A Framework for Arthritis

What is the Arthritis Alliance of Canada?

The Arthritis Alliance of Canada was formed in 2002 with a commitment to improve the lives of Canadians with arthritis.

With 35 member organizations, the Alliance brings together:

Arthritis health care professionals Researchers Funding agencies Governments Voluntary sector agencies Industry Arthritis consumer organizations

Alliance provides a central focus for national arthritis-related initiatives

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BOARD OF DIRECTORSChairMs. Janet YaleCEO, The Arthritis Society

Research RepresentativeDr. Claire Bombardier Co-Scientific Director, Canadian Arthritis NetworkRheumatology Division Director, University of Toronto

Canadian Orthopaedic RepresentativeDr. Eric Bohm Assistant Professor, University of Manitoba

Patient RepresentativeMs. Cheryl KoehnPresident, Arthritis Consumer Experts

Membership RepresentativeMs. Terri Lupton Nurse Clinician, Rheumatology, Calgary Heath Region

Corporate RepresentativeMr. Sean WebsterVice-President of Public Affairs, Shoppers Drug Mart

Canadian Rheumatology Association RepresentativeDr. Michel ZummerHead of Rheumatology, CH Maisonneuve RosemontAssociate Professor, Université de Montréal

AdvisorDr. Dianne Mosher Chief, Division of Rheumatology, Department of Medicine, University of Calgary

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Member OrganizationsArthritis & Autoimmunity Research CentreAlberta Bone & Joint Health Institute Arthritis Community Research & Evaluation Unit Arthritis Consumer Experts Arthritis Health Professions Association Arthritis Research Centre of Canada Arthritis Research FoundationBone and Joint Canada Canadian Arthritis Network Canadian Arthritis Patient Alliance Canadian Academy of Sports & Exercise MedicineCanadian Association of Occupational TherapistsCanadian Chiropractic Association Canadian Obesity NetworkCanadian Orthopaedic Association Canadian Orthopaedic Foundation Canadian Physiotherapy Association Canadian Rheumatology Association

Canadian Spondylitis Association Cochrane Collaboration Consumer Advisory Council of the Canadian Arthritis Network Consumer Advisory Board of the Arthritis Research Centre of Canada Institute for Work and HealthMcCaig Institute for Bone and Joint HealthPatient Partners The Arthritis Society

Government AffiliatesCIHRs Institute of Musculoskeletal Health and Arthritis Public Health Agency of Canada

Member CompaniesAbbott Laboratories Limited Amgen Canada Inc. Hoffmann-La Roche Limited Janssen Inc. Pfizer Canada Inc. UCB Canada Inc.

Arthritis Alliance Membership

*13 new members at launch of National Framework

History

•OA: 2010 – 1 in 8 By 2040 1 in 4•RA: 2010 – 1 in 136 By 2040 1 in 68

Living with arthritis

•$12.6 billion in 2010 for both OA and RA

Direct health care costs

•OA $17.3 billion (1.0% CA GDP in 2010)•RA $3.3 billion (0.2% CA GDP in 2010)

Loss of productivity

CA = CanadaGDP = Gross Domestic Product

Current Burden of Arthritis in Canada

A National Framework for Arthritis

OA and RA cost Canadians $33

B per year

…and will affect >10 mil

Canadians by 2040

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Advancing Knowledge and Awareness

• Objective 1: Raise awareness

• Objective 2: Align and strengthen research

• Objective 3: Enhance professional education

Joint Action on ArthritisThree Pillars to Reach the Vision

Improving Prevention and Care

• Objective 4: Improve prevention

• Objective 5: Improve access to and delivery of care

Supporting Ongoing Stakeholder

Collaboration

• Objective 6: Broaden stakeholder participation in the Alliance

STRATEGIC PILLARS

VISIONImproved knowledge, awareness, prevention and care of arthritis through

collaborative action

1. Advancing Knowledge & Awareness

Objective 1: Raise Awareness of Arthritis Objective 2: Align and Strengthen ResearchObjective 3: Enhance Professional Education

Three Framework Pillars

Making A Difference For Canadians -Offering Hope To Millions

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Working with government and corporate partners to ensure the development and adoption of Models of Care

Continue to raise awareness and understanding of the impact and consequences of arthritis.

Shift focus to prevention, early diagnosis, early intervention to prevent the need for acute care.

Government Outreach

• Targeted Discussions with Health Ministers/Senior Minister Staff in Provinces• Addressing gaps in model development,

implementation and evaluation • Nature of support required to ensure model is

fully operational • Identifying specific issues and opportunities in

provinces

Composition:– AAC spokespeople– MoC spokespeople– Patient spokespeople

•Coordinate/monitor government meetings

Regional Advocacy Teams

Hot Topics

• Evaluation Score Card

• Position papers– First issue: Private Payers– Next issue: Pediatric rheumatology

2013 Inaugural Conference & Research Symposium

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Ottawa -November 21-24

Bringing together close to 200 of Canada’s leading researchers, healthcare practitioners and patients, with a single commitment to advancing innovation and patient care for Canadians with arthritis.

Conference Objectives1. Report on progress of the Framework:

o Awareness and advocacyo Models of careo Research

2. Showcase discoveries and new knowledge that are ready for implementation into the care and prevention of arthritis

3. Raise the profile of the Alliance among governments and key stakeholders

Conference & Research Symposium Program

Thursday, November 21

530pm‐7:00 pm Opening Reception – Welcoming address

Friday, November 22

8:30‐9:00 am Opening Session – Celebrating our Success

9:00-11:15 am Improving the Quality of Care through Innovative Models of Care Delivery

11:30‐1:00 pm Economic Club of Canada Luncheon: Health Care Reform Expert Panel

1:00 -2:30 pm Session #1: Thinking Big in Arthritis Research: Building on success

3:30-4:00 pm Overview of the CIHR SPOR initiative

4:00‐6:00 pm Session #2: Understanding the Opportunities in Osteoarthritis for Patient Oriented Research

6:15‐9:00 pm Reception and Gala Awards Dinner-Honorary Chair, Laureen Harper

Saturday, November 23

8:30‐10:15 am Session #3: Understanding the Opportunities in Inflammatory Arthritis for Patient Oriented Research

10:45‐12:30 pm Session #4: Preparing for an Arthritis SPOR Network

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2. Improving Prevention and Care

Objective 4: Improve Prevention of ArthritisObjective 5: Improve Access to and Delivery of Care

Three Framework Pillars

Evidence-Based Care, Continuous Quality Measurement and Evaluation

Enhanced Integration with Primary Care

Reform

Inter-Disciplinary Models of Care

Early Access to Effective

Therapeutics

Improving Access to and Delivery of Care Models of Care

Models Of Care -Driving Change

Goals & Objectives:

•To Improve MSK outcomes through setting national strategy and standards for MSK Models of Care

•In a way that is collaborative, viable, scalable, helpful and dynamic

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The Plan Collaborating with key stakeholders to develop

a model of care and tool kit for inflammatory arthritis.

Determine strategy to implement models within the provincial health systems across the country.

Ongoing evaluation to ensure model is achieving its expected goals.

Considerations-IA MOC

• Health care is about people and relationships• Addresses patient need from a system approach• Promotes access and quality care• Evidence based throughout care• Terminology is important• Self management• Re entry• Evaluation

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IA Model of Care Document & Tool Kit

• Pan Canadian MOC for patients with IJD

• Care Map

• Took kit- available on the web

• Evaluation of the model

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3. Supporting Ongoing Stakeholder Collaboration

Objective 6: Broaden Stakeholder Participation in the Alliance

Three Framework Pillars

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Thank you.

Arthritis Alliance of Canadac/o 700 University Avenue, 8th Floor, Room 400-06-01, Toronto, ON M5G 1Z5

T: 416-586-4770 • E: jcoish@mtsinai.on.ca • F: 416-586-8395 • www.arthritisalliance.ca