About PCORIpcori.org
Why PCORI?
Research has not answered many questions patients face.People want to know which treatment is right for them.Patients need information they can understand and use.
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“The purpose of the Institute is to assist patients, clinicians, purchasers, and policy-makers in making informed health decisions by advancing the quality and relevance of evidence concerning the manner in which diseases, disorders, and other health conditions can effectively and appropriately be prevented, diagnosed, treated, monitored, and managed through research and evidence synthesis...and the dissemination of research findings with respect to the relative health outcomes, clinical effectiveness, and appropriateness of the medical treatments, services...”
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PCORI Has a Broad and Complex Mandate
-- from Patient Protection and Affordable Care Act
PCORI Is Accountable for Changing Practice
-- from Patient Protection and Affordable Care Act
“(g) FINANCIAL AND GOVERNMENTAL OVERSIGHT. … (2) REVIEW AND ANNUAL REPORTS. … (iv) Not less frequently than every 5 years … the overall effectiveness of activities conducted under this section … such review shall include an analysis of the extent to which research findings are used by health care decision-makers, the effect of the dissemination of such findings on reducing practice variation and disparities in health care…”
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Our Mission
PCORI helps people make informed health care decisions, and improves health care delivery and outcomes, by producing and promoting high integrity, evidence-based information that comes from researchguided by patients,caregivers and the broader health care community.
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PCORI’s Focus on Patient Engagement
Patient-centered Answering questions that matter to patients
and other clinical decision makers Comparisons of outcomes that matter to
patients
Comparative Clinical Effectiveness Research
Strategic Goals
Influence Research Funded by Others
Speed the Implementation and Use of Evidence
Increase Quantity, Quality and Timeliness of Research Information
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Our Work Answers Patients’ Questions
Given my personal characteristics, conditions and preferences…
“What should I expect will
happen to me?”
“What are my options and what are the
potential benefits and
harms of those options?”
“What can I do to improve the outcomes that
are most important to
me?”
“How can clinicians and the
care delivery systems they work
in help me make the best decisions about my health and healthcare?”
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Our National Priorities for Research
Assessment of Prevention, Diagnosis, and Treatment Options Improving Healthcare Systems
Communication & Dissemination Research Addressing Disparities
Accelerating PCOR and Methodological Research
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Our Growing Research Portfolio
pfaawards.pcori.org
Our Growing Research Portfolio (as of January 2014)
Total number of research projects awarded : 279
Total funds awarded: $464.2 million
Number of states where we are funding research: 38 states (plus the District of Columbia and Quebec, Canada)
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Study Design/ ImplementationEvaluation
Topic Selection and
Research Prioritization
Merit Review
We Engage Stakeholders at Every Step
What If I’ve Never Participated in Research Before?
PCORI Ambassador ProgramMerit ReviewEngagement Awards- Pipeline to ProposalsAdvisory PanelsWebinarsPCORI 101
Program Overview
The volunteer initiative that trains, equips, and mobilizes patients, caregivers, organizations and other stakeholders to share PCORI’s vision, mission and PCOR principles with their respective communities, participate as full partners in research and to help assure the sharing and uptake of information generated from PCORI funded projects.
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-Five modules of training focused on PCORI, their role, PCORI funding, and working in research teams
- - Ambassador Toolkit
Provides support material such as talking points, presentation template, PCORI One-pagers, social media guide, glossary of scientific terms, and PCORI’s Patient Engagement
Rubric
- Ambassador Yammer Community: Online
community that encourages the
exchange of best practices in different
communities
- Quarterly Ambassador Newsletter
Important Program Dates
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October 2012 September 2013
October2013
December 2013
March 2014
Program recommende
d by a
Transforming Patient-
Centered Research: Building
Partnerships and
Promising Models
workshop attendee
Inaugural Ambassadors invited to
the join
Program webpage launched and sent invites to
merit reviewers, workgroup,
roundtable, & regional event
attendees
Phase I of Training Live
Module 1: Introduction to PCORI & Module 2:
The Role of the
Ambassador
Phase II of Training Live:
Module 3: Understandin
g PCORI-Funded
Research, Module 4:
How PCORI-Funded
Research Teams Work Together 1 &
Module 5: How PCORI-
Funded Research
Teams Work Together 2
October 2014
June 2014
Annual Convening
Open Program to the Public
PCORI Ambassador Perspective
Benefits of Program:
Receiving PCORI Ambassador communications tools and PCOR science training;
Recognized as a “PCOR Science-Trained Ambassador” on the PCORI Ambassador webpage;
Co-authored publications, submitted guest blogs, or participated in other media opportunities;
Highlighted for work in patient-centered research in PCORI e-newsletters;
Learning of opportunities to serve as PCORI reviewers or participate in working groups and on survey panels; and
Collaborating and serving as a panelist with PCORI or others on events such as webinars, conferences, and panels.
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Ambassador Interest by Region and Ethnicity
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7%
16%
14%
30%
33%
Which of the following is your primary community?
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Program Evaluation
Evaluation of two populations:
Ambassadors• Web Interest Form • Activity Report• Mid- and one-year survey
Organizations that hosted a PCORI Ambassador speaking engagement
• Activity Report Follow-up
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Q & A
Aingyea Kellom, MPA Program Associate, Patient Engagementakellom@pcori.orgPhone: 202.827.7697Cell: 202.603.7453
Thank Your and Please Find Us Online
www.pcori.org
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